View Full Version : Frustrated!


Sirrah
03-10-10, 10:14 AM
I made this post on the ADD UK forums, but I thought I'd copy/paste it here in hopes of getting more input.

Hi!

I'm 28, male, and from Essex.

I have the strong belief that I have ADD, so much so that only a specialist would be able to convince me otherwise. I've had all the "well, everyones like that" and " and "you're just trying to convince yourself with crap you read on the internet" from people, and I'm fully aware of that pitfall but I'm highly objective and spend countless hours studying the condition. I know me.

I won't go into the specifics, as I could easily write pages of stuff about it, and I want to remain on the issue at hand. (I am more than willing to answer any questions people might have, however.)

Now, I saw my GP at the start of this year. He was somewhat understanding, but couldn't offer me a referral to see a specialist due to funding (No NHS specialists in my area). Instead, he referred me to a psychiatrist who I saw today.

I took along the NICE guidelines, a list of information from the NHS choices website, my school reports and some personal writings about my condition. He asked many questions which I answered honestly and enthusiastically, but he claimed that my behavior was "not indicative of ADHD" - he didn't elaborate on that a whole lot, except saying that "People with ADHD don't get fixated on specific tasks, they can't concentrate on anything" - which we know is rubbish. Hyperfocus, hello?

So, things devolve into me trying to convince a professional of something they don't understand or believe in. Needless to say, he wasn't convinced and refused me a referral to a specialist.

He tried to fob me off with anti-depressants; feeling dejected I almost took them and walked out with my tail between my legs, like I do with so many things. But no, I refused them and told him (in a very diplomatic way) that I totally did not agree with his assessment, and wouldn't be satisfied with anything other than a referral to either a specialist or another psych who might give me one. Well, I got the latter. Which now means more waiting and hoping I get one that understands ADHD. If not, it means going private which I really, really cannot afford to do; but if it comes down to it I will go into a debt if it means getting diagnosed.

It feels like my hands are tied. Are they? what would you do in this situation? am I approaching this in the right way? I feel so frustrated and impatient, having already wasted so much of my life.

munsterlander
03-11-10, 10:53 AM
Sirrah I hear you as I'm experiencing similar levels of ignorance and resistance with getting assessed by people who don't have a clue about adult ADD (inattentive in my case). Unfortunately I don't have much in the way of evidence from school which complicates my diabnosis, but I've spent so much of my life searching for what was wrong with me and now I believe I've discovered it, so I'll keep on until I can find someone who is better able to form a professional opinion that I can trust. Yes its crazymaking having to deal with these people when your own level of research in to thte subject seems to be far deeper than theirs. Good luck Sirrah, I hope you have better luck with your next psychiatrist.

InTheMoment
03-14-10, 05:37 PM
Hi,

Your GP and Psychiatrist are acting outside NICE guidelines. These state that only an ADHD specialist is really entitled to diagnose you - and you are entitled to see one. I would return to my GP and politely demand to see a proper ADHD specialist, just keep repeating, "yes but I wish to see a specialist".

There are other beneficial approaches to managing your ADHD besides medications and though they can help significantly, they will not necessarily help change you existing behaviours or teach you skills that you have not learned. Diet, sleep, supplements, exercise, learning about your ADHD and ADHD coaching can all help too.

Best wishes
InTheMoment

Sirrah
03-16-10, 08:07 AM
Your GP and Psychiatrist are acting outside NICE guidelines. These state that only an ADHD specialist is really entitled to diagnose you - and you are entitled to see one. I would return to my GP and politely demand to see a proper ADHD specialist, just keep repeating, "yes but I wish to see a specialist".

This is what reading over at aadd.org.uk led me to believe, too.

Maybe I should just keep hassling my GP's; I was all set to do this last night while laying in bed, but I woke up this morning and I'm overanalyzing everything again :rolleyes: Damn you cognitive anxiety.

I did send an email off to my local PALS for some advice on where I really stand; hopefully I will hear back from them soon.

Sirrah
03-29-10, 01:16 PM
Saw my GP today, and much to my excitement it turns out that after I left the psychiatrist, he decided to give me the specialist referral after consulting with a colleague! Result!

weareacc
03-29-10, 01:25 PM
So, he (probably) looked up your arguing point and realised he was wrong. There's a positive in there but I wonder how many people have been denied treatment by such a close call?

At least you are on your way- good luck!!

(FWIW- I had to resort to going private. 375 to get the ball rolling was definitely worth it)

InTheMoment
03-29-10, 01:40 PM
Great news Sirrah,

Though do now be prepared for a wait. If you end up at the Maudsley in London then once you and your parent(!) have completed all the assessment forms and they agree to see you then you will still have a 16 week wait to meet a specialist. :mad: You may get referred to Cambridge though which may be quicker?

