ADDF clinical research!! - Page 9 - ADD Forums - Attention Deficit Hyperactivity Disorder Support and Information Resources Community

Lunacie · #**121** 10-11-12, 04:26 PM

Hugs and healing energies from me!!!

Good news is always welcome!

ADHDTigger · #**122** 10-12-12, 12:43 AM

Em, snuggle the Am for me.

I just want my friend to be okay. Your h*ll is a whole different thing. Believe me, I know that h*ll.

Thank you for posting and letting us know how your precious- and ours- is doing.

(((hugs)))

salleh · #**123** 10-12-12, 03:34 AM

I love it when doctors say that things went better than expected .....this is fabulous news .....gentle hugs for you Amtram .....now I can't see, there's all this water in my eyes.....

Unmanagable · #**124** 10-13-12, 04:02 AM

Quote:

Originally Posted by Emtram

Amtram is out of surgery. Her doctor said things went better than he had expected. Roscoe was all bone.

ginniebean · #**125** 10-14-12, 02:04 PM

Oh Amtram! I can't express my hopes and reliefs for you, I know you feel us pulling for you and how much we care. Sending you much love.

Dizfriz · #**126** 10-14-12, 04:10 PM

Quote:

Originally Posted by Emtram

Amtram is out of surgery. Her doctor said things went better than he had expected. Roscoe was all bone.

Whew! Slowly releasing breath......

Dizfriz

danelady · #**127** 10-14-12, 04:35 PM

Sooo very happy things went well!

Woo hoo!!!

Luvmybully · #**128** 10-14-12, 04:36 PM

Been thinking of you Amtram! Hope you have a speedy recovery!

Unmanagable · #**129** 10-15-12, 01:28 PM

Hoping each day is bringing with it a lot more healing and a lot more "feel better".

Thinking about ya'll.

((((Hugs))))

danelady · #**130** 10-15-12, 01:53 PM

Thinkin' of ya and hopin' things are comin' along as they should!

Amtram · #**131** 10-16-12, 11:35 AM

I'm just popping in here briefly to thank everyone for their support, and give an update. . .

I'm still in some pain, although it's mostly incision pain and swelling, pretty much manageable with extra strength acetominophen. Very, very, very tired.

Some things changed dramatically immediately after surgery. In the recovery room, I opened my eyes, and my peripheral vision was back in all its stunning myopic glory! I also noticed physical sensation in my right hand and foot that had been lost so gradually I hadn't been aware of how different it felt. The next 24 hours in ICU, I didn't notice much except that morphine has absolutely no effect on pain in me - and yet the night nurse's solution when I was in tears from the pain was to give me more of it. I was of sound enough mind to tell her "I'll wait until you contact my doctor and get permission for dilaudid, OK?" Sheesh.

Once I was in a regular room, I tried to get up and around as much as possible. Since most of my time was spent sleeping, that didn't amount to much, but it was wonderful to discover that my sense of equilibrium was back, and I was walking straight, no wobbling, no foot drop on the right, no odd visual perceptions of movement around me.

The next day, things were happening that indicated that my brain was relaxing into the newly vacant space. If you look at a horizontal cross-section of the sinuses, you will see that they look sort of like a Tim Burton-esque tree - a long straight trunk with equal pairs of curved branches coming out from either side. Mine were not quite straight like that, and on the second day, they started to snap back into their rightful places with audible clicks. (Audible to me, at least!) My tinnitus is back down to a more ignorable level, and the overwhelmingly loud single tone that was in my left ear only was gone.

The day after, I was awake enough to attempt reading, and I can do it again! Still need a larger type for the computer, though. My left eye isn't working as well as my right, because it was under so much pressure that has now been removed, but I don't have the ghost images in either that I did before surgery.

Word loss is still a problem, but I can see that it may be quite a bit more time before I can learn to compensate for that or overcome it, but I was able to converse in Spanish with the lovely lady who came in to clean my room every day, so I haven't lost everything!

My doctor said that everything came out pretty neatly, some tissue attached to the tumor, but it hadn't invaded the dura, and was completely encapsulated. We're waiting for the pathology report, but the pathologist's initial diagnosis of Roscoe was "meh." (Literally. This was my doc quoting the pathologist!) The skull was too deformed to resect, so I now have a piece of custom plastic cement, and I could really carry off the bald look as a fashion if it weren't for the giant incision taking away from the glorious shape of my naked head!

Lunacie · #**132** 10-16-12, 11:44 AM

AMTRAM !!!

Good to see you on here. And wonderful to hear so many of the problems seem to be resolving now!

Feel like I should make a joke about the plastic skull - but can't think of any.

(((hugs))) Good thoughts and healing energies still heading your way.

**meadd823** · #**133** 10-16-12, 06:50 PM

I am happy to hear things went well - as I was confident they would!

Good to see your return here regardless of how briefly.

That both feet walking thing does improve gait much like disappearing ghost imagery does reading ability.

Unmanagable · #**134** 10-17-12, 01:20 AM

So glad to see ya' on here, Amtram!!

(((((Hugs)))))

Ever since your husband posted that Roscoe was all bone, I've been trying to come up with a good bone head joke.

Luvmybully · #**135** 10-17-12, 09:40 AM

YAY! Amtram! What awesome news to hear of so many immediate improvements!

SOOO good to hear from you...

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