View Full Version : I think I may have tourettes


geckoboy
06-15-06, 09:48 AM
First I would just like to say hello to everyone. I am 34 years old and since I was about 13 years old I have had problems with what I always believed to be bad nerves. It may be that I only do have bad nerves, but I would love to run through some of the things that have been issues in my life.

Not to want to be seen as bandwagoning, what lead me to believe I may have tourettes is seeing the behaviour of the guy called Pete on Big Brother. I never realised there were so many facets to it until I saw that some of his actions are similar to mine.

At about 13 I started getting a compulsion to shake my head side to side, this elevated into a more severe nodding of my head. I would do this several times in the space of ten minutes and it always felt like a release of pressure. In my late teens I lost this compulsion but it was replaced by making a strange noise in the back of my throat and also sniffing (which I still do now).

At one stage for several months, I got into the habit of making very rapid two fingered gestures at my parents. I was fully aware of doing it, but I could not stop myself.

As far as my sniffing goes, I often pass it off as bad sinuses (even when I get asked if I have cocaine habit!?!?!). I have always passed my behaviour off as bad nerves as I think I am a nervous person. All my compulsions seen to relieve something for a few seconds, but then they come back.

Does this behaviour sound anything like Tourettes? I have never openly spoken about this in my life before because I have felt too embarrased and sensitive about it.

Tim

~boots~
06-15-06, 09:54 AM
Tim, welcome..and never feel bad for asking about something..we are all here to listen, and even if we don;t have any advice, someone else, no doubt will have some really helpful information :-)
Do you know anything about autism, or Aspergers..I know it may sound strange, but people with autism, and aspergers like to sniff things a lot, and make weird sounds...

And trying to cover up the sniffing, makes it look a bit weirder..

good luck, and again, welcome to the forums :-))

RogerThat
06-15-06, 07:15 PM
Hi, GeckoBoy,

You certainly seem to have had tics (verbal and motor) at points in your life. I would recommend you get in touch with your state's Tourette Syndrome Association. They can recommend a neurologist to help with a diagnosis of your symptoms. It sounds like this information would give you piece of mind. By the way, sniffing is a very common form of vocal tic (whether symtpomatic of a transient tic disorder, chronic tic disorder, or TS).

Take good care.

Scattered
06-16-06, 12:16 PM
Welcome Geckoboy and Rogerthat to the forums!:) I want to second Rogerthat's advice.

Just an FYI, in a recent workshop I attended at the ADDA Conference, Dr. Dodson told us that caffeine is the worst aggrevator or Tourettes -- so it might not hurt to avoid or reduce intake of caffeine.

Do you have ADHD? The two are common companions. ADHD stimulent medication makes tics worst or better in about equal numbers.

Scattered

geckoboy
06-18-06, 08:17 AM
Hi, thanks for your suggestions.

I have no idea of what I have as I have never consulted anyone or spoken about it in the 24 years that it has been a big part of my life.

My next move is to find a specialist in my area and ask of their opinion. I think the biggest step for me so far is just actually getting it out rather than keeping my feelings about it in.

cheers,

Tim

Scattered
06-19-06, 04:15 AM
Talking and learning about it is important. You may decide the medication route isn't worth it, but having understanding and validation can go a long way!


Take care,
Scattered

Naomi2
06-26-06, 07:06 AM
Hello there :)

I have chronic motor tic disorder (same as Tourette's syndrome without the vocal tics) and what you describe could be Tourette's syndrome (TS).

Have a look at the following diagnostic criteria for more information:



Tourette’s Disorder
This is a rare disorder characterised by repetitive muscle movements and vocal outbursts. The main diagnostic criteria are as follows:

· At some time during the illness, though not necessarily at the same time, the patient has had both of:
At least one vocal tic (a tic is a motor movement or vocalisation that is nonrhythmic, rapid, repeated, stereotyped and sudden) and
Multiple motor tics:
For longer than 1 year, these tics have occurred many times each day, nearly every day or at intervals.
· During this time, the patient never goes longer than 3 months without the tics.
· These symptoms cause marked distress or materially impair work, social or personal functioning.*
· The symptoms begin before age 18.
· The symptoms are not directly caused by the effects of a general medical condition (such as Huntington’s disease or a postviral encephalitis) or substance use (such as a CNS stimulant).

There may be other symptoms, such a mental coprolalia, obsessions, and compulsions.

Approximately 1% of mainstream schoolchildren may be affected. Onset usually occurs with motor tics followed by vocal tics. The cause of Tourette’s Disorder is genetic in most cases. It occurs most often in boys, and may begin around age 7 or 8 but may not appear until the child is in his or her late teens or early twenties. It may run in families. The tics are worse during emotional stress and are absent during sleep.
If you want, follow this link:
http://multiconnection.tripod.com/greenconnection/dxidtoolbetanochart.htm
Then answer questions 1-6 and 98, click on 'calculate' and see which of the four tic disorders it comes up with at the bottom.

Of course, it may not be a tic disorder, but if it is, the one with the highest probability will be the one with the highest percentage at the end (out of Tourette's syndrome, chronic motor tic disorder, chronic vocal tic disorder and transient tic disorder).

If you need further information, here is a page full of information on all four tic disorders:
http://multiconnection.tripod.com/greenconnection/tic_disorders.htm

I hope all that was useful to you :)

If you have any more questions at all, we're all here to help, so don't be afraid to ask :)