View Full Version : Attention Deficit Disorder 101: What every beginner in ADD needs to know


gabriela
08-14-04, 07:30 PM
ADD 101: What Every Beginner in ADD Needs to Know

by Cynthia Hammer, M.S.W.
Tacoma, WA—May 12, 2002
Terms of Use: This educational material is made available courtesy of the author and Attention Deficit Disorder Resources. You may reprint this article for personal use only.


There is no test for ADD. The diagnosis of ADD is made based on your history with, when possible, corroboration from others who knew you as a child or who know you now. Testing may be helpful to learn more about your mental strengths and weaknesses, but not to learn if you have ADD.

To obtain an ADD diagnosis:

Locate a clinician knowledgeable about ADD in adults. Start with recommendations from your family physician, your child's pediatrician, your therapist or an ADD adult. Other referral sources are the CHADD group in your area, other ADDult support groups; physician and psychologist referral services; a medical school or a learning disabilities specialist at a nearby college. Look at the listings in our National ADHD Directory. (http://www.addresources.org/directory.php) Do a search at www.google.com (http://www.google.com/) for "ADHD (your state)" and "ADHD (largest city near you)." As a last resort, work your way through the yellow pages: psychiatrists, neurologists, psychologists.

When you call for information, ask several questions:


Do you diagnose ADD/ADHD? Do you accept my insurance?
How long have you been diagnosing this disorder in adults?
How many ADD/ADHD adults have you diagnosed in the past five years. What percent of your practice has a primary diagnosis of ADD/ADHD?
How familiar are you with the day to day tribulations of having ADD? (You're trying to learn if they or some one they are close to has this condition. How intimate is their understanding of ADD on a daily basis?)
What is your treatment philosophy? (Will the clinician work with you and be open to suggestions or will he/she call all the shots. Is their treatment of ADD the same for everyone or is it individually tailored?)
In a subtle way, learn what they do to keep current in their knowledge about adult ADD and its treatment protocols.
How do you make a diagnosis? How many visits will it take and how much will it cost?
How long will I have to wait for an appointment?
Ask psychologists how they handle the medication part of treatment as psychologists do not have prescriptive authority. Ask physicians (and other medical personnel with prescriptive authority) what medicines they use to treat ADD/ADHD.
Keep track of who you called and how they answered these questions.
If you are still unable to locate a knowledgeable clinician, consider educating your family physician and getting him/her to work with you. The simplest way to educate your family physician is to have him/her view Dr. Daniel Amen's Clinician's Guide to ADD (a 4 1/2 video), read Driven to Distraction, by Drs. Hallowell and Ratey. You, too, should be knowledgeable about ADD so you know what to ask about.

Before your first appointment, write down what symptoms you have. Suggest an ADD diagnosis, but not too loudly. You are the patient after all! What the doctor says can reveal his attitude. Listen for comments, such as, "It can't be that bad." "ADD is the least of your problems." "You've done quite well; you can't have ADD." or "The worst part of ADD is not the ADD itself, but the damage that's been done to your self-esteem." If you repeatedly hear one or more of these statements, translate this as, "I don't take ADD seriously." Be wary of clinicians who, laughingly, tell you they "think" they have ADD but have never sought a professional diagnosis or treatment. Again, they are making light of the condition, not recognizing it's serious nature.



Some general considerations:

Does this clinician listen? Ask relevant questions? Respect your intelligence? Does he or she seem flexible, open-minded, interested in what you have to say? Attitude is key. Does this clinician make you feel like he, and he alone, knows what's best for you or does she seem more like a co-investigator, i.e., Let's learn together about what can be most helpful to you and how I can best help you.

Ask yourself, "Can I work with this person?" If the answer is "no," you need to look elsewhere. Even after choosing a clinician, vigilance is needed. Some clinicians verbally accept an ADD diagnosis, but do not prescribe the most accepted medications. If this occurs, ask your clinician for an explanation.

Sometimes you find a physician who will mange only the medications with someone else handling the therapy, counseling or coaching. This can be a good arrange-ment and often is more economical. Occasionally, family physicians will be comfortable working with you on medications, if someone else has made the diagnosis. For example, you could see a psychiatrist for the diagnosis and getting stabilized on medications, then be followed by your family physician.



Primer on Medications:

The medications used to treat ADD in adults are the same ones used to treat ADD in children. The first medicines tried are typically the stimulants: Ritalin, Dexedrine, Cylert, Desoxyn, Adderall. Some clinicians shy away from prescribing stimulants because they are controlled substances, i.e., physicians and pharmacists have extra paper work when prescribing these medications. The prescription cannot be "phoned" into a pharmacy; and it cannot be written for more than a month's supply.

