View Full Version : Anyone else who has visual snow?


noradd
02-14-14, 12:40 PM
I have visual disorders (visual snow, blue field entoptic phenomenon, seeing sparks in the vision field)

I have been to doctors and nobody had explanations. Years ago I didn't have it. I don't know what causes this. I am sure it's not a good sign.

Sometimes, especially in the morning, when I open my eyes and turn on the light then it's especially strong. It's many different symptoms and I don't know if they are connected.
The visual snow for example is not the same as blue field entoptic phenomenon and also those sparks which I see sometimes are different from the blue field entoptic phenomenon.
I can't even tell if it's something with the eyes or something with the brain. Even when I close my eyes and it's dark I still see either static or sometimes I also see really fast moving patterns. I simply "see" stuff and can't even describe what it looks like. To me this is really concerning. Even if doctors say it's probably harmless then it's not harmless to me cause it's annoying and I didn't have this when I was younger which also shows me that it's not normal.

http://visionsimulations.com/vision-simulators/visual-snow-simulator

Blackstar
02-17-14, 04:22 PM
I have visual disorders (visual snow, blue field entoptic phenomenon, seeing sparks in the vision field)

I have been to doctors and nobody had explanations. Years ago I didn't have it. I don't know what causes this.

When I was younger, sometimes when staring at one spot, I saw something like the blue field entoptic effect. I presumed it was blood cells on the eye and lost interest.

Blue_field_entoptic_phenomenon_animation (https://en.wikipedia.org/wiki/File:Blue_field_entoptic_phenomenon_animation.gif)

Unmanagable
02-17-14, 07:27 PM
I finally found the thread that your post reminded me of:

http://www.addforums.com/forums/showthread.php?t=158117

MX2012
02-17-14, 09:05 PM
noradd -- do these visual disorders affect your ability to see clearly, I mean can you drive? Can you read a book?

Corina86
02-18-14, 09:10 AM
What doctors did you see until now? Have you been to a eye-doctor and a neurologist?

noradd
02-19-14, 06:39 AM
Hello, I can read a book and drive but I am very sensitive to light. The brighter it is the more I see my floaters and also the sparks (blue field entoptic phenomenon). It is very debilitating. I stay at home during the day and keep the curtains closed. When I wake up in the morning and it's dark in the room then I still see things. It's never really dark. I see static, kinda on a TV when you only see black and white dots. And I also see auras. I have been to several opthalmologists and neurologists. The optic nerve has been checked and it was okay. The eyes are also okay except for the floaters. But this stuff is totally worrying to me. I mean years ago I have NONE of this! And now I have all these strange things going on. The floaters are related to the eyes, the blue field entoptic phenomenon probably also. BUT the visual snow and the auras are most likely neurological. I wish I knew what to do this is scaring me cause it gets worse. I mean when I look at something then depending on the surface it looks like it's moving or shaking. Or when I look at a distance then it looks like it's raining cause I see movement in the air. This stuff isn't harmless imo even though the docs claim it is. How can it be harmless when it gets worse and when I didnt have it years ago?

SV650rider
02-19-14, 12:38 PM
It seems like I remember mention of fireworks or snow as an indication of cataracts or retinal problems. (can't remember which)

I have a lot black specks that move around some. Mostly they are stationary, but when I look a different direction, (or try to look at one of them) they are slow to catch up to my eye movement. (or moving away from my stare) It reminds me of a TV camera on an open wheel race car when the protective film over the lens gets dirty and you catch a field of debris moving as they move to a new clean section.

Multiple docs have called them vitreous floaters and not concerned with them. It does bother me at times if I'm looking at a clear sky, white ceiling, etc. I used to fly radio control airplanes and worry if I got back to it, I might have trouble deciding which speck to follow. :scratch:

When I close my eyes, I don't see them. I see a mix of colors and pasterns that are constantly changing like a flea lost inside a giant lava lamp.

Best of luck with it. Vision is so important and any disturbance is cause for concern.

Blackstar
02-19-14, 03:28 PM
Retina problems may be due to an omega 3 fat deficiency.

omega 3 is a major building block in the brain and eyes.

Do you eat these things at least once a week:

fatty fish like salmon herring tuna sardines
seafood
flaxseed
chia seed
walnuts
?

noradd
02-21-14, 12:05 PM
Hi,
I have been taking fish oil for many years. I usually take 2gr fish oil daily which contains around 700mg EPA/DHA.

I don't know how likely it is that I lack O3s when I am taking fish oil.

My eyes have been examined extensively nobody could find anything.
If I only knew what causes the visual snow. I think maybe it has nothing to do with the eyes but is neurological. :(
But neurologists only checked the optical nerve and found nothing and that was basically it. Not very helpful.

