View Full Version : Anybody here with ADHD & Migraines,Parkinson's, Essential tremor,etc


Hyperman87
05-16-13, 05:53 PM
I'm wondering if a lot of other people here have ADHD & other neurological diseases/or disorders(.e.g. Migraine,Epilepsy, Multiple Sclerosis, Parkinson's disease,Essential Tremor, Autism, Tourette's syndrome.etc)



As I have been recently diagnosed with both Migraine & Essential tremor by my neurologist. The Migraines actually go back as far as childhood(I'd get them daily as a little boy. I'd associated them with the drug Ritalin & came to despise the medication for it. I realize now(in hindsight) it was most likely not the medication alone, but the stress of class, being bullied, punished,etc that triggered them. They started up again not long after the early symptoms of Polyneuropathy began for me in April of 2011 well before I restarted any ADHD medication or any prescription drug( I only take medication as prescribed & don't do rec drugs of any kind) for that matter.That same month I got a tremor in my left hand & arm but didn't realize it was important until my GP noticed it in February 2012.Eventually I was dx with idiopathic polyneuropathy & Essential tremor.


Essential tremor(I was diagnosed last month) is a degenerative neurological disease of the central nervous system(similar to Parkinson's disease,right down to the surgical treatments.) but without the majority of that illness's other motor features(such as slowness of movement, bradykinesia, & freezing). Also ET unlike PD doesn't usually respond to levodopa or dopamine agonists & is often genetic in origin.

Idiopathic Polyneuropathy is an often progressive or degenerative disease of the peripheral nervous system(similar to multiple sclerosis with no CNS involvement). It's effects are far reaching & attack things like the muscles, blood pressure, heart rate, breathing, digestive system, & so on.

Good news is my eye sights fine my eye doctor says no glaucoma.

Lunacie
05-16-13, 07:14 PM
ADHD-C here, inherited Migraine disorder from my dad, may have Autism at
some level as well.

My early Migraines were in the form of visual disturbance (Alice in Wonder-
land syndrome). It was only after reading a book about migraine disorder a
couple of years ago that I realized that's one form of Migraine. I also get
Gut Migraines at times which I didn't associate with the migraine disorder
either. Mine are generally triggered by weather changes.

Rather than visual auras, I have olfactory auras, smelling things that aren't
there. My daughter inherited this as well.

My son-in-law isn't diagnosed but we believe he has ADHD, and developed
Parkinson's at age 40. He's been in some trials for Parkinson's treatment
over the last 11 years, and the meds control the tremors and such pretty well.

Hyperman87
05-16-13, 07:19 PM
ADHD-C here, inherited Migraine disorder from my dad, may have Autism at
some level as well.

My early Migraines were in the form of visual disturbance (Alice in Wonder-
land syndrome). It was only after reading a book about migraine disorder a
couple of years ago that I realized that's one form of Migraine. I also get
Gut Migraines at times which I didn't associate with the migraine disorder
either. Mine are generally triggered by weather changes.

Rather than visual auras, I have olfactory auras, smelling things that aren't
there. My daughter inherited this as well.

My son-in-law isn't diagnosed but we believe he has ADHD, and developed
Parkinson's at age 40. He's been in some trials for Parkinson's treatment
over the last 11 years, and the meds control the tremors and such pretty well.


I have visual auras myself with Migraines & autonomic dysfunction associated with ether Neuropathy or Essential tremor(possible Parkinson's disease) my neurologist was about to place me on a dopaminergic agent in January but he decided it was best not to.

