View Full Version : Joint hypermobility syndrome~ Ehlers-Danlos Syndrome Hypermobility Type


Socaljaxs
02-09-16, 08:54 PM
Does anyone here have this? I went to a specialist yesterday in regards to my constant upper back muscle pain. He checked my range of motion. And from there asked about my flexibility before and after my back surgery.

I never thought of my self as a gumby type or double jointed or that extreme in flexiblility growing up. Like yes, I could do the splits and I was bendy and did gymnastics and loved to do acrobatics and dance..but not anything I would have ever considered an extreme from of flexibility. After my back surgery. I feel stiffer in my hamstrings thigh area. I have 3 levels fused. But I've noticed the test done even after during and before showed my range of motion outstanding.

Anyways, this is the first I've ever heard Of this. And I'm thinking second opinion.Expect, my sister is having back issues also, and when I mentioned flexibility this morning she said she had always been extremely flexible also which makes this diagnosis a little clearer ( & supposedly it's Genetic) but another factor that would answer my how did I break my back so severely and never notice would be in fact answered by this diagnosis.) idk I'm trying to process this and since there is no clue I'm like great I'm always going to have back issues.. No fun and lol apparently this also adds to my add since lack of contraction, talking to much, hyper active also are effects of this syndrome.

Greyhound1
02-09-16, 09:36 PM
It's a connective tissue disorder. I have it as well. I have constant back pain and issues with arthritis. I always thought I was special as a kid because I could bend my fingers back to my wrist and gross people out. Now, I have joint pain and my hip, shoulders and ankles can pop out out joint quite easily.

It's not near as fun as when I was a kid.:(

There was a good thread about it here, I can't seem to find it now. I was diagnosed about 1.5 yrs. ago and participated in it.

Here is some good info about EDS if you need it.
http://ghr.nlm.nih.gov/condition/ehlers-danlos-syndrome

Greyhound1
02-09-16, 11:12 PM
Here are a couple of threads, I found. I hope they help.:grouphug:
http://www.addforums.com/forums/showthread.php?t=161072&highlight=Ehlers+danlos+syndrome
http://www.addforums.com/forums/showthread.php?t=161153&highlight=Ehlers+danlos+syndrome

Socaljaxs
02-09-16, 11:26 PM
I'm reading up on it and thank you for the thread links. May I ask how long ago you received this diagnosis? Also, what have you done in regards to managing it and controlling the pain.

Greyhound1
02-09-16, 11:51 PM
I'm reading up on it and thank you for the thread links. May I ask how long ago you received this diagnosis? Also, what have you done in regards to managing it and controlling the pain.

I will have to check one of those thread for when I was diagnosed. I read a post about it here and everything hit home. I had a Dr's. appointment a couple of days and found out.

In regards to pain the only thing which really seems to provide some relief I have found is Ibuprofen. I usually take about 600 mg. once a day and I try not to take it everyday. Probably 4-5 times a week.

*edit I was diagnosed 4/24/14

stef
02-10-16, 03:18 AM
Omg im sure i have this i remember the thread now
No joint pain yet but i ved always sat in yoga type position. Double jointed fingers.
My lower back muscles are super weak. Swimming does wonders.