Corina86
02-21-14, 05:58 PM
You say you've been to several neurologists and you only got your optical nerve checked? Around here the most basic visit to the neurologist include having all your senses checks, your reflexes, balance, plus lots of questions. Could you get a brain scan, just to be on the safe side? I know it's expensive, but if nothing shows up than you don't have anything to be worried about anymore.

mrs. dobbs
02-26-14, 12:27 PM
I have had visual snow for almost 20 years.

noradd
02-28-14, 03:52 PM
Hi,
yes reflexes were tested too of course. All normal.
Brain MRI was also done but for other reasons, also normal.

But I still have the visual snow. I assume it has something to do with neurotransmitters in the brain. Maybe something with inflammation? I mean it must have a reason. But nobody seems to know what it is. :(

mrs. dobbs
02-28-14, 08:03 PM
I think it is to do with excitatory neurotransmitters and overactivity... and yeah possibly brain inflammation.

BananaCookie
02-28-14, 08:43 PM
I don't have a diagnosis, I'm due for an ADHD assessment in 1-2 months.

But I do have something weird going on with my vision, but none of the things in that link (a very interesting vision simulator!)

It's like if you look at a light bulb, then at a wall. You see the remains of that light on the wall. I have a similar lighty, blurry thing across my entire field of vision, all the time. It's been that way as long as I can remember.

I always thought that was what people saw until a week ago. My eyesight itself is 20/20 eagle. I've checked it twice with two different eye..errr people over the last 4 years.

I compare it to being in a noisy room. There's noise, but when you focus on one person you can normally separate his voice from the others. So even with a lot of noise in my vision, I can still focus on text and read it. (To what degree I am able to process and interpret the information from the noisy environment is a different issue).

I've had rare occurrence of small dots of snow. They have appeared for a short time after I played videogames mostly, methinks. But that happens only for a short time 5-10 times a year, perhaps.

I haven't really been able to find any information about it.

Edit: The closest thing is this optic neuritis (http://en.wikipedia.org/wiki/Optic_neuritis) where they describe it as ..."disturbed/blackened" rather than blurry, as when feeling dizzy.

noradd
03-08-14, 04:34 PM
I think that the light bulb thing is normal I also have this. When you look at something really bright it creates an afterimage.

Do you have this here?

http://en.wikipedia.org/wiki/File:Blue_field_entoptic_phenomenon_animation.gif

Optic neuritis sounds scary. :(

BellaVita
03-08-14, 04:44 PM
Yes I have this

noradd
03-08-14, 04:46 PM
Yes I have this

You mean the stuff on the link?

Do you see these things all the time? I see them all the time even now on the screen. It's terrible. Hundreds of moving things. I didnt have this until years ago. Clearly something is going on and I dont know what it is. :(

BellaVita
03-08-14, 04:52 PM
You mean the stuff on the link?

Do you see these things all the time? I see them all the time even now on the screen. It's terrible. Hundreds of moving things. I didnt have this until years ago. Clearly something is going on and I dont know what it is. :(

I didn't check out the link....

Yes I see things all the time.

Have you looked into HPPD?

BellaVita
03-08-14, 04:58 PM
Also aren't the other things in your vision field just floaters?

BananaCookie
03-08-14, 05:46 PM
I think that the light bulb thing is normal I also have this. When you look at something really bright it creates an afterimage.

Do you have this here?

http://en.wikipedia.org/wiki/File:Blue_field_entoptic_phenomenon_animation.gif

Optic neuritis sounds scary. :(

I thought it was normal too, but I have asked a few friends and none of them have it. My partner who have a neurological disorder, (maybe MS), has it to a varying degree.

Unless you mean only when you look at a light bulb, then at a wall. In contrast, I see the disturbance all the time across my entire field of vision. It doesn't change depending on light source. And when I talked to my doctor about it, she had no idea what I meant.

I also have periods of pain in the back of my eyes that spreads to the back of my head, but I'm not certain whether that is just a result of straining my eyes from gaming. The odd thing is that the pain is not correlated with my time spent in front of the pc. The last 6 months I've been front of the PC from I wake until I go to sleep, but I have only had slight pain maybe once or twice.

The gif you linked; I have had that too, but it happens very rarely (once or twice a year, maybe) and goes away after 5 minutes or so.

Fortune
03-08-14, 09:17 PM
I've had visual snow my entire life. I also call it "pixellation" and sometimes it seems like it interferes with normal visual processing (like assembling parts of an object into a whole - I just see the parts and my brain tries to make sense of the parts without seeing that whole).

noradd
03-14-14, 04:11 PM
I dont think that what I have is HPPD. I also didnt abuse any drugs.
But I think it has something to do with neurotransmitters in the brain.
There are also websites which discuss visual snow and on there I also read that glutamate might play a role in this. It sucks cause somehow doctors don't really seem to know much about it or pay much attention to it. :(

@ BananaCookie

I can't really imagine what your visual disturbances look like, but I'm sure they are also very annoying. Are you planning to get any medical tests to find a cause or cure or have you had any tests?