Blanched Dubois
05-16-13, 07:29 PM
I can honestly say that if I suffered from the migraines etc - the migraines alone would be enough for me to turn into a junkie, i'd want demerol and some good add med and i'd accept prayer for healing + laughing yoga + Ho'oponopono and the knowledge that there is no 'cure' or 'end' to any 'struggle' cus it's the struggle itself you find again and again if yer lookin outside yerself for anything real and meaningfully life changing- it's only gonna really come from you ....at some time....if you want it bad enough...if u strive for honesty - like the big kahuna dialogue i post on my signature lol i really love this premise and have always been true to my sun sign Aries...i'm a soldier for the GOOD FIGHT - i've had very interesting dreams ( not too many but the few 'big' ones are doozies) that has convinced me that yep...this is all worth it...a story is shaping...having come full circle...anyway i'm still learning obviously...but i been chippin' away at my own particular quest for as long as i can remember - or when i can remember...meh.
so who's moderating the moderator

Blanched Dubois
05-16-13, 07:43 PM
I have visual auras myself with Migraines & autonomic dysfunction associated with ether Neuropathy or Essential tremor(possible Parkinson's disease) my neurologist was about to place me on a dopaminergic agent in January but he decided it was best not to.

seriously:grouphug::grouphug::grouphug::grouphug:: grouphug::grouphug:

i'm a wimpering baby with migraine pain...could not get off a couch to walk a dog - excruciating - hope yours is not as awful as that or as often:grouphug:

pellen
05-16-13, 09:09 PM
My father has Parkinson's and most likely has ADHD, as well. (That's where I got it from. ADHD and stubby legs - THANKS DAD!!) I was wondering about possible links, too.

Hyperman87
05-16-13, 09:57 PM
My Grandfather might have had Essential Tremor(However,he was an incredibly severe alcoholic.)I don't drink at all. My mother told me his left hand would shake like mine but everyone always thought it was the DT's from withdrawal. His(My Grandfather's) sister had Alzheimer's disease, My mom's cousin Migraines, I have ADHD, so does my father, My half-Sister(Mom Only) has symptoms of ADHD. Two of her children have been dx with it. Mom's Grandmother had Multiple Sclerosis. Numerous relatives on my dad's side have Epilepsy or Autism.

Hyperman87
05-16-13, 10:05 PM
My father has Parkinson's and most likely has ADHD, as well. (That's where I got it from. ADHD and stubby legs - THANKS DAD!!) I was wondering about possible links, too.

In my heart I know it's mostly likely Parkinson's disease & when I mentioned it as a possible diagnosis.My Neurologist said yeah, it could be,I would start you on one of the dopamine agonist(s)(.e.g. Sinemet, levodopa, mirapex, requip.) But he told me you don't have signs of cogwheel rigidity.

anagram
05-16-13, 11:50 PM
Well... where do I even start... :D

I had bad esotropia (cross-eyed squint) when I was little. It was almost fully corrected with surgery at 7, but it seems to be gradually returning since I first took an SSRI three years ago (I'm 28 now; had to start wearing glasses again). I'm pretty sure I have some form of autism (more about it in [my introduction] (http://www.addforums.com/forums/showpost.php?p=1481526&postcount=1)). I have extreme 'delayed sleep phase disorder' (clearly inherited from my father). I have episodes of dissociation and random mental confusion which my neurologist says "seem to be of a migrainous nature" (I've never had serious headaches, though). I have permanent 'visual snow' and permanent tinnitus (in other words: visual and auditory "noise", both of which I have always had). I also have autoimmune thyroiditis inherited from my mother (not directly a neurological thing, but related anyway).

I am (semi-formally) diagnosed with ADHD-C. Everything seems to indicate that the diagnosis makes sense (as opposed to clearly bogus diagnoses that I received later, including schizophrenia). I am currently in the process of seeking specific treatment for ADHD. I apparently inherited the mild autism along with inattentive ADHD from my father, and a level of mood instability (and possibly the hyperactivity) from my mother. I have an uncle (father's brother) diagnosed with unspecified schizophrenia, but I have arrived at the conclusion that this "schizophrenia" of his can only be an outdated interpretation of a form of autism (he also has mild mental retardation).

So, recapping...

