View Full Version : Kids on Vyvanse...scary side effects?


Retatet
03-08-10, 11:23 PM
Does anybody know of children using Vyvanse?

I've read through a bunch of posts in this forum and haven't found anything related to Children on Vyvanse. I'd be interested to know if others experienced the same crazy side effects we saw in our son? When I say crazy, I mean extreamly scary :eek:... Without going into detail, he was 8 yrs old at the time and went into uncontrollable screaming / hallucinations in the middle of the night and I had to restrain him for an extended period of time...freaked us out.

We haven't tried it again with him and that was over a year ago. Luckily we've been able to almost entirely eliminate his ADHD symptoms using Dr. Miriam Bender's Program. Our 4 year old has ADHD and we know Dr. Bender's program will work for him, but kids under 5 years old have a hard time doing the exercises correctly. Until then...

Clonidine has worked well, but it can make him very tired. I'm scared to ask his Dr. if we should try Vyvanse.

Anybody?

CalmTheChaos
03-09-10, 01:31 PM
Sorry to hear about your scary episode. I can't imagine going through that.

What was the dosage? How long had it been since the dosage was taken when the episode happened? Was there a particular reason he was on Vyvanse in the middle of the night?

Betelgeuse
03-09-10, 03:06 PM
Was he on any other meds or just Vyvanse?

Also, Tisha has a kid on Vyvanse. She is the last person to post on my thread a couple below this one.

JenSMP
03-10-10, 05:19 PM
My son is on Vyvanse, and the only side effects we saw were when he was on 20 mg. He now takes half a dose (10 mg) which was working fine until the past few days, but that's another story.

Anyway, the s/e we saw were weepiness (very emotional), not his same personality, very subdued and a little withdrawn. He also had periods of feeling sleepy.

On the 10 mg, no s/e at all. That worked well for a couple of weeks, but now it looks like it's not enough. Not sure what to think, but it is frustrating dealing with the dosage changes and sometimes complete med changes. We're still on our first one, just titrating the dose a lot.

I have heard of other children having hallucinations on Vyvanse. Of course I've heard of it with other meds too. It's all very scary. I'd freak if we had seen that. I'd probably be scared to give it to him ever again, and I probably wouldn't give it to my other kids. There appears to be some biochemical component to ADHD, so what affects one of your children adversely might affect your other children the same way. Maybe try a Ritalin based drug like Focalin. I'm certainly no expert, so definitely ask your doc. I'm sure your doctor can give you more information.

Vickie
03-11-10, 05:33 PM
I am on vyvanse, and my 14 yo started it a week ago. She was on concerta and did well, and the only side effect is a mild nagging appetite issue. Now that she is in high school, she needs a bit longer acting med (but not quite ready to try to remember a booster dose) so this is an opportunity to try a different class of meds. We will need to see as we titrate her med dose up.

Justin09
03-12-10, 12:11 AM
Sounds exactly like night terrors, which is somewhat common for a child your son's age. Vyvanse must have to some degree disturbed his sleep cycle and therefore increased the likelihood of night terrors. I experienced horrible night terrors when I was around 8-9 years old, which freaked my parents out, and I wasn't on any type of medication at the time (didn't start taking anything until now at 18, Vyvanse).

I'm guessing he experienced only that one night terror episode, so it was caused primarily by the medication, and not a coincidence, though it could have been. Well this could be a positive considering it got him off of meds at a young age, and exposed him to a perhaps more effective treatment option. But this side effect will most likely not return if he were ever to go on amphetamines again at an older age, considering night terrors are most common in 2-6 year olds, though I experienced them later at 8-9 years old.

Tarata
10-29-10, 11:16 PM
My 6 year old son was recently switched from adderall to vyvanse. He was started on 20 mg and we have had problems ever since! First headaches and now hallucinations! We just spent a couple hours in the emergency room where they did chest x-ray and blood work because of his 103 temp. They have decided that all of this is due to a viral infection. They said not to stop giving him the 20 mg everyday. However I am worried that all of his problems are in fact due to his dose of vyvanse being too high. He is 6 years old but only weighs 42 pounds!

