View Full Version : For those you officially diagnosed, how does caffeine affect you?


Kestri
08-28-09, 07:35 PM
For those you officially diagnosed, how does taking caffeine during the day affect you? I remember reading that these ADD medication are basically stimulants, and that got me thinking about caffeine.

Does drinking caffeine do the same thing for you as an official ADD medication? Does it possibly have no affect? Or does it intensify some of your symptoms and make them worse?

I'm not diagnosed myself but I am curious to hear how caffeine affects those of you who are.

Zacker
08-28-09, 08:58 PM
for me, it does nothing... I can down a 20 oz cup o joe and fall asleep.. I used to drink a 20 oz cup on my drive to work, have a medium dunkin donuts iced coffee at lunch, and still fight to keep my eyes open on the ride home. One of the things my DR asked me when I ffirst started seeing him was if coffee affected me.

ENTrePreneur
08-28-09, 09:06 PM
It has absolutely no effect on me. I drink two cups of coffee every morning.

DobieDebbi
08-28-09, 11:02 PM
Coffee gives me a short-term boost but I, too, drink coffee all day and can go to sleep with no problem. I usually have my last cup at around 8pm and then have a cup or two of hot tea before I finally go to bed a couple of hours later.

Prusilusken
08-29-09, 12:08 AM
I feel no effect what so ever from coffee, at least not the amounts I drink.
Some days I drink 1 1/2L (about six mugs) a day, sometimes I don't have coffee at all, and I wake and sleep the same. Six mugs can be a bit hard on my tummy sometimes if I haven't had any at all for a few days or weeks. That's about it...

Just ftr, I hardly ever have drink anything with alchohol in it, I don't smoke and usually drink herbal tea rather than "real tea". As for self medication, coffee doesn't do a lot for me, as you can tell by reading this.

Impulsive bingeing on food in general and sugars in particular seems to have some effect on me, and as soon as I knew about my ADHD I realised that, and, for the n-teenth time made an effort to cut back (again...) I did okay, but it wasn't easy and I knew the "addiction" has a habit of sneaking up on me again after somewhere between 3-4 months and a couple of years only "using" like, for "recreation"... ;)

You know what, the Rit has all but eliminated that out-of-control need to eat on impulse. I really enjoy that. It very much feels like I am getting at least some of what I have always been craving brain chemistry wise from Rit.
Not all of it, I am afraid, but I am obviously doing better on that front. :)

chartreuse
08-29-09, 12:17 AM
It's sort of a contradiction, but pre-meds caffeine was absolutely essential to me being able to function (I couldn't move in the morning without taking in a few hundred milligrams, and I pretty much kept up that dosage all day long) but at the same time it had so little effect that I could have a big soda right before bed and still instantly fall asleep.

It definitely has an effect, but not the effect that most normal folk would associate with caffeine.

And no, the effect it has is nowhere near the effect my ADD meds (Adderall IR) have. Caffeine is a very crude drug; it can make me more alert but it does nothing for focus or clarity or to alleviate the feeling of boredom, whereas Adderall does all of those things plus more.

I have recommended to people that run short on meds that they ingest large amounts of caffeine, but it's a mediocre substitute at best.

Louder Than Love
08-29-09, 12:40 AM
Only thing coffee does for me is prolong the life of adderall.

wsmac
08-29-09, 02:15 AM
Makes me feel all grown up!:p
.
.
.
.
.
Otherwise... nadda'

Shirker
08-29-09, 03:22 AM
I drink two pots a day to try and lift the fog, It doesn't help really. It never lifts the fog but there is an improvement which makes want to drink more coffee. This is bad. Coffee negatively affect my GERD and the other night I got out of bed and almost called an ambulance thinking I was having a heart attack.

ysabeau
08-29-09, 05:14 AM
As a teenager I drank coffee so much my mother started hiding it.
In response to this act of caffeine fascism, I went out and bought my own french press and some hard core freshly ground espresso.
While my sister is a total wine-wanker, I am the aficionado of the bean in my family, and treat it (its pathetic, I don't deny it) pretty seriously.
I even have a coffee bean tree in my backyard. It produces a barely ingestible swill, but what the hell, I made it :D.