- [Esotropia] (http://en.wikipedia.org/wiki/Esotropia)
- [PDD-NOS] (http://en.wikipedia.org/wiki/PDD-NOS)
- [DSPD] (http://en.wikipedia.org/wiki/DSPD)
- [ADHD-C] (http://en.wikipedia.org/wiki/Attention_deficit_hyperactivity_disorder)
- [Episodes] (http://en.wikipedia.org/wiki/Silent_migraine) of [dissociation] (http://en.wikipedia.org/wiki/Dissociation_(neuropsychology))
- [Visual snow] (http://en.wikipedia.org/wiki/Visual_snow) + [tinnitus] (http://en.wikipedia.org/wiki/Tinnitus#Subjective_tinnitus) = [PAWOI] (http://en.wikipedia.org/wiki/Persistent_aura_without_infarction)
- [Mood instability] (http://en.wikipedia.org/wiki/Mood_swing)
- [Hashimoto's thyroiditis] (http://en.wikipedia.org/wiki/Hashimoto%27s_Thyroiditis)

fracturedstory
05-17-13, 12:52 AM
Autism, migraine, epilepsy (think it's secondary generalised or TLE or both) and possibly bipolar disorder.

fperkins33
05-17-13, 05:02 AM
Well... where do I even start... :D

I had bad esotropia (cross-eyed squint) when I was little. It was almost fully corrected with surgery at 7, but it seems to be gradually returning since I first took an SSRI three years ago (I'm 28 now; had to start wearing glasses again). I'm pretty sure I have some form of autism (more about it in [my introduction] (http://www.addforums.com/forums/showpost.php?p=1481526&postcount=1)). I have extreme 'delayed sleep phase disorder' (clearly inherited from my father). I have episodes of dissociation and random mental confusion which my neurologist says "seem to be of a migrainous nature" (I've never had serious headaches, though). I have permanent 'visual snow' and permanent tinnitus (in other words: visual and auditory "noise", both of which I have always had). I also have autoimmune thyroiditis inherited from my mother (not directly a neurological thing, but related anyway).

I am (semi-formally) diagnosed with ADHD-C. Everything seems to indicate that the diagnosis makes sense (as opposed to clearly bogus diagnoses that I received later, including schizophrenia). I am currently in the process of seeking specific treatment for ADHD. I apparently inherited the mild autism along with inattentive ADHD from my father, and a level of mood instability (and possibly the hyperactivity) from my mother. I have an uncle (father's brother) diagnosed with unspecified schizophrenia, but I have arrived at the conclusion that this "schizophrenia" of his can only be an outdated interpretation of a form of autism (he also has mild mental retardation).

So, recapping...

- [Esotropia] (http://en.wikipedia.org/wiki/Esotropia)
- [PDD-NOS] (http://en.wikipedia.org/wiki/PDD-NOS)
- [DSPD] (http://en.wikipedia.org/wiki/DSPD)
- [ADHD-C] (http://en.wikipedia.org/wiki/Attention_deficit_hyperactivity_disorder)
- [Episodes] (http://en.wikipedia.org/wiki/Silent_migraine) of [dissociation] (http://en.wikipedia.org/wiki/Dissociation_(neuropsychology))
- [Visual snow] (http://en.wikipedia.org/wiki/Visual_snow) + [tinnitus] (http://en.wikipedia.org/wiki/Tinnitus#Subjective_tinnitus) = [PAWOI] (http://en.wikipedia.org/wiki/Persistent_aura_without_infarction)
- [Mood instability] (http://en.wikipedia.org/wiki/Mood_swing)
- [Hashimoto's thyroiditis] (http://en.wikipedia.org/wiki/Hashimoto%27s_Thyroiditis)

Yes, but did you enjoy the play, Mrs. Lincoln?

Sorry, maybe lack of sleep is not a place from which to post. But just, wow.

anagram
05-17-13, 05:28 AM
Yes, but did you enjoy the play, Mrs. Lincoln?

