View Full Version : roll call


Squishey
02-26-09, 10:44 PM
Most of the posts on this forum i find, are people asking if they could have tourettes. I think we should do a roll call, of people who actually have tourettes and are active on this forum.
(yeah i know, i stole it from the teen forum :P )

blueroo
02-27-09, 03:47 AM
Maybe it's just me, but how could someone not know that they have tourettes?

Squishey
02-27-09, 07:55 PM
Yeah, thats what i do not get. There are like 5 posts asking if they have it...

mADD mike
02-27-09, 08:09 PM
Maybe it's just me, but how could someone not know that they have tourettes?

No different than with ADD. Look at the symptoms of ADD, many people can exhibit those at times in life, without actually having ADD. It could be a anything from a thyroid issue to stress to something else completely.

With Tourette's, from what I understand, it could be just a compulsion to do something regularly, rather than an actual tic. I actually came down here and asked, just like many that are curious about their own potential ADD, just to get some validation. I've had tics of various types my whole life, as have both of my brothers. We would get in trouble for them when we were younger. However, after reading the list of symptoms, and seeing that Tourette's is sensationalized in the media, just like ADD, I began to not only realize what it really was, but identify with the symptoms. So, I posted to get someone to verify that my suspicions might be correct.

I am self-employed, without health insurance, and I can't afford to pay out of pocket for the doctors and tests to find out if I really technically have Tourette's or not. So, the next best thing is reading about it and getting input from others, which I did. My tics are noticeable, but don't really impact my life most of the time, so there is no real need to have it checked out further. It is nice to identify with some down here though, to know that my tics are actually in line with a disorder, and not just some weirdness on my part.

blueroo
02-27-09, 09:30 PM
Hrm. There are a few tic and compulsion disorders, though Tourette's Syndrome is one of the more common and well publicized. Not to simply dismiss your experience outright, but I have a hard time accepting a few "compulsions to do something regularly" as automatically being Tourette's. That grossly understates the urgency, intensity, and pseudo-involuntary nature of the tics. It's like someone with an occasional dull ache saying they think they might have neurologically based chronic pain. Yeah, it might be possible, but you can't blame the people with diagnosed chronic pain writhing in agony if they're a little skeptical.

mADD mike
02-27-09, 11:40 PM
Hrm. There are a few tic and compulsion disorders, though Tourette's Syndrome is one of the more common and well publicized. Not to simply dismiss your experience outright, but I have a hard time accepting a few "compulsions to do something regularly" as automatically being Tourette's. That grossly understates the urgency, intensity, and pseudo-involuntary nature of the tics. It's like someone with an occasional dull ache saying they think they might have neurologically based chronic pain. Yeah, it might be possible, but you can't blame the people with diagnosed chronic pain writhing in agony if they're a little skeptical.

I never said that I have Tourette's. I started a thread down here to see if it COULD apply to me, which is on the first page here, trying to learn about it from others. Little did I know that not many with Tourette's actually seem to come here. I just wanted some input, not a diagnosis, nor do I feel that I was diagnosed with Tourette's. It was more of a "could this be", than an "it is". If nothing else, hearing that other people had some of the same tics as me, or whatever name you want to give them, made me feel less alone.

I didn't get into my symptoms in the post above whatsoever. I was merely pointing that some people can't tell the difference between compulsions, Tourettes, etc. I've seen compulsions vs. Tourette's on here before, so that is the example that I chose.

My tics are both motor, and have been verbal at times. They are listed on my thread, here on the first page of this forum.

You are the one that asked the question, how could anyone not know that they have Tourette's. I was just trying to show that sometimes people don't know exactly what they have, even as you pointed out that I may not have it. But you don't know, do you, just as I don't know if I do.

So as you can see, it IS possible to not know for sure if you have Tourette's, or not.

blueroo
02-28-09, 03:33 AM
I made the assumption that "not know they have Tourette's" also meant "don't realize they have tics". That was a poor assumption on my part. And of course, it obviously does not apply to you. :)

mADD mike
02-28-09, 03:08 PM
I made the assumption that "not know they have Tourette's" also meant "don't realize they have tics". That was a poor assumption on my part. And of course, it obviously does not apply to you. :)

Lol, yeah, I wasn't sure if what seemed like tics with me were likely tics or just some sort of other type of compulsive behavior that could be linked to some other issue. Heck, I'm still not sure, but it is nice to know that I'm not the only one that does some of what I do. Misery loves company, I guess. I never realized what tics were present for Tourette's, because the media makes it look so different and sensationalized. I realize that there are actually extreme cases, but those are the only ones they show.

ZiggyFry
08-17-09, 10:56 AM
Here.

I'm not the only one, am I?

Sin.Ziggy.

zarazz
08-17-09, 05:30 PM
Here.

I'm not the only one, am I?

Sin.Ziggy.
no, your not but then you would have to define "active" as well

ZiggyFry
08-18-09, 12:54 AM
Yes.. Seems a bit quiet here.

Sin.Ziggy.

zarazz
08-18-09, 01:22 AM
but cobwebs add "character"

aularian
08-18-09, 04:10 AM
My specialist will say I have a "tic disorder", or "displays the symptomies of Tourettes", which he treats me for. But for some reason is reluctant to use the word "Tourettes".

He's medicating me with stimulants too, yet is reluctant to label me with ADHD, instead saying "displays inconsistencies in line with an attentional disorder". Which one? How confusing! I guess maybe it's good not to have a label. Who knows.

Anyway, recently returned to the forums is me, maybe/probably with Tourettes ;) There don't seem to be too many around in these parts...

ZiggyFry
08-18-09, 01:55 PM
I guess maybe it's good not to have a label. Who knows.


As much as people say labels aren't good, it's liberating to have a name for all these weird things that are going on. Before I found out it was Tourettes, I just thought I was making weird noises because I was crazy. :rolleyes:

Sin.Ziggy.

Mincan
08-18-09, 02:26 PM
I have been professionally diagnosed.

zarazz
08-18-09, 04:37 PM
I think most docs are afraid to give the "labels" of tourettes and ADHD because they are either uninformed about the specific condition and don't want to get sued for malpractice or thing that it is something far worse than it actually is.

doiadhd
08-20-09, 06:38 PM
The definition of tourettes is not the same as some may be lead to believe,am I correct?
I mean to say its not all f' this and w' that......it has other forms?

zarazz
08-20-09, 08:32 PM
yes, your correct but could be more correct, take a look at http://www.addforums.com/forums/showthread.php?t=67278 for a bit more info on exactly what TS is.

aularian
08-23-09, 02:35 AM
As much as people say labels aren't good, it's liberating to have a name for all these weird things that are going on. Before I found out it was Tourettes, I just thought I was making weird noises because I was crazy. :rolleyes:

Agreed! Even just knowing about it helped me. At 22, the first time I read an article about Tourettes I cried, I never knew it existed and for the first time I realised that there might be a name for what I did, and not merely a lack of willpower on my behalf.

I think most docs are afraid to give the "labels" of tourettes and ADHD because they are either uninformed about the specific condition and don't want to get sued for malpractice or thing that it is something far worse than it actually is.

My doctor is a neuropsychiatrist who specialises in ADHD, Tourettes etc. He knows what he's dealing with but for some reason is reluctant to label it. I guess I never really pushed him to but maybe I should be.

The whole "to label, or not to label... that is the question" debate, is something I've struggled with for some time. I even used it as my honours research proposal (then realised it was too much work and dropped out of honours!).

This is the first time I've had to ask for special consideration at work though in terms of easing up on the workload, and it's hard to do that without an actual diagnosis. Lucky for me social workers are so understanding! ;)