View Full Version : What do you want to know?


fracturedstory
02-08-11, 05:48 AM
I've been meaning to write articles for this Autism website but I'm stuck on what to write about.
Any sort of topic will be great. And I might even write about it here.

I won't add links because I don't think I'm allowed but I do like to help people understand autism/AS a little bit better.

Any suggestions would be appreciated.

Mignon
02-09-11, 02:20 PM
I'd like to know what comes to mind for you, fracturedstory, on the subject of book and movie characters with autism and how they are written and portrayed. It's not a specific question since not everyone with autism is the same and we're talking about a lot of different writers and stories and actors here, but maybe you have something you'd like to say about it?

Thanks.

anonymouslyadd
02-09-11, 04:00 PM
How about why autistics tend to engage in repetitive behaviors such as moving back and forth while sitting down.

Continuing with the above statement, they tend to use the same words over and over again. Also, some will speak and there voice fluctuates up and down almost like they are singing. Why is this?

Bezuidenthustra
02-09-11, 04:02 PM
Actually, I'd like to know what the word "friend" meant to you when you were a kid. How did you define "friend" and how did you make friends?

fracturedstory
02-09-11, 09:58 PM
I'd like to know what comes to mind for you, fracturedstory, on the subject of book and movie characters with autism and how they are written and portrayed. It's not a specific question since not everyone with autism is the same and we're talking about a lot of different writers and stories and actors here, but maybe you have something you'd like to say about it?

Thanks.

For starters I actually like Rain Man. A lot of people with autism especially AS don't think he is an accurate depiction of autism. But every time I hear a quote or someone describes a scene from the movie I just relate to it so well.

I like to watch a lot of TV shows and movies to see how they portray autistic characters. I've not seen them all like Snowcake, which I want to see because that's one of the few films where someone has HFA.

One thing I don't like about autistic characters in books and movies is that they tend to use a lot of comedy to describe them. Like in the Black Balloon which was good but I think it showed too much of the negative side of autism. Anyway they seemed to turn a lot of the characters symptoms into jokes.

A lot of TV shows just rehash the same Rain Main like character which does get tiresome after awhile especially if they don't do it well. Two shows that have done it well are Without a Trace and The Closer but what was funny to me is that the low functioning character seemed more high functioning than the high functioning character. Actually in Without a Trace it was better because they didn't use jokes to describe autistic symptoms.

It does seem like they do their research but I can't help nitpicking where they didn't go far enough. I read House Rules and although I can tell a lot of research went into it the main character is too severe to have AS. For one he was diagnosed with autism and in real life your diagnoses doesn't turn into AS when you get a bit more mild. So I guess I can still be very literal even when I know I'm reading fiction.
House Rules was really hard to read at times because the brother of the autistic was horrible to him but the writer wants you to empathise with him and I just couldn't. He reminded me too much of my siblings that were cruel to me because of my difference. Then you get a whole lot of people saying nasty things about the autistic character and even his own mother thinking he could be a murderer. It was really hard to read and affected my moods even when I wasn't reading it. I began to look at people in a different way, like they were all judging me that way.

Another thing I want to mention is when autism is made fun of. I think my opinion is the same for ADHD. It was to be believable and not the same lame joke made over and over again. And can't be done in a hurtful way. I think I prefer the HFA/AS jokes if done in a clever and truthful way over jokes about severe autism because I think the more severe someone has a disorder the lower it is to make fun of them. There was a comedian called Russell Kane I think and he made some really horrible jokes about severe autistic kids and it was very ignorant and not funny but his HFA joke was kind of funny. He got funny the more believable (or detailed) his joke was. I really hate when jokes aren't based in truth. If you know what I mean? I used to correct people for the errors they made in jokes and I find the more believable a joke is the funnier it is.



How about why autistics tend to engage in repetitive behaviors such as moving back and forth while sitting down.

Continuing with the above statement, they tend to use the same words over and over again. Also, some will speak and there voice fluctuates up and down almost like they are singing. Why is this?

That's stimming. It can either be rocking or hand waving/flapping. It's usually done to cope with stress but the more severe you get the more it's done uncontrollably. Sometimes it has to do with understimulation or actually communicating with those body parts. I can't speak for every autistic but sometimes I feel physically numb and have to wave my hands around and it just feels really good.

Using the same words over again is called echolalia and again it's something that feels comforting. Autism has a lot to do with repeating the same things over and over and not liking change. I think the area in the brain that helps us adapt to change isn't exactly working effectively.

The voice thing is like unable to know what face expression you're making. Well that's another problem autistics have. They probably can't tell that their voice fluctuates or can't control how they sound. It could be a lack of motor control or even a language impairment. I'm just guessing here.


Actually, I'd like to know what the word "friend" meant to you when you were a kid. How did you define "friend" and how did you make friends?

