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Old 07-03-10, 05:52 AM
kayleesmom kayleesmom is offline
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looking for how to help my daughter while waiting for eval appt

Hi mama i seen your post about links to great info on adhd.
lets start off and say that I have adhd/bipolar now. I am 31 and was diagnoised at 5 with adhd. sooo ago. my hubbys siblings all have adhd. And now I am seeing it in my daughter now almost 6 yrs old. We have a developmental evail set up for sept 1st for her. But even from the age of 2 her pedi said she was a very active child. and i would say do u think adhd in future and doc was like i cant diagnose that 2 but i will say she is a very active child.

She was delayed in talking and went through EI. then when she was 3 she went to a little of preschool and 2nd day the teacher was in shock that she didnt know her colors. then at 4 she went a full year of preschool and from the beginning to end of preschool she did not make much if any improvments although teachers then said she would sit for circle etc. but even by end of year almost 5. she couldnt recognize her name. so we went straight to pedi to get her evaled. well needless to say we got her evaled in oct 2009 by her pedi for all developmental stuff( her doc is developmental Pedi) this was easier to go through her at time we thought instead of getting on a year waiting list at bostons childrens.

the pedi gave me a short rundown after the eval and said that kaylee possibly had a processing disorder. well then doc got very sick and never ended up sending along the full report to her school. so when we went to try and get her IEP in early Nov. The pyschologist said she had spoke to doc but that they still werent sure if was processing or anxiety. and so they denied giving her a IEP because the school said unless she has a documented developmental delay in the state on NH they dont give a IEP. So doc stated she would write in the report that kaylee has a developmental delay which i believe is true becuase she doesnt seem to record info and keep it in her head. but then she knows how to describe a item for instance if u say kaylee what is this(picture of doorknob your are showing her) she cant tell you taht it is a doorknob but she can tell you what it does but cant pinpoint the word. so needless to say she didnt make much progress in Kindergarten. they did give her reading help.

but now we moved on to getting her evaled in NH childrens shorter wait than boston. but she bounces off the wallls never calms down. is always in motion. she says when there is to much going around her for instance that her brain is going to explode(tooo much noise example). sorry for just a long email. but maybe you can help me understand ADHD more i have it but never really learned about I just know what I went through in school but i was also medicated. she is not at the moment. What things can i do to help her while waiting for the eval/a diagnosis of something. thanks so much

Last edited by Lady Lark; 07-03-10 at 10:59 AM.. Reason: added paragraph breaks
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Old 07-03-10, 10:24 AM
insight needed insight needed is offline
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Re: looking for how to help my daughter while waiting for eval appt

It sounds like you are on the right road with a full developmental eval. set up for Sept. 1. Most likely you will not get any action from the school district until they have the results. However, I really don't understant the following statement: "The pyschologist said she had spoke to doc but that they still weren't sure if was processing or anxiety. and so they denied giving her a IEP because the school said unless she has a documented developmental delay in the state on NH they dont give a IEP." There are many reasons that a child might qualify as "exceptional" and in need of special education services. A documented developmental delay is only one of them.

Hopefully the developmental evaluation will include a speech and language evaluation, if not, I would specifically request one.

As far as what you can do until the evaluation, I would just suggest keeping a lot of structure in her day. Keep her diet healthy, minimize sweets, make sure that she has lots of opportunities to play outside in an active way, such as riding her bike and playing on playground equipment. Many children (ADHD and "typical" kids) have an easier time sitting and focusing following a period of physical activity.

Do lots of "hands on" things when indoors. Have her help you in the kitchen by wiping and setting the table, ripping up the lettuce for salad, mixing batter etc.

Mimimize TV and videogames and get out the old fashioned things like Play-doh and blocks; play with her and talk about what your are doing and building. Talk concepts like, "I'm going to put this red block on top of the yellow block to make a roof, then we can put the car inside the little garage that we made". Ask questions that stimulate thinking, "Do you think this is the right size lego to fit in this space?". Read to her frequently and stop to ask questions like "What do you think will happen next?"

I mean this in the nicest possible way, but when you write a long post, try to break it into paragraphs using the space bar. The big block of text is hard to read, especially for people with ADHD...
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Old 07-03-10, 10:58 AM
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Re: looking for how to help my daughter while waiting for eval appt

Quote:
Originally Posted by kayleesmom View Post
Hi mama i seen your post about links to great info on adhd.

lets start off and say that I have adhd/bipolar now. I am 31 and was diagnoised at 5 with adhd. sooo ago. my hubbys siblings all have adhd. And now I am seeing it in my daughter now almost 6 yrs old.