Some physicians worry they will have licensing problems or FDA concerns if they prescribe stimulants or they may think you are seeking an ADD diagnosis just to obtain controlled substances. A response to this concern is the dosages at which stimulant medications are prescribed for ADD are minuscule compared to what a drug abuser would take. Commonly, people with ADD, have a reverse effect when taking stimulants. Instead of the "high" that addicts seek, ADDults feel calm. ADDults with a history of substance abuse—alcohol, marijuana and cocaine are the most common—frequently report a cessation in their desire for these substances once they are medicated for ADD.

The nationally prominent ADD clinicians believe that the earlier substance abuse was probably an inappropriate self-medication that the treated ADD adult no longer needs. Research on teenagers with ADD taking stimulant medication shows they have a lower rate of substance abuse than their peers. Ritalin, the most commonly used medicine for ADD, has been in use for almost fifty years and is very safe when taken as directed. Dr. Hallowell says it is safer than aspirin.

Research with Ritalin over the past 50 years with children diagnosed with ADD demonstrates conclusively that this medicine helps most ADDers significantly reduce their ADD behaviors. (Ritalin is said to help over 70% of those diagnosed with ADD with the proviso that it be given in the right dose.)

No one fully understands what role Ritalin or other stimulants play, but research conclusively demonstrates that these stimulants make most of us with ADD function better. (from mild improvement to significant improvement). We are assured, by our physicians and the FDA, that the stimulants are not harmful to us in the doses prescribed.

ADD is a neurochemical disorder. People with ADD lack one or more chemicals (still to be determined) in our brain in the right quantities in the right places at the right times. We may have these desired chemicals sometimes in the amounts and places we need, but not always, and not at our choosing—i.e. that's why we have variable performance. When our brain chemicals are not flowing normally, (i.e. as they flow in people without ADD) we are very ADD.

Dr. Daniel Amen, M.D. of Fairfield, CA,. says that the brains of those with ADD/ADHD benefit from stimulants as they cause more blood flow (which is healthy) to our frontal lobes than they would otherwise receive. It is commonly believed by clinicians treating ADD that a greater harm—emotionally and socially—occurs to those with untreated with ADD, than any possible harm from the medications. Unfortunately, this knowledge is not accepted by the public, and the media often adds to the public's fear of the medicines used to treat ADD.

Some clinicians continue to increase the medicine's dose until there's a desired effect or too many undesirable side effects, such as jitteriness, stomachaches or headaches, that do not subside after a few weeks. Some clinicians use Zantac or Pepto-Bismal to help patients who experience stomach-ache to help them through an adjustment period.

If, after trying the stimulant medications at various dosages the desired effect is not achieved, then certain anti-depressants such as imipramine, desipramine and nortriptyline along with Wellbutrin and perhaps Effexor are tried. If none of these work for you, your physician might try other medicines, or combinations of medicines. Proper dose levels are determined on a case-by-case basis, not by weight or age.



How do you determine if the medicine is working, if you are taking the best medicine for you, at the best dose and on the best dosing schedule?

Thomas Phelan, Ph.D. suggests all patients try a second or even third stimulant. Individuals may respond quite differently to each one. He will start with, say, Ritalin,and note what is the best result the patient achieves and at what dose. He'll then have the patient try dexedrine or ADDerall or Cylert , again observing the best result at what dose. After this, he and the patient jointly decide which medicine at what dose is best for long-term usage. The point is, you may be "treated" for ADD, but without some comparisons with other medicines used for ADD, you may not be taking the one that will work best for you.

This is why it is very important to work with a clinician knowledgeable about ADD who is willing to work "with you;" not dictate to you. You need a clinician who is aware of what changes medicines can bring about in an ADDer's ability to function and who knows it's not a disorder where one medicine or one dosing schedule suits all. In turn, you, the patient, need to learn what changes to watch for in your functioning when you take medicine. Sometimes you might need another person in your life to note these changes, as ADDers can be poor self-observers.



What are some specific changes to look for when taking medicine?

When medicated you may be able to stay involved in a conversation or finish a task before moving on to something else or you may remember to do something that you needed to do. You may find your social interactions more relaxed and that others seem to enjoy being with you more.

Dr. Theodore Mandelkorn of Seattle says that ADDers on (proper) "medication IMPROVE their attention span, concentration, memory, motor coordination, mood,and on-task behavior. At the same time they DECREASE daydreaming, hyperactivity, anger, immature behavior, defiance, and oppositional behavior. Medical treatment allows intellectual capabilities that were already present to function more appropriately.

When medication is used appropriately, patients notice a significant improvement in control. Objective observers notice better control of focus, concentration, attending skills, and task completion. Many are able to cope with stress more appropriately, with fewer temper outbursts, less anger, and better compliance. They relate and interact better with family members and friends. Less restlessness and impulsiveness are noted."