Infinityman
03-14-14, 05:45 PM
I have the exact same thing, usually in about 20 to 30 minute episodes, sometimes so bad I have to pull over and wait it out if I am driving. It sometimes occurs several times a week and sometimes goes a month or two and never occurs.

My neurologist told me it is migraines. He said there are two types, ones accompanied by headache and ones not, and the one he says I have is the headache free one, but the root cause is the same, just different symptoms.

Fortune
03-14-14, 08:13 PM
You have visual snow that only appears sometimes?

I have it 24/7.

BellaVita
03-14-14, 08:17 PM
You have visual snow that only appears sometimes?

I have it 24/7.

Same.

BananaCookie
03-14-14, 11:00 PM
I dont think that what I have is HPPD. I also didnt abuse any drugs.
But I think it has something to do with neurotransmitters in the brain.
There are also websites which discuss visual snow and on there I also read that glutamate might play a role in this. It sucks cause somehow doctors don't really seem to know much about it or pay much attention to it. :(

@ BananaCookie

I can't really imagine what your visual disturbances look like, but I'm sure they are also very annoying. Are you planning to get any medical tests to find a cause or cure or have you had any tests?

I haven't had any medical tests, no. I did bring it up talking to my doctor, but that was back when I requested a ADHD assesment. But I guess it's not really a symptom or maybe even related, so perhaps I should ask to get it checked out. It's just that I tend to feel hypoconder-ish when going to the doctor many times in a short period of time. I've been to the doctor recently for depression/ anxiety as well.

I do sometimes wonder if I have a neurological illness other than ADHD that interferes with my brain in ways that create similar symptoms.

I do want to get to the bottom of it, though. But since I can't find much information, I suspect it's not a phenomenon that has a known cause and that can be treated. But, who knows.

Infinityman
03-15-14, 08:03 AM
all the time? Bummer. Sorry to hear that.

Fraser_0762
03-15-14, 09:27 AM
I get that white movement thing when I stare at the sky. I always just assumed that it was signals travelling from mobile phones and other such devices.

Flory
03-15-14, 09:31 AM
Could it be eye floaters ? These come from a tear on the vitriole (think that's what it's called) can also
Be caused by high BP, and cholesterol. If it is this you need to get to an optician quick snappy or a specialised eye hospital if you have one ...you should definitely not have this in your visual fiel :(

Flory
03-15-14, 12:25 PM
Fraser do you get it when you kinda stare to hard or don't focus proper ? I've had this before espesh when I'm tired !

Fortune
03-15-14, 07:37 PM
Could it be eye floaters ? These come from a tear on the vitriole (think that's what it's called) can also
Be caused by high BP, and cholesterol. If it is this you need to get to an optician quick snappy or a specialised eye hospital if you have one ...you should definitely not have this in your visual fiel :(

No, visual snow isn't floaters.

Laserbeak
03-16-14, 09:36 AM
Do you have experience with hallucinogenic drugs such as LSD or psilocybin mushrooms? Perhaps even marijuana/hash or cocaine?

BellaVita
03-16-14, 10:01 AM
Do you have experience with hallucinogenic drugs such as LSD or psilocybin mushrooms? Perhaps even marijuana/hash or cocaine?

Thing is, I have HPPD symptoms I think, and I have never abused drugs.

So, I'm thinking perhaps they didn't have to either.

But who knows.

(and no pressure on them to answer, but also I think they said they didn't)

noradd
03-17-14, 09:48 PM
No I have never taken any hallucinogenic drugs.

mrs. dobbs
03-19-14, 10:41 AM
I think that the light bulb thing is normal I also have this. When you look at something really bright it creates an afterimage.

Do you have this here?

http://en.wikipedia.org/wiki/File:Blue_field_entoptic_phenomenon_animation.gif

Optic neuritis sounds scary. :(

I see persistent afterimages with things that aren't bright. Just with, whatever.

Fortune I have the thing where my brain doesn't assemble things into a whole. It started happening at 19.

noradd
03-20-14, 02:32 PM
Hello,
I noticed that when I look at a street lamp at night and then move my eyes quickly from left to right then the light of the street lamp becomes elongated and I see a long line of stree lamps next to each other as I move my eyes. Is this normal? These arent afterimages.

Laserbeak
04-12-14, 10:35 PM
Well I do have that effect sometimes, but I've had more than my share of hallucinogenic drugs in the (distant) past, so that may be the reason.