Sorry, maybe lack of sleep is not a place from which to post. But just, wow.


May sound like an endless number of conditions, but it's more of a lack of a word to convey the sum of it. I see it all as a single syndrome, even if I am the only person in the world who has it (maybe I am, maybe I'm not).

daveddd
05-17-13, 05:51 AM
ive mentioned fragile x a few times lately, i dont have tunnel vision about it though

the presentation is usually ADHDc social anxiety, autistic behaviors

but it also is known to present with a tremor/ataxia syndrome later in life

http://www.ncbi.nlm.nih.gov/pubmed/23439567
http://www.ncbi.nlm.nih.gov/pubmed/15330685

daveddd
05-17-13, 06:00 AM
and migraines
http://www.ncbi.nlm.nih.gov/pubmed/23373759

Raye
05-17-13, 06:05 AM
ADHD and diagnosed with chronic migraines.

anagram
05-17-13, 06:53 AM
ive mentioned fragile x a few times lately, i dont have tunnel vision about it though

the presentation is usually ADHDc social anxiety, autistic behaviors
Is it always associated with general cognitive deficits? (In more simplistic quantitative terms: does it necessarily imply "below-average IQ"?) Or do partial mutations manifest more randomly instead of simply milder?

daveddd
05-17-13, 07:03 AM
there are more studies on mentally retarded patients (and sometimes its just one family member)

because there is more reason to test them for genetic diseases


but the premutation is far more prevelant (like 1% instead of .01% of the population) and IQ can range from disabled to genius

daveddd
05-17-13, 07:08 AM
ADHDc social anxiety, autistic traits are the presentation in normal IQ range




ear infections (tissue connectivity issues) are very high in the children as well

specifically otitis media

Hyperman87
05-17-13, 07:21 AM
Yep, chronic history of childhood ear infections(right here) At one point aged 12 I was rushed to the ER because of one of em':)

anagram
05-17-13, 07:25 AM
there are more studies on mentally retarded patients (and sometimes its just one family member)

because there is more reason to test them for genetic diseases


but the premutation is far more prevelant (like 1% instead of .01% of the population) and IQ can range from disabled to genius
Hm, interesting. I think I had read about the full mutation before, but the description that I read of what was 'typical' of it was so extreme that even my uncle was nowhere near that level of impairment. I think I hadn't read anything at all about the expression of premutations.

I remember I did have episodes of nearly unbearable ear pain when I was a kid, but since I was never taken to a doctor for it, I don't know if it was to a normal level or with a normal frequency (I can't remember how many times it happened; it may have been a dozen times or it may have been just a couple of times, I don't know). Although I do know that my uncle still has frequent ear infections. My family attributes it to poor hygiene, but I guess maybe it's not. One thing he definitely doesn't have is low muscle tone. He's actually very strong, and often breaks things accidentally because of it (he's 63; no sign of deterioration so far).

daveddd
05-17-13, 08:38 AM
I'm working now but I'll post some good stuff about permutation after work

Hyperman87
05-17-13, 09:04 AM
Hm, interesting. I think I had read about the full mutation before, but the description that I read of what was 'typical' of it was so extreme that even my uncle was nowhere near that level of impairment. I think I hadn't read anything at all about the expression of premutations.

I remember I did have episodes of nearly unbearable ear pain when I was a kid, but since I was never taken to a doctor for it, I don't know if it was to a normal level or with a normal frequency (I can't remember how many times it happened; it may have been a dozen times or it may have been just a couple of times, I don't know). Although I do know that my uncle still has frequent ear infections. My family attributes it to poor hygiene, but I guess maybe it's not. One thing he definitely doesn't have is low muscle tone. He's actually very strong, and often breaks things accidentally because of it (he's 63; no sign of deterioration so far).