I still have problems with knowing who to call a friend. I used to think friends were people who you knew.
I never went out of my way to make friends. I had one friend between the ages 0-9 and it was our mother's that were friends and they'd probably just sit us down next to each other until we eventually got along.
After that I did make a few other friends. Usually it was one friend at a time (over a couple of years) and I'd make friends with their friends.
I never went up to people and talked to them. I didn't think about that. People would come up to me. Even the friends I have today initiated the first greeting. Except for the band members. That's another thing I think of the band members that I know as friends. I don't really know if I am a fan or a friend. And of course when they call me a friend I take it literally.

I get a lot of pressure to go out and make friends. My mother doesn't understand that when I'm at home doing supposedly nothing I'm actually doing many things I enjoy like being on this forum, reading about physics and neurology, watching sci-fi, writing, drawing, painting or doing astronomy. Also, when I do socialise more that knowledge seems to to leave me and I have to start back at square one again. I'm only good at something if it has my full attention. Socialising is also very stressful and exhausting and I'd prefer to be stress free and doing what I enjoy and that actually gives me more energy. I also find I can't be as organised or healthy if I socialise. And I'm pretty bad at having a normal conversation to begin with. Introduce two or three more people it's impossible to follow a conversation or join in. I revert to an even more autistic than usual self.
But I still do it. When I go to concerts I go with a friend and meet up with her friends and other fans. I'm not sure if I'd call those other fans friends yet because every time I see them they seem to re-introduce themselves to me.
Going to those concerts is really stressful too but I still do it.
I think I went off on a tangent but I think I needed to get that stuff off my mind.
I suppose I'll end it by saying I've never felt particularly close to a friend. I did have one where I could talk about almost anything with but then they just turned into the same judgmental person or ignored what I said (if they couldn't deal with it - accept it even - like when I was having seizures) like most other people.

nova2012
02-10-11, 12:42 AM
fracturedstory, thank you very much for sharing. Your response was quite insightful and really did give me (and, presumably, others) a glimpse into what you live with--for better or for worse--each day.

Your point about friendship, in response to Bez's question, really hit home for me and made me introspect and realize I've had some similar difficulties (although perhaps for slightly different reasons). I've always had problems defining "friendship," and I think a lot of people take the concept for granted, but questioning it is not necessarily characteristic of autism, I don't think. I used to wonder, for example, if you could consider a school acquaintance whom you never hung out with outside of school a friend, or if they should remain an "acquaintance." Where does the line between one start and the other begin? I don't think it's objective or clear-cut, and I think a lot of people misuse, overuse, or take for granted the word "friend." Friendship is a very powerful thing, and when someone says they have 50 friends, I always roll my eyes. My concept of friendship may just run deeper and be more stringent than that of most, but you certainly raise an excellent point.

fracturedstory
02-10-11, 05:17 AM
I remember when two of my friends from school came over to visit me in the school holidays. I was shocked. I mean they were considered friends by me but I never have people coming to my house to hang. A few weeks later more people came. But I didn't want to stop what I was doing so they didn't stay long.

I've always felt awkward having people over at my house and hated it when they went through my stuff. With my friend I have now I'm ok. It could be that she has sort of ADHD issues. I think she's like real friend.

My sister usually has a lot of friends. Maybe not 50 but her party's usually seem to have a lot of people there. I sometimes wonder how she can balance her relationships with so many people.

When I was younger my mum used to make us go to church and my sister was friends with almost the entire youth there. I talked and hung around with kids more than five years younger. But as I got older I started to hang around with the youth (teenagers) but it was hard to tell if I was actually friends with them. I'd probably have thought that my sisters friends that knew me were my friends too. I used to follow my sister around at school and know her friends. This was back in the days when I was oblivious to my differences and looking back they were not always nice to me.

fracturedstory
02-14-11, 07:56 PM
Thanks for the suggestions guys. People really loved my latest article. I can't thank you enough for breaking my writer's block.

Can I share it here mods? Even just a link?

I'm working on another article already. Just have to fix it up a bit, take a photo and submit it.

Bezuidenthustra
02-14-11, 07:58 PM
Share! Share! Share! I've been looking forward to this!

fracturedstory
02-15-11, 01:11 AM
"I Don't Hate You" - Autism and Withdrawing

http://www.autismhwy.com/articledetails.php?id=73

anonymouslyadd
02-15-11, 01:19 AM
I'm very proud of you. Thanks for posting that. Good job!

Fortune
02-15-11, 02:56 AM
I like that post, and a lot of it makes sense to me.

I know that sometimes I want friends, and other times I really just don't care about having them. I've been trying to work out how to explain to some of my friends why I sometimes lose interest in keeping in touch but still like them. For some reason I never really put much thought into this before.

I like your description of eye contact.

fracturedstory
02-15-11, 07:57 AM
Thanks. I'm about to put another one up but it's so hard to find a photo to go with it. I can't submit it until I add a photo. It's about mimicry. Something we talk about a lot in ASD forums.

Abi
02-15-11, 08:17 AM
did i not write something here?

you are supposed to pm me when u delete a post

its the rules