Laserbeak
04-12-14, 10:37 PM
Hello,
I noticed that when I look at a street lamp at night and then move my eyes quickly from left to right then the light of the street lamp becomes elongated and I see a long line of stree lamps next to each other as I move my eyes. Is this normal? These arent afterimages.

Yes, such effects are completely normal. So is some vision problems if you stand up straight very quickly after lying down or sitting down for a long time.

noradd
04-30-14, 09:27 PM
Hi, maybe the street lamp effect is normal but the other stuff I have isn't normal. I didn't have it a few years ago. Now I have really strong blue field entoptic phenomenon and also visual snow. When I look at the screen now it I see movement all over the place. I see moving textures and moving transparents dots. Or when it's dark then I don't see dark because of the visual snow, then I see black and white dots. This absolutely isn't normal.

CanineRogue
05-07-14, 09:40 PM
Visual snow in and of itself isn't a big deal, having it come on later in life may be, or may not be. I've personally had it as long as I can remember, but my eyesight is HORRIBLE!! I always assumed it was from the odd shape of my eye. The reason the doctors are checking the nerve and your retinas is that you can think of the snow as like a static. If you have a bad phone connection, the sound cuts in and out. If you're watching a bad connection on TV, you won't get a completely clear picture, but you'll get a general idea. If there is interference on the line, your brain tries to fill in the gaps. This is why you'll notice the snow is worse in lower light.

So, I have visual snow and always have. My one sister has it, as does her one son. My other sister never had it, until a few years ago. It sprang up out of nowhere. Now THAT was concerning. She went to the doctor who tested the pressure on her eyes (have you had this done, OP?) who said it was way too high. Turns out, after more tests, she has an oddly shaped skull called a Chiari Malformation. This basically puts pressure on her brain, which in turn puts pressure on her eyes, causing her to see visual snow. Where my one sister and I were born seeing the snow, in our other sister's case, there was an underlying condition.

As we get older, our vision starts to degrade. It's completely natural for weird stuff to crop up, just like needing bifocals when you didn't need them before. It could just be that you're noticing it a lot more because you haven't had a lifetime to adapt to ignoring it like other people have. On the other hand, stuff with your eyes and brain aren't things you want to mess around with. If you feel your doctors have done enough testing (getting your pressure levels on your eyes, along with your blood pressure, are paramount, I think) then it could just be something you have to learn to live with! Getting old is hell!

noradd
05-12-14, 06:03 PM
Hi, I had my eye pressure checked many times it's normal. I didn't have the VS up until a few years ago. I assume that it's something neurological. I mean just like adhd and depression. When you have this then there's also stuff going on in the brain. I assume it's the same with VS. It's not normal in my opinion. I wonder what happens if you cover 1 of your eyes with your hand, does the VS get stronger on the other eye when you use it to look at things?

CanineRogue
05-13-14, 06:55 AM
Now that you mention it, I guess it does. The thing of it for me is that since I've had it for so long, my brain has adjusted to it, and most of the time I don't even notice it (unless I'm trying to figure out if something on the floor is a bug! haha!) When I was little, it was so distracting that I couldn't sleep at night. It gets worse when it's dark, and you still see it with your eyes closed, so all I did was constantly focus on the fact that it was there. Didn't even realize until just a few years ago that it's not a normal thing that everyone has! Eventually your brain just adapts to it being there, and you get used to it (even if it does still affect your vision).

It's possible that it could be a degenerative disease like MS (http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001747/#adam_000737.disease.symptoms), but I would think you'd be showing other signs/symptoms. If the doctors have done all sorts of tests and nothing is coming back showing anything, it really could just be from aging and the optic nerve wearing down or other changes in your brain.

Oooh! I was doing some searching (because god forbid I just sit and make a short post in one straight shot) and found a forum just for people with VS! :D

thosewithvisualsnow dot yuku dot com/

Maybe they would have more incite into getting it later in life!

noradd
05-15-14, 06:18 PM
Hi, I know this forum. I was amazed that other people also have VS. Unfortunately the people there also don't seem to have an answer to it.

Wookiee
06-03-14, 07:36 PM
If it wasn't all the time I would say Migraine. I get visual aura and pretty much all of the migraine symptoms, but I only get the aura when a migraine is on its way.

I would go to an Optometrist or at the very least your GP and tell them about it.

There are lots of things that can lead to eye problems. Self-diagnosis is not the answer.

Daydreamin22
06-03-14, 08:46 PM
Thank you Canine Rogue for your explaination.

OP, just wondering if you go to an aphthalmologist? My dad is one and when I worked at his office flashes and floaters were seen right away. Just wondering if that was the case. Did they check retina attachment?