I wasn't medicated as a child and honestly think I was drawn to it because its a stimulant. It does have an effect on me yes, but its fairly mild considering my first cup of the morning is combined with the swallowing of 10mgs of Methylphenidate.

I don't medicate after 7pm or so and find it really useful to keep going for those last few hours of the evening, or when I have work to get done, it definitely provides a boost.
During university sometimes (ok semi-often :rolleyes:) I would have to pull an all nighter and found 5 minutes post consumption it seemed to hit the blood stream and so the brain, it would peak in effectiveness at ten mins and effects relatively imperceptible after 15-20 mins, but would also add that in a sleep deprived state, stimulant meds are also rendered far less effective.

If I have to move house, I drink redbull, though I find it fairly gross tasting, it sure gets those packing cases shifted.

I notice a few others say it has little effect on them at all, I guess chemical sensitivity is fairly unique from one person to another.

Dashieldog
08-29-09, 08:31 AM
I am on Strattera and caffeine gives me anxiety with it but I am also OCD and General Anxiety so it basically sends me over the edge. Hope this helps.

Mantis
08-29-09, 08:39 AM
I only started drinking anything with caffeine in it like a few months ago.
I was quite amazed at first, I got a real buzz from drinking some tea!
A few months later it isn't doing much for me though...

2Springers_Matt
08-29-09, 08:41 AM
I dont drink any caffeine any more. When I have, (since meds) I get the jitters now and I dont like that feeling. If I drink even a can of soda, after say 2pm, I cant sleep at night. I also don't drink coffee because I have IBS, and coffee irritates my stomach, and makes me sick.

Caffeine free for me!

chips
08-29-09, 08:53 AM
Coffee does nothing for me. I can have a cup & half hour later go to bed & sleep like a baby (day or night!) One place I worked at I was up to 6 cups a day but still no effect. I wish it gave me the get up & go like the NT's ..sigh

Kestri
08-29-09, 12:42 PM
I haven't been diagnosed with Inattentive ADD but when I go through the symptoms lists and online tests it amazes me how many of those traits I find and how well it matches my life.

This caffeine question though got me thinking, is it possible for me to have Inattentive ADD? All of the ADD medications as far as I know are stimulants and so many of you report being able to sleep fine after consuming caffeine. I, on the other hand, definitely can't sleep after drinking caffeine.

Caffeine has a huge effect when I first drink it and I feel great and energized. When I have too much it actually creates ADD symptoms in me, but I'm usually to energized and wired to care. And then when it wears off I am left feeling dead, scattered, and irritable. Usually the only thing that levels me off after too much caffeine and allows me to sleep is alcohol.

Is this enough to throw out the possibility of me having ADD?

Prusilusken
08-30-09, 05:54 PM
Kestri: Is this enough to throw out the possibility of me having ADD?
I'd say no, far from it. If you think ADHD might be an issue with you, you have enough negative symptoms that should be seen to and found a cause for if possible, no matter what that ends up being.
Having an expert test you for ADHD sounds a completely sensible place to begin.
If you have negative symptoms of any kind that seem to seriously limit - in effect: impair - your ability to function in your everyday life, you'd be ill advised not to find the course of them and get treatment if available.
If ADHD gets ruled out, you'll just have one less possible cause of your symptoms to worry about, you'll still have the debilitating symptoms and the need for help.

So what's really to loose by seeking ADHD assessment?
An ADHD dx would give you a better place from where to improve your life, but so would ruling out ADHD. Then it'd be on to bloodwork (hyper/hypoglycaemia, certain vitamin deficiencies and a whole bunch of other places to look for help) and other tests to find your answer - and help. Win/win, if you ask me...

