View Full Version : Do I have chronic fatigue?


dasikins
02-07-13, 02:37 PM
Ugh, my sleep study came back 'normal' along with seven other 'specialist' diagnosis. Things you would look for as a root cause for fatigue.

I currently do not have a job because I fall asleep in meetings or have to go out for lunch to take a nap in my car. My last job I feel asleep under my desk because I could NOT move or keep my eyes open. I can't go out without feeling exhausted. I am more tired around 2 pm, always, and need a daily nap. I feel wiped out after everything.

I was also recently diagnosed with ADD and have struggled with depression for a long time. Who knows if my depression is caused by ADD or vice versa.

I don't have any pain associated with fibromyalgia, but am seeing a rheumatologist just to double check any auto immune.

Should I get another sleep study done? Any thoughts? It seems like narcolepsy mimics some attributes of CFS.

Phoenix Ash
02-07-13, 04:24 PM
I spent years struggling with fatigue, falling asleep at work, while driving, etc. Turned out to be a simple iron deficiency. Have you been tested for anemia? What else has been ruled out?

I also have fewer post-lunch crashes if I eat healthier meals. More protein, fewer carbs.

dasikins
02-07-13, 04:49 PM
Yep-all the major stuff one looks at are all ok. I even had a lymph-node removed due to family history thinking maybe just maybe. But alas nothing!

Oh I do P90x, run, and eat mainly a higher protein diet. Those definitely do help, but not enough for someone with whatever condition I have :(

I mean some people don't even think CFS exists! Ugh what does one do if that is all that is left-shoot stupid genes...

SquarePeg
02-07-13, 05:02 PM
I had cfs but undiagnosed for 7 years. I donīt know about nowadays but there were no tests for it when I was younger. Doc said every test I had came out normal, and I couldnīt have been healthier. He said it was all in my mind, there was nothing wrong.

I was so desperate, I tried everything going, acupncture, chinese, reflexology, stuff that I canīt even remember the name of, pills made from monkey adrenal glands (they were good actually). I even had 4 teeth out because some quack told me to.

So I hope more is known now and I think you should ask a doc about this.

dasikins
02-07-13, 09:57 PM
lol-yep that is me! I am contemplating some crazy things for some reprieve lol. Unfortunately there is limited research on CFS.

SquarePeg how do you deal with CFS? I have been in and out of engineering jobs for seven years. Before I reenter the work force I need to be able to deal with the fatigue. Has anything helped you? Did you tell your employer? How did they deal with it?

SquarePeg
02-08-13, 03:43 AM
lol-yep that is me! I am contemplating some crazy things for some reprieve lol. Unfortunately there is limited research on CFS.

SquarePeg how do you deal with CFS? I have been in and out of engineering jobs for seven years. Before I reenter the work force I need to be able to deal with the fatigue. Has anything helped you? Did you tell your employer? How did they deal with it?
I wasnīt falling asleep on the job but felt continually exhausted but not so sleepy. And sleep didnīt help much anyway. I also had terrible nausea almost all the time.
I only started recovering when I accepted that I was ill (despite the docs saying I wasnīt) and stopped exercising and really looking after myself. (the graduated exercise they always recommend was a definate no no) I stopped working extra hours. Once I accepted that I was ill I could see the pattern, i.e work 2 hour late then 2 days later, crash I would be so ill.

At once stage I thought I must have cancer or something because I felt so very ill, I would go to bed and think that I may die in my sleep and I actually didnīt even care because the thought of waking up and feeling so bad was awful.

Then very gradually, the severity and duration gradually lessened, so from being ill everyday it gradually dwindled to 5 days, then a couple of days per week. I still have to pace myself carefully (20 years later).

I didnīt say anything to my boss, whatīs to say, I had no diagnosis. I used to arrive at work and if he wasnīt there I would just lay my head on my desk for half an hour. Just getting up and ready for work felt like a marathon.

Iīm sure more is known now so I would push for some help and I hope you get it.

dasikins
02-08-13, 09:49 AM
Wow, that is exactly how I feel now except I can't keep myself awake. It's not like that every second, but daily. I would pinch myself as hard as I could at work trying to stay awake. Even on the weekends when I am at home I feel like I could just go right back to bed.

You hit the nail on the head. We are ill. It feels like I am missing an essential vitamin or mineral, where it takes all of your energy to even raise your arm to grab something.

As I mentioned before I had a biopsy for some lymph-nodes removed (strong family history of lymphoma) and I was actually depressed knowing I didn't have it! At least it would explain my symptoms lol

If I learn learn anything I will keep you posted!

The Letter N
04-15-13, 03:31 PM
I, too, wonder if I have CFS. Like everyone else, I'm tired all the time. I've only had one or two episodes that I can remember where I've fallen asleep in class or at work and I can usually keep my head up more than non-CFS people (if I have CFS).

Something else I've noticed is that I get really light-headed frequently. It usually worsens after exercise--and even hours after exercise. I also don't gain energy from exercised even though I've been regularly exercising for over two years (I started getting into exercise after I was promised within a couple of months I'd love it and have more energy).

On top of that, during exercise I have the strong desire to lie down right where I am and fall asleep...just for a few minutes (of course, I don't actually do it, but when I lie on the ground for stuff like sit-ups, I get pretty close). The desire is there when I'm not exercising, too, but it's more intense with physical exertion.

I think I also have low blood pressure. I don't donate blood anymore because I started to feel light-headed after it. I even remember my last blood-giving episode, the nurse was surprised how quickly the bag was filling up (later when I was close to passing out I think that pretty much explained why).

