View Full Version : Hashimoto's Disease, Hypothyroid, Fibromyalgia... Fatigue + Hyperactivity?


giftedADDition
02-22-08, 03:02 AM
My sister (non-ADD) was just diagnosed with Hashimoto's disease, which is a disease that eventually results in hypothyroid condition. Apparently, it runs in families, so I'm off to get myself tested.

When I started researching the symptoms of hypothyroidism, though, I noticed something interesting. Some of the symptoms are symptoms I would attribue to ADD: difficulty concentrating, difficulty remembering things, mental fogginess, anxiety, depression, sleep disturbances, and heart palpitations (the latter a symtom of stimulants).

I'm curious if anyone in the community has both ADD and hypothyroidism - and if so, do you think the fatigue symtoms of the former mask the "H" of the latter (creating a reason why both diagnosies might be delayed)?

Also, Hashimoto's falls in the same category of auto-immune diseases as Fibromyalgia - anyone with this pairing? If so, same question - do you think the fatigue symtoms of the former mask the "H" of the latter (creating a reason why the diagnosis is delayed)?

Mary
03-05-08, 11:01 AM
My sister (non-ADD) was just diagnosed with Hashimoto's disease, which is a disease that eventually results in hypothyroid condition. Apparently, it runs in families, so I'm off to get myself tested.

When I started researching the symptoms of hypothyroidism, though, I noticed something interesting. Some of the symptoms are symptoms I would attribue to ADD: difficulty concentrating, difficulty remembering things, mental fogginess, anxiety, depression, sleep disturbances, and heart palpitations (the latter a symtom of stimulants).

I'm curious if anyone in the community has both ADD and hypothyroidism - and if so, do you think the fatigue symtoms of the former mask the "H" of the latter (creating a reason why both diagnosies might be delayed)?

Also, Hashimoto's falls in the same category of auto-immune diseases as Fibromyalgia - anyone with this pairing? If so, same question - do you think the fatigue symtoms of the former mask the "H" of the latter (creating a reason why the diagnosis is delayed)?


Was never diagnosed with ADHD.. however, I have Fibromyalgia, chronic fatigue and hypothyroidism. Had never heard of Hashimoto's until you posted just now. But will definitely be reading about it after doing a search.I know I hate all the underlying conditions, the brain fogs, etc. Please let me know what you find out after testing.

QueensU_girl
03-08-08, 09:44 PM
Did her Hashimoto's thyroiditis start after having a baby? Heard of that "trigger" a few times.

The immune changes in pregnancy can trigger it. (Among other things.)

Some pollution has been linked to thyroid disturbances too. (E.g. Rocket Fuel and jet fuel getting into the drinking water via pollution.)

Not all ADDers have "H".

So basically the ADD symptoms started later in life?

Lunacie
03-09-08, 02:02 AM
I read a discussion about hypothyroidism on another forum awhile back. It seems that the current standard for testing shows a lot of women as being borderline according to their criteria, yet they show all the symptoms, and many would benefit from medication or diet changes.

I've had ADHD my whole life, had fibromyalgia and chronic fatigue starting in my 20's (possibly after the birth of my daughter?). The FM and CFS are both less bothersome in the last decade, possibly because I reached menopause?

