:soapbox: Thank you for taking the time to read this thread especially from a new member. Justice for Jane is a website which tells the story of 'jane' a 13yr old girl from Wales GB (i know a lot of you are in the USA) who sufferes from ADHD. A lot of what has happened cannot be put into open print (for legal reasons) so the website shows the 'bare bones' of the story thus far.
here is the link http://www.justiceforjane.co.uk/index.html.

Once again thank you for taking the time to read this, if you can offer any help, advice or support it would be gratefully received xxx

Thank you for sharing mum. Any progress?

Hi, I think the family are in the process of proceedings with a view to using the Disability Discrimination Act. So much more has happened then we can put in open print but the family are keeping the website updated as much as possible. The bits that are on the site are just the tip of the iceberg! Some dreadful things have happened that for legal reasons (and a word limit on the website!) they cant put.


I should add that this isnt my family but a cause I beleive in after my son suffered similar treatment (though nowhere near as bad!) when he started school.

Thanks again for taking time with the link. http://www.justiceforjane.co.uk/index.html

Having read the website I would suggest they contact their local MP/MSP/MWP.

kilt

Poor jane :( I hope she ends up alright. It sounds like severe ADD or possibly something else too?

She's got WAY more than just ADD. :(

Sounds like ODD or CD are on board.

I was bullied by these sorts of kids all through school.

I don't agree with letting her go on in school like this. No person should have to go to school to learn and worry about being hit or attacked.


BUT -- there needs to be investigation into why she is like this (we know the etiology of CD and ODD and self-injury *ack*). And obviously they need to see what can be done to condition her to new behaviours. The self injury thing sends up a big red flag for me.

There are two types of self-injury that tend to occur: one is among the profoundly to severely retarded (e.g. IQ in the 20-50 range; these folks can't talk). The other set of kids who self injure are kids who have been abused early in life [before they could talk].

There is more to this story than we are getting (IME). The mention of a different fathers in the story concerns me. (This is classic forensic psychiatry ward stuff; trauma comes out as non-verbal communication (e.g. limbic rages and inward/outward violence). And ofcourse the system never meets these people's needs for complicated political and social reasons.)

Alternately, she may be undiagnosed bipolar? (Schizophrenia in children is much less common, I understand.) I'm not clear if medical issues have been ruled out. A brain tumor or head injury such can make people act pretty wild too.)

There may be other issues too, like communication disorders (it is common for kids who can't communicate b/c of possible SLPs or have possible SID disorders to rage when frustrated or overstimulated). Sounds like there is alexithymia ('emotional illiteracy'; internal and external). Kids acting like [around kids at school especially!] this often have poor emotional awareness and 'social cognition' skills.

The algorithm of differential diagnosis is endless.

This is really sad. :(

mumof6 wow just reading the story brought back so many memories. Based on my own past. i went though school not knowing what the hell is going on with me, cause in my school years my conditions were not even officially known. my heart is braking for you, (that you had deal with the same run-around-type of service, i had to deal with. not alot of support was available for me (7-20 yrs ago). (i'm 27 now) graduated from high school in 2000. and just now getting help. i would talk to a service that offers to help get your child on social security disability. (i never thought i would be on ssd now, but due to the obsticles i had to face it's the best thing that has happened to me. get a iep from school, and any medical papers for applying to ssd, and try to find a 3rd party service to help your daughter get on ssd. cause if you dont and go directly to ssd yourself, without a lawyer or a expert in this, they will not approve your daughter for ssd.