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Adult Diagnosis & Treatment This forum is for the discussion of issues related to the diagnosis of AD/HD

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  #1  
Old 08-20-18, 06:38 AM
Vicky83x Vicky83x is offline
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NHS reluctant to give me diagnosis, under diagnosing due to lack of funding?

I recently was referred to adhd clinic with the NHS, I suspect I have inattentive add, I also have mild aspergers, dyslexia and dyspraxia symptoms. I also have hearing loss and always had issues with my ears which I've heard is related?
The consultant I saw for my suspected add was very dismissive from the outset of the appointment despite knowing nothing about me and my inability to hold down jobs and other issues, memory, concentration etc, which to be honest I was totally expecting. It seems due to lack of funding in the UK that doctors are under pressure to avoid diagnosis where possible and perhaps also still following outdated guidelines for diagnosis.
The guy I saw said he will do an adhd assessment but he is sure I will not get a diagnosis. He said a few things that concerned me actually, and made me doubt his ability to be in a position to be diagnosing people at all. I mentioned my mother has schizoaffective disorder, as I felt it may be relevant to add in a genetic or environmental sense. I'd handed him some sheets of paper with bullet points listing problems I suspect are related to add I have, he said 'I know you don't have mental health problems as you haven't written on the back of the paper, people who are mentally ill write on the back of the pages'. This instantly made me think does he even know anything and is he really qualified, I thought it seemed like a very flippant and absurd comment? Also I wasn't asking if I'm mentally ill, I just thought it was perhaps important to mention family history. More alarmingly at the end of the appointment I made a point that there is a problem and I just want help getting to the bottom of it, he then said 'maybe you just don't like yourself'. I felt like he was trying to put words in my mouth and discourage me from trying to get a diagnosis, I thought the way he said it was very rude and unprofessional. I also mentioned that I can't hold jobs, I get bored very easy or can't work accurately enough and fast enough and this often leads to me going back to sex work. He said that's okay, that shows that your managing and there's obviously nothing wrong with you and you seem very articulate.
I want to ask are his comments acceptable and professional? What do other people make of this, anyone else had similar experience? I know it is very difficult to get a diagnosis through NHS anyway, especially if you appear normal.
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Old 08-20-18, 07:14 AM
Alphawave Alphawave is offline
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Re: NHS reluctant to give me diagnosis, under diagnosing due to lack of funding?

Hi Vicky, I'm from the UK and managed to get a positive diagnoses for adhd. From what you've said it doesn't seem very professional, they should not be judging you. In the last 20 years I've seen many psychs in a bid to find out the problem (I'm 43). I've never hard anyone mention the term "mentally ill", I've had some that think there's nothing wrong.

I'm not sure how to advise you really except say that you must try and stay in the system. I was always very keen on writing letters when I didn't get the service I was hoping for. Are there any family or friends who could write a letter as well? Don't be angry or rude in a letter, it also gives you the opportunity to give a bit of your mental health history or symptoms. They should send you a summary of the consultation so you could respond to and use this for what you want to say.

Hang in there and let me know how you get on
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Old 08-20-18, 09:56 AM
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Re: NHS reluctant to give me diagnosis, under diagnosing due to lack of funding?

Thanks for the reply!
Did you have to go private in the end?
I did think about writing a letter actually, It's not very reassuring that from the moment you're in the room they are trying to disprove what you suspect rather than asking questions or waiting till the proper assessment to reserve judgement. I'll see what happens following the assessment.
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Old 08-20-18, 11:07 AM
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Re: NHS reluctant to give me diagnosis, under diagnosing due to lack of funding?

Alot of my friends from the uk have had success going private when they didnt have success with just the NHS.
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Old 08-20-18, 12:08 PM
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Re: NHS reluctant to give me diagnosis, under diagnosing due to lack of funding?

Quote:
Originally Posted by Vicky83x View Post
Thanks for the reply!
Did you have to go private in the end?
I did think about writing a letter actually, It's not very reassuring that from the moment you're in the room they are trying to disprove what you suspect rather than asking questions or waiting till the proper assessment to reserve judgement. I'll see what happens following the assessment.
Thanks ��
I went the NHS way, I can't afford to go private. It did mean that I had to wait 6 months for the first appointment. That's why I say stay in the system, don't let them close your file.

I was given an adhd questionnaire for me and a parent to answer (one set was for symptoms as an adult and another was between the ages of 5 and 12). I sent these off and at my fist appointment I was asked to give examples of the symptoms. She could confirm that as an adult I have the symptoms per se but unless they are persistent in childhood as well I couldn't get a positive diagnosis as it's a developmental disorder (or something like that). I was 42 and couldn't remember a lot of what she was asking for as I was 12, 30 years ago (I'm 43 now). We agreed that I'd have my mother attend and maybe she could fill in the gaps for a diagnosis. In between the first appointment and the appointment with me and my mother I did write quite a long letter giving her any info I felt I had missed. I always come out of psychiatric appointments wishing I'd said something I'd forgotten at the time. In the end adhd was confirmed and we began discussing the medication.

Sorry to ramble on but that is what should happen and they are obliged to be courteous and treat you with respect at all times.

Also the questionnaire I had to answer was called a DIVA test. If you Google "adhd diva test", the first result is very similar to the test I had to answer.
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Old 08-21-18, 01:31 PM
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Re: NHS reluctant to give me diagnosis, under diagnosing due to lack of funding?

If you can go private, go private.. then you can return to the NHS for the prescription.

If you have to stay with the NHS it may be a very long road, and to get an Adult ADHD diagnosis requires superhuman and decidedly non-ADD levels of focus and tenacity.

That being said.... there are occasionally beacons of hope out there....
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Old 08-21-18, 04:42 PM
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Re: NHS reluctant to give me diagnosis, under diagnosing due to lack of funding?

Sounds like the guy was very unprofessional you should have asked for a second opinion or complained.

I got a diagnosis in an area with no ADHD specialists from a psychiatrist who is only in the clinic once a week, took me about 3 appointments and 8-9 months to getting medication. Despite me appearing 'normal' in general, it wasn't too hard to get the diagnosis as I brought in a lot of evidence from childhood.

Was it actually an ADHD clinic or just a general mental health clinic?
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Old 08-22-18, 06:32 AM
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Re: NHS reluctant to give me diagnosis, under diagnosing due to lack of funding?

Thanks for your reply, yes it was an actual adhd clinic, as soon as I handed him the list of symptoms he was basically saying everyone has some of these things on the list, it just felt like his agenda from the outset was to not give me a diagnosis and discourage me from perusing it. Everyone could display adhd like symptoms at times, but there is obviously a problem which needs acknowledgement if it's having a serious impact on a person's life. My family joke about me having had more jobs than the job centre, sometimes I've quit jobs myself very impulsively or because I feel I can't hide my difficulties or I'm too slow or make mistakes. I've been bankrupt, divorced and re-married all by the age of 30. I am married now but feel like I don't want to be married anymore. I've just gone back to sex work and this is the only work I seem to be able to stick at for more than 6 months, I have to lie to my family and 14 year old daughter. People describe me as from a different planet, on another level, daydreamy, and very very flighty. An ex suggested me and my daughter have adhd years ago, my daughter can't ride a bike and can't stand labels in clothes and has so many symptoms. The first doctor I asked to refer me was also really dismissive, she didn't refer me and said it's because of my childhood not adhd. She said 'if I'd had a childhood like yours I'd be the same'. However I have a brother and sister who I grew up with who have no problems like me and I would say I'm quite a happy person despite everything. People often also describe me as brave and daring and quite outgoing. So I'm convinced it is add.
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