View Full Version : Much needed support
02-21-04, 10:38 AM
We find ourselves in need of prayer's and good thought's sent our daughter's way. I understand that many in the forum's are atheists I respect your view's and ask only for good thought's sent.
Last week we discovered another lump on Lexi, this time on the bone in her chin. After seeing her normal ped. we still have no idea what it is.
We were sent to three other ped's that day and after a series of blood tests (result's still pending on some of the tests they ran), x-ray's (definatly not an injury) and a needle biopsy (tests still pending) we still have no answer.
Yesterday, we took Lexi (8) to a specialist who repeated a series of test's and has no answer as he has never seen anything like this before and has referred us to a specialist's dealing with tumor's and cancer's in children.
While, I appreciate the doctor's honesty in telling us they have no clue and referring us to someone who may. I find myself wanting to scream at them "I honestly don't care what it is,,,get it out of my child NOW". I've been extremely frustrated lately as I feel fate has knocked us down and is proceeding on kicking us while we are down. Lexi fortunatly is an endless source of faith, hope and love as most kid's are. She takes the test's in stride as she is no stranger to pain, illness, hospital's and doctor's. Her bravery amazes me to no end.
My thoughts are with you and your family.
02-21-04, 11:39 AM
prayers - definitely.
02-21-04, 11:52 AM
You betcha', baby! I'll get my kiddos praying too. My very wise, Irish grandmother swears that God answers first graders' prayers before anybody else's! It's silly, but I like to think it's true. Stay strong, girl. We are here for you. Sometimes I hate rollercoasters.:mad: No fair!
02-21-04, 12:11 PM
Thanks, guy's it's greatly appreciated and I find myself once again amazed at how wonderful and supportive you all,,,I will keep you posted fingers and toes crossed.
I join with everybody as we make a big circle of support and hope to support you. Lexi, and your family.
02-21-04, 12:32 PM
Thank you Ace and I would like to clarify a misunderstanding in a previous post. I was NOT commenting on the age of my son's teacher as a insult, only referring to the fact that she was once my teacher as well and I think she has previous misconception's about me now. I hope that clarifies thing's and I have had some of the most wonderful teacher's and this is the frist teacher we have had difficulty with.
02-21-04, 01:10 PM
You & your family are in my thoughts and prayers Cherity.
02-21-04, 02:55 PM
You have all of my support, prayers, and best wishes Cherity.
A am, like the rest of the forum, here for you if you need me.
Good thoughts and prayer coming your way
02-21-04, 03:20 PM
Cherity, thinking of you, as always. :)
Ok I am going to cry now. Futs I love ya to peices and you know you have my full support and prayers.. I shall even light a candle for Lexi and I honestly say from the bottom of my heart, that Lexi has her mother's courage and I am proud of you both. Hang in there Futs, I know you want your daughter to be well, I can only imagine what you are going thru, If I put myself in your postiton and see it through your eyes, I would go crazy too. God, I just tried...Big hugs to you dawlin. Remember, God and the angels watches over all children. Stay strong for yourself and your family, Futs and I know you guys are going to pull through this. Much Love and respect for both you and Lexi always!
02-21-04, 06:38 PM
As we have discussed,,, children are very strong.
I know in my heart Lexi is going to overcome this.
Love to you & family
02-21-04, 07:42 PM
Just wanted to let you know you are in my prayers with hope that you will get some good news about your daughter. I didn't see this post until after I wrote the last one to you on the other board. Please take care. Thinking of you and your family. Dee
02-21-04, 09:55 PM
My thoughs and hopes are with you...
I have an 8 yo daughter and can't imagine what you must be going thought...
Stay strong girl !
Oh, Futs, you must be sooo scared! I am sorry and you have all the best wishes I can muster!
02-22-04, 12:14 AM
Cherity..My thoughts and prayers are with you
Futsy, again I prayed to God for help with your whole family. Most of all for you and Lexi. I have been crying half the night and proably still cry more before the night is over, just thinking of what you are going through and of how brave your daughter Is. Angels will watch over all of you cause we are praying so much!
02-22-04, 01:11 AM
Me toooo Melly... lots & lots of crying and praying.
My heart goes out to you Cherity & please let me know if there is anything I can do.
Give Lexi a huge hug from Auntie Vickie. :-)
i am not real religous but the my thoughts and prayers go out to you and your family!!
02-22-04, 04:04 AM
/me buys Futs a lottery ticket
Futs, just wanted you to know that the Yahoo ADD chat room says they will be praying for Lexi too, and Mark sends his love. If ya want I will spread the word to the morning chatters to pray for you too. Love ya much, honey!
02-22-04, 11:46 PM
I cannot thank you all enough for the prayer's and good wishes. It is an amazing feeling to know that you are all willing to send such thought's to a little girl you have never met. I can't stop crying lol of course I'm a major sap. But, Lexi has enjoyed reading your thought's, prayer's and well wishes for her and your bring a smile to her face. Bless you all
Cherity and Lexi and the rest of the "Rowdies"
02-22-04, 11:54 PM
You are welcome Cherity.
We love you & only wish the best for you & your family.
You are not a sap cause darnet, I was crying for you too! Love ya!
02-23-04, 03:18 AM
Hey, kids are the most important thing in life. I have no purpose in this world without my kids. So, I can say in all seriousness that if there is anything at all I can do, and I know the forum in general feels the same, I will do it. Need a kidney? Hey, I got two! An eye? I got two of those too, but they are kind of a crappy brown color from me being so full of crap all the time.
I can't offer a nose, as I am short one myself on account of cutting it off to spite my face. But anything else I got is yours.
This was intended to maybe make you smile, not make light, of what must be a maddeningly frightening situation. In all seriousness, If there is something I can do besides espouse heart felt support, please let me know. This whole situation is making me a bit nuts myself. I have five children of my own and two grandchildren, and there isn't one of them I wouldn't die for in a heartbeat. I just don't know if I'd have the emotional strength you obviously do, and your daughter seems to have in spades. Sounds weirds coming from a man who's lost his faith, but I know of no others words to say what I feel... God bless, and love you, and your family.
02-23-04, 06:20 PM
Your sense of humor is not lost on me...I have found lately that the stupist thing's make me laugh hysterically I have just figured it to be the loss of my sanity or my way of coping with stress. Either way I honestly think without a little laughter I would lose my mind. And we have not given up hope that it will be something easily fixed. And Lexi say's she does not want stupid brown eyes; but, I think it was a wonderful gesture. Hugs and much love Cherity
Cherity, My thoughts and Prayers are with You, Lexi & your family.
I know what your going through my friend. Boogie has had some tumors (non cancerous thank God) removed from around her eyes just a few days after birth. Not many people know this but Amber was born with only one seeing eye. The other one did not develop during gestation. Along with the Left Eye being this way, her left lobe of her brain is also smaller then the right. The doctors are pretty sure this is why she has so many behavior problems due to the left lobe of the brain not developing correctly.
With that being said. My family & I will keep all of you next to our heart and help to give you strength to get through this.
02-23-04, 11:41 PM
I hope the best for you and lexi.....happy birthday as well.....
02-23-04, 11:51 PM
I am on pin & needles here.... waiting on the results.
Love ya Cherity
02-24-04, 01:00 AM
LaDonna give Boogie an extra big hug for me today,,,She truly is a talented poet and remarkable young woman I can honestly say she has never shown me any disrespect when I have spoken to her in the ADD chat room. And thank you so much for your prayer's and thought's it's nice to know we have friend's we can count on.
Missing cues thank you for your thought's and for wishing me a happy birthday,,,you really are a nice guy (but, I promise not to tell.)
Vickie we too are on pins and needles,,,I keep hoping this specialists office will call and set the appt up already the NOT knowing I think is the worse.
Big Hugs Futs, I know the not knowing is the worst part, I pray that it is good news! Love you dearly. Hang in there sweetie! We are right here for you!
02-24-04, 05:54 AM
I will be keeping Lexi and your family in my prayes. Sending Blessings, Love with this message.
May Streangth, Spirit carry You through this difficult period.
Have faith in your child's faith.
May All your fears, doubts be proved wrong.
02-24-04, 08:42 AM
Thank you so much,,,I have read many of your post's and find you a truly remarkable person. You have a gentle soul and I do pray the world though it may try will not break it.
02-24-04, 10:03 AM
I understand about the waiting futs.
As parents we always want to fix everything..... NOW.
Hugs to you!
Futs I like your new I forgot the term and do not want to look it up. Just letting you know that each day I am thinking of you and your family. Lexi if you read this we are thinking of you!
02-24-04, 10:14 AM
I'm glad you like my new ?,,,And yes Lexi read's all the post's in this thread as they directly relate to her and it is good for her soul to know so many ppl she has never met have such kind thought's and prayer's for her.
Today, we find out when her next appt. will be and have been told that this doctor may just decide to admit her and perform exploratory surgery :( (take it out all ready). So, hopefully we will have more information. I only tell you so that if I am gone for a couple of day's you will understand I did not abondone you all.
02-24-04, 10:18 AM
We understand futs!
Just know you, Lexi and the rest of your family will be in my thoughts and prayers.
We will keep you in thoughts an prayers. Lexi, I promise I won,t give you brown eyes. You can have my big old nose though. there is a lot of it for everone. :D
02-24-04, 10:49 AM
We have Italian blood in us we DO NOT need anymore nose lol. But, hey an extra hand may be nice lmao
I have plenty of Swedish Butt to go around. Just leave me enough left to sit on when all is said and done.
E-boy's got a big ol' butt! OH YEAH!
I can give you one. I am a clutz anyway so I am sure nothing will change with just one hand. It would be fun to watch me try and ride my bike that way!
I got a big buffalo head too. You could use if for playing basket ball, though I am not sure it would bounce all that well...
It would make a great paper weight, and being as it's almost all bone, if you drill three holes in the right places it would make a dandly bowling ball!
Just keep that hand off my butt, okay Jim.... I don't care if they aren't attached to us anymore! It just isn't right I tell ya!
02-24-04, 12:48 PM
OMG the mental image Jim's hand on E-boy's butt lmfao I would need to take picture's...While the gesture is kind E-boy I have more than enough butt to go around.
02-24-04, 12:49 PM
lmao@buffalo head I so took that wrong the first three times I read it.
I was trying to think of a clever response ,but I cannot come up with a d*** thing. Hopefully the picture did'nt turn out :)
02-24-04, 01:05 PM
OOOooooooOOOOOOO but THEY did they did and I'm posting them lmao
Well just make sure you get my good side. None of that dark side of the moon stuff if you get my drift...
02-24-04, 01:49 PM
lmao Jim that is EXACTLY what I said.
What? Now you make light of my butt? I think my feelings are hurt!
02-24-04, 01:54 PM
NO I was stuck on the "darker" side of that moon!! lol
Oh, you did not just go there!
02-24-04, 02:00 PM
Ya know something I honestly did not realize I went THERE until you pointed it out and BOY, is my face red.
HA HA HA! Let them reap what they sow.
02-24-04, 02:03 PM
*grumbles under her breath*big men, big attitudes just cannot win gracefully.lol
I am bowing out of this one except I have one minor problem I am in th picture. If you did not get are faces than I can sneak out of this one. Otherwise I will need to get my attorney involved :D
I guess that means my chance in politics is out the door! By the way thoughts are still coming your way!
Hey, you aren't leaving me in this mess on my own buddy! You are the one who put your hand on my butt! MASHER!
02-24-04, 02:20 PM
I think I'll bow out too
E-boy is playing with himself
Hey remember I gave my hand to Futs and you gave your butt to her. I beleive yes, that's the picture. Oh my, yes Miss futs did it and set us up. Our attornies(sp) will be contacting you. :D
02-24-04, 02:25 PM
Tell em to get in line
02-24-04, 02:31 PM
I cannot believe you just called me a "lamo"^^ there lol
I would never guess I have ADD. I meant lmao. That means no pciture of my butt i just got rid of it :D
02-24-04, 02:39 PM
That's OK I alway's keep back up files learn from your mistakes I alway's say
Was that a pun "back up files" :D
Nah, it was a "Bun" and one of mine at that which I resent!
LOL futs, it's good to see you laughing again! :D When I am not making you cry. Love ya
02-26-04, 09:48 AM
We got some more result's back today and so far everything is good. Lexi may still need the lump removed and she has opted for the out patient surgery another words a couple shots, a cut and it's outta there. I find that incredibly brave of her but like I said before she is no stranger to pain nor surgery. Anyway's we have a 90% chance it is a glandular problem that is not fatal nor harmful once removed; but, there is a 10% chance of it being more. Personally, I kinda like our odds but then I am a positive thinker most the time lol. Hugs and thank you everyone and I will keep you posted until we know for sure what the lump is.
Great news Cherity!!! I will keep the thoughts coming. Lexi sound like a real trooper!! She is tougher than a lot of us would be in that situation.
02-26-04, 11:51 AM
I honestly think all kid's are stronger than most adult's. It may be they simply cannot grasp the concept that they are mortal. And Lexi just happen's to be smarter then your average bear. She know's from prior experiance that daddy's insurance pay's 100% for outpatient surgery...So, we have been handed a list of demand's so to speak. lol
I agree. I know from working in the hospital kids that have been through a lot are very tough and take things way better than a lot of adults. Great about the insurance. Run with it as far as you can get>
02-26-04, 12:13 PM
NO doubt with the bills we already have and the doctor assures us she will feel only the first initial shot...And don't tell her the art supplies she is demanding were already gonna be bought lmao.
ALL my prayers were not waisted...Oh God I am crying again..THANK YOU LORD!!!! I am sooo happy that she is going to be ok..and so are you ya gutsy woman...Lexi certainly does have her mothers strength....LOVE YOU!!!!
02-27-04, 12:47 AM
lmao @ that Mel,,,If you had seen me the last week you would not have known me.
I wish I would have seen you!!!!!! I missed ya...PM me again.
02-27-04, 06:08 AM
The courage, spirit shown by Lexi is beautiful, and she owns the Love of all of us..who are touched, moved by the tremendous faith, bravery shown by her. My prayers, Blessings are always on her side. I am also sending a request for prayers, Reiki to my close efriends who practice Reiki and many healing therepies.
02-27-04, 09:17 AM
Reiki? What is that? Is it another form of religion? And thank you Nachi,,,you are definatly an asset to the forum's I do hope you will stay around for awhile.
When is the surgery Cherity? Again sending goood thoughts your way.
02-27-04, 01:51 PM
She goes in Wednesday next week and they will decide from there or just take it out that day. Depends on depth and nerves involved if they can even do it outpatient. And thank you
I'm keeping my fingers crossed for Lexi. Tell her I got the Brown Eyes on hold for her if she changes her mind. ;-) Besides, I got my eye on some new ones in plaid!
02-27-04, 06:21 PM
Reiki is a practice that involves healing by moving the hands near the body, almost like massaging your aura, if you see what I mean. (This is a poor, layman's definition... someone who practises it would phrase it much differently.)
I have to admit I'm a bit skeptical about it, but I'll admit freely that I don't know everything about what is and is not possible in this world, and I have friends who swear that it works...
02-27-04, 07:00 PM
To me whatever works works many times the mind may fool the body into healing itself. Ya just never know.
I heard that sometimes works for the corazon......given time like all wounds they heal...I will be praying my heart out wed. just like I did when I first found out what was going on....wuv ya!
Our thoughts are with you....
02-28-04, 11:13 AM
Lexi is a very strong girl. Give her BIG hugs for me.
I told you... I know in my heart, she will be fine.
03-04-04, 05:18 PM
I want to thank everyone for praying and sending good wishes Lexi's way. The tumor has been removed and she is doing wonderfully and will have no scar. The tumor is of the "fatty" nature meaning it is NOT cancerous and no worry for us. Her list of demand's have been met and she is a happy camper and went back to school today a day early to show off her "battle scar" as she call's it. Thanks guy's from the bottom of our hearts. You all are truly wonderful ppl.
This is wonderful news! I don't have to give up my eyes or butt or anything! This is good news because I would have had to sit all lopsided and stuff and that's really hard on your back.
03-04-04, 05:28 PM
lol I told you I had more than enough butt for my family and myself. But, I like it cause it's soft and cushy and made just right for sitting on. lmao
Jah, jah, I have a hard lumpy svedish butt from running and manning the oars of the long boat... Oh, those benches give me de vorst splinters! Yupin' yiminy!
03-10-04, 12:39 AM