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-   -   Ella is scared about moving on to biologics for her psoriasis. (http://www.addforums.com/forums/showthread.php?t=190588)

sarahsweets 03-01-18 05:52 AM

Ella is scared about moving on to biologics for her psoriasis.
 
I put this in parenting because it concerns Ella my 14 year old. She has horrible plaque psoriasis. She has had it since she was little but we didnt know what it was until middle school. We have been seeing the dermatologist for nearly 3 years. We have tried every topical cream, oil, solution and shampoo they have. She has been getting injections in her head once a month for almost 1.5 years. We did the UV laser treatment which cost a ton for 16 weeks. All with little to no improvemen. Its on her scalp and it gets awful. Its an autoimmune disease so its not simply a cosmetic issue. The NP said at this point there was little life left in the injections because the scalp skin was thinning in certain spots.

She set us up to see the doctor that oversees severe cases and handles the "biologics" (medicines that interupt the immune system to fight the psoriasis). Stuff like what you might have seen a commercial for- humira, stelaro, etc,

The doctor had to tell us every damn possible risk no matter how rare, and she heard "lymphoma (like .001%) and imunne system weakeness and other stuff like that.

When we got back to the car she was crying she is afraid of those side effects and is not on board right now with tryng it. Its 40,000$ and the insurance will take about a month or month and a half to approve it, and I have to take her for blood work first.

UNtreated psoriasis carries its own life changing risks and I told her about them. I told her I would print out info about biologics so she could make an informed decision.

Has anyone here tried them? She has one of the most severe cases the practive has ever seen. I do not want her to think its purely cosmetic. I want her to realize the risks associated with untreated psoriasis. I want her self esteem to be better of course, but I dont want her to end up with debilitating issues because she is scared.The biologics are injectables but they are preloaded almost like a stamp. She would get one in the office, a month later 1 at home and every 12 weeks at home. Its like a stamp that goes into the thigh. Thats scaring her too. But this girl has been getting injections all over her head for neary two years!

Anyone with insight for me?

Unmanagable 03-01-18 10:22 AM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
Has she tried any long-term elimination diets/habits/attempts with various foods and/or topical products she uses on a regular basis as part of her hygiene/cleaning routine to see if any of those things are triggering it, are the root cause of it, and/or making it worse? Could the treatments themselves be making it more intense rather than better?

Specifically eliminating dairy, gluten, and all artificially flavored/colored/sweetened/scented/etc highly processed stuff are what comes to mind first. I have no idea about the rest of the treatment options, but the food intake and what is applied to and absorbed by the body regularly are always the first things that pop up in my mind after experiencing things the way I have in my world.

I've learned time and time again in the last several years that no matter what topical things are applied/taken, and paid very dearly for, none of it has nor will provide long-lasting sustained relief, as I've experienced it within my particular biology, if the root issue isn't figured out and dealt with. Wishing her lots of clarity in finding answers and relief.

Lunacie 03-01-18 11:20 AM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
It's just like treating any condition, including adhd. One has to weigh the risks
that are possible with treatment versus the probable risks of not treating it.

I have very mild psoriasis. I agree that the cause is autoimmune, much like
fibromyalgia which I also have. My allergies and sensitivities may play into it
as well.


My 16 year old granddaughter has type 2 diabetes and either don't quite grasp,
or chooses not to grasp, the long term issues that come from not treating it.
She refuses to exercise and eats whatever she can find, high sugar, high fat,
high carbs. It's hard as a parent to see them struggling with these choices.

Lunacie 03-01-18 02:26 PM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
Quote:

Originally Posted by Unmanagable (Post 1987130)
Has she tried any long-term elimination diets/habits/attempts with various foods and/or topical products she uses on a regular basis as part of her hygiene/cleaning routine to see if any of those things are triggering it, are the root cause of it, and/or making it worse? Could the treatments themselves be making it more intense rather than better?

Specifically eliminating dairy, gluten, and all artificially flavored/colored/sweetened/scented/etc highly processed stuff are what comes to mind first. I have no idea about the rest of the treatment options, but the food intake and what is applied to and absorbed by the body regularly are always the first things that pop up in my mind after experiencing things the way I have in my world.

I've learned time and time again in the last several years that no matter what topical things are applied/taken, and paid very dearly for, none of it has nor will provide long-lasting sustained relief, as I've experienced it within my particular biology, if the root issue isn't figured out and dealt with. Wishing her lots of clarity in finding answers and relief.

