Chronic Fatigue Syndrome & Fibromyalgia and its connection to Celiac's disease

[CheekyMonkey]

Originally Posted by Drewbacca

If the gluten-free diet works, then I think you already have your answer... unless the celiacs is somehow contributing to thyroid disfunction.

Unfortunately for me, the no gluten diet didn't seem to help. I'm currently reevaluating my diet. My next experiment is to reduce sugar/carbs and watch for blood spikes. I've already started a food diary, but I'm going to add frequent blood-glucose level checks to my data and start to look for patterns.

Celiacs have a higher chance for having hypothyroidism.

[jiffyPOP]

Originally Posted by Drewbacca

Unfortunately for me, the no gluten diet didn't seem to help. I'm currently reevaluating my diet....

drewbacca,
How long did you do gluten free diet? I keep making mistakes and consuming gluten , however I feel great when I do well on the diet for as short as 7 straight days. But I read it can take 6-9 months to feel the real benefits of the diet.

I am unorganized in my grocery shopping. I am REALLY trying to cut out gluten but making mistakes when out enjoying my social life . I don't want to be 'that guy'. I need to get over it and stop all gluten for 6-9 months.

[CheekyMonkey]

Originally Posted by jiffyPOP

drewbacca,
How long did you do gluten free diet? I keep making mistakes and consuming gluten , however I feel great when I do well on the diet for as short as 7 straight days. But I read it can take 6-9 months to feel the real benefits of the diet.

I am unorganized in my grocery shopping. I am REALLY trying to cut out gluten but making mistakes when out enjoying my social life . I don't want to be 'that guy'. I need to get over it and stop all gluten for 6-9 months.

Once you do it for a while it is pretty easy. Maybe I'll start a gluten free thread where people can put their recipes, ideas, insights.

[Drewbacca]

Originally Posted by jiffyPOP

drewbacca,
How long did you do gluten free diet? I keep making mistakes and consuming gluten , however I feel great when I do well on the diet for as short as 7 straight days. But I read it can take 6-9 months to feel the real benefits of the diet.

I am unorganized in my grocery shopping. I am REALLY trying to cut out gluten but making mistakes when out enjoying my social life . I don't want to be 'that guy'. I need to get over it and stop all gluten for 6-9 months.

My diet lasted a little over one year. I was gluten/gliadin free, dairy/casein/egg free as well as a handful of other things.

I won't lie it's a pain. Depending on where you live, it may be difficult or it might be easy. Urban areas tend to have safe restaurants that you can visit.
Once you figure out what works, find a few recipes, etc. it's not too bad.
You can get creative. I had put together a coconut based white sauce to use with mixed grain noodles and make a beef stroganoff, and it was good enough that company would eat seconds.

[CheekyMonkey]

Originally Posted by Drewbacca

My diet lasted a little over one year. I was gluten/gliadin free, dairy/casein/egg free as well as a handful of other things.

I won't lie it's a pain. Depending on where you live, it may be difficult or it might be easy. Urban areas tend to have safe restaurants that you can visit.
Once you figure out what works, find a few recipes, etc. it's not too bad.
You can get creative. I had put together a coconut based white sauce to use with mixed grain noodles and make a beef stroganoff, and it was good enough that company would eat seconds.

It isn't so bad, but I definitely wouldn't volunteer myself for it.

[ryan4745]

Originally Posted by Drewbacca

I'm hearing that response more often than I feel comfortable with. I don't know enough to declare that the current tests are inadequate, but it sure feels that way. Thus, why I asked. Thank you for responding.

I'm getting to a point where I'm hoping to find a doctor that is willing to experiment or try some different tests. Maybe I'll start reviewing the current system in the academic journals and see if I can find any criticism of the blood test from a reputable source... It would be nice to have something that we could all print out and show to our doctor.

