View Full Version : A form of Government Response;


doiadhd
08-18-10, 07:41 PM
This is an e-mail that i recieved for signing the adhd petition.

That i joined on here,posted by another member,not sure if anyone has seen this yet.

http://www.hmg.gov.uk/media/60618/hmg-logo-new.jpg (http://www.addforums.com/)
This petition is now closed, as its deadline has passed.
We the undersigned petition the Prime Minister to ensure that NHS service provisions and funding arrangements for services for adults with Attention Deficit Hyperactivity Disorder (ADHD) are reviewed and revised urgently.
Petition update, 12 August 2010

You signed a petition asking the Prime Minister to ensure that NHS service provisions and funding arrangements for services for adults with Attention Deficit Hyperactivity Disorder (ADHD) are reviewed and revised urgently.


Petition to:

Submitted by Susan Dunn Morua of AADD-UK – Deadline to sign up by: 06 December 2009 – Signatures: 1,560

ensure that NHS service provisions and funding arrangements for services for adults with Attention Deficit Hyperactivity Disorder (ADHD) are reviewed and revised urgently.

This petition is now closed, as its deadline has passed.
We the undersigned petition the Prime Minister to ensure that NHS service provisions and funding arrangements for services for adults with Attention Deficit Hyperactivity Disorder (ADHD) are reviewed and revised urgently.
Submitted by Susan Dunn Morua of AADD-UK – Deadline to sign up by: 06 December 2009 – Signatures: 1,560

More details from petition creator

ADHD is common with 3 to 4% of all adults affected. Undiagnosed ADHD leads to academic failure, substance abuse, criminal activity, disrupted family/social relationships, unemployment/work problems, & poor mental health. Adults are diagnosed with anxiety/depression without recognition of ADHD so treatments are inadequate & deplete mental health budgets. Millions of pounds a year are lost from work- under-achievement & millions more are spent on associated problems like imprisonment, substance abuse, & unemployment.
NICE recommends provision of diagnoses, psychological support, work & social help but implementation is either slow or absent. The few current adult ADHD services provide less than recommended minimum due to inadequate funds. It’s certain too that demand will outstrip current capacity. Thus, we ask the Prime Minister to review current funding arrangements for adult ADHD, & to provide dedicated funding to ensure care complies with NICE & national priorities.



Government response

Adult ADHD is still an area where knowledge is limited. There is increasing interest among clinicians treating adult patients with this disorder and attention is being given to sharing knowledge via conferences and publications. However, the Department of Health recognises concerns that childhood ADHD may continue into adulthood in some cases. This is why it set up an ADHD research community within the Offender Health Research Network. The Improving Health, Supporting Justice National Delivery plan, which will be published in 2010, will also include consideration of ADHD issues.
No Departmental estimate has been made of the incidence of adult ADHD, and ADHD in adults has only recently been recognised. Very few treatment trials have been conducted in adults, but some positive results have been reported with stimulants (such as Ritalin) and with antidepressants. There have been a number of follow-up studies of those given the diagnosis as children, with some studies indicating that a small proportion may continue with ADHD problems into adulthood and other articles claiming that 30-70 per cent of children with ADHD continue to show some symptoms as adults. Some clinicians have suggested that a number of adults with ADHD were never actually diagnosed in childhood.
NICE evaluated the efficacy and cost-effectiveness of ADHD treatments to diagnose and manage ADHD in children, young people and adults when it published guidelines in 2008. Primary Care Trusts (PCTs) are expected to follow this guidance but the level of local service provision, including community based treatment, is a matter for individual PCTs to decide.
The guideline was based on the best evidence available to the multidisciplinary team which devised it. NICE issued the guidance with the intention that it should be useful to clinicians and service commissioners in providing and planning high quality care for people with ADHD while also emphasising the importance of the experience of care for them and their carers.
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I should really read this....first

doiadhd
08-19-10, 05:54 AM
This is real.....

This is what they replied!That's it,nothing more.

Has this been posted before?

Ariosto
08-20-10, 07:58 AM
Thanks for posting the Government's response to the petition. Since the Gov't's reply was not only inadequate it also contained many inaccuracies and stereotyping, AADD-UK and professional medical groups are currently drafting letters of complaint to Paul Burstow, the Minister of State for Care Services at the Department of Health, because he was responsible for this letter.

If anyone else would also like to write to him, the address is as follows:

Paul Burstow, MP
Department of Health
Richmond House
79 Whitehall
London SW1A 2NS

Again, thank you doiadhd!!

doiadhd
08-20-10, 09:33 AM
Thanks for posting the Government's response to the petition. Since the Gov't's reply was not only inadequate it also contained many inaccuracies and stereotyping, AADD-UK and professional medical groups are currently drafting letters of complaint to Paul Burstow, the Minister of State for Care Services at the Department of Health, because he was responsible for this letter.

If anyone else would also like to write to him, the address is as follows:

Paul Burstow, MP
Department of Health
Richmond House
79 Whitehall
London SW1A 2NS

Again, thank you doiadhd!!

I'll be do-ing that!!

I did write to Gordon Brown/10 Downing Street, after signing the petition,a short while after going manic.....i will go search for it.

I probably won't get round to the letter but.....

Paul Burstow......I know where you work!!
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Thank you,Ariosto

Ariosto
10-07-10, 02:32 PM
AADD-UK wrote the letter and it has not been sent. Here it is:

Paul Burstow MP
Minister of State for Care Services (Health)
Department of Health
Richmond House
79 Whitehall, London SW1A 2NS 6 October 2010

Dear Mr Burstow,

Response to petition for dedicated NHS funding for services for adults with ADHD

I am writing to you to express our very grave concerns with the discriminatory and stigmatising tone first in your letter to Mr John Penrose, MP (PO00000507382) in response to his query regarding the whereabouts of the above petition, and secondly in the response to the same petition by Her Majesty’s Government which was sent to 1,853 signatories; the latter matches your response to Mr Penrose word-for-word.

Please note that we will not be addressing the many medical inaccuracies contained in these responses, because it is our understanding that this will be addressed in a separate letter by medical professionals.

You say that “we recognise concerns that childhood ADHD may continue into adulthood in some cases. This is why we set up an ADHD research community within the Offender Health Research Network. . .” and so on. Your apparent assumption that all adults with ADHD are offenders has not only increased the considerable distress already being felt by people who are experiencing difficulties accessing NHS services (the reason for the petition), it also increases feelings of exclusion and stigmatisation thus making it less likely that people with ADHD will assert their rights to protection from direct and indirect discrimination.

We, therefore, respectfully suggest that in recompense you offer an apology on behalf of HM Government, as well as in your capacity as lead for Equality & Human Rights, to all signatories for your, hopefully inadvertent, contribution to the negative stereotyping of people with ADHD, and also publicly state that you support the provisions of services for adults with ADHD in accordance with NICE Guidelines CG72.

I look forward to hearing from you.

Yours sincerely,


Chairwoman AADD-UK

cc: The Rt Hon David Cameron, MP
The Rt Hon Nick Clegg, MP
The Rt Hon Andrew Lansley, CBE MP
Mr John Penrose, MP