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Old 11-10-18, 12:11 PM
samiejg samiejg is offline
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Any suggestions on ADD working and inner thoughts?

I've been trying to look up information on inner thoughts and ADD, but only manage to find stuff about people having negative thoughts.

I'm not really sure what I'm asking here. Maybe I'm just looking for suggestions/advice or to even see if what I'm saying makes sense.

I went to the doctor and was put on biphentin until I got up to the max dosage.

It seems that at first or everytime they would up the dosage, it "worked" for me. Like I felt I could focus on tasks, perform better, and think clearly. It also made me feel very awake!

Maybe it's just placebo. But it felt like I could finally hear my "inner thoughts" clearly. Like as if normally I wouldn't have inner thoughts or if I did, the thoughts would just disappear instantly.

Anyways, fastforward 1.5 years later and I've been referred and seeing a psychiatrist who gave me concerta which is also on the max dosage but does not seem to be working.

When I go every 3-4 months I tell her it still doesn't seem to be working and she suggests that I keep taking them and keep trying to get more exercise. Which maybe makes sense because I'm a bit out of shape and I've had issues with being tired in the last couple years but have been working on it after being diagnosed with sleep apnea and using the machine for the last 8 months.

When I asked if there was anything else she could take she seemed dismissive about it and questioned if I wanted to go back to biphentin.

I've been on concerta now for about a year. Any thoughts? Or am I just crazy? :P

Another thought is that maybe the "working" feeling is just me getting high from it? Or maybe I'm fine and I don't even need it, which my wife seems to suggest and that Idon't need to be taking any medication.

But I dunno. It just feels right when it's "working", even for stuff I never realized. The main reason I went is because I've always had a hard time thinking of what to type/write when say... Typing this message, or some sort of report, like where I need to think of what to write.

Often go on a forum like this to write a message like this and take 3 hours to do it. And I'd continously be rereading the last thing I wrote over and over again like I was lost. But reading is always fine.

I THINK the "working" seems to help with that. I could be wrong. But it's just tricky because I know sometimes placebo can play a part. And I had another doctor a few years ago suggesting that I take some hardcore anxiety meds, that my wife didnt want me to take and my family doc didnt think it would help either.

P.s. I also went to the psychiatrist regarding autism as when I was a child there was speculation that I may have it. Now as an adult my child has it and I see similaires so I was curious and she does agree that I am somewhere on the spectrum after doing some testing.
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Old 11-10-18, 01:01 PM
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Re: Any suggestions on ADD working and inner thoughts?

Do they offer any sort of amphetamines in Canada?
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Old 11-10-18, 04:07 PM
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Re: Any suggestions on ADD working and inner thoughts?

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Do they offer any sort of amphetamines in Canada?
Yep I believe so. I think the Concerta I'm taking is an amphetamine too.
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Old 11-10-18, 05:11 PM
kilted_scotsman kilted_scotsman is offline
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Re: Any suggestions on ADD working and inner thoughts?

Biphentin is Methylphenidate Hydrochloride, Concerta is Methylphenidate Hydrochloride.

If you felt a difference when the Biphentin dosage was increased and were already titrated up to max dose of Biphentin, then switched to Concerta, it's hardly surprising it's not having an effect. You would need to switch to a non Methylphenidate med to feel a difference.

Med tolerance is a problem with stimulant meds.... which is why it's best to use the window of opportunity given when titrating up to put non-med coping strategies in place. Depending solely on the meds is risky..... you could end up like me years down the line, contra-indicated for meds because of other health issues.

If you were tested for autism, and your child has it, and you are diagnosed with ADHD, it is very likely you are on the spectrum.... or "Neuro-Diverse".

The "way of thinking" in ND individuals is atypical.....this is unique to the individual, and is frustratingly difficult to pin down as the language we use to describe our inner world in NT. Likewise most psych's, counsellors, GP's etc at NT and have no perception of what it is like to perceive the world differently and think differently.

There is an online coach/counsellor in Edinburgh, Scotland who specialises in this stuff. He gave a presentation in Glasgow a few months ago... very interesting.
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Old 11-10-18, 09:33 PM
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Re: Any suggestions on ADD working and inner thoughts?

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Originally Posted by kilted_scotsman View Post
Biphentin is Methylphenidate Hydrochloride, Concerta is Methylphenidate Hydrochloride.

If you felt a difference when the Biphentin dosage was increased and were already titrated up to max dose of Biphentin, then switched to Concerta, it's hardly surprising it's not having an effect. You would need to switch to a non Methylphenidate med to feel a difference.