Lindamarie
03-09-08, 03:24 AM
Funny you should ask, I am in fact a (way) middle aged female who takes medication daily for Hasimoto's disease as well as meds for my ADHD.
I suffered for several yrs. with the thyroid disease before I had the insurance to see a Dr. and then and most importantly one who would listen to what I had to say. (this was a challenge in itself.)
I finally lucked out and these doctors listened as I told theml," The tips of my toes to the very ends of the hairs on top of my head are messed up." The day is not long enough to tell you about my skin, eyes watering constantly, fatigue unlike anything I have ever experienced, I cannot think-focus -rememeber." Gained 30 lbs. !!!
So labs came back and the doc called and put me on synthroid. They have come to tell me they are not sure how my heart knew it should beat, as my TSH levels were so high.
I did notice a huge change, but it did not happen overnight.
I must add, I was in school training for a business, computer, Human Resource Specialist type job after many yrs. of working many jobs, none of which even closely resembled the job I was about accept. (and for those of you who KNOW, feel free to laugh)
I have a great position, lots of people to deal with daily.Constant distraction, phone ringing, emails applicants, bosses.
Requires attention to detail, ORGANIZATION, everchanging TO Do Listl, focus, ability to prioritize, maintain, create files......and on and on.
So for 3 yrs. I worried, hid my stacks, tried not to cry when the boss would come out with PAYROLL Errors and say, once again... Linda, Attention to Detail and I figured IT out, finally, I WAS STUPID! I had many jobs and certainly had many experiences but NEVER had I felt so inept, and maybe even insane?
On the other side the boss would come through and say something off the wall and I would crack everyone up and come up with some quick retort. He was confused, yeah and I was freakin'.
I mean I work very hard (harder than most to accomplish the same tasks) and do the essentials and interact well with employees and the public, but still was wondering.
As things go in this life, new boss enters the workplace, is with us about 4 mos. when she bravely asked me if anyone has ever I might be ADHD? She opened a book to a page with a Stand Out Header and a list of questions that one might ask themselves in order to decide if moving further ahead is in order.
I will never forget that moment, it seemed as tho she held a copy of a page in MY Auto biography. I came home with the book and KNEW I Finally had THE anwser. Life Changing. My tests and discussions with my ADHD Doc. suggest I am and have been off the charts in so many of the components of this disorder. So many anwsers for so many questions that plagued me.
So even with the meds. coaching etc. etc. all is not well, but sure in the heck is a lot better.
Hope this will be of some help to you and of course I hope I did not lose you with my on and on details!!! Good luck. Get Help Bye
Now take meds, am seeing my Dr. for life coaching and

Mary
03-09-08, 11:51 AM
Thank you Lindamarie for sharing.

giftedADDition
03-26-08, 03:41 PM
Sorry, a little tardy in my reply... let's see if I can answer the questions:

1. Queensu_girl - No, my sister has no kiddos. She also doesn't have any symptoms. She was diagnosed when she went in for a small surgery and they did a full blood work-up. Apparently, it was one of the tests in the blood screening. She had never even heard of it before. Interesting, eh? (Oh, and sister is not ADD.)

2. Mary - I will let you know what I find out after I get tested. Still waiting to get in for an appointment....

3. Lunacie - I think I've read some of the same articles as you because I remember reading the same thing. And, I also read a really interesting article about treating depression for Hashimoto's thyroiditis with fluoxetine [Prozac] and d-amphetimine by Dr. Alan Cohen (Google it!). I thought it was facinating because fatigue has been a problem of mine for several years now, but I've been attributing it to lifestyle (trying to fit too much in a 24 hour day). I don't have problems with depression now, but I did in my late teens and early 20's. Anyway, they studied folks taking thyroid meds, plus an anti-depressant but were still having problems with fatigue. Then they added the amphetamines (ADD meds!) and voila! they felt better. Makes me wonder if I do have a thyroid problem if I'm getting inadvertant benefits from my ADD meds. Hmmmm....

4. Lindamarie - thank you for sharing! I can completely relate to the experience of feeling a bit out of control and then having the diagnosis be like a lightbulb moment. I'm curious... how long did it take for you to feel better taking the synthroid? When you went on ADD meds, did your synthroid usage play into which ADD med you went on?

Thanks ladies! :-)

hannahsmom
04-24-08, 04:22 AM
Gifted ADDition... I'm on Armour. I tried Synthroid and it did nothing for me, except make my bloodwork look good. I didn't start FEELING better until Armour, but it's been a slow process. When your BW comes back, your TSH should be no higher than 3.5. even better around 2. hopefully you have a good doc that knows that. My psych doc actually runs this test in his routine bloodwork.

Lindamarie-- what ADD meds are you taking? I seem to have trouble metabolizing drugs, and Adderall wasnt' for me. Trying Vyvanse, but I"m really thinking I need Dexedrine (short acting).would like to hear your experience as a Hypo ADD'er.

Rafaella
02-05-09, 05:10 AM
WAW,
Finally, there is a thread about me LOL

I am Hashi for 2 yrs now, also, I believe I have ALL the symptoms of ADD.
I was taking Synthroid for about a year, and I had to switch to Armour due to the nasal sinus and lung congestion on Synthroid. The latest almost put me to Congestive Heart Failure - Armour, in contrast, been used for over 100 years with great success for hypothyroidism. It is natural pigs gland granulated without preservatives, unlike the Synthroid.
In addition, it has all the important Ts - T3 and T4 including. So, I feel better and my TSH is 1.22.

In regards to ADD, I was NOT officially diagnosed, yet, I know I have it.
And, the fact is - it is VERY difficult to scan for Hashimoto's vs ADD - the symptoms are SO similar.

For example, I am forgetful - could be both, Hashi and ADD.
I am tired most of the time. Could be hypothyroid or it could be ADD.
my memory is BAD, again, it could be both of the diseases.
I took Adderal before and I hated the rolercoaster of rides. Up and down
all the time, It made me up for an hour and sleepy for the rest of the day. I fail some school work because of un-even destribution of drug in the system.

I have tried Provigil, and I really liked it . The only thing about it, is price $$$$$$

I would like to try Dexedrine IR to see if this would be better than Adderal 10 mg daily. I don't think I need Ritalin or "other" meds for my ADD..

Again, while having Hashimoto's , it is hard to defirentiate, what is exsactly going on - Hashi or ADD - but once your TSH is under control ( and many people feel better only under 2.0) - it is useless to say what causing the symptoms.

I would recomend for you to check your thyroid profile, inclduing your T3, TSH and T4. Take it from there. If your thyroid is low, correct it, than think about ADD symptoms. While having a high TSH, it is difficult to treat anything else..


best wishes,

ryan4745
02-14-09, 05:06 PM
I have Chronic Fatigue (most sx of "CFS") and ADD/ADHD, both officially diagnosed and being treated for both. Part of my CFS treatment has been thyroid meds (despite "normal" thyroid test results). These made a VERY BIG difference in my "ADD" sx, especially the 'brain fog' and fatigue, which i struggled with for many years. I was on Cytomel for the thyroid problems, which i wish i was still on, but my doctor switched me to Armour at a higher dose.

Its is critical to note that i did NOT feel much if any relief from my ADD or CFS sx until my thyroid meds were brought up to TSH-SUPPRESIVE doses, and with t3 wayy above the range of normal...

WHY? ..
Likely answer: "peripheral resistance to thyroid hormone". read John C. Lowe's work on the Thyroid at www.drlowe.com (http://www.drlowe.com) and if possible get his book (although its focused on fibromyalgia, its really an in-depth guide to everything related to the thyroid). I wouldnt' doubt if quite a few people with ADHD have co-existing thyroid problems. Especially those with fatigue and 'brain fog' as a big part of their symptoms. One of the sections in Lowe's book talks about the prevalence of ADHD in people diganosed with "central resistence" to thyroid hormone-- so there does seem to be a connection between these two diseases.

i think anyone with ADD/ADHD with any significant amount of fatigue or brain fog should also consider seeking treatment for chronic fatigue as I have done. I'm working with a doctor who follows many of jacob tietelbaum's approaches for CFS and fibro in his book "fatigued to fantastic" or www.vitality101.com (http://www.vitality101.com)

keairaphoenix
05-12-10, 03:52 PM
Resurecting this.

I'm wondering how the Hashi's and hypothyroid peeps are doing after all the changes and shortages with thyroid medication over the past 9 months or so.

I was dx'd with Hashi's about 10 years ago. Started on Synthroid, then Synthroid + Cytomel, then off meds completely (bad idea), the levothyroxine, then finally Armour which I did great on for many years -- until they recently changed the formulation.

Now I'm doing well on Efra from Canada. Closest thing I can find to the old Armour. I do best with a suppressed TSH and my FT3, FT4 near top of range.

But I still have unresolved issues that I've recently figured out might be ADD instead of thyroid related.

iMad
05-12-10, 07:30 PM
I'm sorting through the quagmire of a bunch of medical stuff wrong with this body. I have a Rheumatoid Arthritis diagnosis and it's an auto-immune disease that causes a lot of fatigue. Fortunately the easiest, cheapest drugs are managing this very well. After 2 out of 5 thyroid tests came back leaning hypothyroid I was able to get my physician to look at the hair loss, edema, tendinitis in 3 appendages and Rx me Synthroid. It's only been about a month and a half, so I don't have results quite yet.