Sarah said they've been working with dermatologist for almost 3 years. I'd bet
that they've considered all those things. Allergies and sensitivities may make
the symptoms worse, but they are not likely to be the root cause.


Sarah, I just remembered that I tried Cannibis Hemp Oil for my overall pain
(including migraine) last year on the recommendation of my niece. Though it
did not help the pain at all ... the psoriasis began to clear up. I gagged at the
taste of it, though most people don't mind, so I stopped taking it.

But the psoriasis has been flaring up lately so I may have to try CBD oil again.
Oddly the worst patch is on my nose right under the pad for my eyeglasses.
Good thing it's not painful, but it's so hard not to pick at it. :eyebrow:

Little Missy 03-01-18 03:51 PM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
Check and see if any of the shampoos, laundry soap-it's really hared to find laundry soaps that list ingredients, deoderants, regular soap, dish soap, etc. have metholisothiazolinone in them.

It will cause the worst psoriasis you could imagine. Horrible.

Whatever you do, remember that stopping any of the Rx remedies to go on to biologics will instantly put her entire body into withdrawals of an intensity that she will most likely need a benzo or a very strong Rx antihistamine for.

It took me three or more months to get over the withdrawals from steroid cremes and topicals. Horrible stuff.

Unmanagable 03-01-18 05:04 PM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
Quote:

Originally Posted by Lunacie (Post 1987160)
Sarah said they've been working with dermatologist for almost 3 years. I'd bet
that they've considered all those things. Allergies and sensitivities may make
the symptoms worse, but they are not likely to be the root cause.


Perhaps. If so, she can easily ignore everything I said. Just sharing the ideas that have helped me narrow down various things that were very problematic for my biological make-up that multiple specialists and/or professionals never did fully address, nor use the methods of such detailed deduction, both externally and internally. But they'd sell/prescribe me those expensive creams and ointments and such each time, without hesitation.

Topical issues (etc.) only go away/appear to be managed temporarily if the inward thing causing it isn't determined and changed/eliminated. Most of what was recommended to me by the folks highly trained to help me made me worse instead of better more often than not. I found it all to be pretty much a crap shoot.

Missy's suggestion is right on target. Products that we've been taught to use for "good hygiene" and "cleanliness" contain toxic stuff that wreaks havoc with us way more than most folks realize, yet many of those things aren't required to even be listed. Like "fragrance", for example.

Lunacie 03-01-18 05:28 PM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
Quote:

Originally Posted by Unmanagable (Post 1987168)
Perhaps. If so, she can easily ignore everything I said. Just sharing the ideas that have helped me narrow down various things that were very problematic for my biological make-up that multiple specialists and/or professionals never did fully address, nor use the methods of such detailed deduction, both externally and internally. But they'd sell/prescribe me those expensive creams and ointments and such each time, without hesitation.

Topical issues (etc.) only go away/appear to be managed temporarily if the inward thing causing it isn't determined and changed/eliminated. Most of what was recommended to me by the folks highly trained to help me made me worse instead of better more often than not. I found it all to be pretty much a crap shoot.

Missy's suggestion is right on target. Products that we've been taught to use for "good hygiene" and "cleanliness" contain toxic stuff that wreaks havoc with us way more than most folks realize, yet many of those things aren't required to even be listed. Like "fragrance", for example.

Unfortunately, science doesn't seem to have figured out what causes these
reactions in some of us, or why some of us develop autoimmune disorders,
so most treatments are indeed a 'crap shoot.'

I know that gut health can make a big difference in our overall health, both
physical and mental (brain), and the use of biologics and DNA transfer from
fecal matter are increasingly being explored as treatments that change the
gut flora and possibly improve health.

This is what the new doctor is discussing but she frightened Sarah's daughter
with the whole gamut of possible (although largely unlikely) side effects.

aeon 03-01-18 06:28 PM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
Though the statistical risk for the most significant side-effects of biologics is low, it must be considered that rolling snake eyes with them could be a death sentence.

I have a coworker whose sister chose Taltz as a therapy for her severe plaque psoriasis.

It helped her immensely, but she also developed TB, which was difficult to treat, and resulted in a months-long hospital stay.

You donít turn off TNF-α without some consequence.