...where as if you should choose to ignore your symptoms completely because you happen to be sensitive to caffeine, you're likely 100% sure to keep being bothered by them where you might have had tremendous relief instead - and worst being worst: there's a risk you'll miss something very serious that could have been caught in time, had you chosen to seek help earlier on.

My 2 cents. Good luck out there! :)

Michiko74
08-30-09, 10:58 PM
For those you officially diagnosed, how does taking caffeine during the day affect you? I remember reading that these ADD medication are basically stimulants, and that got me thinking about caffeine.

Does drinking caffeine do the same thing for you as an official ADD medication? Does it possibly have no affect? Or does it intensify some of your symptoms and make them worse?

I'm not diagnosed myself but I am curious to hear how caffeine affects those of you who are.

While caffeine may be a stimulant, it certainly doesn't have the same properties as my medication. It's not like I could drink a cup and my attention and focus would be ok. And it's 'stimulant' effects are very short acting.

I still drink it even though I am taking medication. And like the rest of the population, I drink it because it does wake me up a bit.

Trooper Keith
08-30-09, 11:09 PM
When I was a child, my psychiatrist recommended to my parents, who opted against medicating me, to give me soda as a way to calm me down. As a child with no caffeine tolerance, this worked.

As an adult who drinks coffee with some regularity, this does not work.

Stimulants are stimulants but not all stimulants are created equal.

Huricaine
08-30-09, 11:35 PM
im opposite...im sensitive to it. It makes me not feel my body and i know its bad for my body...im more energyless. i dont care what people say about caffeine being a "stimilant" it can make add worse because it releases dopamine and there is a hypothesis that says dopamine transmitts faster with adhd and rit and adderall mainly slow down the transmission... For me it makes me psychotic like. I hate caffeine. It never focuses me. my brain is too innatentive on it. but my body goes everywhere but slopily...no energy...neurology hypothesis are weird but i can explain more if people are confused. It my hypothesis though.

Trooper Keith
08-31-09, 12:46 AM
it can make add worse because it releases dopamine and there is a hypothesis that says dopamine transmitts faster with adhd and rit and adderall mainly slow down the transmission...

This 'hypothesis' doesn't make any sense and contradicts virtually everything we know about ADHD and how stimulants work.

scatterbrain67
08-31-09, 01:10 AM
I haven't been diagnosed with Inattentive ADD but when I go through the symptoms lists and online tests it amazes me how many of those traits I find and how well it matches my life.

This caffeine question though got me thinking, is it possible for me to have Inattentive ADD? All of the ADD medications as far as I know are stimulants and so many of you report being able to sleep fine after consuming caffeine. I, on the other hand, definitely can't sleep after drinking caffeine.

Caffeine has a huge effect when I first drink it and I feel great and energized. When I have too much it actually creates ADD symptoms in me, but I'm usually to energized and wired to care. And then when it wears off I am left feeling dead, scattered, and irritable. Usually the only thing that levels me off after too much caffeine and allows me to sleep is alcohol.

Is this enough to throw out the possibility of me having ADD?

Just to clarify for you, all ADD meds aren't stimulants. I was started on Strattera initially, which is not. I'm currently on Adderall XR and haven't really noticed any effect from drinking caffeine. Although, I can say that before I was diagnosed I used to take caffeine pills very infrequently, but that is when I noticed that I felt normal when I took them, like that is how I should be feeling on a daily basis, but without the caffeine.

TommySama
08-31-09, 03:30 AM
Always makes me shaky - especially after starting medication. But I can always fall asleep, even if I've drank an entire pot

Retromancer
08-31-09, 03:56 AM
Keeps me regular ... as they say in the commercials. Otherwise, eh. I can live without it -- but why?

