View Full Version : Make it stop, PLEASE!!


MattAnonymous
11-15-04, 09:47 PM
OK a little background on me first. I am 18 and attend a College in Florida. I am currently using concerta for ADD purposes and the drug was increased by 50% due to a lack of focus and motivation (not good when in college and away from home). Unfortunately, the increased caused trouble sleeping and a shoulder twitching tic that is causing a lot of pain due to its frequency. I was wondering if you guys had any suggestions as to maybe naturally stop the tic.

Thanks a bunch,
Matt

charlie
11-16-04, 12:40 AM
Welcome to the forums Matt,

Sorry don't have any suggestions but wondering if you've spoken to your doc or pharmacist about this symptom?

I'd like to direct your attention to the wonderful search function on the upper right of each page. My favorite is to go to advanced search and click on the show posts button. Here are two threads when I searched 'tics' in the Concerta forum.
http://www.addforums.com/forums/search.php?searchid=58554


Also at the bottom of each page as you scroll past the quick reply field are topics of similar interests that you might be interested in.

Read, research any words, topics, or questions that may interest you, and please POST!

bigbowlindude
12-03-04, 10:16 PM
Hey Charlie, when I hit the link the search comes up empty.
Hi Matt, for me to reduce the tics I find getting a good nights' rest helps, I try to stay away from cold medicine too. Cold medicine really seems to set me off. Did you tell your Dr. about it? Perhaps he could prescribe you something for the tic. I am currently taking clonidine, I don't seem to notice a difference but my girlfriend does. It makes me quite sleep too so perhaps that might help with the sleep. That's all I know..

charlie
12-04-04, 02:49 AM
Sorry BBD,

I'll copy what I've found, took me 3 tries to find the 6 posts in the Concerta forum...don't know why the links go nowhere.

"when I tried to take 54 mgs, it made me start having tics!" {Concerta\Concerta Dosage}*********

"We gave Concerta a try and it turns out that it's just not the med for my son. We started it on Nov 5 and were going to give it ten to fourteen days. The same thing happened on the first day; no sleeping, the tics reappeared and he didn't want to eat. Then on the third day, the tics around his mouth seemed to go away, but I noticed he seemed to always need to be doing something with his hands. He would fiddle with his buttons or pluck at his shirt. He still was not sleeping well or eating much and was much more emotional than usual. I have always considered him a pretty laid back kid. Not much bothers him although he does have the normal temper tantrums associated with ADD/ADHD. As the week went on he seemed to be getting more and more jittery. Almost like a person who has had too much caffeine. I know it wasn't caffeine, because he doesn't have much at all in his diet; hardly any chocolate and no soda at all. Then on Friday the 12th, the school nurse called after lunchtime telling me that my son was in the middle of what she described as a full blown panic attack. Apparently he got yelled at during lunch for something he said was a mistake and he got so upset and was crying so hard that he was having trouble breathing. "

"Concerta is supposed to last 12 hours, but everyone metabolizes at different rates. Insomnia, decreased appetite, and tics (licking lips) are fairly common, more so in children than adults. You may want to consider ritalin LA, that lasts 8 hours, or just plain, old-fashion ritalin which lasts 4 hours.

You also may want to try giving it to him earlier, like at 6 a.m. Hope that helped...."
{Concerta Side Affects and Withdrawl}

Has Anyone Had A Child Develop Tics While On Concerta?

Yes, my son did. His were involuntary mouth movements. Almost like he was saying "EEE, OOO, EEE, OOO." They actually calmed down after a couple days, but it turns out that this is not the med for my boy. He developed some other side effects that got progressively worse such as rapid heart rate, nervousness and muscle twitching. So the doctor told us to discontinue it. This is the first med we've tried, but we're going to hold off for a while before trying another. We're going to see a specialist in Jan.........

Stimulants will sometimes bring out tics. No experience as to if they go away with time - they might. Another stimulant may not necessarily bring them out - Concerta may bring out tics but something like Adderall might not. {Concerta \Help}

Probably not what you were looking for but the last paragraph by Gregster makes the most sense to me.