He goes on to say, "It is very important to remember what medicine does and does not do. Using medication is like putting on glasses. It enables the system to function more appropriately. Glasses do not make you behave, write a term paper, or even get up in the morning. They allow your eyes to function more normally IF YOU CHOOSE to open them. YOU are still in charge of your vision. Whether you open your eyes or not, and what you choose to look at, are controlled by you. Medication allows your nervous system to send its chemical messages more efficiently, and thus allows your skills and knowledge to function more normally. Medication does not provide skills or motivation to perform.

ADDers often complain of forgotten appointments, incomplete work, mistakes in written work, frequent arguments with family members or co-workers, excessive activity, and impulsive behaviors. With medication, many of these problems dramatically improve. Patients successfully treated with medication typically can go to bed at night and find that most of the day went the way they had planned."

Dr. Gross in Santa Clara, CA suggests asking if the medication you are taking is significantly helping with these concerns:


Academic underachieving and inattentiveness
Hyperactivity or troublesome fidgeting
Verbal and/or behavioral impulsivity (blurting out, interrupting others, acting before thinking)
Difficulty falling asleep at night
Trouble coming awake (not getting out of bed) in the morning
Excessive irritability without cause and/or easy frustration
Bedwetting or primary nocturnal enuresis
Dyslexia with spatial or verbal reversals
Episodic explosiveness, emotional outbursts, or temper tantrums
Unexplained and persistent emotional negativity
If your ADD/ADHD medication is not significantly helping with most of these concerns, ask about changing the dosage or changing medicine. Medication is not acceptable if it relieves only one dysfunction such as trouble falling asleep but not any others.

Finding the right clinician and the right medication can take time, but those who persist are well-rewarded for their efforts. Good luck with your search.

Editor's Note: None of the preceding information should be construed as medical advice and should not be used in lieu of seeking medical attention. Much of the preceding material is adapted from material initially written by Paul Jaffee, NY.



Primer on therapy/counseling

Selecting a good therapist to help you with the pyschosocial treatments for your ADD can be difficult. How can you make the best choice? How will you evaluate your choice? Which kind of therapist to choose? Will expense be a factor? What your medical insurance pays for can limit your choices, although being diagnosed and treated for your ADD will probably be the best spent money in your life.

Psychiatrists are medical doctors (M.D.) who receive special training in psychiatry. Note that only M.D.s, physician assistants (PA) and certain nurse practitioners can prescribe medications. Psychologists (Ph.D.) have doctorate degrees in psychology while social workers (M.S.W., ACSW or CSW) and marriage and family counselors (MFT or CMFT) have master degrees in their respective disciplines. Other counselors may have Master's Degree in Counseling (M.A.) and related fields. In addition, they may have specialized training in Chemical Dependency (CDCC), or Mental Health (MHC).

Verify that they are both licensed by the state and certified, which demonstrates a higher level of training, by their professional organization or by the state. If you do not understand their titles, ask for clarification. No professional or ethical therapist should mind being asked about their educational or professional back-grounds.

While it is not possible to say one kind of training is superior to another when choosing a mental health provider, a good rule of thumb is to go with a therapist you can afford. You are not going to be helping yourself if you go into deep financial debt trying to get out of deep emotional pain. Most therapy sessions last about an hour and the cost ranges from $50 to $125/hr, with some clinicians offering sliding scale.

Plan to briefly interview one or more therapists on the phone before you set up an initial appointment. Ask about their training and background. Describe the kinds of issues you want help with.

Make absolutely sure that the therapist is familiar with ADD in adults.

(use the same questions asked when finding someone to diagnose you for ADD, see page 1).

They should be knowledgeable about ADD and its manifestations so they can help educate you and help you realize your difficulties in life were the result of subtle neurological deficits in the brain, not character defects or moral shortcomings.

Therapists for ADD adults should be more directive than is typical in a "therapeutic relationship." ADDults often talk and talk with-out achieving insight or direction from their "ventilating." They need structure and guidance to stay focused, to stay on topic, to get the most benefit from their therapy

If you find a therapist that seems good via the phone, set up a longer, in-person, interview. Some therapists provide an initial half hour session at half their regular rate. Others expect you to devote a full hour to getting acquainted and seeing if you can work together.

Pay attention to your feelings during this initial session. It's important that you find someone who makes you feel comfortable and who gently challenges you to explore your inner life and past experiences. It is important to find someone who respects your individuality and your opinions, and who you feel you can trust 100%. If you feel the need to lie or withhold important information from your therapist, you are not going to get any real help.

When you find a therapist you like, plan to give therapy about six sessions before deciding whether or not to go on with it. It usually takes that long to uncover areas of concern and begin to identify your issues.

Most good therapists work with their clients to develop treatment goals. When these are formalized and written down, it ensures that you and your therapist are on the same "track" and working on the same problems. Also, by occasionally reviewing the goals, you can chart your progress (or lack thereof) in therapy and work with your therapist to change therapy if need be.