JBPDX
08-31-09, 05:53 AM
I stopped drinking any form of caffeine when I started taking meds. Previous to that, I could drink energy drink after energy drink (and then some MORE energy drinks) and they wouldn't do a thing for me. Very rarely it actually made me more tired. Plain coffee always makes my stomach hurt, so I stay away from it.

One of the things my doctor asked before he prescribed me Ritalin is how I reacted to caffeine. He said that having no reaction to caffeine is a good indicator that you do in fact have ADD. I hadn't heard that before, and didn't think to research it any further. However, I don't think you could determine whether or not you ADD based on how you react to caffeine. Your best bet is to talk to a doctor.

Infinity
08-31-09, 06:49 AM
REFILL is my middle name.

I stopped drinking Caffinate coffee April 1st . And stopped drinking coffee altogether a month ago because Im trying to be on a more alkaline diet .

I measured my Mug and it holds over twenty ounces. I drank two of those before going to bed at night around midnite. fell asleep imediately.

I began drinking coffee when I was 15 . heavy drinker my entire life.

I do not have an "official" diagnosis yet. That does not mean I do not have ADHD. And some who have it can't get one.




I used to start my day at a coffee shop drinking three some times four 16.Oz cups in an hour . I could read durring that time and be able to think about what I was reading. And I had some of my best creative writting moments while under the inflence of the bean.

People used to comment on my consumption. At least it wasn't alchohol.

Infinity~

TommySama
09-01-09, 12:49 AM
"
One of the things my doctor asked before he prescribed me Ritalin is how I reacted to caffeine. He said that having no reaction to caffeine is a good indicator that you do in fact have ADD. I hadn't heard that before, and didn't think to research it any further. However, I don't think you could determine whether or not you ADD based on how you react to caffeine. Your best bet is to talk to a doctor."

That sounds wrong to me. My doctor told me caffeine was originally prescribed for ADD, but was discontinued for ritalin. One of the reasons was that it had so many side effects (like shaky hands)

Billy79
09-01-09, 11:06 AM
i think overall caffeine does more harm than good with me. maybe its the food or something else but im almost alwyas stomach pain..but i have to be alert at my job so...

JBPDX
09-01-09, 11:11 AM
"
One of the things my doctor asked before he prescribed me Ritalin is how I reacted to caffeine. He said that having no reaction to caffeine is a good indicator that you do in fact have ADD. I hadn't heard that before, and didn't think to research it any further. However, I don't think you could determine whether or not you ADD based on how you react to caffeine. Your best bet is to talk to a doctor."

That sounds wrong to me. My doctor told me caffeine was originally prescribed for ADD, but was discontinued for ritalin. One of the reasons was that it had so many side effects (like shaky hands)

In his defense, he did not say it was a sure-fire way to diagnose ADD or ADHD. He said that it may be an indicator. I suppose I should have been a little bit more clear on that! My apologies. Someone diagnosing ADD or ADHD simply based on a reaction to caffeine is clearly not qualified to be making such diagnoses. I didn't find much useful information when I tried to research it myself. Next time I see him I'll ask about it.

Best of luck getting your diagnosis, Kestri! I can easily say that it's one of the best things that I've ever done for myself.

peripatetic
09-01-09, 11:15 AM
greetings,

caffeine does nothing for me. i do enjoy the taste of coffee and tea, though, and drink it almost daily. pre-diagnosis the only successful job i held (by 'successful' and 'held' i mean for nearly three full months) was at a coffeehouse, though, so maybe it did help at some point.

alas, now it just makes me need to drink even more water, so i have to limit my consumption.

i'm 'combined', not primarily inattentive, though, if that is of any particular importance.

cheers,

jacinta
09-01-09, 01:14 PM
Coffee doesnt affect me one way or the other. I only drink it occasionally when I get bored with drinking tea. I get hyperactive though when I drink some package soups which contain certain flavour enhancers.

doiadhd
09-01-09, 01:33 PM
It's sort of a contradiction, but pre-meds caffeine was absolutely essential to me being able to function (I couldn't move in the morning without taking in a few hundred milligrams, and I pretty much kept up that dosage all day long) but at the same time it had so little effect that I could have a big soda right before bed and still instantly fall asleep.

