View Full Version : Does my daughter have Asperger's?


chitcat
07-24-05, 11:24 PM
Hi,

I'm new to this forum, but have ADD/ADHD experience with my husband, step-daughter and possibly son. It was recently suggested to me by school staff that my son is ADHD, but my daughter is the one I'm more concerned about.

She was born full term, but wildly under-sized (less than 5 lbs). She spent a month in the hospital due to respiratory and heart issues which all resolved themselves. She had multiple hemangiomas that developed during her first 6 months. She also had an EXTREME "outie" belly button and had it surgically corrected at 9 months. (This had been the diagnosis by her exasperated doctors as the "cause" of her small size/condition at birth -- that the skin on her abdomen grew around the umbilical cord and restricted nutrients.)

At 8 or 9 months she had a febrile seizure due to a high fever and was hospitalized for a few hours via the emergency room.

Her fine motor skills lagged ... her eating was sloppy and her walking a little swaggy, tho she did walk at 12 months. By 18 months it was obvious that her speech was delayed and we began evaluations and therapy. During one, the doctors observed that she had an impish look with upturned nose, almond eyes and strong forehead (for the record, I think she's beautiful!).

She's now 5 and still woefully behind in her speech. She's been going to speech therapy 3-4 times a week since age 2. But her speech is only part of it. Her other "symptoms" ... I don't know if they are a direct result of her inability to express herself verbally or if they are a manifestation of something else. I've read some sites and postings on Asperger's and I'm just not sure. Wondering what you all think. Here's what she does/how she is:

Obsessed with cats/kitties. She meows and holds her hands up to her chin like paws and says "kitty" at times when she's feeling pressured or embarrassed or uncomfortable.

In general play and especially with our dogs she makes what we call "animal noises" -- a non-stop string of high pitched squeals and chirps. She seems unable to control it. I can ask her sweetly to please stop doing it and 10 seconds later she's at it again.

She is "rough" with our pets -- treating them more like toys than animals.

She sometimes hits her forehead repeatedly with her fist or palm while making her noises. This isn't non-stop and everyday, but when it happens, it's extreme. It used to be daily, but now is more like once or twice a week and she's able to stop when brought to her attention.

She sometimes strangles her stuffed animal toys and/or uses them to hit her head. Again, simultaneously with her animal noises.

She unexpectedly lashes out at kids she doesn't even know. Like if a girl in the supermarket looks and smiles at her, she'll say loudly "what?". Or at the zoo, she'll walk right up to another child and scold them for something. Bizarre.

She's ultrasensitive to loud noises -- covers her ears at things most kids can tolerate.

She started off as a very timid kid (afraid of carnival rides, people in costumes, pony rides, swimming) but has gradually worked out some of it.

Has trouble playing with peers. Tends to be a loner.

Is overly impressionable/prone to crushes with older boys that she encounters in day care settings.

She's not overly affectionate (or even mildly affectionate, for that matter) with humans -- including me and her dad -- but she is with her stuffed animals. Her older brother hugs and kisses but she will turn her cheek to allow us to kiss her instead of truly offering a kiss.

She has an overwhelming sweet tooth, but also readily eats her veggies and loves all things pickled and tart. She LOVES tomatoes and tomato juice.

She's lean and muscular.

She's very fair skinned with surface/visible veins along her chest and arms.

Even with her verbal delay, she is bright and does well with academics. Her reading and spelling are right where they should be.

She was potty trained at 2 years, but still wears pull-ups at night and wakes up wet over 50% of the time. On a recent trip and on other occasions where her schedule has been upset, she's had peeing accidents during the day.

She continues to have some fine motor issues, mostly with her mouth (ie, speech) that includes messy eating for her age and poor teeth brushing habits.

Over all, she's a happy and creative girl. She loves to swing and draw and can wake up and quietly look at books alone for an hour without bothering anyone. She dresses herself with intense attention to matching her colors. And she LOVES music and has very definite tastes. I have to skip songs on the CD to get to the ones she likes.

I know this was long and sorry if I over-did it on the symptoms, but I didn't want to miss something that might be significant to you who are "in the know".

thx!

Imnapl
07-25-05, 12:02 AM
Cat, is your little girl in school yet?

sgolden5374
07-25-05, 12:21 AM
My suggestion is I think you are right to be concerned. I would seek a specialist in your area. You could seek out a DAN! Doctor (these docs specialize in treating autism), but they can be hard to find and harder to get an appointment with - also pretty expensive. I would suggest taking her to a Developmental Pediatrician. Dev. Ped. will look at her entire history and be able to discern exactly what her problems are. You can never be too early to seek out treatment or advice so good luck!

Nucking_Futs
07-25-05, 07:16 AM
If Seatle is in Washington (I'm geographically lame I'm afraid)

You can start by trying to make an appt. with

Sierra,
Lilliam A Lilliam A Sierra MD
7301 W Deschutes Ave, STE A
Kennewick, WA


He/she is a developemental-behavorial pediatrician and would probably be your daughter's best bet at an accurate dx. and tx.

If I'm wrong just google WebMd and it will walk you thru the doctor finding.

Keep us posted.

Pigeon
07-25-05, 09:25 AM
I've been doing a little research lately on aspergers and autism, this website really helped me figure some stuff out, maybe it can help you.... http://www.aspergers.com/ .... after looking through it you might have a better idea of what to ask her doctor about? That's what I like to do, then at least you can go to the doctor and not just say "here she is", you can have some idea of questions and specific examples..... hope it helps!!

Pigeon

p.s. this is a general page, I have others that are more intensive if you want more info, but this is a good place to start.... lemme know!

chitcat
07-25-05, 11:04 AM
Cat, is your little girl in school yet?

She's been in preschool, specifically for her verbal delay (as well as a lesser issue with social skills) via the school district. That was from age 3-1/2 until last month. She starts a blended K program in the fall, which is a smaller class size (17) and 10 are "regular ed" and 7 are "mildly special ed" students.

I agree with all of you that I need professional advice, just trying to form some of my own ideas ahead of time. I've talked with teachers, speech therapists and our GP (we don't have a pediatrician, just one family doctor who treats all of us and who I trust and love). No one has seemed overly concerned about the behaviors. They all seem to think they'll subside as she gains more skill/confidence/control with her speech.

Thanks for the doctor suggestion, Nucking Futs -- you were geographically on, as Seattle is in WA, but Kennewick is a long haul. And for the sake of efficiency/time, I was hoping I could find one doctor who might be able to diagnos my son for ADHD and my daughter for Asperger's ... do you think there are specialists who cover both? I've just been having a hard time finding ANYONE in the immediate Seattle area who deals with kids and ADHD. I know they have to be here, so I'll continue to look. And will definitely check out the aspergers.com site.

Thanks!

sgolden5374
07-25-05, 12:21 PM
Yes, a child psychologist could determine both dx. But, I will tell you that a developemental - behavioral ped. will do a more thorough and precise job, plus they can dx ADHD, too. You see, it was thought by our regular ped. that my ADHD daughter may have both ADHD and Asperger's, but because I was freaked out by any mention of autism or Asperger's I ignored his advice. Now she's in therapy and her therapist has discovered that while she doesn't have Asperger's in the "full-blown" sense she does have some Asperger's indicators. So, we have to treat her as if she does have it. I am currently looking for a dev.ped. for her here where I live so that I can get a more acurate dx and find a way to make both her life and mine better by getting her the exact treatment and behavior mods in order.

Again, good luck to you!

chitcat
07-25-05, 02:59 PM
After literally weeks of sifting through web sites and google searches and email requests to CHADD, etc etc, I think I found the place for the diagnoses of my son and daughter! yippee ... but i'm on a 2-3 week waiting list before they call me back for a phone interview. The actual appt may be months from now, I bet!

