View Full Version : Desparate for tic relief (including non-meds solutions)


Naomi2
03-06-06, 03:35 PM
...please help!

Andrew
03-06-06, 10:44 PM
Here's some info...hope this is helpful:

New Type of Medication Offers Tic Relief in Adults with TS

The 3rd International Scientific Symposium on Tourette Syndrome was held in early June in New York City. Researchers from Emory University in Atlanta presented data regarding a medication called Tacrine hydrocloride. This medication is currently prescribed for selected memory disorders, not for TS, however, in a study with adult TS sufferers, it was shown to reduce body and vocal tics. There was also improvement in attentional difficulties, hyperactivity, impulsivity and obsessive thinking.

Tacrine is a cholinergic agent that promotes acetycholine transmission in the brain. It has been shown that drugs that block acetycholine transmission aggravate tics, so it makes sense that Tacrine would do the opposite. However, researchers have found that Tacrine must be taken in only low dosages, because higher dosages either didnít work or aggravated the symptoms. It is also a short acting drug which must be taken four times a day. It can cause liver damage and thus requires periodic monitoring of liver function. What makes these findings exciting is that even if Tacrine itself does not become a drug of choice for those with TS, it points the way to a new category of medications that may prove to be safer and more effective than those currently in use such as dopamine blockers, selective serotonin reuptake inhibitors and stimulants.
Source: http://www.tourette.net/wa/newsletters/Newsletter-1999-3.html

Andrew
03-06-06, 10:48 PM
You should REALLY spend some time on this link http://pcnp.adv100.com/pcnp/article/articleDetail.jsp?id=117471 ...there's some great discussion about meds and non-drug treatments as well.

Excerpts:

A confirmed diagnosis of TD and education about the condition is a great relief to many patients and their families and may enable them to delay or avoid tic medications. Many patients report that being able to put a name to their disorder decreases anxiety levels and helps diminish tic severity. Seeing the tics as "nonself" (for the patient) and nonvolitional (for family and peers) can be helpful. Families may benefit from joining the Tourette Syndrome Association (TSA), which has many local chapters.* The TSA provides a newsletter, brochures, support groups, an annual meeting, updates for clinicians, and advocacy in schools and places of employment.

*Tourette Syndrome Association, 42-40 Bell Blvd, Bayside, NY 11361; phone, (718) 224-2999; Web site, http://www.tsa-usa.org ; e-mail, ts@tsa-usa.org

Traditional psychotherapy is not helpful for tics. Behavioral methods occasionally are recommended for patients struggling with a single severe motor tic. Habit reversal is the most common of these techniques, but studies are small and lack statistical power.11 In habit reversal, patients with a complex tic or other habit disorder (nail-biting, hair-pulling) increase awareness of precursors or early stages of a habit. A patient who repetitively hits himself on the head, for instance, would be taught to focus when his hand was lifted above his shoulder, and then to do an action "reversing" the habit; for instance, extending the elbows and fingers to make punching the head impossible. This technique requires practice, concentration, and motivation and is unsuited for patients who lack sensory prodromes, have multiple tics, or who have severe comorbid ADHD.

Naomi2
03-07-06, 01:08 PM
Thanks a lot. One problem is is that I like in England, UK and treatements and support groups etc. differ from in America and are less common.

I shall try to look into them though.

In the meantime, anyone else here who has any suggestions/information etc., please do post them here too :)

Thanks again :)

Andrew
03-07-06, 02:02 PM
For UK Support Groups, you might want to try:

Tourette's Syndrome (UK) Association http://www.tsa.org.uk/

and this article: http://www.cafamily.org.uk/Direct/t24.html

Naomi2
03-19-06, 07:57 AM
Sorry. Forgot to say thanks :rolleyes: :)

dancingirl
03-31-06, 06:46 PM
have you tried acupuncture? i don't know that it is a long term solution, but i tried it for a while...i didn't experience complete relief from my tics, but i found that sometimes it would minimize them, or change them to become more mellow rather than violent or jerky (if that makes sense). i also received a regime of chinese herbal treatments. i thought they seemed to help with my mood swings (at the time i was dealing with frequent onsets of rage). you have to take a TON of pills though, like 40 a day, and i just couldn't hang with that. but it may be worth looking into...?