Trooper Keith
10-29-10, 11:33 PM
Vyvanse is used regularly with children in the pharmacy where I work. To the best of my knowledge it is effective and well tolerated.

penguin
10-30-10, 12:07 AM
Hi,
If you suspect dose is too high, dump capsule in a glass of water. Stir for 1 minute, throw half the glass away, and give the other half to your child. After a few days, if things get better, continue on and let doc know. If no improvement, let doc know right away that there are problems.
Good luck...Ken

JenSMP
10-30-10, 08:32 AM
My son didn't do well on Vyvanse because it made him very sad and emotional. He cried a lot, and not in a meltdown or angry sort of way. He would become very sad, but he wouldn't tell you why. If he ever did have a reason, it was some crazy, out-of-nowhere thing he had begun worrying about. It was definitely from the medication. This stopped immediately after we stopped giving him the medication.

As always, however, these meds effect each person differently. What works for one will not always work for another, and vice versa. You'll know in a short amount of time if it's going to work or not. If hallucinations are from a fever, ibuprofen or acetaminophen should relieve the fever (and the hallucinations). That said, I understand why you'd be reluctant to chance THAT happening again.

Good luck, and while this probably wasn't much help, know you are not alone. There are many of us out there going through the exact same thing you are, and I'm sorry you are having to deal with the medication roller-coaster. Keep plugging away, and eventually you'll find something that works well.

By the way, if problems started immediately with Vyvanse, why not just try something else? It's a shot in the dark with all of them, honestly. The only way to know is to try. Scary, but at least these meds are out of your child's system quickly.

Also, why did you switch from Adderall to Vyvanse?

Lunacie
10-30-10, 09:40 AM
Hi,
If you suspect dose is too high, dump capsule in a glass of water. Stir for 1 minute, throw half the glass away, and give the other half to your child. After a few days, if things get better, continue on and let doc know. If no improvement, let doc know right away that there are problems.
Good luck...Ken

I've read that one should not open the capsule with Vyvanse (and some other meds).

My granddaughter was on Vyvanse over the summer, she's 12 and already taller than her mother and weighs just as much. There were no night terrors, she outgrew those when she was maybe 5 or 6. But she had horrible headaches, she was more irritable, wasn't eating much at all, which has rebounded since switching meds and now she can't stop eating. Maybe it's a growth spurt?

penguin
10-31-10, 10:41 PM
Lunacie:
You are thinking of Strattera. The prescribing instructions from the manufacturer says ok. Some kids cannot swallow pills, and this allows them to take it. It also allows easy split dosing.
Good luck...

Lunacie
11-01-10, 10:16 AM
Different doctors say different things. I recently read a book written by a doctor who said that Vyvanse capsules should be taken intact.

Even the manufacturers give different answers. I looked online for information on opening and sprinkling Strattera capsules (we don't need to do this with my older granddaughter fortunately) and some say they've called the manufacturer and were told it's okay to do with the smaller doses - and possibly if one has titrated up to higher doses by sprinkling. Others have been told it's not okay, mostly because no studies have been done on that method of taking the medication.

Tarata
11-01-10, 12:59 PM
Hi, our doctor switched my son to vyvanse because the 15mg of adderall was not helping him enough. However since he was losing too much weight they didn't want to move him up to 20mg so they just switched the medicine completely. I hope it works out. He was put on adderall over a year ago and the side effects weren't bad at all. I really hate how much he has to go through. We go back to the doctor again today so hopefully we will try something else.

Luvmybully
11-03-10, 12:28 PM
My daughter switched to vyvanse in 8th grade, she had taken adderall from 2nd grade through 8th. She had no side effects on it, BUT she did have those scary emotional disturbances on the first few meds we tried her on, back when she was 8. Man it was bad! We almost gave up on meds entirely.

Canuck223
11-29-10, 12:06 AM
On day two or three, my son freaked out at school. (8yrs old on 30mg)
We rushed him back to the pediatric specialist, who said it was probably unrelated, and upped his dose to 50.

Aside from decreased appetite and Monday evening insomnia, he's thriving.