Pigeon
07-25-05, 03:16 PM
After literally weeks of sifting through web sites and google searches and email requests to CHADD, etc etc, I think I found the place for the diagnoses of my son and daughter! yippee ... but i'm on a 2-3 week waiting list before they call me back for a phone interview. The actual appt may be months from now, I bet!
the good mother that you are getting it started when they are this young though, think of that.... plus when you finally do get in it'll all be worth the wait especially for such a specialist :D best wishes -- Pigeon

Nucking_Futs
07-25-05, 04:42 PM
Cat, is your little girl in school yet?[QUOTE]

She's been in preschool, specifically for her verbal delay (as well as a lesser issue with social skills) via the school district. That was from age 3-1/2 until last month. She starts a blended K program in the fall, which is a smaller class size (17) and 10 are "regular ed" and 7 are "mildly special ed" students.

I agree with all of you that I need professional advice, just trying to form some of my own ideas ahead of time. I've talked with teachers, speech therapists and our GP (we don't have a pediatrician, just one family doctor who treats all of us and who I trust and love). No one has seemed overly concerned about the behaviors. They all seem to think they'll subside as she gains more skill/confidence/control with her speech.

Thanks for the doctor suggestion, Nucking Futs -- you were geographically on, as Seattle is in WA, but Kennewick is a long haul. And for the sake of efficiency/time, I was hoping I could find one doctor who might be able to diagnos my son for ADHD and my daughter for Asperger's ... do you think there are specialists who cover both? I've just been having a hard time finding ANYONE in the immediate Seattle area who deals with kids and ADHD. I know they have to be here, so I'll continue to look. And will definitely check out the aspergers.com site.

Thanks!

I did all of WAshington and that is the only doc with that specialty but you may find someone closer who knows AS without actually having to see a specialist right off. Am I making sense? completing 5 projects at once here. lol

chitcat
07-25-05, 05:08 PM
Yeah, we actually have a top notch children's hospital here that looks like Disneyland inside. I considered that at first, but it's always too depressing for me to go there. I get too emotional when I see kids who are really, really ill -- not that all these issues I've been talking about aren't illnesses, but you know what I mean. I'd rather avoid a hospital setting. So I ended up finding a center at the University of Washington Medical Center. It's also highly regarded across the nation. I know they have a clinic that specializes in autism as well. They're a bunch of braniacs, so I'm sure I'll get opinions I can trust ...

I keep getting mesmerized by Napoleon doing his dance thing ...

sgolden5374
07-25-05, 08:53 PM
That's great! Universities or teaching hospitals are usualy great places to go.


Good Luck!

Crazygirl79
08-25-05, 07:48 PM
I'm not sure if she has autism/asperger but like others have said on here it's best to see a doctor specialising in children's behaviour.

Take Care

Selena:)

Emma S
08-25-05, 10:22 PM
Chitcat,did your daughter get scans for any possible brain damage caused during the convulsions?

I was told by a doctor it is possible to have brain damage from convulsions, regardless of whether it shows up on a scan or not,it's one area that would need looking at-your list is identical to myself (inc. the cat obsession,and noises)and i'm dxed autistic-also had febrile convulsions-the majority of the traits you mention are very autistic-like,but it could also be something else that acts similar to autism,it would be worth it getting it checked out as early as possible as it might take a long time getting a diagnosis due to the complexity of the situation.

Crazygirl79
08-28-05, 10:10 PM
I've heard that there are types of brain injury that are similar to autism/asperger but a large number of autistics are also epileptic...maybe you should look into both??

Emma S
08-29-05, 06:39 PM
I've heard that there are types of brain injury that are similar to autism/asperger but a large number of autistics are also epileptic...maybe you should look into both??
Crazygirl,the type of seizure the girl had wasn't epilepsy-convulsions are brought on by high body temperature as a result of temperature related illness-epilepsy is a disturbance in neuron activity.

Crazygirl79
08-31-05, 07:15 PM
Thanks Emma...I didn't realise...I was only asking a question!!