Six months to a year of counseling is often needed to work through most problems. For ADDults, this can be faster. After dealing with an issue, people with ADD are generally ready to move on. We tend not to dwell on the past; to not be reflective. You should feel that going to the therapist is helping you and that you are improving. Watch out for therapists who want to continue therapy when you feel ready to end it. They may need to "help" you more than you need to be helped.

Many ADDults don't require intensive long-term therapy to get their lives on track and to improve their self-esteem and confidence if they don't have a lot of lifetime baggage that needs to be worked through. Often, medication, learning about what ADD is and is not, putting good coping skills in place, exercising regularly and taking good care of themselves, along with belonging to an ADD support group, even via the computer, are enough. Sometimes, instead of therapy, ADDults only need "coaching." They benefit by having someone who regularly checks in with them to see how things are going; someone who helps the ADDult develop and carry out strategies that will work for him in achieving his goals.

After you stop therapy, it may take a few months or longer before you fully integrate the knowledge you gained in counseling into your daily life. That's to be expected: Good things—like new, healthy behavior—always take time to develop.

Cynthia Hammer was diagnosed 11 years ago at age 49 with ADD. Her life improved so much after the diagnosis that she started a support group in Tacoma for adults with ADD. From that small beginning, ADD Resources, a non-profit organization, has now grown to a national organization with over 600 members with Cynthia serving as it's part-time director.

(copied off http://www.addresources.org/article_add_101.php)

Gourmet
04-23-05, 03:42 AM
This is such a great article! I just came across it and it will be valuable to other members too, if they haven't read it.
Thanks gabriela, from way back in 2004 :)

speedo
05-01-05, 10:00 PM
wonderful content! It is appreciated.

oddjobace
08-08-05, 07:48 PM
I struggle with the question of "Do I medicate myself and conform to the way 90 percent of the world operates? or Do I build my world in such a way as to maximize my ownm unique ADD personality?" Does this make any sense to any of you? In other words, I am extremely creative and a great problem solver, although, very messy and unorganized. Should I become neat and organized and sacrifice my other strengths? Is this a common question? I'm sure I could be more of an achiever if I were medicated, I fear losing the only person I've known.

Gourmet
08-08-05, 09:43 PM
Hi oddjobace. :) I'm a creative person and a problem solver too. Just want to mention that the messiness and disorganization you have are just byproducts of your ADD. A lot of that can be worked over through discipline and helped with medication or therapy. I am neater now and a whole lot more organized, but my creativity has not suffered because of my taking something for ADD. I'm not into conforming either..I think buiding your own world sounds marvelous!

~gourmet~

oddjobace
08-09-05, 08:23 PM
Hi oddjobace. :) I'm a creative person and a problem solver too. Just want to mention that the messiness and disorganization you have are just byproducts of your ADD. A lot of that can be worked over through discipline and helped with medication or therapy. I am neater now and a whole lot more organized, but my creativity has not suffered because of my taking something for ADD. I'm not into conforming either..I think buiding your own world sounds marvelous!

~gourmet~
I will have to find a happy medium. I should try meds again and work on building good habits more. What an adventure my life is. If only I could get around to writing a book about it.

Best regards,

NeantHumain
08-09-05, 11:35 PM
I was kind of hoping this guide would teach people how to act more hyper instead of explaining mundane basics about being diagnosed and finding the right treatments. Maybe I should write just such a guide so that other newbies' hopes aren't let down too.

:faint::faint::faint:
^ I just really like that smiley.

livo
08-04-06, 01:33 PM
I struggle with the question of "Do I medicate myself and conform to the way 90 percent of the world operates? or Do I build my world in such a way as to maximize my ownm unique ADD personality?" Does this make any sense to any of you? In other words, I am extremely creative and a great problem solver, although, very messy and unorganized. Should I become neat and organized and sacrifice my other strengths? Is this a common question? I'm sure I could be more of an achiever if I were medicated, I fear losing the only person I've known.

I always think the same thing! Like, "why should I conform to the societal norm?" oh... it rhymes.. lovely.
But on the other hand, it has become incredibly frustrating to never get any work done on time (for school, especially) as I am on academic probation for the second time... oops!
Sometimes I just really hate the fact that I have to take medicine to fit in. (even though that may not be the case, it just feels like it at times, you know?)
I have more questions about obtaining a perscription for ADHD medication, but I think I'll post that in another section that's more relevant! ;)

But thanks for posting that thought! I'm really glad I'm not the only one who thinks about that! :)

!Matt!
12-17-06, 07:38 AM
Hi, I'm new here but won't right much as I can't seem to bear doing anything. Only to say great article and from this it seems that I'm not on the right meds at all. I've been given fluoxetine which isn't mentioned at all. I must look into stimulants such as ritalin.

