View Full Version : Do YOU sleep well?


LucidChaos
05-29-05, 03:34 AM
Forgive the length.

Sleep problems have always been an issue with me all my life and I suspect that much of my ADHD symptoms, and other symptoms, are caused by poor restorative sleep. I feel like crap when I wake up and can barely remember what it feels like to be refreshed. It was almost ten years since I woke up refreshed. Before that it was a very rare occurance. A nap would sometimes produce that sought after feeling of being refilled.

The Adderall I was initially prescribed actually helped my sleep patterns for a bit. The Dr. I am seeing recommended Neurontin for me for sleep, as well as my son, and it worked amazingly in the beginning. The first night I took 300mg of it and woke up without being tired. I can't describe how good it felt to wake up and not feel like I was pulling myself out of molasses. The dosage was slowly raised to and stabilized at 900mg with continued positive response. I could go to sleep at 1am and wake up at 7am and feel on top of the world, even on the weekends... unheard of for me. I thought most of my issues were going to be resolved. This worked well for about a month. Unfortunately I had a severe reaction to it (excruciating pain that would wake me up) that caused me to have to stop. This reaction is not expected at all with Neurontin from what I have been told and could have been caused by other factors (in conjunction) happening at the same time. For me, when I was able to wake up refreshed I could get more done without fatigue and concentrate much better on a single task.

I had a sleep study years ago but was considered borderline for apnea. That study was initiated because of a few episode of cluster headaches and general daily headache problems. The clusters have not been around for a while, crosses fingers / knocks on wood, but I still live with daily headaches that do not respond to any medication. I did not experience those headaches or fatigue on those days recently when I woke up refreshed! This shows me that for me poor sleep is a major contributing factor.

Both of my sons have sleep trouble. My youngest is now on benadryl to help him get to sleep and my oldest is on ambien. Without these they spend hours awake in bed going over things in their minds. My oldest has expressed problems of being unrefreshed upon wakening so I suspect he has sleep issues. He does not snore but does awaken many times at night.

I grind my teeth quite bad and have severe TMJ pain. I have ruined a few of those custom made, expensive, night guards. I snore extremely loud and wake my wife up often. She finally took my advice and tried some earplugs. Now at least she can sleep and I can just go on with my snoring without getting a hit in my side to stop! I also have poor healing problems with my skin. If I cut myself it will literally take months for it to heal all the way. I was diagnosed years ago with fibromyalgia but all the medication I had tried didn't appear to help at all. Some of the medication, ssri's, appeared to make me worse.

I have very poor stamina and fatique quite easily. I used to like to work out and do some strenous activities but now all that does is make me tired and ruin me for weeks. I was always amazed when I heard people say that exercising made them feel good. That was never a adjective I would use to describe how I felt after exertion...ever.

My ADHD symptoms are classic, forgetfullness, constantly losing things, distracted easily, procrastination, spending/bill issues, poor/no goal setting, hyperfocusing on issues that interest me, trouble finishing any job after the thrill is gone, social problems (tell it like I see it), multitasking but never fully engaged in any one project. You all know the story. I have piles of papers on every subject I have researched, but don't ask me where one particular one is!

I've done some searching recently on sleep disorders and the effects of sleep deprivation. A reduction of slow wave sleep along with interuptions in REM has been shown to cause the exact same symptoms that are shown with ADHD and fibro. Alpha wave intrusion on delta waves during stage 3 and 4 sleep appears to be a major issue when dealing with non-restorative sleep. I'm experimenting at this time with a program to do some brain entrainment during sleep. Growth hormone that is normally released during the SWS stage of sleep is not being properly regulated. This is required for the body to properly refresh and repair. Poor skin healing can be an outward expression of a lack of proper sleep. There also appears to be some connection with a poorly regulated HPA axis. The HPA axis issue needs more investigation.
A book I lent to my sister talks about this as a nuerosomatic syndrone.
The name is "It IS all in your head" by Jory Goodman. Take a look.
http://www.jorygoodmanmd.com/services01.asp I need to get it back to read it again. The first time through a book I never assimilate all of the facts. :-)

I have a list of some informative links that I can post later on sleep research.

My older sister is like a clone of me. It has only been the last few years that we have been discussing our medical issues with each other. She is 12 years older than me and we never really talked about things like that until we noticed how similar our problems were. I steered her into a sleep study and she was diagnosed with apnea. She has all the same symptoms of fibro, she was diagnosed, and adhd. She is hesitent to admit to the adhd but from
everything I have read and my knowledge of her she fits the ticket. I have another sleep study scheduled in two months. Hopefully something will come from it. I will be pursuing the issue of non-restorative sleep much closer now.

Here is an article I just found that has some helpful reading.
http://www.ptjournal.org/Jan97/krsnich.cfm

tl,dr:

I have poor sleep and wake up unrefreshed.
How would you rate your sleep quality? :faint:
-Kevin

Ichpuchtli
05-29-05, 04:53 AM
Have you ever considered sleeping drugs or maybe you sleep walk, sleep walking can drain energy from you. If it is your meds stop taking them for a week let them get out of you system if that makes no differents go back on them but if you do that alert of docor.

