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Smokey_T
09-28-08, 04:45 PM
Hello there

35 year old bloke here just waking up to the fact that his life is a mess probably because of ADHD.

I've always felt bemused by life in general, used to be like Tigger ("Bouncing is what Tiggers do best.") when I was younger and grown more grumpy and secluded as the years go by. I've only recently found out my father who I've always found hard to fathom out and one of my younger brothers has ADHD, it's always nice to kept in the loop on these things. :rolleyes: I'd never really given any consideration to the fact my problems were caused by anything else except me being an "Odd little man", a phrase that has followed me round for years.

After a particularly crappy year I've now started a journey of self-discovery, I feel like I've had my "Fight Club" moment where the main character suddenly realises all is not what it seems!

The more I read about it the more my life and some of my actions and thought processes are starting to make sense to me.
I always wondered why I was more "full-on" than most people I know
I always wondered why I was more impulsive than most people I know
I always wondered why group conversations were so damn tricky
I always wondered why relationships were so bloody hard and short-lived
I always wondered why when relationships went sour I was so sensitive
I always wondered why my temper when pushed was so explosive
I always wondered why I can't stand still and have a phone conversation
I always wondered why my brain was firing on all cylinders when I'm trying to get to sleep.
I always wondered why I have to put certain objects in exact places or I'll never find them again.
I always wondered why I can't seem to have one thought at a time without being stoned or drunk!
I always wondered why I loved the calming effect of speed in my youth when all around me were going crazy
I always wondered why I was so easily distracted
I always wondered why I love lists! :cool:

I saw a GP about 6 weeks ago and have been put on a waiting list to see a councellor, who I have to see before I can be referred to anyone else. Patience is not my strong point though and now my head has been blown off I want to start moving things forward.

Has anyone got any experience of the Dyscovery Centre in Newport? http://www.dyscovery.co.uk/uniform/centre.htm
They're reasonably close to me and seem to specialise in the areas I'm interested in. The only thing that puts me off is you have to send 75 before you can do anything.

I've been given the contact at the Bristol Priory clinic and I'm waiting for a call back to discuss appointments and costs but being it's the "Priory" I'm assuming expensive and I don't know if they have anyone there who specialises in ADHD.

Or does anyone know of any other clinics in the Bristol/WSM area that may be able to help?

One potential concern I have is to go into this telling who I see that I believe I have ADHD. The main thing that has brought the whole matter up is that I have suffered depression for years but have always coped and convered it up, it has never been crippling. I had a short lived relationship recently that really knocked me for six when it ended so this was my catalyst for self-exploration. What I don't want is to go in to an appointment and say "Hello, I have ADHD" when the person I'm seeing thinks "Hmmm...I'm the expert here, we'll see about that" and we end up going off on tangents. Is it better to just go in saying "I'm miserable and have been for years?" and see where it goes or try plan A?

Any opinions gratefully received.

Many thanks

Can'tregister
09-28-08, 06:09 PM
Your in luck Smoky there's an NHS clinic in Bristol that from what I gather GP's in Bristol can refer directly to and although its only being run for a short while it seems to have a good reputation .

Adult ADHD Clinic
Avon & Wiltshire Mental Health Partnership NHS Trust
1 Colston Fort
Montague Place
Bristol BS6 5UB.

from ;

http://aadduk.proboards85.com/index.cgi?board=help&action=display&thread=23

Smokey_T
09-29-08, 02:28 AM
Thanks Can'tregister.

My GP insists I see the counsellor first but I can certainly go armed to the meeting with that information. Hopefully this won't be too much of an ordeal.

xstarchildx
09-29-08, 04:40 PM
Hiya SmokeyT, welcome to addf :)

Destracted_UK
10-03-08, 07:00 AM
Hi Smokey

Just want to say welcome as well!

Your list made me smile....

I always wondered why I was more impulsive than most people I know
- It's a real rollercoaster ride not knowing when this classic is going to come out, and where it will lead. Sigh!!

I always wondered why group conversations were so damn tricky
- Hang on, you were just talking about X and now I have just managed to gather some thoughts about X, you are all talking about Y. Hmm, if I bring up X now then... Ahhhgggh!!!! Lol!

I always wondered why relationships were so bloody hard and short-lived
- Ahh, the most painful for me..

I always wondered why my temper when pushed was so explosive
- Damn! My temper is kept so locked up now. I try my hardest to steer away from anything that might let my rage out, as it once it's out it's venomous :S It never makes an appearance now, phew!!