nzkiwi
12-17-06, 07:59 AM
Awesome article, this sheds light on many of the questions I see posted on this forum. I think I am going to print it out and keep it for future reference. Thank you.:)

For anyone who is skeptical of adhd treatment for themselves, you could always do a trial run, record improvements, things you dont like, etc, then re-evaluate whether treatment is for you.:) It seems like with medicine their can be a lot of trial and error, but when you find something that works, it really can help.

msam76
12-17-06, 02:03 PM
Thanks for posting this!!! Will help lots of people.

jeaniebug
12-17-06, 02:15 PM
Hi, I'm new here but won't right much as I can't seem to bear doing anything. Only to say great article and from this it seems that I'm not on the right meds at all. I've been given fluoxetine which isn't mentioned at all. I must look into stimulants such as ritalin.
Thank you Matt in northern Ireland for bumping this up!

EXACTLY what I have been searching for before my appt w/psyciatrist Jan 8.

PJ

jeaniebug
01-03-07, 11:29 AM
Giving this thread another bump for the new members asking questions about diagnosis. :)

meadd823
01-04-07, 08:08 AM
Hmmmmm I haven't thought of it but it may be worthy of a sticky. . . . .

meadd823
01-04-07, 08:10 AM
Now the thread will remain easy to locate for all seeking this information as it has been successfully "stuck" to the top of the topic list.

Aaron R
02-03-07, 11:10 AM
Thank you so much for this article as i don't yet know whether i have ADHD and i am new to this forum but this is really helpful so thank you

FightingBoredom
02-03-07, 12:13 PM
The link to the article in the original post has changed to:
http://www.addresources.org/article_adhd_101_hammer.php

VicodenAmphet
05-25-07, 02:25 AM
i pretty much had this figured out, good reminder about going to the doctors, i hate it cuz they make you wait in the room for an hour and then talk to you for half that time. I have plenty of people that knew me young, my family doesn't know much about it at all, they had the wrong impression on it. At first they didn't think it was possible because i was a really smart person. Thats not the case though. The only **** i learn is what i teach myself, do it at my own pace in my own way. I always try to write to keep my mind eased mostly lyrics ill try to get a line in whenever i feel like letting everything go away, try it, it costs $30 to have a therapist tell you that. Plus i cant have caffeine but that doesnt matter. I dont see him anymore but he's cool. He tought me a bunch of techniques in the 2-3 months i was seeing him b/c my old dr. said i should do that if i was going to get a script of zoloft. I write too much

ADD3D
08-31-07, 12:46 AM
I'm feeling the same way.. no way I am going to take medications that may change the creative abilities that I have..
I'm convinced that with the knowledge I now have about what the problem is, and with guidence and counceling in the form of a coach I can get on track to finishing things, having patience in getting better at things, and not be so critical of the steps it takes to get there. I am convinced that I can get past the dread of approaching my creative efforts with the knowledge that I am not going to immediately get to where I want to go.. that it will take some time and that the process itself need not be something that tears me apart with self critism... I need to look for the small parts of improvement and learn from the mistakes, but mainly have faith that I can do it.

Fraser_2468
09-07-07, 07:15 PM
Hey great topic to put a sticky on! :)

Has some great info about AD/HD :)

TiffanyM
09-14-07, 03:48 PM
I am 34 years old and my life is getting to the point where there is no choice but to seek medications. I thought for a long time that I could adjust on my own, but my doctor gave me Strattera to try and it helped me to think clearer and I wasn't as pushy and easily offended, it also helped me to be a more peacable person. I changed me enough to know that I needed something. Unfortunately, after taking Strattera for about six weeks, my blood pressure went up too high and I had to recently be taken off. After 24 hours of being off I have experienced Anxiety to where I could bite someone's head off, not good. I trust this will pass. I was upset to hear that I had to come off the meds, however, I think it is a Godsend because I beleive I need more than Strattera. It didn't take away enough symptoms so I am going to see a psychiatrist to get some meds. Does anyone suggest a good med to start with?