Of course, this is anecdotal, and patients more often than not do not experience the gravest side-effects.

That said, based on the science of the immune system, it should come as no surprise that lymphomas of many types are potential outcomes of repressing Tumor Necrosis Factor-α.

If you play with biologic fire, you might get burned to ash. Thatís part of the risk.

At the same time, quality of life from autoimmune diseases can be seriously lessened. It becomes a question of what you are willing to risk trading.


Cheers,
Ian

Lunacie 03-01-18 07:00 PM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
Quote:

Originally Posted by aeon (Post 1987180)



If you play with biologic fire, you might get burned to ash. Thatís part of the risk.

At the same time, quality of life from autoimmune diseases can be seriously lessened. It becomes a question of what you are willing to risk trading.


Cheers,
Ian

Plaque psoriasis can also be deadly (life threatening infections, stroke, heart
attack. Very rare? Yeah. But so are the risks of biologics. It's a really tough
choice for a 14 year old and her family.

Sarah :grouphug:
:grouphug: Ella

Fuzzy12 03-01-18 08:11 PM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
What a difficult choice. I'm so sorry that your daughter is dealing with this. I know absolutely nothing about this so can't advice anything at all. Just wanted to send hugs abd lots of wishes.:grouphug:

sarahsweets 03-02-18 06:03 AM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
Psoriasis is an autoimmune disease... it goes beyond the cosmetic.
Quote:

Despite its very visible appearance on your skin, psoriasis is fundamentally an autoimmune condition, not a skin woe. ... Of the 21 autoimmune diseases studied, 17 were found to be linked to psoriasis, including alopecia areata, celiac disease, scleroderma, lupus, and Sjogren's syndrome.
This blew my mind. I have Sjogren's syndrome!I was diagnosed about 2 years ago with it.
That at least makes more sense to me now with the genetic component.
After what Aeon shared though I feel truly afraid. What if I let her do this and something happens? How will I ever live with myself?What if we do nothing and she develops psoriatic arthritis? She has been receiving steroid injections in her head once a month for a long time. Other than when we did the laser treatments that's how we have handled it. The skin on her scalp is starting to thin so that is not even an option. The only topical she uses now is RX shampoo. We gave up on all the creams and foams. I just dont know what to do.

Little Missy 03-02-18 08:53 AM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
What exactly are the ingredients in that Rx shampoo?

Sarah, I went through HELL for 2 years while seeing every doctor, dermatologist, and even an infectious disease doctor??!!! It was so bad the skin had thinned to where it weeped water 24 hours a day.

Every doctor poker faced me and gave me another ointment, stronger and stronger, I had to look it up online to find the culprit.

Methylisothiazolinone is SO bad the UK surprisingly had already outlawed its use. Now they call it MI or ME allergen.

It is in almost every single shampoo on the market. A preservative. It is in every soap that is liquid. It doesn't matter that it is on her head, it touches the skin and travels throughout the body. Make-up, skin creams, and on and on. You'd think it could be washed off but it can not. Skin and scalp or whatever is a porous sponge.

I will tell you one good thing! The body can heal itself amazingly. I went from open red skinless weeping meat to perfect skin. When I stopped using all of the prescribed medications, I went through withdrawals for months.

Little Missy 03-02-18 09:06 AM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
This is what I would do. For one month only rinse her hair with apple cider vinegar. One month. Nothing else. It is only a month but it could make the difference you can see and begin the healing.

Nothing at all on her head but apple cider vinegar. Bragg's with the Mother in it.

Hey, it is worth the try and it may do the trick.

sarahsweets 03-02-18 09:25 AM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
Thanks for the support call Mis. I will try the apple cider vinegar. We have at least a month before any decsion has to be made because she needs blood work and of course you have to deal with insurance. At this point Im desperate. Imagine if apple cider vinegar worked?? I would be thrilled.If it does work what's the follow up like? Every day still or once a month? Once a week. I think its hard for people to understand the gravity of the situation here. Unmangeable: I know you are very diet oriented and you know I have taken your advice about somethings (Im considering going vegan at this point) but in this case I think we are well beyond the point of diet addressing anything like this.

Lunacie 03-02-18 11:12 AM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
Quote:

Originally Posted by Little Missy (Post 1987220)
What exactly are the ingredients in that Rx shampoo?