I always wondered why I can't stand still and have a phone conversation
- Hah, this is another classic. There is a part of me that believes that when a phone rings I have to stand up to answer it and I must NOT sit down until the call is finished. If I try and sit down I might get a few minutes but then suddenly I am walking to the next room and then back again (repeat till call ends). Strange one that but not too annoying in comparison to other symptoms.


I always wondered why I can't seem to have one thought at a time without being stoned or drunk!
- I literally do my best thinking when I have had lots of beer, I can hold my thoughts and make plans. Then I wake with a sore head and have forgotten it all!

I always wondered why I loved the calming effect of speed in my youth when all around me were going crazy
- Oh yes.

I always wondered why I was so easily distracted
- I am glad you have a reason for it now, you can make more sense of things.

All the best : )

Smokey_T
11-24-08, 04:10 PM
Well, I thought I may as well keep this updated.

Had my first meeting with the counsellor. Lots of "How did that make you feel", "Why do you think that" type questions all of which had me leaving confused. I guess the idea is to make you think but as to what I don't know...

She currently thinks I have some kind of Social anxiety, which I guess to a degree I do but I get the impression there's an underlying reason why I'm socially anxious. It's a bit ironic being as my job is as a travelling sales rep seeing 15-20 dealers a week, I don't think I'd be able to do it if I were that bad! But I do over-think situations and work myself into a state where I can find it hard to either organise what I'm supposed to be doing or picking up the phone to arrange appointments. And that's just work...don't go there with the (un-) social life.

I have another appointment in a couple of weeks time and am now wondering the best plan of attack. I didn't go into this meeting armed with loads of notes (even though I have them) and didn't go in saying I think I have ADHD but I had told my GP before I got the first appointment with the counsellor so she should have had it in her notes.

My choices are:
Go in, act innocent and see what happens
Go in, with notes and argue my case for ADHD and see what happens

Either way it looks like I may have to go private as an odd quirk of fate I met up with an old school chum through facebook who now works for the PCT that governs the medical centre I go to and he says that this particular PCT is very strapped for cash and is reluctant to spend money if it can help it.

As a great man once said... "Meh"

pADDyjay
11-24-08, 04:26 PM
:)welcome aboard, its great here at the forum

Bluerose
11-25-08, 01:37 AM
http://i26.tinypic.com/nxjfp4.gif

Thanks for the update. Hope everything works out. Stick around here in the meantime.

Can'tregister
11-25-08, 05:29 AM
Well, I thought I may as well keep this updated.

Had my first meeting with the counsellor. Lots of "How did that make you feel", "Why do you think that" type questions all of which had me leaving confused. I guess the idea is to make you think but as to what I don't know...

She currently thinks I have some kind of Social anxiety, which I guess to a degree I do but I get the impression there's an underlying reason why I'm socially anxious. It's a bit ironic being as my job is as a travelling sales rep seeing 15-20 dealers a week, I don't think I'd be able to do it if I were that bad! But I do over-think situations and work myself into a state where I can find it hard to either organise what I'm supposed to be doing or picking up the phone to arrange appointments. And that's just work...don't go there with the (un-) social life.

I have another appointment in a couple of weeks time and am now wondering the best plan of attack. I didn't go into this meeting armed with loads of notes (even though I have them) and didn't go in saying I think I have ADHD but I had told my GP before I got the first appointment with the counsellor so she should have had it in her notes.

My choices are:
Go in, act innocent and see what happens
Go in, with notes and argue my case for ADHD and see what happens

Either way it looks like I may have to go private as an odd quirk of fate I met up with an old school chum through facebook who now works for the PCT that governs the medical centre I go to and he says that this particular PCT is very strapped for cash and is reluctant to spend money if it can help it.

As a great man once said... "Meh"

If I were you Smokey I'd put forward ADHD as a possibility that needs to be strongly considered .In mental health apparently professionals often decide on the diagnosis to ascribe quite early in an interview , you need to get your point across before they have committed themselves . In your case perhaps accept that Social anxiety might be a comorbid condition but because ADHD is a neurodevelopement disorder that preceeded other problems it needs to be addressed . Check out the recent Nice guidelines and see what they say about social anxiety as a comorbid disorder , print out the relavent sections and highlight the important points and show them to your counsellor .

Good luck

Smokey_T
11-25-08, 01:42 PM
Thanks again Can'tregister.