We have a developmental evail set up for sept 1st for her. But even from the age of 2 her pedi said she was a very active child. and i would say do u think adhd in future and doc was like i cant diagnose that 2 but i will say she is a very active child. She was delayed in talking and went through EI. then when she was 3 she went to a little of preschool and 2nd day the teacher was in shock that she didnt know her colors.

then at 4 she went a full year of preschool and from the beginning to end of preschool she did not make much if any improvments although teachers then said she would sit for circle etc. but even by end of year almost 5. she couldnt recognize her name. so we went straight to pedi to get her evaled. well needless to say we got her evaled in oct 2009 by her pedi for all developmental stuff( her doc is developmental Pedi) this was easier to go through her at time we thought instead of getting on a year waiting list at bostons childrens.

the pedi gave me a short rundown after the eval and said that kaylee possibly had a processing disorder. well then doc got very sick and never ended up sending along the full report to her school. so when we went to try and get her IEP in early Nov. The pyschologist said she had spoke to doc but that they still werent sure if was processing or anxiety. and so they denied giving her a IEP because the school said unless she has a documented developmental delay in the state on NH they dont give a IEP.

So doc stated she would write in the report that kaylee has a developmental delay which i believe is true becuase she doesnt seem to record info and keep it in her head. but then she knows how to describe a item for instance if u say kaylee what is this(picture of doorknob your are showing her) she cant tell you taht it is a doorknob but she can tell you what it does but cant pinpoint the word. so needless to say she didnt make much progress in Kindergarten. they did give her reading help.

but now we moved on to getting her evaled in NH childrens shorter wait than boston. but she bounces off the wallls never calms down. is always in motion. she says when there is to much going around her for instance that her brain is going to explode(tooo much noise example). sorry for just a long email. but maybe you can help me understand ADHD more i have it but never really learned about I just know what I went through in school but i was also medicated. she is not at the moment. What things can i do to help her while waiting for the eval/a diagnosis of something. thanks so much
Both a processing disorder and an anxiety disorder should qualify your child for an IEP, but the school may be hesitating because having a proper diagnosis would certainly help them tailor the IEP to your child's actual issues. I'm so sorry the doctor doing the first evaluation wasn't able to finish it and submit it to the school. We had something similar happen with my youngest granddaughter when the specialist evaluating her had to move across the state very suddenly.

According to this web page link, children with ADHD do indeed qualify for an IEP in NH schools, but they must have a doctor's diagnosis. Our family physician was able to diagnose my oldest granddaughter with severe ADHD. I don't believe you have to have a specialist do the preliminary diagnosis, although the family doc might refer you to a specialist. Especially if there is a concern about cormorbid issues such as Anxiety Disorder or BiPolar Disorder.

When I learned that my granddaughter (and I myself) probably had ADHD, I began reading. I started with books like "You Mean I'm Not Lazy, Stupid or Crazy?" and "Driven to Distraction." You can usually get a copy of those at your local library.

There is some very good reading right here at ADD Forums in a place called "Dizfriz's Corner", lots of good information there about ADHD and children.

However, your description of your child's behaviors and the mention by the doctor of a processing disorder sounds a lot like my youngest granddaughter, who we suspected had Autism Spectrum Disorder and was finally diagnosed at the age of 8 with Atypical Autism. She also had a speech delay (was four before she spoke the same language we do), didn't know her colors although she knew every shape, and honestly believed her name was "baby" until we worked very hard on convincing her that her proper name was "Nove Mber" and that only the family called her baby.

Pre-kindergarten was a real struggle for her. Kindergarten went better but the school decided she could be mainstreamed for first grade and that was a real nightmare! Finally the principal had a first-hand chance to experience a 3- hour long meltdown and sat down for a really good talk with us. And in second grade, even though she only had a tentative diagnosis of PDD-NOS they were able to tailor an IEP that addressed the issues both they and we were seeing. She made wonderful progress in the second grade. And we're looking forward to another good year, hoping that she will have the same resource teacher (special ed) again this fall.

I'm not trying to diagnose your child from reading just one post, but am pointing out that she sounds very similar to my grandchild who has Autism and Anxiety Disorder, and is a much happier child on meds for the anxiety. Good luck with the evaluation, with finding treatment for your child, and with the school doing their best to teach her in a way she can learn best.


... and ditto what Insight wrote about breaking up a post into smaller paragraphs so those of us with reading/attention issues can understand what you're sharing with us.
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