VSUblazer58
11-29-10, 01:48 AM
Hey y'all I'm new on this but I have alot of knowledge about any kind and every kind of medication because I have been prescribed since I was first diagnosed in 1st grade. I am currently on vyvanse and I LOVE IT! It is the best medication I have taken so far. BUT I had a scare tonight that have been trying to research that I dont quite understand. I was sittin in my cubicle in our library studying and all the sudden I started sweating profusely and is was kind of a cold sweat. my shirt was soaked once is was all over. I felt my heart start to beat faster and I was really shaky Typically I shake when I take it, but I dip and that usually fixes the shaking and calms me down. It was just kind of freaky and its never happened to me before. anyone know anything of this random sweating and shaking. get back to me please and thank you

Mase02
10-09-12, 03:19 AM
I sympathize with all of you. My son just turned 10 a couple months ago and has been having NT's for a couple of years. Up till tonight I would have considered them sporadic and mild. But after having them for at least 7 days straight this past week, tonight's being the worst, I'm getting very concerned.

I'll try to make this as short as possible!
About an hour after putting him to bed, I heard strange noises coming from his room and listening more closely we heard faint crying. So, we headed in to check on him. We found him clinging to the window sill digging at the sill and hitting the glass (trying to get through it?)! The fall out the window doesn't scare me (the window's 3 ft from the ground with a shrub in front of it) but the old plate glass does. So I immediately grabbed him and pulled him down to me. He had actually managed to unlock the window too and as usual tried to push me away and get away from me, crying and calling for mommy (me-although I was right there with him). It took several minutes to calm him down. He then looked directly at me (instead of looking "though" me during the NT) gave me a quizzical look, laid back down on his own, and fell back to sleep.
Afterwards, I got on line and found this forum and after reading through some posts I have been "stirring him" about every 45 minutes since to keep him out of the deepest part of his sleep. So far (about 3 hours later), he's been peaceful and hasn't "woken" back up on his own. As with his normal NT's, I doubt he'll remember anything about the window incident in the morning.

We used to think that maybe his older brother or cousin (at his dads) was scaring him with stories, movies, or something and asked his dad to keep an eye on him/them to make sure what was (or wasn't) going on. And to my suprise he was also having them nightly there as well! Doing the exact things as here. I would like to note that they do not do a lot of dairy products there at his dad's (He does HERE tho). So dairy is out, in my opinion as a possible cause.

Anyways, I brought the NT's up to his pediatrician several months back but she didn't seemed concerned. Then again, he wasn't endangering himself before this. Now, I truly believe that the Vyvanse (or the miligram amount)..is what is causing the NT's. At least with my son it seems that way.

My reasoning (other than the dairy): He was off the Vyvanse over the summer and had ZERO NT's. Back to school means back on the meds so we started him at 20 mg's at the start of school (on for over a month & had ZERO NT'S). He then went to his original 40 mg dosage about 5 weeks ago (and started having mild NT's again). After numerous complaints from his teachers about his "lack of concentration, his inability to focus AND/OR sit still", "inability to do his work", etc, etc, yada yada yada... his pediatrician upped his dosage again to the current 50 mg's (started abt two weeks ago) AND since then he's had NT'S every day this week and the SEVERE "window" NT tonight.

For reference, his usual NT's go like this; gets out of bed and walks around the house calling for "mommy", repeating sentences (that have no meaning to the here and now, that I can figure out) like, "she didn't have it mom!", "I'll pick it up", or "NO, I'll do it"; Not really knowing where he wants to go in the house/walking aimlessly (sometimes almost into walls, etc). Usually after some or all of these, he calms down, recognises me and lays back down. Sometimes he'll walk to the bathroom and go No.1, other times he just lays back down and goes back to sleep. Unfortunately, having them (usually) 6-7 times a night means that at school, along with the attention problems, etc., he's also worn the heck out from being up and down so much during the night!
Well, the doc suggested we give the 50 mg's a try for at least a month but with "window incident" tonight, I'm taking him off completely and keeping him home (they won't allow him there anyways if he isn't on his medication) and calling the doc in the am. There has to be a solution to the ADHD for school without these (now) dangerous side effects. IMO, the risks definitely outweigh the benefits in his case.

Other side effects we've noticed while he's been on Vyvanse.
Night sweats -so much so that he's been completely drenched, hair, pillow, everything.. more often than not; Moodiness, upset stomach, severe lack of appetite (for approx. 7 hours each day) & easily upset/emotional & cries easily.