TiffanyM
09-14-07, 03:55 PM
I have found that with the meds I can actually focus on the book I am writing and before Meds I couldn't even start on it.

deniseo
10-02-07, 01:26 PM
my 8 year old son was just diagnost today with adhd, the dr. started him on 18mg of conserta once a day. this is a great place to talk to others that have been going threw this, iam not alone thanks again:)

Skatturd
01-06-08, 05:43 PM
it's all good to know ... thanks

Serahd
03-06-08, 08:56 PM
Hello, my name is Sera, I am 53 and due to unfortunate circumstances I am raising my 6 years old grandson. When he was 4 he was diagnosed for ADHD. To make a long story short I sent him to a Tomatis institute where their treatment seemed to be helping him for a while. But after few months his attention started being even more dispersed than before and the treatment became almost futile. The only thing that had positive effect on his attention was music and only as long as he was listening to it. As soon as he stopped listen, his attention dropped dramatically. Background music wasn't doing any good. He was calmed and focused only when he had his headset on.
<?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" /><o:p></o:p>
One interesting issue was the fact that there wasn't much different in the kind of music he was listening to, as long as it was undisturbed by other sounds or voices. We tried special headsets, synchronizing both the music and external sounds or voices, but it did not work for him. One day I saw a TV family program and there was doctor who spoke about frequency medicine. That doctor mentioned treatment by sounds composed of different frequencies. The theory is that each illness has different frequency and that sounds with specific frequencies can heal illnesses.<o:p></o:p>
I started reading about this treatment and even found a practitioner who was using a device that evoked sounds that for the first time had a lasting effect on my grandson. He liked going to this clinic because he said liked the sounds. I asked the practitioner if he can record the sounds on a CD so my grandson could use it at home. He refused to do that and dismissed us with some excuses.<o:p></o:p>
I was looking for such recordings on the Internet and couldn't find anything.

We have all the music that is being played in the Tomatis treatments including those Gregorian chants he likes very much. Until one day I found a site for sounds frequencies (there are many) which had ADHD and ADD sounds.

I downloaded them and since that moment there is a growing positive effect on my grandson. He listens to the sounds 20 minutes before school and he is allowed to put on his headsets during class hours when there are personal assignments. The name of the site is healtone and I really recommend trying these sound, it really works for us.<o:p></o:p>
<o:p> </o:p>

NeeNee
03-14-08, 12:59 PM
Just a caution because when you find a doctor who takes adhd seriously that is good but there are others who medicalize beyond what's necessary--my approach is let's try on our own with behavior interventions, if that doesn't work, no blaming, just then slowly incorporate medication until we see improvement, then try bringing the medication down as low as possible. (This is talking in spans of months/years) It's hard to find someone who gets the balance right-- And the world now is especially hard for kids with ADHD (mandatory testing, etc.), so I would just add that along with a therapist/doctor who is willing to diagnose and provide medication, be sure that you find someone who will support your (or your child's) experience and care for the social and self esteem aspects of adhd.

Also, while ther may not be tests for adhd, there are clinical tests that measure inattention and impulsivity to visual and auditory stimuli (computer based, age-normed) that will give you a percentile to compare with the rest of the population.

perpetualmotion
04-14-08, 06:38 PM
Serahd -

How is your grandson getting on with the sound therapy? I've had a look at this site and it looks interesting.... :)

jeighmy
05-08-08, 09:06 PM
Awesome article.. I wish I had seen this. I went to a psychiatrist who didn't even tell me he doesn't prescribe stimulants without a special "ADD test" that you have "passed"...even though I was diagnosed with one ten years ago apparently it wasn't valid anymore. He didn't even bother to TELL me this until I started questioning on the second visit why he chose to put me on Effexor which I quickly learned wasn't exactly a typical ADD medication...though it can be helpful. Its a long story why I wanted off of it and not the point here... Anyway this "test" would cost me 3 specialist visits to obtain with 3 $50 co pays... and then only then would he begin to consider the ritalin, adderall (stimulants) type drugs for use in treatment. UGH... I finally found a family dr. that would prescribe them. But to be honest he didn't question my diagnosis ENOUGH...pretty much just took my word for it... so I do believe that the information here about finding the right dr. and HOW should be heeded very carefully!! I look forward to learning how to deal with my ADD from you all! And hope I can offer some insights to others as well... I am 33 years old and treatment has been a LONG time coming.. I have been either breastfeeding, pregnant, or poor for the last 7 years and haven't been able to address the issues til now...

Imnapl
05-08-08, 09:36 PM
Students can have the adaptation of listening to music with headphones while doing seat work. It isn't considered music therapy, it just blocks out other distractions. That being said, I love the Mozart effect.

bdority
05-15-08, 02:38 AM
Thanks SO much for posting this way back when. I am 44 and recently diagnosed. Not terribly happy with the doc that did the diagnosis, but he got it right and the meds are already making for serious change/improvement, but I wasn't sure where to go from here. Nearly done with Hallowell's Delivered from Distraction, which has been monumentally educational and had me in floods from time to time, but I still wasn't getting the real skinny on "what to do next." I've been scanning the forums, but doing it in true ADD fashion, not really landing anywhere that I felt was useful until now. I feel like I have my third starting point after reading this post. First the diag and meds, then the book for starting my ADD education and now the where to go from here with regard to what I should be looking for from the meds and what to look for with regard to therapy. Have taken some seriuos big steps, leaps even, in a very short time but live in fear that I'll crash and burn soon without some learned direction. I feel like I just found that and will be interviewing therapists next week when I get back from my current business trip as well as seeing about some meds adjustments until I really find the sweet spot I feel is coming.