It definitely has an effect, but not the effect that most normal folk would associate with caffeine.

And no, the effect it has is nowhere near the effect my ADD meds (Adderall IR) have. Caffeine is a very crude drug; it can make me more alert but it does nothing for focus or clarity or to alleviate the feeling of boredom, whereas Adderall does all of those things plus more.

I have recommended to people that run short on meds that they ingest large amounts of caffeine, but it's a mediocre substitute at best.

I tried some caffiene tablets the other day....and am pretty sure they are the cause of my headaches(not pain really,more like my brain was coated in glue),even more cloudiness and if I looked to the sides it was hurting the back of my eyeballs......was sick in the morning......today mood swings galore(I did not take any today).

Cup of coffee in the morning wakes one of my senses,then that one nudges most of the others.

ralphpenguin
09-01-09, 02:11 PM
Coffee makes my feet cold and I urinate more then normal. Besides those effects...nothing else really...no stimulation or anything.

willwill30
09-01-09, 04:06 PM
The only thing coffee does is put me in the bathroom:o. Does nothing for my ADD.

tash11
09-01-09, 08:19 PM
I have never been officially dx as inattentive type, at least I don't think so. My ped when I was a kid did call it "add" and not "adhd" but I don't remember much other then that.. anyway....

I have been trying to self medicate with caffeine.. (it's cheap, realativly safe, easy to get a hold of, and tastes great!). I do coffee and energy drinks (I like full throttle). the energy drinks seem to help more and seem to be harder to od on. When I od on caffine it is like everything is go go go go go go go. my head gets fuzzy in the other direction but at least things are getting done (not always productive things, but things). I think dosing is the hardest part of caffeine. I have been doing 1/2 can of full throttle before noon. but not every day. just on days I need to do things rather then sit like an unproductive forgetful lump. on caffeine I still forget things. I just get up more.

when I was younger I would often fall asleep after having caffeine, even large amounts. it was like it didn't work on me.

I will agree about it being crude.

ryanchappell
09-02-09, 05:31 PM
Prior to diagnosis I was treating my ADD with Caffeine, and came up with the idea of taking time-release caffeine. That is when I knew I should see a doctor for ADD. After trying Vyvanse with limited success, I am wondering if a time-release caffeine pill might do as well?

There is far less money in researching this as apposed to the next amphetamine isomer.

There are probably uses for caffeine in ADD medication, to supplement it, or replace some of it, but will we ever know? It would look bad if you put caffeine in your new wonder drug. Decisions like this should be made to provide the most effective medication, not the most popular, or profitable.

Retromancer
09-02-09, 05:37 PM
Socialist! :D

Decisions like this should be made to provide the most effective medication, not the most popular, or profitable.

ryanchappell
09-03-09, 01:29 PM
Socialist! :D

That is. What I meant was effectiveness should pay.

And now for a Multi-Beallll-ion dollar idea!

Attach Lysine to Caffeine.
In this is not possible, use another amino acid, etc that makes the caffeine last longer than 30 minutes.
Call it Listrimethylxanthine.
Get the patent.


Caffeine has tolerance problems, maybe try this for other alkaloids, and stimulants as well.

This reminds me of the grad student that would always chew a cola nut for the alkaloids.