I had horrible recurrent ear infections from the ages of 5 to 12 years old, history of bed wetting as child( Strong ADHD indicator) & horrendous motor skills dx with Developmental coordination disorder(A.K.A Dyspraxia) along with ADHD in 1995 aged 7 1/2.

daveddd
05-17-13, 09:10 AM
Im 98 % that's my issue. I even do the thumb biting

I have dyspraxia but only fine motor skills. But no low muscle tone

I'm very strong as well

anagram
05-17-13, 09:43 AM
I had horrible recurrent ear infections from the ages of 5 to 12 years old, history of bed wetting as child( Strong ADHD indicator) & horrendous motor skills dx with Developmental coordination disorder(A.K.A Dyspraxia) along with ADHD in 1995 aged 7 1/2.
Despite the quantity of my symptoms, I don't think my neurological condition was ever as severe as yours (although I guess both of our syndromes could still be related to fragile-X mutation). My most significant impairments, although pervasive, are more subtle. I believe they are in large part the result of dysfunctional parenting (worsened by lack of understanding or tolerance for my "neuro-differences") and ADHD masked for too long by paradoxically high cognitive ability. Except for the hypothiroidism, which probably did have a significant negative impact (I can try to guess when it started, but I'll never know), and could have been "catastrophic" if left untreated (but is supposedly 100% under control).

daveddd
05-17-13, 10:08 AM
Anagram are you referring to high iq when u say high cognitive

I was given a wasted 136 iq that masked a lot in grade school

But is worthless because of all this crap I have

daveddd
05-17-13, 10:45 AM
Weird I just got an email from one the the journals I'm subscribed too

Title. New updates on fragile x. I'll share it later


Ok me. Put down phone and do work

daveddd
05-17-13, 06:49 PM
here is one thing i found that i saved

its not as easy when im not on one of my 2 day, chain smoking information benders


http://www.ncbi.nlm.nih.gov/pubmed/21893938

fperkins33
05-17-13, 08:32 PM
May sound like an endless number of conditions, but it's more of a lack of a word to convey the sum of it. I see it all as a single syndrome, even if I am the only person in the world who has it (maybe I am, maybe I'm not).

Didn't seem like an endless number, seemed a like a sh*tload to deal with and made me think that people's reactions to you/your behaviours would probably sometimes be less than understanding or dismissive if your focus wasn't on what they thought was important. Again, my apologies if the remark appeared callous, I did not mean it in that sense.

anagram
05-18-13, 12:07 AM
Anagram are you referring to high iq when u say high cognitive
Yes. I won't say that the IQ scale is a completely useless measure, but I don't like to think in terms of it. Too easy to raise misinterpretations. Ends up doing more harm than good.

Didn't seem like an endless number, seemed a like a sh*tload to deal with and made me think that people's reactions to you/your behaviours would probably sometimes be less than understanding or dismissive if your focus wasn't on what they thought was important.
Yes, and that's really the worst part of it for me, not the condition itself. I have no way to prove how difficult (not to mention fruitless and pointless...) it is for me to even try to be normal in any type of context.

Again, my apologies if the remark appeared callous, I did not mean it in that sense.
No worries! I didn't understand your first post anyway. I took a guess and assumed it was meant in a friendly way :P

anagram
05-18-13, 04:47 AM
- [Episodes] (http://en.wikipedia.org/wiki/Silent_migraine) of [dissociation] (http://en.wikipedia.org/wiki/Dissociation_(neuropsychology))
Correction: I posted the wrong link for "dissociation". I simply copied the link labeled "Dissociation (neuropsychology)" since what I was talking about (mostly [derealization] (http://en.wikipedia.org/wiki/Derealization) and/or [depersonalization] (http://en.wikipedia.org/wiki/Depersonalization)) is a (relatively common) phenomenon involving both neurology and psychology without looking what the Wiki page was about. Apparently it only talks about an unrelated research technique. The right link was the one labeled "Dissociation (psychology)":

http://en.wikipedia.org/wiki/Dissociation_(psychology)