View Full Version : Adderall not working as well, unsure of what to try next


Luvthiscrzylife
12-16-14, 02:11 PM
DD was diagnosed ADHD combined with some anxiety at 6 years old. She was started on Ritalin, but developed tics. We then tried Dextro, but it didn't really work, so doc put her on Adderall. Currently she is taking 25 mg XR. She started out on the SA, but we decided to go with XR because it requires only one pill in the AM, and for a while, it really had worked well. DD has always struggled with sleep, and Melatonin has helped greatly, but I have to wake her up so very early to take her meds in order for it to wear off by bedtime.

At this point, she is very thin and the doctor is concerned. I have tried everything to get her to eat more, to no avail. I also don't feel her symptoms/behaviors are as well controlled as they once were, but doc doesn't want to increase the dose because it will only worsen the lack of appetite. She does display some anxiety(Fears, worries, bites nails, picks her face), and will be going in for another psych eval early January so we can determine the best course of action at this point.

I was hoping to try something new over winter break, but am really struggling with options. I'm considering Vyvanse, but most likely would cost too much, maybe Focalin? I just don't know how she would do on something that contained methylphenidate since she already had negative side effects from the Ritalin. Her doc mentioned Strattera, but I have read what seems to be mostly negative experiences, and am not sure how well it would control the ADHD, so am leary. Would love someone else's input/experiences.

sarahsweets
12-16-14, 02:57 PM
will she drink milkshakes? There are some awesome protein powders that you could mix with ice cream and you can't taste the difference.

Luvthiscrzylife
12-16-14, 03:01 PM
will she drink milkshakes? There are some awesome protein powders that you could mix with ice cream and you can't taste the difference.

She will, and I hadn't thought about mixing in Protein power. I've tried the Pediasure drinks to protein bars, but ultimately, I failed. I will definitely be trying this. Thanks!

tomsawyr
12-16-14, 03:47 PM
You sound frustrated and worried, but you haven't tried everything yet, and because something doesn't work doesn't mean "you failed."

Just brainstorming here... *apparently* you have a dilemma between one set of symptoms or the other (ADHD symptoms vs weight loss/anxiety), but maybe the doctor can get you out of that *apparent* dilemma with a new medication/dose adjustment/combination, or whatever.

Adderall can cause anxiety. Are you sure there is no possibility with dex? You just said it didn't work. Maybe another dosage would be better. Also, maybe using adderall IR would let her get hungry later in the day - it does me. I start oinking around 7 or 8.

Are her ADHD symptoms so bad that she can't go unmedicated? Maybe go back to meds that only work a little bit with fewer side effects, and then make up the difference with cognitive therapy? Cognitive skills could last a lifetime. Medication will *never* cure any of us :-(

Make a list of questions for your doctor, make him/her explain.

Hope that helps.

Luvthiscrzylife
12-16-14, 05:10 PM
You sound frustrated and worried, but you haven't tried everything yet, and because something doesn't work doesn't mean "you failed."

Just brainstorming here... *apparently* you have a dilemma between one set of symptoms or the other (ADHD symptoms vs weight loss/anxiety), but maybe the doctor can get you out of that *apparent* dilemma with a new medication/dose adjustment/combination, or whatever.

Adderall can cause anxiety. Are you sure there is no possibility with dex? You just said it didn't work. Maybe another dosage would be better. Also, maybe using adderall IR would let her get hungry later in the day - it does me. I start oinking around 7 or 8.

Are her ADHD symptoms so bad that she can't go unmedicated? Maybe go back to meds that only work a little bit with fewer side effects, and then make up the difference with cognitive therapy? Cognitive skills could last a lifetime. Medication will *never* cure any of us :-(

Make a list of questions for your doctor, make him/her explain.

Hope that helps.

For sure on the Dextro, we had increased her dosage, and it just didn't help enough. The Adderall IR didn't seem to help symptoms as well either, and it caused her to go up and down so much, plus with having to take a pill at lunchtime, it just didn't work. With Adderall XR, last year we started her on a lower dosage, and went up. At 20 mg, for the first time she said she could actually notice a difference, which made me very happy. We did increase to 25 after a bit, and I don't know that I see a discernible difference between the two.

We tried no medication two different times during the school year, and her academics suffered greatly, she couldn't focus and struggled more socially. I'm not saying it doesn't control her symptoms at all, just not well enough IMO. I don't want a zombie child, but I don't want her to always annoy people (it gets pretty bad, especially when we have people over) or talk incessantly and I want her to be able to focus on what she is being told and also her homework. It's always that "Oh look, a squirrel" type thing. Everything distracts her. She gets in trouble for talking at school on occasion, but until I have conferences with her teachers tomorrow, I will not know if it's really all that bad.

We are seeing a new psychologist beginning of January, just want to have her assessed again to determine if she has OCD, and how bad her anxiety really is. I just can't stand to see her struggle so much, and it is hard knowing she will have this forever :(

MrsMoMo
12-17-14, 11:57 AM
I'm also in the process of looking for another medication to try for my son. He's always been on Adderall so I don't have experience with any other meds but I'm open to trying others. My doctor is currently in consultation with some pediatric ADHD specialists to help us figure out what to give him. It's only been a couple of days since we took him off Adderall XR (he has been on it for 2 years and is taking 15mg XR - he's turning 8 in a few weeks but is a tiny guy). The Adderall definitely caused him anxiety and it got a lot worse over the last few months. He was never hungry. Started to feel down about himself, losing self-confidence. He wasn't happy anymore, didn't get excited about things. He started to have suicidal thoughts, which were brought to my attention last week. So that was it for Adderall. He is so happy now, no more anxiety, no more black cloud over his head, he is not angry for no reason anymore, not snapping at me and everyone else. I could cry...this is who he really is, my sweet little guy - I forgot what he used to be like :(

I have a few things in mind to try -- maybe Focalin -- hopefully the side effects will be minimized and maybe we can stay on a low dose. I was thinking Strattera but after reading more, the long list of side effects and negative user reviews has me a little leery to try that. There is also Intuniv. Not sure about Concerta -- may have the same effect on him as Adderall.