ADDF clinical research!! - Page 8 - ADD Forums - Attention Deficit Hyperactivity Disorder Support and Information Resources Community

Lunacie · #**106** 10-05-12, 04:49 PM

Quote:

Originally Posted by Drewbacca

Does that make you an ABBA fan?

I'll get back to you on that.

**Amtram** · #**107** 10-05-12, 04:53 PM

Yes. If it stands for "Amtram's Big Bony Anomaly."

So there.

**Amtram** · #**108** 10-07-12, 10:09 AM

Difficulty with speech has increased noticeably in the last couple of days. It doesn't persist, kind of happens in clumps, and isn't related to the complexity of the words, either. I'm finding that I have to do that word substitution thing mentioned in the description of expressive aphasias, which I hadn't had as much trouble with before.

I'm also finding that in order to read, I kind of have to line my nose up with the right hand edge of the monitor so that I'm looking at text almost exclusively with my left eye. Perceptually, I don't consciously notice a deficit in my peripheral vision or object recognition on the right, I just don't seem to process it.

I've tried turning my head when reading to see what happens if I focus on the text using my right eye, and it's pretty bizarre what happens - I immediately get a sensation like an SSRI withdrawal brain zap (and that might be involved, since it's been only a couple of weeks since I stopped Viibryd) but it's almost like a pop between understanding what I'm seeing and not understanding it. It's there, and I know what it is, but it's jumbled up.

It reminds me of one of the patients in an Oliver Sacks book (don't recall which one) who had perceptual blindness because of occipital lobe damage. His eyes worked perfectly well, and he could navigate himself in space with little assistance, but he was functionally blind - couldn't interpret the information his eyes were trying to send. It's a strange thing to think about, and even more odd to be getting a taste of. . .

Drewbacca · #**109** 10-07-12, 04:07 PM

I find it interesting that you mention both the expressive aphasia and vision issues in the same post. I have always struggled/used word substitution. I also suffer from strabismus which frequently causes my mind to simply block out the information coming from my non-dominant right eye; sometimes, when it is active I get double-vision.

ADHDTigger · #**110** 10-09-12, 03:55 AM

Trammie, I hope you get to read this...

You need silver things and toys that you can touch and play with. You need Silly Putty and Play Doh.

You need things that are tactile to play with as you recover. Truly, this is helpful.

Mostly, you need to recover.

We need you to keep us thinking. We need you because we love you. I need you.

Can someone let us know how you are as this all progresses?

(((HUGS))) and everything I can think of...

**Amtram** · #**111** 10-09-12, 06:22 AM

Hubby has created an account here, and promised to log in once I'm out of surgery (Two days!!! Woohoo!!). I don't think I'll be able to get onto the internet while I'm in the hospital, but there are a couple of people I can get in touch with surreptitiously on the phone from there, I think.

danelady · #**112** 10-09-12, 12:14 PM

Big hugs and well wishes and healing thoughts to you!

Conman · #**113** 10-09-12, 12:36 PM

have fun! haha

**Amtram** · #**114** 10-09-12, 12:50 PM

I was playing around with testing the limitations of my vision, because I want to be better able to gauge the changes after surgery, and I noticed a few things.

I actually can read with my right eye, it's just harder, and the peripheral vision in that eye is significantly less than in the left. Closing my left eye, it's like I'm suddenly seeing things through a semi-opaque tube. So some of the reading difficulty is coming from the smaller field of vision that makes it harder to see more than a few words at a time clearly.

Another strange thing is that in my right eye only, I'm seeing "ghosts" of text! If you wear corrective lenses and have astigmatism in one or both eyes, you're familiar with this effect. However, it usually comes from the conflicting input from the two eyes. This is happening without any input from the left.

On the simple explanation side (pressure on the left side of the cerebellum) my right foot is starting to drop. Not so much that I trip or can't lift it, but it flops down when I'm walking. I should actually notice an improvement on this and the other motor issues on my right side before anything else.

Two more days to go!

**Amtram** · #**115** 10-10-12, 10:12 PM

Tomorrow's the day. I'm hoping that when I get back here, I'll be able to tell about some changes I've noticed already from my brain having its skull back to itself again!

Unmanagable · #**116** 10-10-12, 10:41 PM

Sending you tons of love and thoughts for continued strength and some speedy healing.

((((((Hugs))))))

Soliloquy · #**117** 10-11-12, 03:02 AM

There's nothing like coming in at the last minute! I have just joined the forum and immediately noticed your post. I can't express how amazed and touched I am by your willingness to share this journey with us. My thoughts and well wishes will be with you today and I'm sending an extra-special virtual bear hug! So looking forward to following your recovery story!

Humbled by your strength and also thinking of your family today. Silver hugs!!!

Emtram · #**118** 10-11-12, 02:06 PM

Amtram is out of surgery. Her doctor said things went better than he had expected. Roscoe was all bone.

**BR549** · #**119** 10-11-12, 03:39 PM

Quote:

Originally Posted by Emtram

Amtram is out of surgery. Her doctor said things went better than he had expected. Roscoe was all bone.

GREAT NEWS!!!!!! Thanks for giving us the update! I'm assuming she's still in recovery or has she been moved? Please continue to keep us posted and give her BIG HUGS from all of us!!

mctavish23 · #**120** 10-11-12, 04:23 PM

Ditto on HUGS and Please Keep Us Posted.

tc

mctavish23

(Robert)

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