View Full Version : Is there a set of Forums like this one for Chronic Pain?


OnlyMe
08-23-10, 07:27 PM
My husband suffers chronic pain in his joints; the docs aren't getting a handle on it; and I'd really like to talk to other people going through the same sorts of things.

I don't think he has fibro, as it isn't tenderness; but this seemed a good place to ask.

Thanks!

OnlyMe
08-25-10, 02:30 AM
None :( ?

Imnapl
08-25-10, 10:19 AM
How long have your husband's doctors been trying to come up with a diagnosis?

OnlyMe
08-25-10, 08:21 PM
About three years, first they said Lyme; but after a lot of treatment for that, I don't think so anymore.

Imnapl
08-25-10, 10:18 PM
It can be difficult to diagnose some forms of arthritis. From personal experience, most doctors don't know squat about the more than 100 types of arthritis.

OnlyMe
08-26-10, 04:10 AM
That's sort of the direction we're heading at the moment. He's got an appointment with a rheumatologist at the end of September. Specialists take so long to see. His GP did an ANA panel (which I need to learn more about), and his rheumatoid factor was a hair high, 22 when normal is 20. His SSB was 1.5 when 1 is normal. Everything else came back normal.

The thing is, I don't have a clue how significant these numbers are; or what else might cause similar pains. I'd really like to have a sense of what all the possibilities are rather than focussing on one thing at a time. That seems inefficient to me. So I was hoping there might be a community around it. Chronic pain is quite common after all.

Maurice
08-26-10, 07:15 AM
I have tried before to get some sort of chronic pain section in this ADD forum but they do not seem interested. I have been dealing with chronic pain for almost 33 years now after 10 surgeries for giant cell bone cancer on my right arm.

OnlyMe
08-27-10, 12:51 AM
My sympathies, chronic pain can be very debilitating, affecting life in myriad ways.

Layla771
08-30-10, 03:36 PM
OnlyMe, have you guys researched and considered nutrition and lifestyle changes yet?

My Dad cured his rheumatism with nutrition and more exercise, even though they couldn't really officially 'discover' it first.. He read a book by Dr Giraud Campbell on curing arthritis and the advice was helpful, he read some more books on nutrition (so now his nutrition is different than in that first book, it was very inspirational though!)

He reduced meat (he really ate A LOT before! not saying meat is bad, a balance is needed) and aimed to avoid artificial additives and went for more whole/natural food.. He's now healthier at 60 than he was 15 or 20 years ago..! (and only gets flareups after holidays or such when he eats junkie food, too many sweets etc and drinks more wine etc.) Some people say it might be gout, you could try researching nutrition with other sorts of diseases and rheumatism too..

He also worked in chemical industry and some of the dirty lines were abandoned and some regulations went stricter and 'cleaner', so this may have partly helped too..

Also check ctds.info for info on fybromialgia and nutrition too..

Maurice, sorry to hear about bone cancer.. It's admirable that that was 33 years ago though!!

OnlyMe
08-31-10, 01:49 AM
We try to pay close attention to what his body wants, we have found that a diet high in red meat helps him, and one low in carbs. We did do a gluten free diet, which I felt helped; but he didn't, and so we don't do that anymore. He doesn't drink much at all (maybe a beer or two a summer) and we don't do junk food--we can't afford to go out, so we do all our own cooking. He doesn't have much sweet tooth, and when he does, he mostly goes for berries as a sweet thing.

Imnapl
08-31-10, 02:40 AM
That's sort of the direction we're heading at the moment. He's got an appointment with a rheumatologist at the end of September. Specialists take so long to see. His GP did an ANA panel (which I need to learn more about), and his rheumatoid factor was a hair high, 22 when normal is 20. His SSB was 1.5 when 1 is normal. Everything else came back normal.

The thing is, I don't have a clue how significant these numbers are; or what else might cause similar pains. I'd really like to have a sense of what all the possibilities are rather than focussing on one thing at a time. That seems inefficient to me. So I was hoping there might be a community around it. Chronic pain is quite common after all.You have a full plate with your husband and your children.

OnlyMe
08-31-10, 12:11 PM
Yep, fortunately my extended family is wonderful on both sides.

Werl
09-29-10, 12:24 AM
Google it. :)

Layla771
10-05-10, 02:39 PM
We try to pay close attention to what his body wants, we have found that a diet high in red meat helps him, and one low in carbs. We did do a gluten free diet, which I felt helped; but he didn't, and so we don't do that anymore. He doesn't drink much at all (maybe a beer or two a summer) and we don't do junk food--we can't afford to go out, so we do all our own cooking. He doesn't have much sweet tooth, and when he does, he mostly goes for berries as a sweet thing.

Hm, I feel better with red meat (zinc and such), but it can cause me pain in joints/backache, if I eat too much meat or protein in general..
High-protein diet or citrus or even peaches can cause pain too..
So in what ways have you and he found red meat helpful?

It may also depend upon the meat and other food, what the source is etc.

Do you live in an industrially polluted city, near chemical industry or such?

Have you read Dr Giraud Campbell's book for arthritis yet?