Luthien
09-03-09, 06:59 PM
It works like a very ineffective stimulant on me. I mean, it works just a bit in sorting out my thoughts but mostly makes me sleepy rather than anything else. I usually make something resembling Lucky-Luke-coffee:

- put a kettle of water on the fire
- when it boils, add 4 kilograms of coffee
- let simmer for 6 hours
- throw in a horse shoe
- if that sinks, add more coffee

And even that does not keep me awake. It's weird, especially when I hear some folks say that they can't drink one cup of regular (non-decaf) tea after 3 PM, because it keeps them awake (ie. NINE hours later!)

doiadhd
09-03-09, 08:17 PM
And even that does not keep me awake. It's weird, especially when I hear some folks say that they can't drink one cup of regular (non-decaf) tea after 3 PM, because it keeps them awake (ie. NINE hours later!)

Hello Luthien,

I have heard this quite often my self from regular folks,now you come to mention it...
Hope they were'nt trying to drop a hint to me.

It sorts me out in the morning....but I think if we guzzle it down all day,the effects wear off.
Same as smoking a nicotine stick...the longer the wait between hits,the better the high.

When laid bare like this,it is putting a lot of seemingly unrelated subjects into a new/different perspective for me.....even more along a direction,which is away from the norm. lol

Google

Luthien
09-04-09, 03:28 PM
Hello Luthien,
Hello Google
(- hmm sounds vaguely familiar, that name ... )

Hope they were'nt trying to drop a hint to me.
why would they? Or, at least, I can't think of a reason; to me, these statements always sounded a bit worried, but referring to themselves.

It sorts me out in the morning....but I think if we guzzle it down all day,the effects wear off.
I never experienced any wearing off, apart from "getting used to the effect" in the very beginning - with coffee, nicotine and add medication. After that, it remains stable.

But then again, I am not looking for a high but rather the opposite: slowing down inside.

When laid bare like this,it is putting a lot of seemingly unrelated subjects into a new/different perspective for me.....even more along a direction,which is away from the norml
I don't think I understand that?

Asylum
09-06-09, 10:48 AM
I get short term but worthwhile effects from coffee and cola. As wierd as it sounds a glass of cola is like medicine for me.

OuterSpaceBrain
09-06-09, 11:04 AM
I don't drink caffeinated drinks when I'm on my meds :)

BUT, funny you asked -- before I was officially diagnosed with ADD, I was the queen of caffeine. I drank 5-6 caffeinated drinks per day: energy drinks (Rock Star in the blue can was my favorite! 50% MORE caffeine:D), coffee, Mountain Dew, colas, and sometimes even caffeine pills. I felt like I could not function at all without it. Everyone knew I was addicted to caffeine and always made fun of me for it.

While caffeine would temporarily help me get through mundane tasks, it wasn't the cure-all. I needed more and more of it to achieve the same buzz and eventually, it would stop working. Then, I'd have to make sure I didn't have any for a few days in order for it to start working again. It doesn't work the way my ADD medication does, or I probably never would have showed up in the psychiatrist's office in distress as an adult. ;)

Basically, Kestri, caffeine affects you the same way it does me... you MAY have ADD. If it is ruining your life (like it was mine -- all an inner struggle, too, as everyone I knew laughed in my face when I told them I thought I might have ADD), see a doc about it. Seriously. Going on meds will change your life.

As for the thought of drinking one cup of TEA to stay AWAKE, uh, yeah, that won't work! Ah, normal folks! *Laughs*

NekoGirl
09-06-09, 04:10 PM
I'm sensitive to caffeine, but then again I'm sensitive to most drugs, the exception being alcohol. I typically do a 12 oz can of sugar-free redbull in the am followed by a 8 oz in the pm, but really it varies.

It seems to effect me the same way it effects the mass population- give me energy, chases the sleepies away, and if I drink too much I get jittery.

I find I need it less now that I'm taking Welbutrin again as I'm not fatigued for no apparent reason, but as I've been working a buttload I need it for normal fatigue.

reality911
09-06-09, 07:57 PM
When I'm on my meds (adderall) it actually makes me sleepy after an hour, and restless. When I am off my meds, it makes me restless and can't sit still, but no help on focus whatsoever. The amount it takes to keep me awake when I am not on my meds could probably fill a swimming pool.