Keep going though you will get there in the end!

InTheMoment

Sirrah
03-29-10, 02:20 PM
So, he (probably) looked up your arguing point and realised he was wrong. There's a positive in there but I wonder how many people have been denied treatment by such a close call?

I don't know; maybe he just spoke to other general psych he was going to refer me to and said "this guy thinks he has ADHD and isn't going to listen to anyone tell him otherwise" so the guy said screw it, we'll send him to a specialist. :p

In any case, I consider myself lucky to have got it.

@InTheMoment. It's the Maudlsey (the GP showed me the letter.), I know it can take several months but I think can handle that wait now that things are in motion. It was really the not knowing that was driving me crazy.

Of course, I suppose I still might have funding to contend with, having to appeal and all that - need to try my very best not to stress about that right now and cross that bridge if I come to it.

toufas
04-20-10, 04:31 PM
i am on the same boat as your first message Sirrah.
Sorry for hijacking your thread first of all;
I even tried to go through the "oh its depression" route, tried a combo of drugs that was prescribed, even tried group therapy and i never felt anything from these things made any improvements to my case.
I saw the gp again yesterday and after talking for 1 minute he said "oh i dont think you have a.d.d." and didnt even knew who was a specialist in london and that i should bring the info in next time...(i live in london btw)
The local psychotherapy dept. (kings cross) is waiting for me to contact them to give them input on what i think its a good thing for me to follow. Where can i get the NICE guidelines for a.d.d. and what else can i get with me to support my case?

krb388
04-20-10, 04:46 PM
I am so glad you got your referral. Your first line
I've had all the "well, everyones like that" and " and "you're just trying to convince yourself with crap you read on the internet" from people, and I'm fully aware of that pitfall but I'm highly objective and spend countless hours studying the condition. I know me.I didn't know people were thinking this way thats mean....O wait never mind I have heard someone I know say everyones like that before. People I think that say well everyone is like that are just thinking on the outside of the box. They don't understand the full meaning of "I looked everywhere and I can't find me keys" to someone with ADHD.

To someone with ADHD expressing something like I forgot, or I lost it Is So much more complex that just words.....

Did that make sense??

krb388
04-20-10, 04:50 PM
i am on the same boat as your first message Sirrah.
Sorry for hijacking your thread first of all;
I even tried to go through the "oh its depression" route, tried a combo of drugs that was prescribed, even tried group therapy and i never felt anything from these things made any improvements to my case.
I saw the gp again yesterday and after talking for 1 minute he said "oh i dont think you have a.d.d." and didnt even knew who was a specialist in london and that i should bring the info in next time...(i live in london btw)
The local psychotherapy dept. (kings cross) is waiting for me to contact them to give them input on what i think its a good thing for me to follow. Where can i get the NICE guidelines for a.d.d. and what else can i get with me to support my case?

That is horrible.. I can't believe its so hard to get treated over there. Is it like that for most people not living in the states?

Also I think yall are doing really well writing out what your thinking with out medication...Thats awesome.

protobaby
04-20-10, 05:07 PM
HI, thats exactly how i was a couple of months ago, all my life i knew there was something off, but it was only when i found out about my son having adhd that i read up on it. I realise there and then that i had add and there wasnt a doubt in my mind. thankfully my doctor referred me to a specialist, it cost me 350 euro but it was worth it just to know for certain. Im now trying strattera for it, not to sure about the drugs yet, my temper is worse and my moods are up and down so ill prob try something else, it does help me read though, so when im locked up for killing my misses ill have something to do lol.

Sirrah
04-20-10, 05:43 PM
it does help me read though, so when im locked up for killing my misses ill have something to do lol.

:D

Made me lol

Where can i get the NICE guidelines for a.d.d. and what else can i get with me to support my case?

NICE guidelines can be found here (http://www.nice.org.uk/nicemedia/pdf/CG72QRG.pdf)

It's also worth printing out at least the symptoms list from the NHS page here (http://www.nhs.uk/Conditions/Attention-deficit-hyperactivity-disorder/Pages/Symptoms.aspx). (Circle the relevant ones and write down how they impair you at work/home/relationships etc. If you're anything like me you'll want to write this stuff down and recite it, rather than try to remember on the day.)

Maybe you'd also like to note the clinic you wish to be referred to. South London and Maudsley (http://www.slam.nhs.uk/services/servicedetail.aspx?dir=12&id=1045)

Sirrah
02-08-11, 06:20 AM
Turned out to be an 11 month wait. (13 months from first GP visit.) Got an appointment on the 14th of this month.

Pretty nervous now :eek: