View Full Version : Misdiagnosed ADHD


Carmelhonay02
02-10-10, 11:19 AM
Do you feel that your child(ren) have been misdiagnsed or have your children been misdiagnosed? What was this experience like? What did you do to have the diagnosis corrected?

ginniebean
02-10-10, 11:27 AM
I felt that my child was misdiagnosed, and it made me angry. My experience with the school system and with the psychologists involved was basically one of me being hostile and one of them thinking I was a rotten parent.

Turns out, I was in denial, and I was ignorant. It bothers me to this day that I wasn't given enough information to make any decision, it was take our word for it and medicate. My son is a combined type and unfortunately got little help due to my denial. Wish I could go back and change it all.

Dizfriz
02-10-10, 03:23 PM
I felt that my child was misdiagnosed, and it made me angry. My experience with the school system and with the psychologists involved was basically one of me being hostile and one of them thinking I was a rotten parent.

Turns out, I was in denial, and I was ignorant. It bothers me to this day that I wasn't given enough information to make any decision, it was take our word for it and medicate. My son is a combined type and unfortunately got little help due to my denial. Wish I could go back and change it all.

This is one of my pet peeves, someone who will simply hand out a diagnosis, a recommendation or prescription for medication, and no explanation, training, or attempt to help the parent understand.

Although this does not seem to be considered to be unethical according to current standards, it is my opinion that it should be and there is really no excuse for it.

The idea is to help the parent get the best treatment for the child. For that the parents needs at the least, some pointers of where to look for information . If the clinician does not participate in this then they are providing disservice to the patient and could cause harm.

This has been a somewhat controversial opinion but it is what I firmly believe.

Even worse, however, is to insist that the parent give medication to the child. This is clearly unethical. Informed consent is an integral part of the code of ethics involved and only in rare cases can it be bypassed. I won't let myself go any more into this aspect. I tend to rant.

Ginniebean, do not let yourself feel guilt. Look at this post I wrote to Kimbo.

http://www.addforums.com/forums (http://www.addforums.com/forums/showpost.php?p=808207&postcount=6)/showpost.php?p=808207&postcount=6 (http://www.addforums.com/forums/showpost.php?p=808207&postcount=6)

I believe this to be a good way of looking at the issue and perhaps may be of some use, if not, ignore it.

I use it every day, it helps keep me centered.

Your contributions to others on the forum is a perfect example of someone taking their experiences and learning, then using the hard won knowledge to help others.

Taking responsibility at its best.

Dizfriz

Calochilus
02-11-10, 02:15 AM
It took me 40 years to get an ADHD diagnosis (correct as far as it goes in my view) In that time I consulted university research psychologists, the top psychiatrists in the country, General Practitioners (and probably witchdoctors) Even when I became aware that ADHD was THE problem, it took a further 5 different specialists to eventually get to the point of trialling stimulant medications. Insult to injury, coffee headed the efficacy list so I'm back on my own, trialling off-label meds to ease my problems. Needless to say, knowing ADHD is the problem, and understanding some basic pharmacology, I've been able to cobble together a bunch of prescription meds and OTC things that make it possible for me and the rest of society to more or less coexist peacefully. If I've had one correct diagnosis, I've had at least 20 incorrect ones and more importantly, at least 30 totally inappropriate medications prescribed (all of which did nothing positive for me. The only thing I've learned is that a doctor who really listens is worth more than his/her weight in gold (or any other precious substance used as a standard in your community).

Ames33
02-11-10, 11:13 AM
I think that my child was diagnosed correctly with ADHD and PICA , however I think there may some other underlying issue with my daughter. It has been difficult to get people to see it as the ADHD is unmedicated as of right now. We have been working with the doctor to find the right meds for Jolie who is 5yrs old ,that way when we do get that under some sort of control then maybe whatever else is hiding there will come to the surface.
There is no cure for or medication for PIca We just have tto watch her like a hawk and have child locks on the cupboards so she doesn't ingest something dangerous. Any one else have a child with both ADHD and PICA ?