View Full Version : daughter diagnosed ASD, combined type ADHD, primary sleep disorder


Petite
05-27-17, 04:43 PM
Hi, I took my daughter to private psychiatrist to get assessed.
She was diagnosed as having autistic spectrum disorder traits, ADHD combined type and primary sleep disorder.

She was prescribed melatonin, but I'm not sure if it is working for her. She seems to fall asleep easier with this, and not waking up 1hour after she fell asleep, but still wake up 1time a night... She says she has bad dreams..

The psychiatrist sounded reluctant to tell me the diagnosis, but in the letter he clearly stated the diagnosis. He mentioned in the letter, he would possibly discuss trailing of stimulant medication.

I haven't really talked with my daughter about her brain is wired differently.
I haven't got back to her teacher about the outcome of this.

I'm wondering how I should approach this...

Did you talk with your children about this?
Did you tell your children's teacher about this?

At the moment, she is a high achiever at school. She is an emotional kid, and she tends to get distracted and discouraged easily. She felt she was failing at math, although she was well above her year level. I had to sit beside her and praise her every time she tried math questions to get her to do all the assigned learning menus. Otherwise, she was refusing to do that.

I believe stimulant medication will help her like it helped me and my husband (both ADHD). I am bit concerned about crash effect, we both experience.

I grow up thinking nobody understood me, and I felt ashamed of not being able to do most people seems to be able to do without any problems. I always felt like a failure.

I hope with the right treatment, my daughter can thrive and fulfil her potential.

Any advice appreciated.

Thank you.

kind Regards

dvdnvwls
05-27-17, 05:08 PM
I would try very hard to stay away from "potential". It's understandable that parents' minds tend in that direction, but generally the effect of "potential" is to stifle and frustrate the person who supposedly have it. This is because "potential" ALWAYS carries the message "You're not good enough", even if that wasn't intended.

One good thing about trying stimulant meds is that if it's wrong you simply quit - there are no lasting effects.

Petite
05-27-17, 05:36 PM
That's a good point. I hadn't thought of that. I remember being told "why can't you do this, when you can do this and that..."

dvdnvwls
05-27-17, 06:21 PM
...and since you have ADHD, your truthful answer to "Why can't you" would normally be "Ummm, I have no idea" - followed silently & secretly by "Oh no, what's wrong with me?"

Kids are already acutely aware (much too aware) of what they can't do, except in rare cases.

sarahsweets
05-30-17, 04:33 AM
Hi, I took my daughter to private psychiatrist to get assessed.
She was diagnosed as having autistic spectrum disorder traits, ADHD combined type and primary sleep disorder.

She was prescribed melatonin, but I'm not sure if it is working for her. She seems to fall asleep easier with this, and not waking up 1hour after she fell asleep, but still wake up 1time a night... She says she has bad dreams..
Did the doctor give you any reason he did not try a stimulant for the adhd?


The psychiatrist sounded reluctant to tell me the diagnosis, but in the letter he clearly stated the diagnosis. He mentioned in the letter, he would possibly discuss trailing of stimulant medication.

Woops. Forget the above question but I still stand by the fact that he could have at least tried one the same visit he told you about melatonin.

I haven't really talked with my daughter about her brain is wired differently.
I haven't got back to her teacher about the outcome of this.

How old is your daughter? Age appropriate is the way to go. My son was diagnosed very young and started meds at age 4. At that age he was too little to even understand adhd and how impairing it was and would continue to be. It wasnt until about 1st grade that he actually had a question about why hen took medicine and we kept it simple.
If you are not looking for accommodations from the school, special ed help or extra help from the teachers then weigh your decision to tell them carefully. Ideally teachers should be on board with this and hopefully yours is supportive. If you get the jist that yours isnt supportive then I wouldnt involve him or her this late in the year.
I would definitely get the ball rolling for a formal evaluation over the summer so your daughter can start the new school year with help.

Google PRISE and Wrights Law.

Petite
05-30-17, 07:11 AM
I went back to the psychiatrist for the review today with my almost 7year old.

This is beyond frustrating....

The doctor again mentioned that the teacher did not have any issues with my daughter at school, and that the fact my daughter displaying ADHD symptoms at home is possibly due to chaos created by both ADHD parents. He wants us to do further testing such as "everyday attention for children" and possibly computer testing (TOVA?, he was not sure) in order to trial the stimulant.

I just feel intense anger now as I feel parental view of her symptoms are disregarded.
The doctor mentioned that she can focus on colouring in (her favourite activity) at the doctor's consult room and had no attention issue there and then....also mentioned she was able to put away toys.

I don't know why they need further assessment.... I am so frustrated and broke... we had to pay nearly $800 and still no treatment....

I don't know why they don't consider the fact the both parents have ADHD and just get on with the treatment!!! Arrr

Thank you for listening to my ranting....

Little Missy
05-30-17, 07:19 AM
I went back to the psychiatrist for the review today with my almost 7year old.

This is beyond frustrating....

The doctor again mentioned that the teacher did not have any issues with my daughter at school, and that the fact my daughter displaying ADHD symptoms at home is possibly due to chaos created by both ADHD parents. He wants us to do further testing such as "everyday attention for children" and possibly computer testing (TOVA?, he was not sure) in order to trial the stimulant.

I just feel intense anger now as I feel parental view of her symptoms are disregarded.
The doctor mentioned that she can focus on colouring in (her favourite activity) at the doctor's consult room and had no attention issue there and then....also mentioned she was able to put away toys.

I don't know why they need further assessment.... I am so frustrated and broke... we had to pay nearly $800 and still no treatment....

I don't know why they don't consider the fact the both parents have ADHD and just get on with the treatment!!! Arrr

Thank you for listening to my ranting....

As I have grown older I have found that money is my leverage. I do not pay ahead of time, I do not pay if I don't get what I went in for, and I do not ever pay if I'm being patronized or led on.

I'm really sorry this has happened to you. Just reading what you wrote has me very frustrated.

sarahsweets
05-30-17, 09:21 AM
I went back to the psychiatrist for the review today with my almost 7year old.

This is beyond frustrating....

The doctor again mentioned that the teacher did not have any issues with my daughter at school, and that the fact my daughter displaying ADHD symptoms at home is possibly due to chaos created by both ADHD parents. He wants us to do further testing such as "everyday attention for children" and possibly computer testing (TOVA?, he was not sure) in order to trial the stimulant.

I do not want to poop on your parade or progress but I think you should consider a second opinion. For whatever reason your doctor is being wishy washy about everything. Why acknowledge that a stimulant may be a possibility but have the B*lls to charge you 800$ first??

I just feel intense anger now as I feel parental view of her symptoms are disregarded.
The doctor mentioned that she can focus on colouring in (her favourite activity) at the doctor's consult room and had no attention issue there and then....also mentioned she was able to put away toys.

I don't know why they need further assessment.... I am so frustrated and broke... we had to pay nearly $800 and still no treatment....

Im sorry but IMO you and your daughter have turned into profit motives. There are no tests for adhd. There are tests for other disorders but this doctor has already ruled those things out and now wants to "test" for adhd. Its crap.

dvdnvwls
05-30-17, 03:01 PM
I can't see what the doctor is seeing, but something seems wrong.

Girls with ADHD, especially the inattentive type, are often not noticed in school. As long as school work is not too hard for her, she will probably do quite well, and because she doesn't act like a hyperactive boy, there's not much to get the teacher's attention.

(I, as an inattentive ADHD boy who found school easy, didn't get noticed much either.)

Is there a clash of parenting styles between you and your spouse?

maple17
05-30-17, 09:17 PM
Find another specialist. Seriously. You need someone who will listen to you and is knowledgeable in both ADHD and the spectrum with girls.

I'm sorry about being out of pocket. I get it. It sucks. I'm in Australia (I saw you're in NZ). The waiting list for public services here is long, so long. It was going to be almost a year before my daughter would have seen someone to get a WISC and WIAT done so we could start a learning plan. That meant a lost year of school. So, we've had every assessment done privately because she's 12, in high school, and went undiagnosed for years. It adds up.

Our developmental and behavioural paediatrician is also private. She's part of a practice that specialises in ADHD, ASD, SPD etc. Also expensive, but we got in within three weeks of seeing the GP vs about six months for the others.

My daughter was diagnosed with ADHD last September. We did a med trial. Lucked out with our first one and it's worked beautifully. Paed at the time said she also suspected ASD. The psych who did the WIAT and WISC said the same (she sees a lot of ASD girls). We're now in the evaluation process for ASD. I just met with her school yesterday. With the results of her evaulations to date, we have enough for accomodations to be made right away and will draft up the formal learning plan at the end of the ASD assessment process. As the meds have really reduced her ADHD symptoms, we see more of the ASD in daily life.

None of her teachers in primary school (save a music tutor who saw her 1x a week) saw any issues whatsoever to indicate ADHD/ASD, so it's nothing new to say that teachers don't report any problems.

Reading your post, your daughter sounds so much like mine (bright, super emotional, even the maths issues and the bad dreams). I just wanted to say that with the right help and support team behind you, things will get better. Life for my daughter has improved so much since this time last year. It's not perfect, but it's a lot better. Heck, she even enjoys maths now and she's been doing her homework in her spare time at school vs the epic battles we had all last year. Please find someone else who will listen to you. I'm sure there's a NZ-specific online forum elsewhere (you probably know who I mean) with parents who will be familiar with good paeds and who can recommend someone. The Australian ones know who to see and who to avoid. Good luck.

Lunamoth
05-30-17, 10:54 PM
Please see the paediatrician I recommended over PM who was fantastic with my daughter. I feel immensely frustrated on your behalf, especially that he is not giving sufficient weight to your opinion as an informed parent. No one knows your daughter better than you do!