Sarah, I went through HELL for 2 years while seeing every doctor, dermatologist, and even an infectious disease doctor??!!! It was so bad the skin had thinned to where it weeped water 24 hours a day.

Every doctor poker faced me and gave me another ointment, stronger and stronger, I had to look it up online to find the culprit.

Methylisothiazolinone is SO bad the UK surprisingly had already outlawed its use. Now they call it MI or ME allergen.

It is in almost every single shampoo on the market. A preservative. It is in every soap that is liquid. It doesn't matter that it is on her head, it touches the skin and travels throughout the body. Make-up, skin creams, and on and on. You'd think it could be washed off but it can not. Skin and scalp or whatever is a porous sponge.

I will tell you one good thing! The body can heal itself amazingly. I went from open red skinless weeping meat to perfect skin. When I stopped using all of the prescribed medications, I went through withdrawals for months.

I had horrible bumpy itchy skin all around my hairline for years. I finally found
a shampoo that didn't do this to me, Jhirmack. But it has methylisothiazolinone.
What shampoo do you use?

Unmanagable 03-02-18 11:18 AM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
I thought I was beyond all help, too, in many regards, especially where I'd been desperately seeking medical help unsuccessfully for years on end, until I drastically changed my diet and stopped using all of the highly artificial products, both inside and out. That's where I found my most sustainable saving grace, so to speak. I felt like it was either change my consumption habits or die an early death, and I don't think I was too far off in my assumptions.

I'm surrounded by folks in real life who "just can't give "that" up", and tend to think I'm crazy for doing so, "because it tastes too good", yet they continue to suffer like a mofo day in and day out with various forms of serious auto-immune related issues and tons of other ongoing and growing issues.

They'll very happily try any and everything else a doc recommends, other than eliminating products and ingredients for a long enough period of time to see how their body actually responds, usually expressing that it simply feels way too extreme/too limiting/too expensive/too uncomfortable/insert other reasons here to give up something they really like to taste, slather on, or smell to see what help may or may not come from trying.

That's why I stress it in damn near every response because of the dramatic and positive differences/sustained relief I personally experienced from many things that had been repeatedly diagnosed to be life-long struggles that would only serve to further debilitate me and would definitely require ongoing pharmaceutical/over the counter meds of some sort. I've since learned differently on a much grander scale than I ever thought was possible.

Food and all the products we use cause many chemical reactions, and some can be very similar to what we're being told to take (hence the reference by Hippocrates to "let food be thy medicine", in my opinion), those just aren't often discussed by medical professionals because they aren't taught that much about it in medical school. Just ask them. I never believed any of that stuff would work, either, until it did.

Apple cider vinegar is fully stocked in my bathroom and kitchen. Great suggestion. It's used topically as a hair rinse once or twice a week and a skin toner every other day or so (diluted with a little water), and taken internally as a shot in the morning right before my lemon water and herbal infusions, and/or in various recipes now and then. Good and powerful stuff. It was a huge help during my second gall bladder attack, too, in helping me not have to take another trip to the ER.

I know it's scary as f*** and way more complicated than it needs to be. I wish her well in finding relief. I really do. I strongly feel until we as a species can finally learn that what goes in and on our bodies (be it substances/thoughts/scents/energetic exchanges/etc.) must come out in some form or another, we'll continue to suffer greatly and feel helpless and desperate more often than not.

I also strongly feel there's a reason the stuff that makes us the most ill is the stuff that's "conveniently" made most affordable, as it helps create much return business for many, but that's a whole other thread. "Let Them Eat Junk" is a great book Abi shared with me years ago that was quite an eye-opener in addition to all the other mountains of stuff I read and tried while I was too sick to venture out.

Unfortunately, society as a whole puts most of that knowledge, as well as the cleaner options, just out of reach by not offering those types of methods via insurance-approved options, regular "wellness" visits, or other affordable outlets, and that really p***** me off. Not many folks can afford to fund or have their names attached to studies that could potentially put several industries out of business.

aeon 03-02-18 12:13 PM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
I used to use Pantene...but then they added methylisothiazolinone.

Now, Iím OGX. http://www.sympato.ch/smileys/Yaisse.gif

https://www.ogxbeauty.com/wp-content...ampoo-13oz.jpg


Cheers,
Ian


p.s. for some reason the forum is not rendering images and has removed the img tag from the editor.

