View Full Version : 8 yr. old ADHD and High Functioning Aspergers


cindymus
11-24-12, 07:37 PM
Hello all,

New to group, and was so happy to find this---I was hoping that some, or many, of you could help me with some advice or direction. My son has responded horribly to all of the stimulant ADHD medications with moderate to severe tics. At this point, he can not swallow a pill. His main symptoms that need help are impulsivity, attention, and focus. The last one we tried was the Daytrana patch and within 3 days his eye blinking tics were so fast and uncontrollable that the anxiety that was caused was not worth it. He has been off medication for 7 days and he truly can not do well in school without it, and his Asperger symptoms are so much worse too-SIGH, and SIGH, and some tears....He is also on Zoloft for his anxiety. We even got a second opinion from another child psychiatrist--Not sure where to go, what to do next, deal with the horrible tics, (do not think I can bear to watch him experience this and feel so out of control though), or fly somewhere with him to one of THE doctors who specialize in this area---not many doctors to choose from in Austin, TX---ANY advice would be greatly appreciated! :):)

SquarePeg
11-24-12, 07:44 PM
Hi, Im sorry your son is suffering so much. I hope you can get some good advice here.

known_guy
11-26-12, 08:42 PM
Since I only have experience as an adult I'm not sure how my experience can help with your son's difficulties, but especially if he cannot swallow a pill, have you or your doctor ever considered trying a Clonidine patch? Clonidine is similar to Guanfacine (Intuniv); is prescribed in IR form as Catapres or ER form as Kapvay (I think). Can't remember what the name for the patch form is though...

I've tried Catapres and Tenex (Guanfacine IR, so like Intuniv). I have AD(H)D and am a "high-functioning Aspie", if that helps any. Because I had negative experience(s) with medication at a young age (phenobarbital for seizures, as an infant) my mother had tremendous difficulties administering medications as I was growing up. Apparently I hated taking them so much I'd spit them out. I got myself to take tablets in my later teen years.

tudorose
11-27-12, 06:45 AM
My son is HFA and ADHD. We've had him on Toffranil and dex since he was 8. He's now 18 and still on them and doing well. He tried to go off the Toffranil last year but ended up getting chest pains from the anxiety so he decided to go back on them.

ampakine
02-01-13, 03:00 PM
My psychiatrist told me that 70% of normal ADHD patients respond well to ADHD meds, but only 20% of people with autism respond to them. I was diagnosed with high functioning autism too. Has your son tried gabapentin in conjunction with the dexedrine? Gabapentin helps with anxiety too but its not something that you should take for years because withdrawals are quite severe. I advise you to reconsider the zoloft. Its fine now but when you've been on SSRIs for years, it is extremely difficult to get off them. Maybe there are alternative methods for helping him function. Maybe hypnosis and/or cognitive behaviour therapy can help him with his anxiety. I'm 27 and in my recent years I started experimenting with sedatives and antidepressants and I learned that they are not something to be taken lightly, they are fine in moderation but if you take them every day for years, you become dependant on them and getting off them isn't so easy. Benzos seem to be the worst of the worst but gabapentin/pregabalin, SSRIs, TCAs and various other classes of drugs have serious withdrawal symptoms too.

My son is HFA and ADHD. We've had him on Toffranil and dex since he was 8. He's now 18 and still on them and doing well. He tried to go off the Toffranil last year but ended up getting chest pains from the anxiety so he decided to go back on them.
If your son wants to get off a tricyclic antidepressant after being on it for 10 years, he has to do it VERY SLOWLY. He needs a really slow taper plan because withdrawals from antidepressants like that can be really severe. Dexedrine should be no problem getting off.

Lunacie
02-01-13, 03:59 PM
Some meds come in liquid form, some come in patches, some are tiny

pellets that can be mixed with food.

I've seen posts by parents who had success by letting their child practice

by swallowing M&M candies.



Unfortunately it really is a case of trial and error to find a medication that

helps with few or no unwanted side effects.



Lowering the dose of stimulant meds may alleviate the tics.

The tics may go away once the child adjusts to the medication.



Does your child have an IEP for school?

My granddaughter is diagnosed with PDD-NOS

and has had an IEP since she was 5. She is now 11.

Only one teacher in all those years understood how to work with her.

When the latest teacher would not work with the disctrict autism specialist

we asked to transfer her to a different school.

Things were very rocky there too, but when the autism specialist came in

and made suggestions, they were very willing to give try them and it's helped.

Piper30
08-20-13, 02:51 PM
Hello all,

New to group, and was so happy to find this---I was hoping that some, or many, of you could help me with some advice or direction. My son has responded horribly to all of the stimulant ADHD medications with moderate to severe tics. At this point, he can not swallow a pill. His main symptoms that need help are impulsivity, attention, and focus. The last one we tried was the Daytrana patch and within 3 days his eye blinking tics were so fast and uncontrollable that the anxiety that was caused was not worth it. He has been off medication for 7 days and he truly can not do well in school without it, and his Asperger symptoms are so much worse too-SIGH, and SIGH, and some tears....He is also on Zoloft for his anxiety. We even got a second opinion from another child psychiatrist--Not sure where to go, what to do next, deal with the horrible tics, (do not think I can bear to watch him experience this and feel so out of control though), or fly somewhere with him to one of THE doctors who specialize in this area---not many doctors to choose from in Austin, TX---ANY advice would be greatly appreciated! :):)



Would you travel to San Antonio? Have you tried the clinic here ? ? We have a few really good docs here. We have several not good docs but we do have some good ones. I can send you the info for them if you like ... good luck and :grouphug: