View Full Version : dysautonomia


camper
11-01-07, 07:06 PM
hi. i'm new here so i have hardly any idea what's going on.
i'm a 27 year old female and i live in southern california. i've been diagnosed with depression and bipolar, ocd, panic disorder, and most recently ADD.
although there is little doubt in my mind that the last part is true, after starting medication (vyvanse) for the first time a few weeks ago, i've found myself with a heart that won't calm down. my doctor says it's most likely mitral valve prolapse after running an ECG and listening to my heart. this is most likely brought on by the use of a stimulant. i've stopped taking vyvanse.
unfortunately, i also have hepatitis c which i got from my mother in utero and i can't take strattera, which is the only non stimulant i'm aware of, as it is too hard on my liver. MVP however, can be caused by dysautonomia which i'm starting to really believe i also have.
my question is, does anyone know of an effective medication that isn't based on amphetamine and also, has anyone heard of dysautonomia being linked to ADD/ADHD?

QueensU_girl
11-01-07, 08:17 PM
I have heard of this sort of thing being linked to anxiety, yup. (e.g. dysautonomia is like a dysfunction of the ANS, right? And i understand that MVP can cause panic attacks. Yup, yup yup.)

I even knew one guy who had extra innervation to his heart, and kept having anxiety and panic attacks until they destroyed that extra nerve signalling pathway.

Many ADD drugs need liver tests. (Despite having no health problems, I get the tests b/c I'm on stimulants.)

With a liver disease, you should likely keep having tests every 2-4 weeks (in the beginning) no matter what meds you're on, I'd think.

re: non stimulants
You could ask about Effexor or Wellbutrin?

Your issues are really REALLY complicated. Talk to your Doctor.

There are speicalists called Psychopharmacologists who deal with people who have big, complicated pictures like yours. I'd think you should especially have a consult if you are considering Bipolar meds, as many of them are hard on the liver. Some have a narrow therapeutic window.

camper
11-01-07, 09:09 PM
one of my major problems is that i have no insurance. luckily i worked long enough at one place to get insurance a couple years ago right before i found out that my hep c was going out of control and my interferon treatment was covered. well, mostly.
i'm going to apply for SSI, but i may as well ask the tooth fairy for assistance.
i'm just started lamictal and i'm taking coreg to get the MVP symptoms under control (just started taking that today).
my doctor is good about trying to get me free stuff like samples, but that can only go so far. i'm trying to avoid the process of elimination and am crossing my fingers for a lucky diagnosis.
he said i might try a low dose of ritalin. is there any hope of that being effective without making my heart skip?