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sgillesp
12-06-04, 08:10 PM
My son takes Concerta and has tics -- he takes Tenex (generic: Guanfacine). this helps, but does not totally treat, his tics. However, he's taking 72 mg of Concerta. It's possible the Tenex may help for you.

neuroangel
12-25-04, 11:30 PM
I take clonidine at night for sleep too. 0.2 mg clonidine and 3 mg melatonin. I am pretty much unconscious for about three hours, then I am back to waking up every 20 - 30 minutes.

My tics have actually gotten worse, but I've been under boku stress lately too...between financial aid with college, my grandmom dying, and so on, my face won't stop ticing. It's driving me and everyone else up the wall.

Squinting, sticking out my tongue, scrunching my face, squeezing my eyes shut. ugh.

Good luck.

Cyndi

charlie
12-25-04, 11:47 PM
Sorry to read about your grandmom passing Cyndi:(

Hang in there.

Are you taking any meds for tics or waiting this period out?

neuroangel
01-01-05, 05:11 PM
I've considered stopping the ritalin or strattera, until this passes, but then I am afraid I do really bad in school again. I don't take anything for tics.

Cyndi

charlie, I love your avatar :)

charlie
01-01-05, 07:24 PM
Ah ..and neuroAngel I love you woman! Your posts have helped me so much with my son.

Thanks for the avatar appreciation I just really got a kick outta her Angel character in Scrooged.

neuroangel
01-09-05, 02:14 PM
I'm glad someone finds me helpful lol. ;)

I just turned 21 about a week ago, and now I have to pay out of pocket for the ADD meds. I am going to apply to alza and lilly for concerta and strattera, but I may be going without for a little while. Not a good thing...I go back to college tomorow, Jan 10th. Ugh.

How is your son, btw?

Cyndi

charlie
01-09-05, 05:25 PM
Angel-Cyndy,
What kind of crappy insurance policy makes you pay out of pocket when you have a dx?

Son just dx'd with scarlett fever, bummer. Seems medWorks doc should've given us penicillin instead of the Z-whatever drug so his strep throat ramped up to Scarlett fever --eeks whole towns use to die from this stuff.
But got a shot in the butt and he should be good to go in about a week.

Neurologist turned us over to a counselor of some sorts.
But tourettes is now OCD ritual behaviors full-blown which take up alot of his time.

I've a LOT to learn about this but what I'm reading now is that most OCD behaviors is a result of anxiety:(
Which makes me feel like a donkey's butt for trying to bribe/tease & reason him out of these behaviors I was only making him feel worse.

My son has no idea how much help you and Pipau (sp?) have been in helping his life, I truly want you to know you have made a great difference in this boy's life!

I'll share as soon as I learn some positive ways to help him cope with anxiety and controlling Obsessive ritual behaviors-at least when he wants to control them, possibly in school.

neuroangel
01-11-05, 05:43 PM
Charlie,

Your son is in my thoughts. Scarlett Fever...I hope he is feeling better soon. Do you think he could be sad about anything? I know that when I am sad (and I have only recently admitted to being sad), if I cry for a while and then go to sleep, I sleep sounder and tic less. Maybe if he got rid of his tension or sadness, in whatever healthy way you guys can come up with, he'd have more control over his ritualistic behaviors.

Good luck with everything! :)

I don't know what my neuro's office told the insurance company, but they covered it that same day. I have never seen the insurance company respond that quickly, EVER. Last time my doc had to call them for protonix (hiatal hernia & GERD dx) it took them a month to get around to it...strange.

Take care.

Cyndi

charlie
01-11-05, 06:00 PM
Hey Cyndi-Angel!

How was your back to school day?

So glad to hear insurance actually took care of business so quickly, it's about time for things to go your way!

My son is so smart that he's probably keeping a lot of how he feels inside:(
We have such a greater chance of finding him treatment that will help due to finding this forum and your advice!!

I can only imagine how much torture he would have put up with at school before we were finally directed to a neurologist!

Neurologists ROCK!

neuroangel
01-12-05, 10:29 PM
Charlie,

I can get children to talk to me about their feelings sometimes. The trick is, don't ask them how they feel or why they're sad. Tell them a situation, like:

"Sometimes people aren't very nice to me. It really hurts my feelings...what would you do if someone called you a name? "

And then get into the "Why do you think that?" or "Why would you say that instead of...?"

You have to talk to them on their level, to be let in. :)

As for the back to school thing: I got bumped up to a more advanced math class, but I am nervous about this critical reading/writing class. She lectures the entire class period, and I just can't listen for that long! I bought a recorder, and recorded her class today...so I'll have to see how that works out.

Had my concerta upped again, back to 54mg. I am making more sounds again. I'm shaking too, but that might be stress or something. I haven't really been eating much, so I know that could cause me to shake too. No, I'm not anorexic; just haven't felt hungry much.

Talk to you later, take care.

Cyndi

neuroangel
03-01-05, 11:25 PM
Hi Charlie,

How are you and your kids doing? It's been a while. :)

Cyndi

charlie
03-02-05, 05:24 AM
Hi Cyndi!

Well we just had my son privately tested and waiting for therapist to get the results.
Therapist told us that private testing will possibly be more conclusive than what the public schools have access to.
I'm just in such a hurry to DO something!

His teacher let's me write 'for' him, as in math answers but for book reports etc he's been typing at home.

His behavior is soooo ritualistic
just like when he was ticing so much that he was doing it in his sleep
just noticed last night he repeats his verbal rituals in his sleep for goodness sakes!

Walking different, with a drag, toe touch, backs up alot even in the classroom. Teacher asked us to please make him wear his shoes all the way on, as opposed to walking on the heels because he actually kicks them off his feet at the doorway when class is exiting.

This is such a great school that I have this drive to get him more able to disguise his actions
he won't even go to recess anymore just reads a book outside the classroom
won't tell me 'why' except to say it hurts to walk
but in my heart I just feel it's due to being made fun of

Anyway thanks for asking we are doing all the steps we can but will be lucky to get any accomadations this year as it will be end of this month before school tests...what will we have 2 1/2 months of 5th grade left:(

Just all so painful for me, therapy is exhausting. Last time I had to take two days off work after..
I'm on overload, depressed, daughter had knee op, she's been depressed, I owe a psychiatrist I talked into taking her for her appts --X refuses to pay, even though it was a LIFE threatening emergency...losing my job in June, blah blah blah.

I like your avatar...but I cannot see what your angel is holding, is it just her raised hands?
How you holding up with the math class is the recording working out?

neuroangel
03-02-05, 04:58 PM
Charlie,

That is really rough. How are you managing yourself?

The angel is just raising her hands to the sky. Math class is going well. I had one lousy test score, but made up for it on this last exam. This exam counts 1.5 x for whatever reason, and I scored 100% and some extra points too. :) I haven't been recording, because this woman trails off. Just so you get an idea: If I asked her why the grass was green, she'd end up talking about all the insects you find living amongst the grass, about the weather, and everything else that has a little bit to do with the grass; except for the actual question. Sooooooo....

The only other thing going on right now is with my grandpop. He's getting married to a woman in April who he met only 3 weeks after my grandmom's death. So, the family has pretty much fallen apart and I am trying to stay on the sidelines.

Take care of yourself...I know it's hard with so much going on. I've been so busy that I have forgotten why I even feel the way I do. So, give yourself some time, just for you--if that's possible. :)

Cyndi

charlie
03-02-05, 05:22 PM
..This exam counts 1.5 x for whatever reason, and I scored 100% and some extra points too. :) The only other thing going on right now is with my grandpop. He's getting married to a woman in April who he met only 3 weeks after my grandmom's death. So, the family has pretty much fallen apart and I am trying to stay on the sidelines.

Take care of yourself...I know it's hard with so much going on. I've been so busy that I have forgotten why I even feel the way I do. So, give yourself some time, just for you--if that's possible. :)

Cyndi
Cyndi-Angel,
Thanks so much
Just reading GREAT news feels sooo good
Tough college math course and you scored 100% as in PERFECT!!!
Dang woman I'm bowing to your knowledge!!!

Getting distracted by other's news is a great way to break the bah humbugs

ok to get a giggle see this link
http://www.lachkatze.de/ (http://www.lachkatze.de/)
gets annoying after a few seconds though

***I know this is hijacking a thread but author only posted once
So Matt if you're out there post again I'd really like to read what's been happening with you since your first post!

TenseShoulder
03-08-05, 02:47 PM
Is it a shoulder tic or a semi volountary repetative movement like I have.
I can stop it if I hold still and force myself but I get some strange satisfaction out of tensing and releasing. Sometimes I will tense it so much that the tendons pop.
Sometimes by the end of the day I am completely sore and exhausted.