Like everyone else I had blood tests done...several times and all came back normal. I do have asthma and my inhaler helps somewhat but the fatigue and light-headedness is still there.

I also feel cold all the time. In order to feel comfortable I need to feel like I'm in a sauna. When I was in school and someone would come into my dorm they'd always be surprised how toasty it was.

And then there's sweating. Whenever I do sweat, I sweat profusely and it doesn't take very much exertion. I could just be taking a pleasant walk at a normal pace and come back with sweat dripping down my face (keep in mind I do regularly exercise).

However, a lot of the symptoms of CFS I do not have: a sore throat that is frequent or recurring; tender cervical or axillary lymph nodes; headaches of a new type, pattern, or severity (at least, no more than the average person); multi-joint pain without swelling or redness (again, no more than the average person--same with muscle pain);

I'm starting to get really frustrated. I sometimes annoy people ("Why don't you get up and clean? It's eleven o'clock already!"). Any thoughts?

Piper30
04-16-13, 07:04 AM
I, too, wonder if I have CFS. Like everyone else, I'm tired all the time. I've only had one or two episodes that I can remember where I've fallen asleep in class or at work and I can usually keep my head up more than non-CFS people (if I have CFS).

Something else I've noticed is that I get really light-headed frequently. It usually worsens after exercise--and even hours after exercise. I also don't gain energy from exercised even though I've been regularly exercising for over two years (I started getting into exercise after I was promised within a couple of months I'd love it and have more energy).

On top of that, during exercise I have the strong desire to lie down right where I am and fall asleep...just for a few minutes (of course, I don't actually do it, but when I lie on the ground for stuff like sit-ups, I get pretty close). The desire is there when I'm not exercising, too, but it's more intense with physical exertion.

I think I also have low blood pressure. I don't donate blood anymore because I started to feel light-headed after it. I even remember my last blood-giving episode, the nurse was surprised how quickly the bag was filling up (later when I was close to passing out I think that pretty much explained why).

Like everyone else I had blood tests done...several times and all came back normal. I do have asthma and my inhaler helps somewhat but the fatigue and light-headedness is still there.

I also feel cold all the time. In order to feel comfortable I need to feel like I'm in a sauna. When I was in school and someone would come into my dorm they'd always be surprised how toasty it was.

And then there's sweating. Whenever I do sweat, I sweat profusely and it doesn't take very much exertion. I could just be taking a pleasant walk at a normal pace and come back with sweat dripping down my face (keep in mind I do regularly exercise).

However, a lot of the symptoms of CFS I do not have: a sore throat that is frequent or recurring; tender cervical or axillary lymph nodes; headaches of a new type, pattern, or severity (at least, no more than the average person); multi-joint pain without swelling or redness (again, no more than the average person--same with muscle pain);

I'm starting to get really frustrated. I sometimes annoy people ("Why don't you get up and clean? It's eleven o'clock already!"). Any thoughts?



Do you get light headed going from seated position to standing?

The Letter N
07-13-13, 01:34 PM
Yes, it only happens when I stand up.

Sigh... :(

Any other ideas why I'm tired all the time?

I already tried dealing with my mild sleep apnoea but it didn't help much (even after the magical 6-month mark everyone talked about).

equilibrium
07-18-13, 03:41 PM
My Dr suggested Narcolepsy for my extreme grogginess , fatigue, etc in the daytime. He said that it's under diagnosed and misdiagnosed often as something else. Look into it and see if it sounds like what you have?

The Letter N
07-20-13, 04:05 PM
Yes, I was tested for narcolepsy...and sleep apnoea. I tried a CPAP for my mild apnea for about six months. it didn't seem to help much so I stopped. I even took some meds for narc patients: some sort of protein that narcs are lacking (I forget the name). The only thing it did was give me was flu-like symptoms for a few days.
I quit coffee for a few weeks but may get back on because coffee at least allows me to function like half a human being for about an hour.

Slang Tang
07-21-13, 12:24 AM
I am more tired around 2 pm, always, and need a daily nap. I feel wiped out after everything.

You just described me to a T. My doctor once suggested narcolepsy (Excessive Daytime Sleepiness is a symptom), but I never followed up w/ a sleep study. He gave me a bottle of Provigil and sent me on my way. Just yesterday my new gyno mentioned CFS as I was walking out the door. Never once did I mention being tired or fatigued, although I always am. My white blood cell count is always really high...

I'd look into sleep disorders if I were you. Take notes of when your fatigue is worst, such as around your period or after a big meal. This can give clues as to what the problem may be. IMO, chronic fatigue should be a LAST resort diagnosis after other things are ruled out. It's just a bunch of symptoms with no real treatment and no known cause. Definitely a possibility though.

matk_23
10-30-13, 01:49 AM
I have the same exact issues you are having. Are you on any medication? I fall asleep during the day all the time. Sometimes I will sleep excessively. There have been times where I sleep for 32 hours straight. I wake up a few times to go to the bathroom but I'm so out of it I just lay down and fall back asleep.

sarahsweets
10-30-13, 06:13 AM
I still think getting that a thyroid check may be in order

silivrentoliel
10-30-13, 09:38 AM
I know this is a bit older, but I've wondered for years if I had CFS. I need to call my doctor (PCP) about a sleep study for more issues than continuous exhaustion, but I can't ever remember to actually call.

As Sarah said, testing your thyroid is always a good place to start, unless you're like me and everything always comes back "perfect" yet you *know* something isn't right.

sarahsweets
10-30-13, 11:04 AM
The les actibe I was the moew was fatugue-and overweight.