My hyperactivity in ADHD manifests itself in nervously talking too much in certain situations. I wish I had the energy of the H and could get my apartment in order, but instead I have fatigue.

It's hard to know just where the fatigue comes from. I remember feeling fatigued as a child. Running in gym class was an imposition I did not relish. I've always been a good sit-in-place-conversationalist. Too good.

Due to the fact that my diagnoses of all these things are all fairly recent, it's impossible to tell what caused what part of fatigue. I have no idea if my thyroid was always sub-clinical or if it was my allergies that made me so tired, or if it was the ADHD and an active mind that couldn't fall asleep at night, or if it was the fact that I was bored.

I was hoping Adderall would do more for the energy, but I am drug sensitive and can only take 30 mg. at a time. When I take 40 mg. I feel overwhelmed.

I realize this isn't very helpful, but you might not be able to dissect the fatigue to find the source.

If you delve into books on hypothyroidism, you will find that most thyroid tests are inconclusive. Note the symptoms that you have that are consistent with hypothyroid conditions and find a Dr. who will listen if you have symptoms and "normal" test results.

If you don't have symptoms and worry about developing hypothyroidism you can avoid any non-fermented soy products (non-fermented soy is not good for thyroid function) be careful not to swallow fluoridated toothpaste (and rinse well) and maybe start taking an iodine supplement. American diets don't usually supply enough iodine.

Good luck.

firstdesserts
05-12-10, 09:54 PM
I have ADHD-PI/SCT and hypothyroid. In addition, my testosterone level is extremely low and suffer obstructive sleep apnea, both of which also can hamper cognitive function (as if there was any left after the other illnesses!).

LaVieEnRose
10-28-10, 03:59 AM
I've got Hashimoto's and Lupus, but no fibro.. and I don't know if I'm just beyond exhausted for kicks and giggles or if it's CFS. But whatev. I've already hit max capacity on my stress radar for the month. No more dxes this month por favor.
http://www.youtube.com/watch?v=hBOK4j6m0U4

medavinci
04-16-11, 01:34 PM
I think what people need to understand is that hashimoto's is an AUTOIMMUNE DISEASE. No one should be on thyroid meds (armour, synthroid, etc.) unless you have full blown hypothyroidism. Hashimoto's is a wake up call. My daughter was running around with vague symptoms for 3 years, and no one knew what it was. She tested positive and negative for lyme (it is prevalent in our area), and she couldn't focus, was on antibiotics and felt better for a while, had ankle swelling, hair loss, and no motivation and slept till the cows came home mimicking depression. However, she is at a very rigorous academy (now 16 but was 13 when her symptoms first appeared), and so she gets very little sleep. It takes her a long time to do homework, due to the focusing, yet her grades are A's and B's but she could be doing better in her B subjects (like math for example where she cannot process algebra).

We met the most wonderful dr who practices traditional and alternative methods and teaches at Yale. We went to him one time and he tested my daughter's thyroid antibodies which no dr had done. She had low antibodies to strep and pneumoccus when she was a baby, and the immunologist never picked up hashimoto's; however, he was giving her 2 flu shots and 2 pneumonia shots a year to build antibodies and it didn't work. Not only did it not work, it further weakened her immune system!

Her dumb pediatrician kept treating her for sinusitis and prescribed massive doses of antibiotics, and it was asthma and acid reflux that she had (I found out after 36 days of school were missed! A pulmonologist tested her and found both diseases plus vocal cord dysfunction). She went on prevacid to fix the acid reflux. It was so bad it destroyed her vocal cords! And she went on flovent for the asthma.

