View Full Version : Adult ADHD in the UK


thegreenjudy
07-21-11, 03:43 AM
Hi.

I thought I should open a thread for people with Adult ADHD in the UK. I am not quite sure if there is already one but it would be helpful to have a sticky. Some forum members might have already noticed that getting a diagnosis in the UK is a bit of an adventure because the NHS has only recently started to recognize this condition in adults - hence there are not many specialists and a lot of GP's think they can just dismiss you and often don't deal with people who have the symptoms of ADHD very professionally. There are a few websites that can help adults with ADHD but one of the most important ones is this one:

http://aadduk.org/

On this website you can find a specialist in your area. Please take these details to your GP along with a list of symptoms and ask for a referral. Try to be straight and tell them what you want and don't ask for their opinion otherwise they will just try to get rid of you.

Here is a very good guideline that I also found on this website (http://aadduk.org/faq/)

1. How do I get a referral to an ADHD specialist for an assessment?



Make a 10 minute appointment with your GP and simply say you want a referral to an adult ADHD specialist for an assessment.
Take along the list of symptoms (with the relevant ones circled) which can be found in our library here (http://aadduk.org/symptoms-diagnosis-treatment/symptoms/).
And a copy of the patient’s version of the NICE guidelines which can also be found in our library here (http://aadduk.org/library/leaflets/).
If you feel up to it, you could write under each symptom, a description of how it has affected your life.
Tell your GP that you will ring him in exactly one week’s time to find out how the referral is going.

You will also find a list of support groups in major cities of the UK and a list with links that can help you to deal with common problems (financial guidelines, organization, workplace etc.)

You might be able to find more support groups in your city that are not listed on this website if you go to http://www.meetup.com/.

Just search for a group by typing in "ADHD" and your postcode.

Another very important website is the NICE website by the NHS. This website lists all their policies and guidelines for a lot of conditions. These are guidelines your GP has to stick to!!! The link (also found in the quote) to the ADHD guidelines can be found here:

http://www.nice.org.uk/CG72

The advice in the NICE guideline covers:


the care, treatment and support that children, young people and adults with ADHD should be offered
how families and carers can support people with ADHD.




I am still trying to gather more information for people living in the UK so please bear with me :-)

I hope this helps and it would be great to hear from a few "island-monkeys" (as we call them in Germany :-)) here in this thread to speak of their experience and add a few tipps and tricks.

Don't dispair - the NHS might not be great when it comes to adult ADHD but they are getting better. So if you had a bad experience in the past, you might be surprised how much better it has become. There are more and specialists which means there will be more and more people who can help you. I am still on the waiting list (and they are long!!) and I was told by my GP that because I seem to cope quite well (just because I still got my job and am not divorced), Dr Mason might not be able to give me the support I expect. But 1 year is a long time and maybe he will have more capacity to help me once it is my turn. On top of that we have a support group here in Liverpool I could turn to if push comes to shove.

So please feel free to add your comments here!

poppystar
07-21-11, 05:50 AM
Thanks very much for this info. I am at present waiting for my referral for an assessment (since December). I spoke to my GP about ADD and he looked at me like I had two heads! He said that there is no known medication that can help concentration and tried to fob me off with antidepressants. Oh well, onwards and upwards! I hope GPs will become more informed about ADHD like in America so it becomes easier for patients to get the help they so desperately need.

Spilani
07-21-11, 06:40 AM
Thanks! I live in the UK and have used both private and NHS for treatment and have varied experience with both. My GP is amazing, so maybe its luck of the draw? The website you have given have been really great for information. So useful! Not so useful websites.. adders.. where the information and layout is quite chaotic and the forum was just as chaotic. They really go at each other and seem like quite an angry bunch. Not nice. Glad to find other UK members!

thegreenjudy
07-21-11, 08:44 AM
Thanks! I live in the UK and have used both private and NHS for treatment and have varied experience with both. My GP is amazing, so maybe its luck of the draw? The website you have given have been really great for information. So useful! Not so useful websites.. adders... where the information and layout is quite chaotic and the forum was just as chaotic. They really go at each other and seem like quite an angry bunch. Not nice. Glad to find other UK members!


Oh dear, never tried this one. Will have a look. But yes. I think you are very lucky with your GP. Mine referred me but she was a bit like "don't hold your breath"..I don't care, probably never gonna see her again...but it can put you down a bit..

dsvlil1
07-21-11, 09:07 AM
There's a UK section under the the international referals section in the forum jump, in case you weren't aware.

thegreenjudy
07-21-11, 09:35 AM
There's a UK section under the the international referals section in the forum jump, in case you weren't aware.


I must be blind because I can't find it :-(

I've been looking really hard now...and what is a "forum jump"? (sorry for being thick :-) )

thegreenjudy
07-21-11, 11:44 AM
Ok, dsvlil1 just sent me the link to the UK section...really hard to find I have to admit...

So if you like you can move the thread but it would be great to make the international section more obvious for newbies :-) Here it is:

http://www.addforums.com/forums/forumdisplay.php?f=98

samairakhan917
10-13-17, 06:20 AM
hahaha................

I really like your quote "When life hands you a lemon say, "oh yeah I like lemons, what else you got"

Thanks for posting it.