I don't think any of this is in youyr head, I think you are a restless sleeper or just a person who stays up late are one of these true if not say so. I would reccomend seeing a doctor about this because being a sleep lover myself I would hate to have spent years with out a good sleep.

In answer to the end question because I skiped through alot of your post so I hope I have answeresd well, I get great sleep unless it is a week day then I am woken up by an annoying alarm at 5:45 am every morning.

I hope this sleep thing can be cured in todays modern therapies or medicens. I really feel for you because I love sleep so much I can not get enough of it unless a great TV show is on.

Good luck.

Andrew :) :)

LucidChaos
05-29-05, 11:14 PM
Have you ever considered sleeping drugs or maybe you sleep walk, sleep walking can drain energy from you. If it is your meds stop taking them for a week let them get out of you system if that makes no differents go back on them but if you do that alert of docor.

I've tried ambien and lunesta but all they do is allow me to get to sleep
faster. They do nothing for my restoration problems. I have had this problem for 30 years or so even when I was not on any medication.

I don't think any of this is in youyr head, I think you are a restless sleeper or just a person who stays up late are one of these true if not say so. I would reccomend seeing a doctor about this because being a sleep lover myself I would hate to have spent years with out a good sleep.

The reference I made to it being "all in your head" was about a book
with that title. The book is a serious book describing a legitimate syndrome
that IS in your head...a dysfunction of your HPA axis. A very interesting
read.


I love sleep myself, dreams especially lucid are so much. I know I have at
least one sleeping disorder (RLS, PLM) and possibly delayed sleep phase syndrome but nothing that has been prescribed has helped alleviate the feeling of utter exhaution upon wakening.

I am going to be evaluated again in about two months.

In answer to the end question because I skiped through alot of your post so I hope I have answeresd well, I get great sleep unless it is a week day then I am woken up by an annoying alarm at 5:45 am every morning.

ugghh. I couldn't wake up that early if I went to bed at 9pm!

I hope this sleep thing can be cured in todays modern therapies or medicens. I really feel for you because I love sleep so much I can not get enough of it unless a great TV show is on.

Good luck.

Andrew :) :)
I can't seem to edit my original post to add a link so I'll put it here.
This link talks about many sleep disorders and their associated physical
ramifications.

http://www.emedicine.com/ped/topic2656.htm

hmmm, I can edit this one though.
Here is a snippet from the article.

"Medical-psychiatric–associated sleep disorders comprise the neuropsychiatric conditions that typically include sleep disturbances. Attention deficit hyperactivity disorder (ADHD), gastroesophageal reflux disease (GERD), pervasive developmental disorders (PDD), mental retardation (MR), Down syndrome, Prader-Willi syndrome, Tourette disorder, nocturnal asthma, depressive disorders, anxiety disorders, mania, neuromuscular disorders, nocturnal seizures, Kleine-Levin syndrome, chronic fatigue syndrome, headaches, and blindness with associated sleep disorder are representative of this category of medical-psychiatric–associated sleep disorders."


-Kevin

so_impatient
08-10-05, 07:58 PM
i dont sleep
4pm
i mean 4 hrs im on the phone

FlyGurl
08-10-05, 08:38 PM
I get between 5-6 on a good night...and thats with waking up all the time ... most times i get 3-4 hours of sleep...

i don't sleep walk or talk ... when i'm down for the count from being so tired i go into a super deep sleep and i'll snore..that happens about 4-5 times a month... then the next nights i'm back up and my brain is speeding....

oh well i try to get used to it....naps on the weekends are a god sent for sure!!

relvinnian
08-10-05, 10:43 PM
Man, Kevin! You sound exactly like me! I took Remeron for about a year and a half, and it was the best sleep I've had in my life. The drug was prescribed as an atypical anti-depressant to treat refractory depression, with an eye towards reducing my chronic sleep problems. The main problem I had was that I had to take alot for the antidepressant effect (45-60mg), and at this dose the drug did not suit me. It had some cognitive, and personality side effects I did not like, and it made my ADHD worse.

I can't comment reliably about sleep issues, because I haven't done a ton of research on the subject. However, I do know that sleep abnormalities are common in many neuropsychological impairments, including depressions, ADHD, etc. You've sorta rekindled my curiosity regarding this subject, so I'll probably end up doing some learning here shortly. I'll keep you in mind.

For the time being I take Trazodone and Benadryl for sleep, but I hate them. I'll probably ask my doc to put me back on seroquel or neurontin.

Good luck.
-Brian

Fraz_2006
12-17-07, 12:01 PM
I think alot of sleeping issues come with stimulants such as Ritalin/Concerta causing sleeping problems, not to sure about Adderall/Dexedrine ect

But is there not a drug that you can take before you go to bed that cancels out the stimulant effects making it easier to sleep?

Fraz_2006
12-17-07, 12:10 PM
Sorry, never relised how old this thread was.

Guest1
01-05-08, 02:11 AM
my sleeping paterns are messed up to the core