View Full Version : Concerta & Strattera have not worked, specialist thinks I should try nortriptyline.


Heybunny
11-11-16, 11:48 PM
Hello!

I have tried Concerta and Strattera and the first gave me no good or bad effects whatsoever and the second gave me nothing but depression and a rapid heart rate.

My specialist tells me that 20% of people with ADHD can't be helped by standard medications, which I've read before. What was new to me however, was that he said that if one type of standard medication for ADHD doesn't work, it's highly unlikely the others will either. He has recommended I try nortriptyline next as that has been found to help people with ADHD that get no benefit from standard medications. He also said if I wanted to, I could try Vynase instead.

I would like to stress that I've noticed that nortriptyline can be used for anxiety and allergies, which I also suffer from, so it could theoretically help with all three, whereas the Vynase probably won't help with the other two.

I'd like to hear from anyone who has experience regarding being told they were in this 20% of people that can't be helped with standard medications who then either went on to find one that did help, or from those who can confirm this is true. I'd also like any stories from nortriptyline users.

Thank you!

aeon
11-12-16, 01:40 AM
Get thee some dexamfetamine from Auden Mackenzie.

To say you can’t be helped with standard medications when one of the two standards has been outright ignored is tantamount to medical malpractice.


Well Wishes,
Ian

C15H25N3O
11-12-16, 07:53 AM
just my personal opinion.

nortriptyline is fetotoxic. I dont think this is a good substance if it can damage unborn life.

dexamphetamine is no supplement and it is not healthy like eating apples but it is a very good working
and positive effective substance that improves life quality and can be the ignition for better functioning.

if I was your doc I would try amphetamines like Vyvanse (weak), dexamphetamine (levo cut off for lower heart rate
and lower bllod pressure), adderall (some levo for even more alertness) or pure racemic amphetamine (strong).

All other psy-meds needing weeks or months to work of course can hit the sweetspot but also have a high risk
of unabated neuro-chemical personality change.

There are no standard meds as we are not the same but different.

the only med that works for every adhd are sports and satisfying the reward system.


Take care and stay asking twice.

FogNoggin
11-12-16, 10:55 AM
Sports, never was interested, too organised, too limited for a wandering mind.

Anyway, Modafinil is the next big thing for ADD.

Ask about that, and don't forget google.

(google - if you seek, you shall find, the mailman or femailman is your friend.)

ADDon1
11-12-16, 03:41 PM
I use nortriptyline for years now and it works very good for me. It does a good job on the depression part and on the ADD part it provides rest in my head and much clearer thinking. I'm more able to put things in perspective, less anger and frustration, and it gives better overall balance. I know someone with ADD that also has great benefits from it.

FogNoggin
11-12-16, 05:31 PM
Since I was there:
https://en.wikipedia.org/wiki/Nortriptyline

interesting.

Heybunny
11-13-16, 09:05 AM
Thanks everyone - he's said a few strange things in the past (Like Concerta stopping my pill from working) but he listens, appreciates when I research (some doc's hate you for it in my experience) and he's nice to talk to. He's also open to suggestion, so he's not trying to force me at least.

I used the words standard medications to indicate the main "go-to" medications for ADHD, sorry if I implied my specialist said this.

I'm in the UK so I'm afraid Adderall is not an option for me at the moment. These are the standard/typical/go-to meds for ADHD here:
http://i.imgur.com/dAwFbJF.png

I was mostly considering the nortriptyline because it can apparently have antihistamine effects when I have allergies I currently take antihistamines anyway. Also it can help with anxiety which I also suffer from, so I guess I liked the idea of just taking one med for all three things (might not work but hey). :P

I will mention Modafinil at my appointment, thank you for mentioning it.

I use nortriptyline for years now and it works very good for me. It does a good job on the depression part and on the ADD part it provides rest in my head and much clearer thinking. I'm more able to put things in perspective, less anger and frustration, and it gives better overall balance. I know someone with ADD that also has great benefits from it.

Thank you so much, I know everyone is affected differently by meds but reading your post makes me hopeful it will help me in a similar way. I think I'll probably try the nortriptyline next.

What makes it really difficult is that there are apparently changes at the clinic I go to and after the new year, there won't be a specialist in ADHD present and I don't currently now if there is somewhere else I can go, so I feel that I have to try and find a treatment plan that works before then, just in case. :o

ADDon1
11-16-16, 03:29 PM
[...]

Thank you so much, I know everyone is affected differently by meds but reading your post makes me hopeful it will help me in a similar way. I think I'll probably try the nortriptyline next.

What makes it really difficult is that there are apparently changes at the clinic I go to and after the new year, there won't be a specialist in ADHD present and I don't currently now if there is somewhere else I can go, so I feel that I have to try and find a treatment plan that works before then, just in case. :o

Welcome :)
If you decide to start with nortriptyline, I advice strongly to start with a VERY low dosage and build up VERY slowly! Many psychiatrists start too high and build up too fast, I was told by other 'users', which may result in heavy side effects, a big disappointment, or worse. And after a while have the nortriptyline level in your blood checked to tune to the right dosage (not all psychiatrists follow this line of practice). And have it checked periodically, like every year, to see if it is still within the specified min/max range.

sarahsweets
11-17-16, 05:39 AM
Dex in the UK, if I remember correctly is not standard and may require you to go private but its very worth it.

Heybunny
12-08-16, 08:23 PM
Welcome :)
If you decide to start with nortriptyline, I advice strongly to start with a VERY low dosage and build up VERY slowly! Many psychiatrists start too high and build up too fast, I was told by other 'users', which may result in heavy side effects, a big disappointment, or worse. And after a while have the nortriptyline level in your blood checked to tune to the right dosage (not all psychiatrists follow this line of practice). And have it checked periodically, like every year, to see if it is still within the specified min/max range.

Thanks for that, it's been a while since I last posted, but I'd like to report that I started on 10mg (half the starting dose according to the leaflet) of Nortriptyline for two weeks to check for any side effects (I didn't have any) and for the past week I've been on 25mg, again I've felt nothing but at least there's no negatives I suppose. I can't say it's helped with mild depression or my moderate/severe anxiety, but I know antidepressants take much longer to get into the system, say a month or so. I still have my appointment on the 19th of this month with my specialist, which will probably be my last sadly, as the clinic won't be operating soon.

I will say though, I managed to sort through 5 years worth of boxes in the attic to get at the Christmas tree in order to put it up for the first time in half a decade, I'd been putting off sorting the boxes for ages. My mom thought it might mean the nortiptyline was working somewhat, but I was skeptical, I suspect it was hyperfocus on having the tree up (Xmas lights and trees and decorations make me feel a bit happier).

Dex in the UK, if I remember correctly is not standard and may require you to go private but its very worth it.

Dexamfetamine? It's listed as a licensed drug on the NHS website for ADHD so hopefully I can try it at some point. I was planning on trying Lisdexamfetamine next, but I can read up on that as well. :) Adderall isn't standard and needs one to go private to get, are you thinking of that? EDIT: Just re-read the thread and dexanfetamine is recommended a LOT. I'll try that next.

I know UK GPs aren't authorised to diagnose ADHD, but are they authorised to change medication if requested? I ask because I may not have a specialist after the new year, as I mentioned in my earlier post.

Thanks all! :D