Hi,
I thought everyone might like to see the latest Top 10 list of patient-rated ADD/ADHD treatments from RemedyFind. A little background. Remedyfind is a non-commercial and unbiased site (not sponsored by any drug companies etc.) where individuals can rate the effectiveness of the treatments they have used for 25 specific health concerns, including ADD/ADHD (and Anxiety Disorders, Bipolar Disorder, Fibromyalgia, Lupus, Rheumatoid Arthritis etc.) .

Obviously this Top 10 list has to be taken with a “grain of salt”, especially with the low number of ratings to date. Furthermore, we are all different, and what works for one person won’t necessarily work for another, but my hope is that certain trends might show themselves over time (and after hundreds or thousands of patient ratings). We’ll have to see about that, but at least in the meantime I think it is helpful to hear other patient accounts of what has worked, or not worked, for them.

Please share your opinions on what has - or hasn’t - worked for you. You can choose from dozens of treatments to rate, from medications to nutritional supplements to alternative / complimentary and psychological therapies. Or suggest something I’ve missed. The site is free and you can be as anonymous as you would like – you choose your own member name and your contact information is not shared with anyone. Here is the address of the Remedyfind ADD/ADHD section -
http://remedyfind.com/hc-ADD-ADHD.asp

All the best,
Brett
Founder / Editor

Top patient-rated ADD/ADHD treatments
(As of March 12, 2004. The first number is the averaged rating (0 = poorest; 10 = best). The number in parenthesis is the number of ratings the treatment has received.)

ADHD Specific Coaching 8.9 (9)
Emotional Support: Online Discussion Groups 8.1 (8)
Dexedrine etc. (Dextroamphetamine) 7.7 (16)
Neurofeedback (EEG Biofeedback) ***7.2 (7)
Concerta / Ritalin etc. (Methylphenidate) ***6.7 (46)
Adderall (Amphetamine Mixed Salts) ***6.6 (45)
Diet: Feingold Diet ***6.6 (8)
Wellbutrin etc. (Bupropion) ***6.3 (22)
Provigil etc. (Modafinil) **5.5 (9)
Strattera (Atomoxetine) ***4.8 (44)

Thanks, Thats interesting.
I wonder if there are any compiled data on alternative treatments or supplements effectiveness?

Hi - not too many ratings of supplements, but here is the page where they are all listed -
http://remedyfind.com/type.asp?id=89&TYPE_ID=2

Same with alt / comp therapies - Neurofeedback is the only one that has received ratings to date.
All the best, Brett

I recently found the www.RemedyFind.com website. I liked the editor's accurate summary of problems and claimed remedies - and the quality of responses he got from people with experience.

It's a feet-on-the-ground forum and worth attention - especially for response to drugs, etc.

I submitted a piece on self-help groups for ADHD, and recommend that the editor follow up the new highly-touted cerebellar exercise methods for non-drug improvement of functioning for people suffering from ADHD and Aspergers Syndrome.

Some bright correspondent whose piece I lost track of called my attention to the effective work of Dr. Belgau with balance and other exercises designed to improve functioning of our execu tive mental functions, located in the cerebellum.

My wife and I bought the Dr. Belgau treatment and may report on results.

Regards, Frank

Here's another good site for meds for depression/anxiety and especially bipolar:
http://www.crazymeds.org
It's not to be taken as an exclusinve source of info but has valuable common-sense anecdotal info about many meds that is hard to find elsewhere and easy to understand explanations about neurotransmitters and side effects. Not much about ADD though.

I also recently found the RemedyFind.com site and I think it is wonderfully useful!! I am so grateful to you, Brett, for founding it!!

Hi – I just wanted to let the board members know that they might be interested in reading latest RemedyFind ADD/ADHD newsletter.

A little background. Remedyfind is a free and unbiased site (not sponsored by any drug companies etc.) that lets individuals rate the effectiveness of the treatments they have used for specific health conditions. I started it 6 years ago to try to find help with treatments for Chronic Fatigue Syndrome (which I’ve had for some 20 years.) After doing the CFS section I realized the same approach could also work for other chronic health conditions, and so the site has now grown to cover some 85 conditions, including the three types of ADD/ADHD: Combined; Hyperactive / Impulsive; and Inattentive.

All the best, Brett
Founder / Editor

Thanks Brett,

I use your site a lot to research drugs, please keep up the good work.

Tom

It seems like there aren't as many evaluations as there used to be. Did something happen to them?

Hi,
As a number of the ADD Forums board members have shared treatment ratings on my site RemedyFind, I thought you might be interested in a change to the site.

RemedyFind has been purchased by a start-up company called Revolution Health. Revolution Health was created by Steve Case (AOL founder) and others, with the goal of bringing constructive change to health care. The aim is to give people the tools, information and support to actively manage their health and wellness. I’m now a Revolution Health employee and think the new company has the ideals, and resources, to really achieve some amazing things. In the next few weeks, RemedyFind is going to be merged with the Revolution Health site, and will become an important part of it. What you see on RemedyFind now (unbiased lists of treatment options; strict privacy protection) is what you'll see on Revolution Health, only better.

Revolution Health is in preview mode now and your participation and feedback would be greatly appreciated before we open it up to the public later this month. If you have a minute, please go to http://www.revolutionhealth.com/preview?code=YQ1zrIG6u3 and register (it’s free). If you are already a RemedyFind member, be sure to use the email address you used at RemedyFind – so that we will be able to identify you and move over your RemedyFind treatment ratings.

Here are a few things you can do on the site:
* Rate your doctor and see what others say
* Create a blog
* Share the helpful websites / resources you have found
* Ask health questions and get answers from people like you
* Fill out a profile and invite others into your circle
* Create charts to chronicle the course of your health and mood

Thanks again for participating in our preview and for being an important part of the launch and building of Revolution Health. Feel free to let your friends know about the site too - the more input we can get now the better (they can use the same url to get to the preview site).

All the best.

Note: If you have a Mac, you should use a Firefox browser instead of Safari (we are working on accommodating Safari for our public debut).

.

That sounds great Brett. I have always loved your site.

I hope it turns out as good as planned.

.

Thanks Lars - it will be a work in progress, but then what isn't? Cheers, Brett

Dude, what happend? :confused: I just tried to find RemedyFind for the first time in over several months, and I was directed to the new site.

Well, since I do not personally know you, I will hope/trust that you take this as constuctive criticism, which is all it is. That being said, the new site is a real drag man. I'm not sure if you've gotten any feedback on it, but I found the new site to be much less user friendly than the old site.

I was a big fan of RemedyFind, and found it to be a very helpful site over the years. I guess if I had to sum up my feelings about the new site with a single word, that word would be "bummer."