View Full Version : How is CFS diagnosed?

05-18-13, 08:02 AM
I have all the symptoms of CFS but am unsure how this would be tested. Honestly I'm afraid to tell a Doctor about it because there is not cure and I think, there is no way to test it. Where does CFS come from??
For as far back as I can remember I have had bouts of depression. But in the past 2 years I have become sick. It is hard to differentiate between depression and CFS for me but the addition of a sudden onset sore throat, narcoleptic episodes and body pains are new.
It is obvious that something is wrong and it upsets me greatly. I find CFS to be both embarrassing and disabling. People think I am lazy or say "You're ALWAYS sick". I don't want to be sick.
Sometimes brushing my teeth or showering feels like a chore. It takes very little effort to brush ones teeth :(
I take Lexapro 20mg and Concerta 18mg (and I will be raising that soon).

06-09-13, 07:07 PM
Diagnosis is based on symptoms, patient history, and ruling out other possible causes. If you are worried about sharing your fear with your doctor...keep a symptom journal and show it to him. Tell him what symptoms are most troubling and you don't understand the cause of. Most people with CFS /FMS /ME spend years getting a diagnosis. To cut down on that time try using a search engine and looking for doctors who specialize in fibro. If you need help message me I have a "good doctors" list.

Slang Tang
07-21-13, 12:30 AM
From what I can tell, it's a process of elimination. They might test your thyroid, red blood cell count and other things to rule out specific disorders. Fatigue can be caused by a lot of different things, from autoimmune disease to hypoglycemia to allergies to cancer.

Depression and fatigue go hand in hand. It's hard to tell which came first, the chicken or the egg. Feeling tired all the time can wear away at your self-esteem and motivation, triggering depression. Clinical depression can also make you tired and brain-fogged.

It's hard looking perfectly healthy while dying on the inside. But hang in there. The right doctor makes all the difference.

08-10-13, 09:17 PM
My daughter came down with ME/CFS January 2012. It really took a toll on her. She was impacted physically and cognitively.

She was very fortunate. Her doctor at the clinic ran many tests. Five weeks after the onset of her illness, she was sent to an Infectious Disease Specialist. This doctor had been seeing ME/CFS patients for 30 years.

Because of his experience, he was able to dx my daughter.

If you look over some of the international guides that have been published lately, you can get a feel for some of the tests your doctor may request.

iacfsme has the Primer for clinical practioners. The panel is comprised of many specialists from different countries. Even my daughter's doctor was interested in that report.

With ME/CFS, there is one symptom that will help your doctor dx you: PEM, Post Exertional Malaise.

If ME/CFS patients exert themselves in any way - physically (increased heartbeat), emotionally, stressful events - they become quite ill with the PEM. It can take 24 hours to recover, or weeks.

The same type of report was issued by Australia: ME International Concensus Primer

08-24-13, 10:44 PM
I have wondered if my daughter has CFS. Her Dad's sister does have it, and I wonder if it is genetic? I don't know much about it.

Seems like she is tired 24/7, and has been that way for a long time. She is 27. I have also wondered about SCT and if she does have that, is it related by my ADHD PI?

She has a habit of saying I'm OK, or It's OK, or I'm fine when I try to talk to her, although she does complain about being tired. Just can't seem to get a handle on what the real problem is. I have low thyroid, but she says her doctor tells her its in the "normal" range, which of course is quite a large range.

Anyway, thanks for the information. :D