HELLO...

I have been reading several threads, and trying to get a true perspective on all the different degrees of ADHD.

I am not suprised to find depression, phobia's and social dilema's accompanying the ADHD..but I am remarkably surprised how so many people treat it so many different ways. I realize nothing is black and white, and that is not where I am going...

My dismay is how some people are having difficultyl driving and staying awake, and others are compulsive..and work 20 hours a day. WOW! you see I am new to this and was not aware of how dibilitating it could be.

I am overwhelmed..as I have watched my own daughter, and myself, I thought ok..this is it we will handle it..is this because this is how I do everything? Is it because I have ADD, but found out late in life, and had to adapt..is it because my childhood was abusive, and I learned to separate myself from reality? Is it because I refused to settle, and was fortunate enough to be given a chance? Who knows..I will never know...but I will say this....

There is a big world out there, and so many people have no idea..they really believe..take a pill and focus..you should never call in sick..you should always stand tall, and your clothes should be ironed...well, you have shown me! YOU HAVE OPENED MY EYES! I hope one day, a book or article will be published about the professional people of the world and how oblivious they are to the pain of their patients.

I read a thread earlier about a kid, who backed into a pole twice in one week, then ran in a ditch. OMG..and to his dimise..no health insurance..this is just a glance..

What will it take...?
I must ask...what would you like to see done?
What is it that would help better understand?
I am very serious...publications come out monthly, and there are many seminars to review.
I know personally..I would loved to have known more about this as an adult..more about the symptoms..more about the distractions, and how they affect your job, and your life.

Please don't just roll your eyes..and click out..give me a thought..i have a voice and am not afraid to use it...
I feel like i need to go back to school, to work on this..I would love to hear from you.

I must ask...what would you like to see done?
What is it that would help better understand?

mykill's wish list:

I think i would like to see the anti-meds crusaders be more honest in their tactics for one thing. I enjoy debate and dissenting voices, but between the lying about the effects and the questionable motives of big pharm causing the ruin of lives gets under my skin.

And i wish we could do something about educating the public at large that ADD is not just the wiggly kid in class. I think if i knew that my "personality" was actually a boatload of ADHD symptoms i would have gotten help much sooner.

I'll leave the brainstorming of finding out how to get that out there to you guys :)

The Pharmaceutical companies..well they will always win..with there 1/2 run studies, their fine wine, and lets not forget the colors...oh so many colors..
But the cruesaders..well i have written it down..
I have a plan..i hope i get many replys...these old gears are spinning..and thank-you for not shooting me down.
s

I think the biggest problem right now, is how little is known about inattentive ADD, as long as it's just treated as a minor condition just a lesser version of ADHD a vast amount of people will fall through the cracks, for example, I read a study that said that Adderall and much lower doses of ritalin are more effective for people with inattentive ADD, how is it that such a study isn't varified immediatly, or proven wrong.

xraylady,

I am confused by your post, what you were talking about, what you're asking.

Can you please put it in simpler terms for me?

Your method of writing is too abstract for me to understand.

I think the biggest problem right now, is how little is known about inattentive ADD, as long as it's just treated as a minor condition just a lesser version of ADHD a vast amount of people will fall through the cracks, for example, I read a study that said that Adderall and much lower doses of ritalin are more effective for people with inattentive ADD, how is it that such a study isn't varified immediatly, or proven wrong.


Unfortuately, trial studies take years to be approved, especially with the FDA.
The standards must be set(although) usually low, they like to prove the formulation and combination of meds together, will cause a pro effect..this is a trial that would take twice as long to PROVE.
Great Idea...I am writing it down.

I apologize for being abstract...i often write like I speak, and we all know its a no, no.

OK..I would like to know, how ADD has affected you, and how you feel you could have been treated better, or have been given a better diagnosis, or do you feel this stigma..is not actually a stigma.

I plan to write an article, on how ADD goes so unrecognized, and the productivity of adult lives could have been controlled if found earlier..It will establish a link, to hopefully open a few doors, and allow for funding..not just for childrens research..but I want voices...LOUD...what do you want? what can I say for you.

i suffered for years in silence, and feel I have been released. Why did i suffer..why was I ashamed? If I had diabetes, I would not be ashamed.

Hope this helps..if not I'll try again:)

a thing with add is that managing time is extremely hard. employers and teachers take harsh measures against you for being late/absent or not having something done. they are literally singling you out by your symptoms, trying to weed you out. if adhd was treated as a serious disability that would be illegal and they would have to give you some kind of consideration. they cant for example make a policy to fire anyone that cant jump, they would use it to fire anyone in a wheelchair. yet they can fire someone with adhd for being late 3 days in a 30 day period, no one questions the fairness of it at all.

Personally, I think ADD treatment means meds AND therapy. I would love it if insurance covered ADD coaching. Especially since there is a trend to believe that any disorder can be "cured" or at least controlled with a few sessions of cognitive based therapy.

Since this is an issue where cognitive work has been shown to help improve the sitaution, why not accept coaching as a viable option, and help pay for it? It makes no sense not to do so, in my humble opinion.

Personally, I think ADD treatment means meds AND therapy. I would love it if insurance covered ADD coaching. Especially since there is a trend to believe that any disorder can be "cured" or at least controlled with a few sessions of cognitive based therapy.

Since this is an issue where cognitive work has been shown to help improve the sitaution, why not accept coaching as a viable option, and help pay for it? It makes no sense not to do so, in my humble opinion.


Your point is very well recieved, I have not looked into the coach aspect..but now, the list grows longer.

I will say, coaching would need to be done for at least 12 weeks, because it would take that time to incorporate a new habit, or to stimulate the nerve sensors, to adapt to such change, then it would have to be up to the patient to continually go back to this treatment to refresh their cognitive skills. Of course this is because the diagnosis is ADD...

Very good point...
Insurance would be better off to pay for this treatment, as it may lessen the need for several expensive meds daily..oh but then the pharmaceutical company's would loose it..oh well..their life styles could come down a notch...NO HARM TO ANYONE WHO MAY BE PAR OF THAT ORGINIZATION!
Just stating an opinion.;)