Wow, that was supposed to just say thanks for the post. Oh well. I'll just add "learn to be succinct" to my list, which is getting seriously long!

Thanks again,
Butch

yaya
06-04-08, 10:10 PM
I struggle with the question of "Do I medicate myself and conform to the way 90 percent of the world operates? or Do I build my world in such a way as to maximize my ownm unique ADD personality?" Does this make any sense to any of you? In other words, I am extremely creative and a great problem solver, although, very messy and unorganized. Should I become neat and organized and sacrifice my other strengths? Is this a common question? I'm sure I could be more of an achiever if I were medicated, I fear losing the only person I've known.

ahh, some of the same things I keep pondering... thx for posting this.

Imnapl
06-05-08, 12:08 AM
I struggle with the question of "Do I medicate myself and conform to the way 90 percent of the world operates? or Do I build my world in such a way as to maximize my ownm unique ADD personality?" Does this make any sense to any of you? In other words, I am extremely creative and a great problem solver, although, very messy and unorganized. Should I become neat and organized and sacrifice my other strengths? Is this a common question? I'm sure I could be more of an achiever if I were medicated, I fear losing the only person I've known.

ahh, some of the same things I keep pondering... thx for posting this.Sorry to burst your bubble, but there is no magic pill and even though my medication works for me, I could never be mistaken for anything other than ADHD. :cool:

yaya
06-05-08, 12:19 PM
Sorry to burst your bubble, but there is no magic pill and even though my medication works for me, I could never be mistaken for anything other than ADHD. :cool:

good luck bursting bubbles. mine are all burst already, so don't bother..

i'm not trying to hide my add, but to manage it better, so as 'not to be mistaken for anything other than adhd', although I find it pretty lame to be defined just by that, is not my concern.

In the past I was prescribed some medications that changed who I was quite a bit and made it almost impossible to be creative and do my job, so if that didn't happen to you that's great, but I don't think I know everybody's particular case just because we're all adhd. Or is it an opinion you heard from someone else? Now if you don't like pondering, allow us to still do so if we please.

sorry everybody, but I'm sensitive to flippant replies.

yaya
06-05-08, 05:00 PM
Hi oddjobace. :) I'm a creative person and a problem solver too. Just want to mention that the messiness and disorganization you have are just byproducts of your ADD. A lot of that can be worked over through discipline and helped with medication or therapy. I am neater now and a whole lot more organized, but my creativity has not suffered because of my taking something for ADD. I'm not into conforming either..I think buiding your own world sounds marvelous!

~gourmet~

Thank you for posting this. Well said!

About medication, I confirm to oddjobace that the situation definitely improves with medication although I get a cooling effect from it. It cools my personality down. When I took either Concerta or Ritalin it helped me a lot with organization as well as with concentration, but mainly it's just that it made everything more manageable. I personally do get somewhat less sensitive to beauty and more sensitive to reason while taking it, but there are other medications (especially ssri's for me-I hate them!) which affect me in worse a way and change me into something I don't recognize -besides giving me even disturbing physical simptoms on top of that. So, when doctors start to add or change stuff like you're some sort of Guinea-pig then I go bye-bye. I still haven't found a good, caring and respectful doctor yet but I'm almost ready for my crutches again so I hope in good fortune finding one who'll stick around longer.

fgraham
08-13-08, 03:00 PM
Anyone know about a knowledgeable clinician in Southern Oregon near Roseburg to treat an 11 year old?

lizbeth
08-13-08, 06:26 PM
Great information, but I know my psych made me use the connors' scale and he makes me re do it every couple of years, is this correct or wrong? please let me know thanks again

mctavish23
08-13-08, 06:39 PM
fyi,

The Connors, while among the most widely used, and perhaps the oldest checklist, has come under a great deal of empirically (research) supported criticisms lately.

I have to run back to work,but I've got the references.

tc


mctavish23

(Robert)

PS


I've stopped using it.

Arlo
08-22-08, 01:14 AM
Way too many words. Sorry, it had to be said. I need 5 or less.

Newbie08
11-23-08, 04:08 PM
Trying to get some feedback. My wife started taking adderall about 6 years ago, relationship started going down ever since. She will not stop taking it. Takes something like 120mg a day. 60 xr and 60 generic. Trying to understand her symptoms, I think their bad she says no. Confused.