I now have a plan of attack.

Smokey_T
12-08-08, 08:53 AM
Well, had the next appointment with the counsellor. I thought I'd see how it went first and she made 3 key points after our last meeting and she wasn't a million miles off on 2 of them so hats off to her. But I feel the reasons are more complicated than she thinks so I mentioned ADHD and pulled out my list of problems and some relevant pieces about anxiety and depression as co-existing conditions from the NICE guidelines.

She was good as gold and admitted she hasn't much experience of ADHD and spent about 20 minutes trying to get the phone number of the bristol clinic while I was there. It was reassuring that someone who works in Primary Care has the same issues finding information out information as Joe Public!

She's now phoned back to tell me my GP has agreed to refer me to the clinic for an assessment.

No idea how long it will take but I've had to learn to be patient!

Smokey_T
01-22-09, 06:09 PM
An update:

Have received a letter about a week ago from my local PCT

Request for exceptional funding for ADHD assessment

Thankyou for your letter dated 29th December 2008 requesting funding for an assessment for the above patient.

I am writing to let you know that we intend to take this case to the next Individual Commissioning Panel (ICP) meeting, providing we have sufficient information to present this case.

In the meantime, if there is any further relevant information that you think you the panel need to know can you forward this to me at the above address as soon as possible.

A letter detailing the outcome of the ICP meeting will be sent to you within 10 working days of the meeting taking place. In some circumstances cases may be deferred to the following months meeting in order for further information to be sought.

I am copying this letter to Mr XXX to keep him informed.

Yours sincerely

blah blah blah

Destracted_UK
01-23-09, 06:33 AM
In the meantime, if there is any further relevant information that you think you the panel need to know can you forward this to me at the above address as soon as possible.

Hiya : )

Have you sent anything back to them?

planetdave
01-23-09, 04:59 PM
Hello ST.

I think you need to up the pressure on that ICP panel.

Without funding you are nowhere so if you can get together your self assessment get it to your GP to forward to them.

Being a bit a of drama queen myself :p I'd push your deteriorating condition (oh yes it is ;)).

There's lots of people competing for this money - make sure it comes to you.

planetdave
01-24-09, 05:35 AM
Sorry - haven't read the entire thread properly :p. That'll be the ADHD.

Anywho......one of the things I did to convince myself before seeing my GP and boldly stating 'I've sure I have ADHD' was to do lots of online tests.

They may not be perfect but most of the ones I did seemed to be close to what I ended up being diagnosed as.

If they wont let you print them out then do a screen capture (print screen) and take/send these to your GP/psych/counsellor/funding panel as soon as possible.

How do you find these tests?

Go to your internet search engine and type 'ADHD test' (or variation on that theme) into it.

Easy peasy.

And now I'm going to copy this post across to one of my threads :p

Smokey_T
01-24-09, 05:51 PM
Hi

Have you sent anything back to them?I haven't sent anything since getting the letter but I had taken a letter with me to the last meeting I had with the counsellor in which I'd listed the issues I was having and excerpts from the DSM-IV and NICE guidelines.

I'm assuming (yeah, I know) that document has been forwarded on.

Being a bit a of drama queen myself :p I'd push your deteriorating condition (oh yes it is ;)). That's a weird one for me, I've always been quite stoic and I don't like making a fuss. But then the whole situation is quite an odd one, I'm persuing a tag that would qualify me as a mental. :p I have to do it for my own peace of mind though (pardon the pun) as the more I read about it the more I'm convincing myself that it's why my issues are what they are. I'm not seeking drugs, although I'll give them a try, my desire is to speak to someone that understands ADHD so I can try and get my life in order.

I've already done all the tests I could find online but I haven't taken any of the results to my GP...yet.

Cheers

planetdave
01-24-09, 06:18 PM
Being stoical is fine - but liable to leave you by the wayside by not piquing the ICPs interest.

You know it's a small pot they have, why should they give some to you?

Getting a knockback is hard on you and leaves you tainted since it remains on your record (second time round you will just be a serial botherer). I played the loon card to the hilt, even though I'm actually a bit shy and retiring (hard to believe on here - I'm compensating), but considering you're competing I'd seriously advise you find an angle that makes you stand out.

doiadhd
06-03-09, 02:28 AM
Hi smokey T.......it's just starting to register that i,m gonna have to be chasing this up with going doctors and being patient in patient rooms ect....similar circumstances i mean
good luck