Med tolerance is a problem with stimulant meds.... which is why it's best to use the window of opportunity given when titrating up to put non-med coping strategies in place. Depending solely on the meds is risky..... you could end up like me years down the line, contra-indicated for meds because of other health issues.

If you were tested for autism, and your child has it, and you are diagnosed with ADHD, it is very likely you are on the spectrum.... or "Neuro-Diverse".

The "way of thinking" in ND individuals is atypical.....this is unique to the individual, and is frustratingly difficult to pin down as the language we use to describe our inner world in NT. Likewise most psych's, counsellors, GP's etc at NT and have no perception of what it is like to perceive the world differently and think differently.

There is an online coach/counsellor in Edinburgh, Scotland who specialises in this stuff. He gave a presentation in Glasgow a few months ago... very interesting.
Interesting. I never knew there was anyway to deal with it outside of medication. I'll have to look onto that, although I'm worried it might be a long process and expensive.

So would my situation be referred to as a "tolerence issue" even though it's never worked for me? And it would be better to try the non-stimulants?

But yeah, now that I think of it, starting concerta never really felt any different compared to whenever the biphentin would get increased. I only really notice a difference now with the concerta when I've missed a day or two by mistake.

Kinda makes me feel like I need a higher dosage. But I know thats not possible and I wouldn't do it anyways unless the doc suggested/prescribed it.

I keep wondering too if they're weight based because I am a bit bigger, but my doc seemed to suggest they are not.

Anyways, thank you for the information :P I'll try to look into all the stuff you mentioned. And regarding the autism, my Mom works in education and I remember her going to a convention or something and coming home convinced that I had asperger. Then all my brothers made fun of me for years lol and now that I am older and my son was diagnosed, then I started thinking about it a lot more seriously.
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Old 11-11-18, 05:08 AM
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Re: Any suggestions on ADD working and inner thoughts?

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Originally Posted by samiejg View Post
Yep I believe so. I think the Concerta I'm taking is an amphetamine too.
The medications you are talking about are not amphetamines. Concerta isnt an ampnetamine. Amphetamines are adderall, vyvanse and dexedrine.
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Old 11-11-18, 08:26 AM
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Re: Any suggestions on ADD working and inner thoughts?

The problem with tolerance is that the effect of the meds becomes less noticeable over time...... the brain effectively compensates for the pharmacological inputs.

There is a beneficial effect, but it reduces over time. You also remember less about how things were before meds..... this triggers anxiety that you are going backwards.

This anxiety can be increased because when you don't take the meds, you can have a crash and the brain ends up worse off than before you took meds because it has compensated.... so the tendency is for anxiety about meds to increase.

It's a pharmacological lock-in.

Combining meds with developing other coping strategies does work.... trouble is there are few professionals who really "get" the ADHD mind.... and this is where the communication bit comes in. Many professionals think that ADHD/ND individuals are a "bit different" but if you read people like Temple Grandin, you'll find we are a LOT different, in ways the NT Psych/Counsellor can't imagine.
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Old 11-12-18, 05:38 AM
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Re: Any suggestions on ADD working and inner thoughts?

The reason I asked about amphetamines was because I thought maybe you should consider trying them.
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Old 11-12-18, 03:30 PM
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Re: Any suggestions on ADD working and inner thoughts?

Thank you both for the help :P

@sarahsweets - I've heard some good (and bad) stuff about adderall. So maybe I'll try asking about it during my next appointment. I'm assuming/hoping there's no problems with taking it as long as it's not being abused.

@kilted_scotsman - Jeez you know a lot about this stuff :P I do stress about trying to figure out if it's actually working or not or if I'm just not noticing it is. My only conclusion though is that it must not be working considering when I've missed a few days it seems to have a better effect. Although I know placebo is a real thing and can mix my brain up along with the "noticing" stuff you talked about.

In regards to the coping and tolerence issues, I'm going to look into it but for now I think I'm going to focus on trying something different.

Just thinking it seems like there's a lot of people who really benefit from taking the meds. So I'm just gonna try to assume there's no placebo or "noticing" issues with me.

Also it sounds like the tolerence is an "over time" issue but for me it was only like 2-3 days after I first started taking the meds that they weren't working (not including whenever the dosage would go up).

But who knows. It's frustrating because I know it could just be in my head. Like previously telling the doc about biphentin not having any effect for me after the first 2-3 days, but then she suggests it's not possible to feel the effects after 2-3 days and that it will take weeks/months. Then now it's been a year on concerta and not working and wants to give it a few more months.

Anyways �� maybe if I push a bit harder I'll have some better luck to try something different. Or maybe I'm just crazy lol
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