Lunacie 03-02-18 12:25 PM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
Quote:

Originally Posted by aeon (Post 1987244)
I used to use Pantene...but then they added methylisothiazolinone.

Now, Iím OGX. http://www.sympato.ch/smileys/Yaisse.gif

https://www.ogxbeauty.com/wp-content...ampoo-13oz.jpg


Cheers,
Ian


p.s. for some reason the forum is not rendering images and has removed the img tag from the editor.

From what I can find, most of those products have coconut oil or cocoa butter,
and scent of some kind. All of which I'm allergic to. :(

Little Missy 03-02-18 01:07 PM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
Garnier Fructis Volume Extend. They quit making it and I just had a feeling they might so I bought 6 giant bottles a year ago.

I can see the image Ian. I've seen it here.

Lunacie 03-02-18 01:18 PM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
Quote:

Originally Posted by Little Missy (Post 1987248)
Garnier Fructis Volume Extend. They quit making it and I just had a feeling they might so I bought 6 giant bottles a year ago.

I can see the image Ian. I've seen it here.

Yeah, that's happened to me, I've found something I wasn't actually allergic to
and they stopped making it. Ugh. I think my daughter used to use that and the
smell was something I could smell all the way from her bathroom to my desk
here in my room, over 70 feet away. She is allergic to some things, but usually
not the same things that affect me.

Scootdeedee 03-03-18 05:14 AM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
Quote:

Originally Posted by sarahsweets (Post 1987222)
Thanks for the support call Mis. I will try the apple cider vinegar. We have at least a month before any decsion has to be made because she needs blood work and of course you have to deal with insurance. At this point Im desperate. Imagine if apple cider vinegar worked?? I would be thrilled.If it does work what's the follow up like? Every day still or once a month? Once a week. I think its hard for people to understand the gravity of the situation here. Unmangeable: I know you are very diet oriented and you know I have taken your advice about somethings (Im considering going vegan at this point) but in this case I think we are well beyond the point of diet addressing anything like this.

Hi, Iím new here but I feel I must reply to your comment above where you say that your daughterís issues are well beyond being addressed by diet modifications.

I couldnít disagree with you more!

Food/diet can have a massive immediate and or chronic impact on health even to the extreme of anaphylactic shock leading to death with allergies.

Autoimmune diseases are epigenetic just like adhd, thatís why different autoimmune diseases run in families. Itís not a coincidence, there is usually a common allergen or intolerance usually gluten or dairy or soy.

Most immune cells are also found in your gut as a first line defence against foreign bodies including food proteins. Unfortunately people with autoimmune disorders also tend to have more permeable gut linings leading to larger proteins being absorbed and stimulating the immune system adversely. Steroids also make the gut more leaky.

So a mismatch between your diet and your epigenetics leads to diseases like psoriasis and celiac etc.

My husbandís family has many autoimmune diseases with his mother suffering from 3 of them. He has celiac and psoriasis himself which have both been put into remission by following a strict Autoimmune Paleo diet.

It may be initially challenging but it sure beats a lifetime of expensive toxic drugs. Plus the only long term side effect of dietary modifications is weight loss and good health :)

I would urge you to google psoriasis gluten intolerance and celiac disease and start researching the links. There is a good chance that this is the root cause of your daughterís issues. Just like with Adhd, do not rely on doctors to know everything or what is best for you or your child.

Can you see that treating the symptoms of psoriasis will not and cannot cure it, or prevent further immune system damage?

I hope that my experiences in helping my husband may help you.

sarahsweets 03-05-18 11:05 AM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
Quote:

Originally Posted by Scootdeedee (Post 1987340)
Hi, Iím new here but I feel I must reply to your comment above where you say that your daughterís issues are well beyond being addressed by diet modifications.

I couldnít disagree with you more!

Food/diet can have a massive immediate and or chronic impact on health even to the extreme of anaphylactic shock leading to death with allergies.

Autoimmune diseases are epigenetic just like adhd, thatís why different autoimmune diseases run in families. Itís not a coincidence, there is usually a common allergen or intolerance usually gluten or dairy or soy.

Most immune cells are also found in your gut as a first line defence against foreign bodies including food proteins. Unfortunately people with autoimmune disorders also tend to have more permeable gut linings leading to larger proteins being absorbed and stimulating the immune system adversely. Steroids also make the gut more leaky.