I'll look into doc Lowe. Thanks for the suggestion.
Your links are broken though, perhaps this is the same thing? http://www.stopthethyroidmadness.com...r-john-c-lowe/

Wow, yes the link to his site is broken because sadly, he passed away just recently. The link you provided from stopthethyroidmadness should be a good resource. STTM integrates some of his beliefs, and is a good resource for thyroid on its own, so you should be able to refer to that.
Its really unfortunate to hear he passed away. I followed his site for many years, and used his book to educate myself on the topic ("The Metabolic Treatment of Fibromyalgia").

[ryan4745]

Originally Posted by Waterbegone

Do you have high pulse when you take the cytomel andd adderall together? My pulse since adding adderall is over 105 when standing.

For the most part, I do not have a high pulse being on both of them. Resting HR with both of them is about 70-80 bpm. Sometimes it can get a bit high like 100-120, but thats not when resting-- only when very stressed/ hurried or walking fast or whatever.
When I tried on my own to increase the cyt dose slowly up to 62.5, 75, 85mcg/day-- it did increase to 100+bpm resting, and for me that was a bit high esp with adderall. So that helped titrate the dose.

[tudorose]

I have RRV which presents like CFS and Fibro (and can be a precursor to CFS). I find that stress is the biggest issue.

Diet wise it's not just gluten but dairy for me. If I eat dairy I end up in a lot of pain in the joints and muscles and lymph glands.

[Waterbegone]

Originally Posted by ryan4745

For the most part, I do not have a high pulse being on both of them. Resting HR with both of them is about 70-80 bpm. Sometimes it can get a bit high like 100-120, but thats not when resting-- only when very stressed/ hurried or walking fast or whatever.
When I tried on my own to increase the cyt dose slowly up to 62.5, 75, 85mcg/day-- it did increase to 100+bpm resting, and for me that was a bit high esp with adderall. So that helped titrate the dose.

Good point my pulse is over 100-115 but I just had coffee and the meds just kicked in- I think mine has to do with not having enough electrolytes and sodium bc I sweat a lot, drink coffee and wine - I notice when I used electrolytes or add sea salt it drops down.

Over the last 3 days I've cut back the cytomel and yest and today didn't take any to see if my dr was right- he said I may not need t3 and it could be causing temporary hypert so I'm trying it and I am less bloated and not as stressed but pulse still super high...but I'm on. T4 as well

[Drewbacca]

I'm a bit skeptical regarding NDs and I haven't reviewed the cited sources...
But this link seemed related to this thread: http://www.vrp.com/stress/the-many-f...d-fibromyalgia

[Lunacie]

Originally Posted by Drewbacca

I'm a bit skeptical regarding NDs and I haven't reviewed the cited sources...
But this link seemed related to this thread: http://www.vrp.com/stress/the-many-f...d-fibromyalgia

I've been wondering for quite some time about the link between ADHD and
Migraine Disorder - this article says the link may be low levels of seratonin.

Looks like I got a double whammy genetically. My mom's family has a
history of ADHD and ASD, while my dad shared his genes for Migraines.

It looks like 5-HTP costs more than the generic zoloft I'm taking now, so I
don't know if I could afford to give the supplement a trial run.

[Drewbacca]

Originally Posted by Lunacie

I've been wondering for quite some time about the link between ADHD and
Migraine Disorder - this article says the link may be low levels of seratonin.

Looks like I got a double whammy genetically. My mom's family has a
history of ADHD and ASD, while my dad shared his genes for Migraines.

It looks like 5-HTP costs more than the generic zoloft I'm taking now, so I
don't know if I could afford to give the supplement a trial run.

There's definitely a migraine-serotonin connection, I keep stumbling on that in the academic resources too. I was going to suggest that my brother try one of the supplements. He's the only one that suffers an outright migrane problem... most of my family only has a problem with red wine which probably isn't related to serotonin... but then, maybe it is. More stuff to research! LOL

http://www.achenet.org/resources/ser..._and_headache/

After adjusting to my sertraline, I've noticed a significant decrease in my IBS symptoms. I now only seem to have a reaction when I consume dairy or get dehydrated.