If this is not the thread to do this, can you direct me ?

talitha
11-25-08, 03:49 AM
I struggle with the question of "Do I medicate myself and conform to the way 90 percent of the world operates? or Do I build my world in such a way as to maximize my ownm unique ADD personality?" Does this make any sense to any of you?

i'm really new to all of this... i've only known about my add for a matter of weeks now. so i hope i'm not off base.... but i think that we adders are amazing. i think we are all very similar and just because we are not recognized in a good way doesn't mean we are NOT OK. we are different, that's all. i mean... our society just isn't friendly to our type. i say no meds, i say expand your creativity in your own way and see how far you can go!

i don't really know, like i said, i'm a newbie... but it just seems like such a waste of a fresh perspective. i wish we could be more free to just be the way we are instead of masking it with medicine. :mad:

talitha
11-25-08, 03:53 AM
I was kind of hoping this guide would teach people how to act more hyper instead of explaining mundane basics about being diagnosed and finding the right treatments. Maybe I should write just such a guide so that other newbies' hopes aren't let down too.

i was hoping it would talk more about coping and learning to 'deal' with yourself. does anyone know of a source that does such?

Briebird
03-04-09, 05:56 PM
I struggle with the question of "Do I medicate myself and conform to the way 90 percent of the world operates? or Do I build my world in such a way as to maximize my ownm unique ADD personality?" Does this make any sense to any of you? In other words, I am extremely creative and a great problem solver, although, very messy and unorganized. Should I become neat and organized and sacrifice my other strengths? Is this a common question? I'm sure I could be more of an achiever if I were medicated, I fear losing the only person I've known.

oddjob, when I went on meds I found that I could focus better and remember things easier, and being more organized actually helped to bring out my potential. I simply wasn't wasting as much time looking for stuff and going back for things. Though I'm still pretty messy, its kind of an organized chaos. ;^_^

I don't think meds fundamentally change who you are - I think if they work for you, they help you to be who you could be without random mental glitches and brain farts in the way. I'd almost say they helped me become MORE "myself". It helped me prune away that which I didn't want to be a part of me.

They also don't "make you conform" by any stretch of the imagination - my friends and family say I'm as weird as ever. :c) As far as building your own world, sure, you can do that to some extent, but you've also gotta interact with the worlds of others. I definitely found Strattera helped me function better in the mundane, day-to-day world without having to give up the floaty, oceanic, dreamy one inside my head.

Best of luck whatever you decide to do.

BadgerMilk
03-19-09, 10:26 AM
How available are meds on the NHS.

I have read 'Da Vinci Method' and another book which is about ADD. Therye good but havent quite fired me up out of my rut (since last April- so about a year) of oversleeping, putting things off, starting and not finishing anything, spending days trawling the internet and ending up nowhere, house renovation unfinished, one of two businesses closed through inaction from me etc etc.

I could definatley do with something that would provide a kick up the **** for me and then look at using my newfound extra time to work on other ways of dealing with this.

By the way does anybody find this gets better and worse in stages or cycles??

Just a few thoughts!!

melquíades
03-20-09, 10:50 PM
How available are meds on the NHS.

I have read 'Da Vinci Method' and another book which is about ADD. Therye good but havent quite fired me up out of my rut (since last April- so about a year) of oversleeping, putting things off, starting and not finishing anything, spending days trawling the internet and ending up nowhere, house renovation unfinished, one of two businesses closed through inaction from me etc etc.

I could definatley do with something that would provide a kick up the **** for me and then look at using my newfound extra time to work on other ways of dealing with this.

By the way does anybody find this gets better and worse in stages or cycles??

Just a few thoughts!!

I'm on 3x10mg methylphenidate. No huge effect yet, I'll be going up another step next week. The process here is usually fairly straightforward, just very longwinded (6 months for me from initiation to first prescription. Lots of waiting), as you'll generally need to be referred by your GP to an Adult Mental Health Trust.

dragonfyre2013
05-13-09, 02:11 PM
Hi, I'm new here but won't right much as I can't seem to bear doing anything. Only to say great article and from this it seems that I'm not on the right meds at all. I've been given fluoxetine which isn't mentioned at all. I must look into stimulants such as ritalin.

Fluoxetine is a anti-depressant which is sometimes used in lieu of a stimulant. There are pros and cons to both types of medication – you should check with your doctor. There may be a reason why he did not prescribe a stimulant med (avoiding common side effects or it may not mix well with other meds you are taking). Check out this website: http://www.helpguide.org/mental/adhd_medications.htm (http://www.helpguide.org/mental/adhd_medications.htm) for more info on types of meds and why they are offered. :)

cappie
10-29-09, 05:37 PM
No be yourself creative disorganized whatever. Most people i dont think can be creative. I think it is great.

momtalkadd
11-20-09, 03:41 PM
Good information. Here is a free chapter to a book I just finished reading that is another resource for ADHD solutions. http://www.BlockCenter.com
<input id="gwProxy" type="hidden"><!--Session data--><input onclick="jsCall();" id="jsProxy" type="hidden">