So a mismatch between your diet and your epigenetics leads to diseases like psoriasis and celiac etc.

My husbandís family has many autoimmune diseases with his mother suffering from 3 of them. He has celiac and psoriasis himself which have both been put into remission by following a strict Autoimmune Paleo diet.

It may be initially challenging but it sure beats a lifetime of expensive toxic drugs. Plus the only long term side effect of dietary modifications is weight loss and good health :)

I would urge you to google psoriasis gluten intolerance and celiac disease and start researching the links. There is a good chance that this is the root cause of your daughterís issues. Just like with Adhd, do not rely on doctors to know everything or what is best for you or your child.

Can you see that treating the symptoms of psoriasis will not and cannot cure it, or prevent further immune system damage?

I hope that my experiences in helping my husband may help you.

Yes, I can see that and let me be clear on one thing: She decides. If she is too scared then thats her choice and i am not the kind of mother to usurp he power of her own body. I did the same things with my kids and adhd meds. When they decided to stop taking them in their teens I did not force them to continue even though I did and still do think they need them. Ella has adhd too but was never on stimulants because she couldnt tolerate them. I will look into dietary changes to try and I am also going to start the apple cider vinegar rinse that is being recommended. I want whats best for her, but she is at the age where she gets a say in her medical care. I just wanted people to know this and not think I was going to push her into these medications just because I am her mother.

kilted_scotsman 03-06-18 06:32 AM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
Yes.... check out the dietary stuff.... if you think about how our cells live in a soup of nutrients and other compounds dissolved in the solutions of the body....... our cell membranes are permeable and adapt to their environment through highly sophisticated processes that alter the cell wall permeability depending on environment an the cells need.

Our skin is a sort of specialised gut wall what we eat and/or rub on our skin affects the cells of this lining, just as much as it affects the internal linings. The same applies on a microscopic level to the cell wall linings throughout our body.

With things like psoriasis/excema/leaky gut/IBS etc attention to diet and compounds used on the skin needs to be the first approach..... unfortunately the creams etc tend to treat the symptom, not the cause.... so people may have success initially, and continue to eat/apply the problem causing ingredient which continues to weaken the cells that form our primary barrier..... and continue to get into our bloodstream over time this affects other parts of our body.

When skin/gut is showing signs of distress, this is a symptom of something..... not the thing itself, if you get my drift.

sarahsweets 03-08-18 04:45 AM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
Someone on this thread mentioned a psoarisis paleo diet? Am I crazy? I cant find it. Can someone post a link?

Lunacie 03-08-18 11:55 AM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
Quote:

Originally Posted by sarahsweets (Post 1987897)
Someone on this thread mentioned a psoarisis paleo diet? Am I crazy? I cant find it. Can someone post a link?

Maybe a mis-type? I found a whole slew of links with "psoriasis paleo diet".


https://www.google.com/search?q=psor...hrome&ie=UTF-8

Caco3girl 03-08-18 03:27 PM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
Now we are talking MY alley. Methylisothiazolinone is an effective preservative. It is not part of the ingredient list that actually cleans. Many water based liquids with a pH of 4-10 can and will grow mold and bacteria if there is no preservative added.

Triclosan is also one of the bad" preservatives...really anything that is a formaldehyde creator should be avoided. Johnson and Johnson got into HUGE public trouble a few years ago when it was discovered that they sold different versions of their products in the UK, but sold the banned material in the US...and even had it in their baby shampoo.

If anyone wants to send me a message asking about other ingredients or the safeness of them feel free. THIS is what I do for a living, I am a formulation chemist.

maple17 03-16-18 04:08 AM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
I can empathise Sarah. We're facing something similar with Miss 13 and the IV bisphosphonate that we are likely starting next month. The side effects are not great, but as she has wedging in her spine already and the start of compression fractures, doing nothing is not an option. So, it's lots of hoping for the best here. Luckily, Miss 13 is not against the meds. She's already lost so much with being restricted in activities in her daily life.

natnatroswell22 04-27-18 01:52 AM

Re: Ella is scared about moving on to biologics for her psoriasis.
 
I'm so sorry to hear that sarah, I am hoping for your daughter's fast recovery. Just keep elavating her hopes and keep giving her advices. Every pain has cure and it always involves risks upon healing it :) fighting.


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