View Full Version : if anyone knows about adderall please reply!!! Im really worried for my son
11-04-05, 08:20 AM
I am new here dont even know if im doing this right or not. tried on another board and got no replies. My son is 7 he has been diagnosted with ADHD. His doctor put him on adderall the fast acting kind. 5mg to start and then 5 2 times a day when it wasnt working. well he was on it for 4 weeks and for the last week and a half he did great i noticed such a difference while the meds were working but after about 5 hours he would get so moody withdrawn over emotional would cry about anything and started having tantrums really bad. But while the meds were working he was so wonderful it was like night and day. The doctor switched him to adderall XR 3 days ago. It doesnt seem like hes as well behaved as he was on the regular adderall. he'll argue and talk back and get mad really easy like he did before he started meds, and at night time hes doing just like he did after the regular adderall would wear off. Horrible mood changes crying all the time! and he cant sleep at night. I am so frustrated. cant seem to find something to help him. I'm wondering if I made the wrong choice to get meds for him. I want him to feel better not worse and it breaks my heart to see him this way. Are these side effects normal? do they get better with time? and do you think the XR will work more effectivley after taking it for a while? If the mood changes would go away and he could sleep i would feel so much better. His school sees a difference and wants him to stay on it. HELP!! Anyone who can give me any advice at all about this drug and what I should do it would be greatly appreciated.
Sounds like the Dr. has experience here. Share your concerns with him. It look like he is trying to find the best brand and dosage for your son. Unfortunatly this has to be done by trial and error.
Kids can often have a "rebound effect" once the meds wear off. My daughter had rebound effect and we simply went to a lower dosage and that helped a lot. She does get a bit moody sometimes now around dinner but that usually goes away after an hour or two. I rent her a video if this happens. I'm trying to get an appointment with a new specialist and we will look at other stimulants to see how they work with my daughter. Theraputic levels of stimulants are considered the safest and most effective class of drugs out there.
Our 11 year old was on ritalyn and then Concerta for several years. The Concerta was better than the ritalyn because it was less cyclical, the come down was mellower. Last year she developed a tic so we took her off. I have been taking Adderall and then Adderall XR. The XR come down was a lot mellower than the regular so we are trying Adderall XR on her and things have been better. Have you tried the extended release formula?
I am currently trying out Strattera to see how that is. So far I have been pretty happy with it but it has only been 3 1/2 weeks. Seems to not have as many side effects as Ritalyn and Adderall. Since I am also ADHD I try out the drugs before I will put her on them. I've tried them all and although they helped they have side effects that I didn't care for. Ritalyn I always felt foggy, Adderall caused severe insomnia when I first started it, raised my blood pressure and caused muscle tension. So far all I have noticed on Strattera is a slight pressure through the temples, constipation and I tend to wake up earlier than normal. But now I can go to sleep earlier instead of lying in bed with my mind going 90 mph. These I can live with so I hope it helps my focus. Strattera doesn't do much about the Hyperactivity but I learned to deal with that a long time ago. I just need something that allows me to focus on what I need to do instead of bouncing from one distraction to another.
By the way, I found I had to take Adderall everyday or I went through the insomnia bit again. I could cut back on it on the weekends but I couldn't quit taking it.
11-08-05, 11:05 AM
Jennie I feel for you, we started my middle girl on Metadate (lowest dose) this year, and she went through the same rebound that you and others have seen. Right at the end of the school day (at least she made it through the school day) - crabbiness, easy crying or going ballistic over something her sisters did to push her buttons. Doctor moved her to Focalin with a longer duration and apparently a lot less rebound, or perhaps just the fact that the metadate was starting to wear off at the same time as the school to home transition added too much stress.
On top of that, she's gained 1.5 lbs since starting the meds in August, but has shot up in height and seems even skinnier than her usual skinny to me. And yes, some sleep problems - if as bad as you say with your son, that might worry me more than the rest - kids really need their sleep for development. Guess I'd say don't be shy to keep knocking on doors (within your financial/insurance limits, so many challenges there too, sadly...) until you find what works for your boy, and don't ever discount your own instincts about whether something is working, because ultimately it is not the doctor who will have to live with the choices you make.
Healthy fear of medicine is something I like having myself. But believing my girl is better off getting some help to catch up in her problem areas, rather than being held back a year and not challenged in areas where she is doing very well, I'm proceeding. With much worry and maybe a little guilt. Same old story?
11-08-05, 11:14 AM
Slide wrote: Since I am also ADHD I try out the drugs before I will put her on them. I've tried them all and although they helped they have side effects that I didn't care for. Ritalyn I always felt foggy, Adderall caused severe insomnia when I first started it, raised my blood pressure and caused muscle tension.
