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Focalin (dexmethylphenidate)

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Old 03-20-09, 04:24 AM
RunningMind RunningMind is offline

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Unhappy Paranoia with Focalin / Concerta

Glad I found this forum - I feel like I need to talk about this but I don't really feel comfortable speaking about this with my friends & family, because it seems like they either think that ADD/ADHD was just "invented" to sell prescription drugs or that it's just the usual lack of concentration that everyone has.

I've been hyperactive (and very distracted) since I was a kid, but I've always gotten by, although I'd often get frustrated with my inability to focus and it's definitely affected my work performance - been stuck in the same position (as a programmer) for many years. I finally got off my butt and went to see a doctor, who diagnosed me with ADHD. So far, I've tried Strattera (just made me spaced out), Concerta and now Focalin.

Focalin is pretty similar to Concerta for me - as advertised, it seems to improve the focus aspect and slightly mitigates the side effects. I'm pretty happy now with the improved focus that Focalin is giving me, but the negative side effects (while less than Concerta) are making me wonder if it's worth it.

1) Insomnia - I NEVER had problems sleeping before I started on the medicine (I could fall asleep easily and sleep like a log). Now, sometimes I have trouble falling asleep or conversely, I'll wake up early (never been a morning person, so this is kind of weird for me).

2) Loss of appetite - I've lost about 15 pounds since I started taking concerta / focalin (not that I'm complaining too much although getting on the skinny side now), but it's definitely been noticable to my co-workers.

3) More emotional - I read somewhere that the opposite extreme chemically of ADHD is manic depression, and I've definitely noticed whereas before I used to be fairly unemotional, now I can have mood swings, from being mildly euphoric to being somewhat depressed.

4) Paranoia - This is the side effect that is really giving me second thoughts. When the medication starts wearing off towards the end of the day, I start feeling like everyone at work either is annoyed with me, thinks I'm crazy or thinks I'm taking illegal drugs. I'm not paranoid to the point where I think the whole world is conspiring against me (except maybe to talk about how weird I'm acting), but it definitely seems like an irrational fear of being disliked - kind of an extreme self-consciousness.

The problem is I can't tell if I really am acting strange because of the medication or if I'm just being paranoid and I'm really acting normal (I'm guessing the reality lies somewhere in between). I find myself apologizing to people for my behavior a lot and I'm kind of expecting to be brought into a drug "intervention" at any time now (don't think the sudden weight loss has helped in that respect). I can sometimes talk myself down and things seem better when the meds completely wear off or when I take the next dose.

Anyway, I'm really torn here. Focalin is the first drug I've tried where I'm pretty happy with the level & duration of focus (definitely improved over Concerta), but I was hoping the negative side effects would lessen more than they have. It seems like the first three side effects I listed are fairly common, although I'm just wondering if anyone else has experienced the paranoia aspect and how they've dealt with it. I'm considering just going off medications completely, but I do remember the frustration before of not being able to focus and feeling like an idiot.
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Old 03-21-09, 02:27 AM
RunningMind RunningMind is offline

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Re: Paranoia with Focalin / Concerta

Just a follow-up. I was feeling fairly disturbed last night when I was writing the last post, so today at work I decided to not take my Focalin dosage for the day. Everything that was distressing me yesterday suddenly felt fairly insignificant and silly today, and everyone I talked to seemed to treat me normally.

On the flip side, while my mind was emotionally calm, I kind of realized what a good job the Focalin was doing in improving my focus - I was back to my old self and I barely got any work done today at all.

Since the side effects don't seem too prevalent on the first day, I'm wondering if I should only use it for 2-3 days in a row and then take a rest day just to let my mind recover...
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Old 03-21-09, 10:21 PM
BingoPajamas BingoPajamas is offline
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Re: Paranoia with Focalin / Concerta

Hi RunningMind,

I started Focalin last week and I haven't yet noticed the side effects you've described, including the insomnia and lack of hunger (I started on 5mg 2x/day and am now up to 10mg 2x/day). But when I started on Vyvanse, I seriously thought I was loosing my mind. I was concerned when Vyvanse didn't work as it took me a long time to get to the point where I thought meds could possibly help, but I was convinced by someone who has dealt with these medications that I shouldn't suffer in silence about my reaction, but talk to my doctor.

My doc assured me that this didn't mean the end of hope for help. He said that reactions to these meds vary greatly among individuals, they don't quite understand why in every case, but that several options exist--which would take some experimentation in order to understand the best option(s) (frustrating but understandable).

My advice is not to settle for feeling overwhelmed by your reaction, but to work with your doc on finding a better solution.

BTW, after I went off Vyvanse I felt immediate relief, and while I was waiting for Focalin to arrive (took over a week), I experimented by taking what's considered a small dose of Vyvanse for an adult (15mg). The problems flooded back, and I have no doubt now that it's not the med for me.

Good luck with your treatment.
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Old 03-27-09, 11:56 PM
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Featherhead Featherhead is offline

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Re: Paranoia with Focalin / Concerta

Stimulant meds often have anxiety and heightened emotional response as side effects, but these should lessen as your tolerance increases. Maybe you're on too high a dose?
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