View Full Version : It's Back


Lunacie
03-18-15, 04:14 PM
Remission was nice while it lasted, but my fibromyalgia has become active.

And besides all the aches and pains and such from past flares,
something new this time. Breathing problems.

My daughter has been commenting on my loud breathing,
sounding as though I can't catch my breath, for a few months.
I didn't connect it with the fibro because I didn't have it before.

I can only hope the fibro goes into remission again. ;)

BellaVita
03-18-15, 04:29 PM
Oh I'm so sorry to hear that! :grouphug:

That really really sucks.

I hope it goes into remission again too.

Unmanagable
03-18-15, 04:54 PM
Sending healing energies your way. Spring time is the absolute worst time to feel so painfully crappy, when everything in nature is coming back to life. :(

Lunacie
03-18-15, 05:04 PM
Thank you so much, healing energies really appreciated.

Spring may be better because I'm more likely to get and get moving.

Just a couple of weeks ago I was able to go to drum circle outdoors,
which involves carrying my heavy drum case and walking quite a ways.
No problems, didn't have to stop halfway like usual to rest and breathe.
But now, it hurts so bad, especially my knees and sciatica,
and hard to get my breath from walking not even half that far.

Flares and remissions can happen so quickly.

silivrentoliel
03-18-15, 06:18 PM
I'm apparently an insanely loud breather too... drives DH nuts, but it's not like I'm doing it on purpose.

I hope you get some relief soon. Does it have to do with the wetter weather?

Lunacie
03-18-15, 06:24 PM
I kept thinking it was allergies, but my daughter said it started before spring allergies really got going.

So thinking back, it started about the time my hip got that one sore spot,
and then my elbow started twinging in one spot ... So I went online and
sure enough, lots of people develop breathing problems.
Who knew? I didn't.

Abi
03-18-15, 06:43 PM
Sorry luna :grouphug:

Lunacie
03-18-15, 06:59 PM
Thank you Abi. It seems to come and go, so I'll just hope it goes away soon.

KentUnknown
03-18-15, 07:03 PM
thinking of you, hope you get better soon and keep your head up! :D

Lunacie
03-18-15, 07:25 PM
Thanks Kent. I'm sure I breathe better when my head is up and my back is straight(er). ;)

Fuzzy12
03-18-15, 07:47 PM
I'm sorry. I hope it will go away soon!!

BellaVita
03-18-15, 09:10 PM
Are your migraines back too? :grouphug:

Lunacie
03-18-15, 09:57 PM
The migraines have been back for more than a year.
I heard such good things about Butterbur over the years.
Am in my third month of trying that supplement, so far nothing.
Figured it was cheaper than more accupuncture.

Pilgrim
03-19-15, 03:23 AM
I hope you feel better soon. Paul

stef
03-19-15, 04:35 AM
hope you feel better :grouphug:

sarahsweets
03-19-15, 04:37 AM
Oh Lunacie, Im so sorry to hear that! I can only imagine the pain you are in. I hope for your sake that you dont have to deal with people thinking Fibro is a made up illness or all in your head.

someothertime
03-19-15, 09:50 AM
Wishing you wellness Luna :grouphug:

Lunacie
03-19-15, 10:24 AM
Thank you all so much for your sympathies and well wishes. :thankyou:

So far I haven't had the added stress of unbelievers.
My daughter also has fibro but hasn't had a flare up in a while.
So she understands.

I'd forgotten how much my knees ache when the fibro is active. Ouch.

Delboy31
03-19-15, 11:18 PM
Never know when I'm going to head back into fibro mode, but I sincerely hope you get through this quickly, and feel better soon.:grouphug:

Lizzie80
06-29-15, 08:29 PM
Wow, you brought up a point I'd forgotten. It's been awhile since I've had a relapse. The breathlessness. I could not figure out why all the sudden, my normal workouts (even when taken down a notch) are causing me to get winded, like I'm a rank beginner again. Why I'm getting out of breath during normal, previously easy tasks...Grrr. I didn't want to acknowledge a relapse, but this now makes sense in context...

Lizzie80
06-29-15, 08:33 PM
Thank you all so much for your sympathies and well wishes. :thankyou:

So far I haven't had the added stress of unbelievers.
My daughter also has fibro but hasn't had a flare up in a while.
So she understands.

I'd forgotten how much my knees ache when the fibro is active. Ouch.

I feel for you. :( Hope you're getting somewhat better by now.

Lunacie
06-29-15, 09:14 PM
Thanks. The pure magnesium spray is helping a little. But I'm still so out of
breath and my knees ache so badly it's hard to walk. Sorry to hear you're
having a rough time too. :grouphug:

BellaVita
06-29-15, 09:47 PM
(((((((((Lunacie))))))))))))!

:(

I hope you can find some relief somehow.

anonymouslyadd
06-30-15, 12:28 AM
(((((Hugs)))))

gothceltgirl
09-28-15, 05:38 PM
Some of your symtpoms sound a little llike mycoplasma pneuomiae. It's like walking pneumonia sort of, It think. I had that infection and it's not like any other infection. It can keep coming back, at least for me. And I believe that it's the root of much of my CFS, but just don't have "proof" for docs. They all treat me (still) like I'm some kind of hypochondriac.

You should ask to be tested for it, you may have to wait and be tested again to confirm it b/c they say that it can show up as active even after it's gone away, or some such thing.

Lunacie
09-28-15, 07:37 PM
Hm, I looked up mycoplasma pneuomiae. Sorry you may be dealing with that.
It has a lot of symptoms I don't have, and doesn't list the ones I do have.

Common symptoms of mycoplasma pneumonia include any of the following:
Chest pain = nope
Chills = nope
Cough, usually dry and not bloody = nope
Excessive sweating = only on my head
Fever (may be high) = nope
Headache = migraine runs in my family
Sore throat = nope

Less common symptoms include:
Ear pain = nope
Eye pain or soreness = nope
Muscle aches and joint stiffness = yeah
Neck lump = nope
Rapid breathing = only during an anxiety attack
Skin lesions or rash = nope

Top Ten Fibromyalgia Symptoms
Pain all over = yeah
Fatigue = yeah
Sleep difficulties = yeah
Brain fog = yeah
Morning stiffness = yeah
Muscle knots, cramping, weakness = yeah
Digestive disorders = yeah
Headaches/migraines = yeah
Balance problems = yeah
Itchy/burning skin = nope


Also, arms and legs going numb, irritable bowel/bladder, phantom feeling
of bugs crawling on skin, dry eyes and blurred vision, tinnitus, dizzyness,
and disturbed sleep. And probably others I don't remember at the moment.

Nutriobsession
11-17-15, 07:17 PM
Honey you need nutrition. What vitamins do you take at the moment? Do you take Epsom salt baths? You need b-12 and folate for the breathing, and for a lot of **** with that disease. It sounds like a nutrient deficiency.