For me, I am sleeping better with Adderall, my blood pressure is lowered, and about the muscle tension...you can probably guess. As I'm understanding it, in my case, I'm reacting opposite to what's more "normal" because being able to be more present and keep up with my day-to-day is decreasing my stress considerably. (I'm in the minority, here, but it's not such a tiny minory, or so my Dr. says.)
Just mentioning this because parents do talk and just as with adults, what works one way on one kids is going to be 180 in the other direction for another. Would it vary that extremely with family members? (I don't know.)
11-08-05, 12:58 PM
Please let your doctor know.
There are some side effects, however most subside after a week.
I don't know about extreme moods..I havn'e experienced this with myself or my son. We are both on Adderall XR me on 40 him on 30.
I do know the rebound is normal. I mean the normal ADD behavior is back..and after being medicated seems like yikes! to us..but if it's that extreme please let your doc know. The sleeping thing is also pretty normal. Although I found once I had the right dose, took it early, I am able to sleep normally.
If I take it late. I have to use Valerian Root to sleep and my son uses Melatonin. We also both have noise machines in our rooms. These are wonderful for sleep and studying...
A lot of times we have to try several meds and different doses to find the best for us.
I have been on them all except Strattera.
Some don't work, some had bad side effects.
I have done it long enough and talked to my doctor, once I tried the Adderall he let me play wiht the doses to see what worked best for me. (Within reason)
can't do that for a child.
My son has been on almost all of them as well. We both are best on Adderall Xr .
Let us know how it goes.
11-08-05, 01:23 PM
You may have found the right drug (the amphetamine in adderall) for your child, but the delivery system (and the dose?) is not working for him.
Adderall XR delivers amphetamine in two jolts, 1/2 immediately and 1/2 after 4 hours. It is designed to mimic twice-a-day dosing, with regular immediate release amphetamine salts. So, instead of taking 1 X 5mg adderall immediate release tablets twice a day, you take 1 X 10mg XR once a day.
Dexadrine (dextro-ampetamine) is the main active ingredient in Adderall. There are long-acting dexadrine spansules (a capsule with time-release beads like dristan) that deliver dexadrine over a 10 to 12 hour period-- these have the advantage of being one third the cost of Adderall XR.
The only problem with dexadrine spansules is they don't deliver an initial jolt. The beads provide less of the drug in the first few hours, but maintain a higher level of the active component after that throughout the day. If your son is experienceing a crash, this might work better for him, but the morning treatment may be less effective.
Doseage may be another issue. If the doc prescribes a higher dose, the drug will last longer at a theraputic level, declining over a longer period of time. So, a crash may come at a more appropriate time, in the early evening, when you and your child can deal with it better.
However, a higher dose may affect his sleep (sometimes in unexpected ways). Though sleep problems may improve with time.
Sleep: Ritalin and its derivatives are metabolized rapidly; you can time doses so that little drug will remain in your child's system at bed time.
In any case, work with your doc. But many docs have been sold on Adderall, due to heavy marketing, not science, and they forget there are many alternatives which contain the active ingredient.
You really have to experiment with dosage and delivery with these drugs, since every child is different. The good thing is that you should see benefits or problems within a short period of time, once he has become accustomed to the drug.
11-08-05, 08:16 PM
Jennie, I did respond to your post in the other thread as well. Currently, I am on Adderall XR, twice daily. I am leaving in about 15 minutes to pick up my refill RX for Wellbutrin to go with it. I have not taken the Wellbutrin in about 10 days and I can really see the difference in just the adderall. It is amazing. I'll be interested to see if after being back on Wellbutrin my mood swings, grumpiness, etc. declines. I don't know if they prescribe both for children but it might not hurt to ask if it would help?
11-09-05, 01:01 PM
thank you all for responding to me it helps to get some insight from others with the same problems. Well it's been about a week since my son started the XR. I think maybe he is doing a little better or maybe its just that I am learning how to cope with him better. I think at first it was the shock of the behavior when he was comming off the meds. After listining to all of you I have kindof just learned how to pick and chose my battles with him. Unless it is nessecary I dont push him or try to just pacify him when he gets this way. Ive been trying to keep his mind off of it by doing things with him that make him happy, but if I have to confront him with something he might not want to do like take a shower he will totally loose it the mader i get the worse he gets. So i have been trying to let things go and not make a big deal out of things unless it cant be avoided. Its like his emotions and anger escalates when he sees me getting frustrated or mad. I think it might be getting better it doesnt seem as frequent or as intense as it was in the begining or as when he was on the fast acting adderall. Guess all I can do is hang in there. His teacher talked to me for an hour friday night and had nothing but positive things to say about him. He's really makeing great improvements in school, so for now I will just keep trying to deal cause his schooling is so very important. Though I do wish his home life was a bit better. It so sad what these kids have to go through especially when they dont really understand why. Thanks alot!!