Years of vaccines and antibiotics wore down her immune system. The immune system problems always stem from the gut and intestinal flora being unbalanced. This dr found that her thyroid antibodies were 460 (norm is 0-50), and he prescribed Fish Oil 2 softgels twice a day (so intake was bout 1600 EPA and 1400 DHA per day), time released probiotics (30 billion - 15 in am; 15 in pm), magnesium, selenium (100mcg), a multi vitamin and I added 1000mg vit C plus her vit D3 levels were low (23) and he prescribed 5000mg/day with one single dose of 50,000IU's once a week for 6 weeks to rapidly increase her levels. Two months later, her antibodies were down to 350.

If you stop the immune system from attacking the thyroid, you will ward off hypothyroidism. It can be inevitable if you do not follow protocol. Once you have hypothyroidism, it is not reversable. We are trying to quell the immune system so it won't turn into hypo. I have to say it is extremely difficult because my D does not like taking all her vitamins (and teens like rebeling!) and she has food sensitivities which inflame the immune system and cause it to attack as well. Some of the foods she was eating daily were causing her antibodies to rise (chocolate, rice, grains, tea/coffee, gluten, meats, even some fruits and veggies). The diet is the hardest part.

But if you do this, you won't have to take those hormones. The earlier you catch this insidious disease, the better. It DOES have symptoms of ADD and my daughter can use the extra time on tests at school, but the school won't give a medical exception sadly.

It is a horrible disease!

alacemessi
08-30-11, 05:44 AM
For curing your hypothyroidism and hypoactive thyroid you can go for thyroid supplement

sandralee
04-29-12, 05:09 PM
I have just been diagnosed with Autoimmune Thyroiditus (Hashimoto's) and had previously been on 18 mg. of Concerta for my ADD. A couple of Summers ago, I decided to limit my gluten intake, despite the fact that I am not Celiac and there was no 'real' medical reason for doing so. I found out, within very short order, that my ADD symptoms lessened to the point where I would actually get headaches if I took my Concerta. I took myself off of the Concerta and continued on with a (somewhat) low-gluten diet and have see a difference. Now I'm learning that I have Hashimoto's Disease, and I've read that a low-gluten diet can lessen the symptoms. I'm wondering now if I even had ADD or if I (and my Doctor) were mistaking the symptoms of ADD with those of Hashimoto's Disease. I think that it's definitely worth getting checked out.....until then, try cutting all gluten out of your diet for a while (not as hard as it seems!) If you start getting headaches from your ADD meds, ask your MD about not taking them for a while. I think there's something to it!

Drewbacca
05-01-12, 03:22 AM
I have just been diagnosed with Autoimmune Thyroiditus (Hashimoto's) and had previously been on 18 mg. of Concerta for my ADD. A couple of Summers ago, I decided to limit my gluten intake, despite the fact that I am not Celiac and there was no 'real' medical reason for doing so. I found out, within very short order, that my ADD symptoms lessened to the point where I would actually get headaches if I took my Concerta. I took myself off of the Concerta and continued on with a (somewhat) low-gluten diet and have see a difference. Now I'm learning that I have Hashimoto's Disease, and I've read that a low-gluten diet can lessen the symptoms. I'm wondering now if I even had ADD or if I (and my Doctor) were mistaking the symptoms of ADD with those of Hashimoto's Disease. I think that it's definitely worth getting checked out.....until then, try cutting all gluten out of your diet for a while (not as hard as it seems!) If you start getting headaches from your ADD meds, ask your MD about not taking them for a while. I think there's something to it!

It's hard to say whether ADHD is a disease in of itself, or a common list of symptoms that are caused by several different deficiencies. It's not much of a stretch to suggest that some ADHD can be cured by diet, while other forms can be cured by lifestyle changes, while other forms can be treated with whatever... you get the idea. It's definitely worth trying an elimination diet to see if it helps with the symptoms. In my case, a full year of gluten free and dairy free changed nothing. As they say, YMMV.
My current thought, considering that tyrosine is produced from casein and my body has a strong antibody reaction to casein, is that perhaps a simple tyrosine supplement while cutting out the dairy/cheese again might make a difference. Anything is worth trying once, but I won't hold my breath with my latest theory either. :p

walace
09-12-12, 12:35 PM
Your symptoms are all accurate for someone who has hypothyroidism. Fibro, well can be mistaken for fatigue. You have to see a doctor and have him help you what to do to release your worries.