View Full Version : Alzheimer's


piglet
09-07-07, 10:43 AM
oh my Lord, I am sooo sick of my Mom. I dread coming in the house, because she'll glom onto me, looking vacantly expectant, stringing disjointed words together in a questioning tone... and afraid, all the time. I'm so sick of her black hole-ness.

There, I said it. It may be horrible but I said it.

I am soooooo sick of her. And for now, I'm stuck. Not for good... for a while, though. Months to perhaps another year-ish.

As soon as I'm NOT stuck, I'm going on a road trip. As many states as I can get to for as long as I can get away, and sticking my feet in every stream I come to. Clothing optional. Spouse optional... if he wants to come and will promise not to be a grown-up, he may run away with me.

And at some point after I'm not stuck, I think I'll be able to love her again, but right now.... no, I don't think so. She's sucking the joy out of my life. Of course I feel bad for her, she's got no joy in her life, either. But that doesn't make me feel good to have her with me.

FrazzleDazzle
09-07-07, 03:31 PM
Oh Piglet! It is perfectly normal for you to feel like you do. Being a carer for a family member is tough, especially when they are "not who they used to be." I have worked closely with a number of Altzhemer's patients, and even part-time, they require a lot of "patience."

Do you have any outside support to help you with her, and give you a respite? That is highly recommended for family carers. You have to take care of yourself before you can be there in full for your mom. Most carers know that, so I don't mean to be redundant. Maybe even a kind young lady from your nearby school to come in for a couple of hours for dinner so you can go be you, can do a world of good.

Hang in there. In doing this for our folks, is "repayment" for all those years of diapers and blowouts and stuff. Still, doesn't make it any easier, I know.

Here, you can vent in all total honesty, and it's okay.

piglet
09-07-07, 03:54 PM
Fraz, I get a good bit of support. A woman comes in two days a week; my sisters pick up bits and pieces when I have to go out for a few hours, and even take her for the weekend from time to time. My husband and son do a lot with her, too. But there's just lots of Mom to go around.

She needs more drugs, methinks. I was trying to avoid that, have been giving her homeopathics and acupunctureto try to get her emotions under control, and they'ren ot cutting it. I was hoping to have her calm and awake, and not have to tinker iwth meds that will likely make her calm and UNCONSCIOUS. It's been hard to find a med that soothes her and lets her stay awake. But at this point, I'm about willing to accept the sedation. I'm having dark fantasies of a longer-term sedation, if ya know what I mean.

I tend to think I can handle things and just take them until I suddenly crack; I'm getting better at catching it sooner. I don't want to blow up at Mom, poor thing. It's bad enough when I snap at her.

SandiRella
09-07-07, 06:16 PM
Does she like music? You might play some calming cd's for her. When I worked with Alzheimer's patients, that seemed to work with quite a few. And if she will watch TV, make sure it's not the news or something else jarring--Animal Planet was a favorite. And if she liked to do anything in the past, try and adapt that to what she can do today--folding towels, stacking dishes, rolling balls of yarn, etc. I had enormous patience with the patients at the facility, but I have quite a bit less with my own mom---I guess that's how it works. I imagine it's the same for you. If assisted living is an option, you might consider that---but that has its issues, too. Anyway, don't feel guilty (like me saying it will make it so, ha!).

piglet
09-08-07, 12:55 AM
All the advice works for a little while. A few days to a few minutes. She just has no focus on any activities. It would take me ten times longer to line up a project for her than she would stick with it, and while she WAS doing it she'd demand that I stay there and make sur she was doing it right.... and I'm sorry, I just can't hack that. She thinks eveyrthing on TV is aobut US. She can't watch news, of course; but now anything - commercials, sitcoms, documentaries, you name it - she thinks someone is telling us stuff we haveto do, and she comes to me fretting that she can't understand the "instructions" and she thinks we're all doomed as a result. She feels Responsible, she's got her Mom hormones going full blast, but she has no outlet for them most of the time.

So yeah, I know a lot of stuff I'm supposed to do. It's just a situation that doesn't have a solution. Eventually I'll have to find another place for her, and she'll be frantic and unhappy there, too.