Further to my reply to a thread on this forum. (http://www.addforums.com/forums/showthread.php?t=7645)

Is there anyone that could give us some useful help and advice on how we can get help for our son who clearly has ADHD, but this is not believed by the medical profession in this country.

We have proof that his condition is genetic and has slowly worsened over the past 6-12 months, we have tried cutting out food additives and tried the discipline routines all to no avail.

What worries us is that unless we get this problem sorted and under control, what hope have we got when he starts school as his temper, etc. is way out of sync for a child his age.

If anyone can help please reply.

Regards Michele

Michele,

First of all big hugs, we realized our own child was different at about 3 years old but did not get an actual diagnose's until kindergarten.

Have you tried speaking with a counselor? ADD is a mental issue they are more able to diagnose and help treat then a doctor could.

Good luck
Cherity

Hi
Thankyou for replying to us.We have had lots of different opinions from drs and still no further into the diagnosis than we were a year ago.

As for counseling or to be refered to any sort of specialist here in the uk, well you could be waiting for up to a year.

At the end of the day our son has to be starting at pre-school by the end of september, but how can we send him when he is so apparently out of control by onlookers.

My point was like this week when we went out, he took it upon himself to start screaming and having a real stress attack for no reason at all, so many people look on as if we are bad parents and it hurts us alot, as he can be such a loving boy.

One of the worse times is at bed time for him, once in a while its ok but mostly its a battle lasting several hours into the small hours, only for him to wake and start again a few hours later no matter what regime we try to get him into.

Regards Michele

One thing that might help is reducing any sugar from his diet.
Allow Fruit pieces, macaroni, and such but not juice and sweeten cereals.
A lower carb diet works great but you should go to low carb status, too young.
Also start color structuring his room, you have to start early with structure to
help him.
I have two ADHD teens so I know where you are coming from. :)

hi michele

It is an up hill strugle here trying to get people to listen trying to get in and see people but you have got to start pushing

make yourself a list of people you have seen already ie health visitor, drs etc
and get them to refer you to specialists, dont take no for an answer, they will tell you that it will take a long time to get an appointment (it does i know, been there done that.)

but once they have got your name your foot is in the door this is when you can really start to push, get on that phone ask for an appointment ask for a cancellation and just keep phoning until you get one i know it sounds a bit over the top but you must keep your name in there minds, hell with a bit of luck they might give you one just to get you to stop phoning :D

i dont know where you are in the uk but if you want to send me a personal message i will see if i can point you in the right direction

dont know if this is any help or not, but it wasnt until my son started school that people sat up and listened. Im from the uk too and i found if you point out to the school that they get extra funding IF your son does have adhd.add then they will move quickly. I know its not the way it should work , but i found it wasnt untill funding was possible that the school cared :(

now thats something that i didn't know dreamer

what extra funding do they get????????

who from??????????

thats one i want to look into

I dont know a great deal about it to be honest, all i know is when my son was finally diagnosied his head teacher was present and all she cared about was asking the doctor for confirmation of matties adhd so she could get the funding for him. As far as i could tell for every child with a learning or behavioual difficulty, the school recieves a little extra funding in order to ensure the child gets the relevant help(tho most schools will use the extra funding for whatever they see fit.). Also my son was a few months off going to primary school, but if the head applied quickly enough she would have had funding for mattie even after he had gone to primary due to the length of time each funding runs for....does that make sense??

michele

i just thought check out the uk page on this site

livingwithadd has put some great links on there for us

plus support groups

It would be great if you would all share your stories and what you find (re: the U.K.) in the United Kingdom section of the Forums.

Thanks!

Have you considered taking your son in for a sleep study...my nephew had a lot of the same issue's that your describing and they found out that his throat is too small for proper breathing while laying down...he sleeps thru the night with his oxygen mask. It's well worth the money if it gets you a full nights rest.