View Full Version : Posssible Misdiagnosis?

07-18-06, 02:42 PM
My son was diagnosed with ADHD about 6 years ago and has been taking medication ever since. Recently he was tested for Celiac Disease and the result was positive. Upon research, I have discovered that many of the symptoms are similar. So I am now wondering if he was misdiagnosed and has been unneccessarily taking ADHD medication all these years.

07-18-06, 02:57 PM
The question is did he show improvement on the ADHD meds? Maybe he has both. Is the Celiac med improving the ADHD symptoms? I would think it is hard to prove a misdiagnosis of ADHD since there is no certified test that detects it. Even SPECT technology by itself does not qualify as a diagnostic test.

07-18-06, 03:10 PM
He is currently taking Adderall XR which is working ok, but not great. He has been tried on several other medications, including Ritalin, Strattera and Concerta with little to no results. Unfortunately Celiac Disease cannot be treated or cured. It is a lifelong disease that will have to be controlled through his diet. He will be 13 next month.

07-18-06, 03:12 PM
Have you thought about have him re-evaluated by an AD/HD expert or specialist?

07-18-06, 03:20 PM
I just found out about the Celiac Disease yesterday, so I really haven't had time to think about a re-evaluation of the ADHD. I was just surprised to see the similarity of some of the symptoms.

07-18-06, 06:16 PM
so meany things mrrior others he might have both id have him reafated an see were it gose from there let us know how things go plasees dorm

07-20-06, 01:09 PM
Thanks for sharing the information about your son. Gary's sister was on the Adkinsís diet for a while and was telling me about "carb" addiction, she had lost a lot of weight on this diet, but was having a hard time giving up breads. I remember telling her that would be easy for me because eating to much bread always made me feel bad, I always felt bloated and I often eat things like hamburgers and hot dogs with out the bread because I feel an "aversion" towards any thing more than a slice every one in a while. I find listening to my body is normally the right thing to do.

I read that this discovery of celiacs disease in your son wasn't long ago and thought some of these sources may be a benefit to you in the dietary quest that is now required. I do hope these links will be useful.

About -describes symptoms (

Celiac organization (

Has many links to information (

Celiac Extensive source of dietary information (

Research (

Hope these are of some help. Please keep us posted as to how things are going. Beyond our ADD diagnosis we are people who care and want you to find the resources that will best assist you and your son!

Getting the celiacs (sorry my spell checker keeps changing the name :eyebrow: to Celtics) under control is of utmost importance, after your son has had time to get this food reaction under control I would go in for a re-evaluate of the ADD sense you are correct this could have mimicked ADD. I would not want my child on medications that were un-necessary; I understand any loving parent will feel the same.

07-30-07, 08:01 AM
Congrats on being alert to your son's symptoms aside from his ADD and getting the Celiac diagnosed. I am in a similar boat. I was diagnosed with Celiac over a month ago but ADD about a year ago.

I feel so much better off of wheat!!! Within three days I could tell the difference, and it only got better. I never realized how many days I had gas pains or "brain fog" until it stopped. Relief from the wheat-triggered brain fog is amazing. Like you, I have also realized how many things have hidden wheat! But I don't miss it-- take heart, a gluten-free diet isn't that hard once you get the hang of it.

Of course now I am wondering what improvements in my stomach and absorption will bring as far as symptom relief. I was never a believer that food intolerance could cause ADD-like symptoms, but now I think differently. Celiac keeps you from absorbing basic nutrients and I have been malnourished for 25 years! (assuming the magnesium-deficiency headaches I've had since I was 5 were the start of celiac). It is amazing how clear and focused I feel with more B12 and the ability to absorb it!!

My advice is to keep your son on ADD meds but find out what nutrients he has developed deficiences from (get the doctor to test him for B12, folic acid, calcium, magnesium, etc.) These are the big ones that make you feel continuously lousy. Once his health is better, try lowering the dosage or weaning off meds for a trial. Omega-3's can be good now too, to help rebuild the starved brain. If you tried those before, remember he probably couldn't absorb any supplements worth much.

Be alert for changes in reaction to meds too. I used to have to take the max dose of Strattera (weird because I have a small frame). With a healthier stomach, that was a huge overdose and I am fine on half the dose from before.

I'm open to anything now--maybe I have celiac and ADD, maybe not. (If I responded to Strattera, does that indicate ADD for sure?) Once I get my nutrients straight, I'm going to try it without the meds for a little while. If it turns out I need them, at least I have that waiting for me.

Good luck to your son!