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Old 08-07-18, 12:06 AM
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Anyone else diagnosed but not on meds?

I used to be medicated but now I'm not due to other health issues. Over time I've found Ive lost abilities once gained through meds like thinking in a straight line and efficiency.

Anyone else diagnosed who used to take meds but can't anymore?

How are you coping? If you're coping that is..
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Old 08-07-18, 10:39 AM
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Re: Anyone else diagnosed but not on meds?

I was diagnosed around '93, have been on and off meds ever since (due to insurance issues mostly). Three years ago I ended up under the care of a 'psychiatric specialist' center that specializes in numerous issues. In the end I never saw a doctor, only a series of nurses. And due to a growing lack of confidence, ended up leaving. well over a year ago.

I've been looking for a real specialist in my area (Orange County, CA), but have only found sketchy companies that advertise miracle cures, etc.

As for how I handle. I built up a small reserve, so tap into that when I really need to focus. Otherwise I'm kinda lost to the wild. Don't focus all that well, and mostly self-medicate with energy drinks.

It's a real struggle, but have had it with 'professionals' who don't act professional, or don't know enough about the medications they prescribe. Enough with ED issues, or sleep issues, or nervous ticks....
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Old 08-07-18, 10:43 AM
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Re: Anyone else diagnosed but not on meds?

My son was diagnosed shortly after I was, and he tried medication for a little bit but did not like the way it made him feel so he has since chosen to forgo medication and only work on therapy. Well there are times I think medication might help him more than he's willing to believe, I am very proud of the fact that he wants to do this clean and without drugs. Before everybody jumps on me about how I'm being a bad parent for not medicating my child, he's almost 18, this is what he wants, and contrary to what most of us think about medications, he's actually doing really well. His therapist in him work on strategies. Ways of thinking. Ways of reacting to the stresses of the world. He's inspired me, while I still take medication there is definitely a side of me that wants to try to find another way.
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Old 08-07-18, 04:56 PM
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Re: Anyone else diagnosed but not on meds?

hey tudor,

i am off ADHD meds for now until i'm otherwise stable for at least a year. given i was just hospitalised...again...in june...it's going to be a while.

i don't know that i'm coping, but i have a really supportive partner. i don't drive (because i can't do so legally) and i have a tonne of reminders in my phone for my various appointments. i have a housekeeper who comes at least once a week and a nanny who can always help with e.

i also, for my other medications, have something called a pill drill, where you scan the little cup each time you take it. it has an alarm that goes off to remind me to take it and it won't shut off until i scan or if i turn it off on my phone. but i'm always reminded to do it.

years ago i remember redhaired witch talking about using white boards a lot. if i were ok with hanging one in my house, i think i might try that.

hope it helps. x
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Old 08-07-18, 06:12 PM
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Re: Anyone else diagnosed but not on meds?

I recently started taking meds after a two year hiatus.

I wasn't working for most of that time, which made it a bit easier but here are a few things that helped:

1. To do list on my phone: took me forever to find an app I liked and now (new phone) annoyingly I don't remember which one I finally used but that helped a lot. I used to write really quick and trivial things on it orthings,which I'd made a habit of doing anyway for two reasons: 1. To give me a feeling of success and 2. To get me into working mode. (Truth be told I forget to do really silly easy things as well )

2. Lots of exercise

3. Make yourself accountable to someone
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Old 08-07-18, 10:49 PM
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Re: Anyone else diagnosed but not on meds?

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Originally Posted by Fuzzy12 View Post
I recently started taking meds after a two year hiatus.

I wasn't working for most of that time, which made it a bit easier but here are a few things that helped:

1. To do list on my phone: took me forever to find an app I liked and now (new phone) annoyingly I don't remember which one I finally used but that helped a lot. I used to write really quick and trivial things on it orthings,which I'd made a habit of doing anyway for two reasons: 1. To give me a feeling of success and 2. To get me into working mode. (Truth be told I forget to do really silly easy things as well )

2. Lots of exercise

3. Make yourself accountable to someone
I try to do all of those things even when I'm medicated. I don't know how I lived without Google calendar...

Also, I'd like to add :

4. Be accountable to yourself. Don't be ashamed by your condition, own up to who you are and why, educate yourself on your body and what you can do to maximize your potential, and don't just learn how to live with ADHD but thrive because of it.

Mozart. Einstein. Edison. da Vinci. It's widely accepted they were all suffering from attention disorders long before anyone knew how to medicate them, and they obviously figured out how to harness the power contained in their minds. We ALL have that ability locked away in us, it's just a matter of finding the keys.
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Old 08-09-18, 06:12 AM
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Re: Anyone else diagnosed but not on meds?

Great advice thanks everyone!

Exercise is where I'm lacking. I have a really painful shoulder injury atm which is aggravated by fibro too so there goes my coping mechanism.

Also diet hadn't been so great due to pain and stress too.

This week has been better. I'm running a project at work and that has helped me remember who I once was and what I'm capable of. I can still do great things, be organised and methodical off meds.

Also I had to make a.conscious decision not to react to the stress in my life. Not everything deserves a response.

I'm making dinner tonight so that's a step in the right direction too.
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Old 08-09-18, 05:21 PM
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Re: Anyone else diagnosed but not on meds?

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Originally Posted by tudorose View Post
Also I had to make a.conscious decision not to react to the stress in my life. Not everything deserves a response.
That right there is something I wish I did more/better. My psychiatrist is always encouraging me to be satisfied that by trying to raise a compassionate, healthy little girl I'm doing all I can. I feel so impotent in the face of the world though. I need to do better with self care and believe that avoiding triggers is ok, isn't a cop out/sticking my head in the sand.
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Old 08-09-18, 07:49 PM
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Re: Anyone else diagnosed but not on meds?

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Originally Posted by peripatetic View Post
That right there is something I wish I did more/better. My psychiatrist is always encouraging me to be satisfied that by trying to raise a compassionate, healthy little girl I'm doing all I can. I feel so impotent in the face of the world though. I need to do better with self care and believe that avoiding triggers is ok, isn't a cop out/sticking my head in the sand.
I agree with your Dr. 100%. It’s not a cop out at all. It’s self preservation. When your mental health and life is going well and you have the time to try and change the world then please Go For It!

If you don’t take care of yourself, who will? Don’t allow all the wrongs in the world to affect your present jobs or responsibilities. Right now, your little girl needs you which is way more than a full time job and responsibility. Working on your mental health never ends. Avoiding triggers is healthy and OK. You owe it to yourself and your little angel.

I avoid them by burying my head in the sand. I have no sense of guilt or coping out. I just know if I pull my head out of the sand, it will get mowed over by triggers causing anxiety and depression.

It’s been quite beneficial and liberating burying my head in the sand compared to banging it daily against a brick wall. When my head becomes hard enough and healthy enough again, I will try to break down some more brick walls.

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Old 08-10-18, 04:34 AM
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Re: Anyone else diagnosed but not on meds?

I'm trying to either ignoring or come out swinging. Anything except for taking it to heart and sulking!

I've been doing a bit more swinging today. Feels good!
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Old 08-11-18, 04:12 AM
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Re: Anyone else diagnosed but not on meds?

Quote:
Originally Posted by tudorose View Post
I used to be medicated but now I'm not due to other health issues. Over time I've found Ive lost abilities once gained through meds like thinking in a straight line and efficiency. How are you coping?

Anyone else diagnosed who used to take meds but can't anymore?
Hello, have you tried Adderol? (Not Ritalin) Through research, I learned one cannot consume alcohol (ever), or any other downer prescriptions, like sedatives, (beware of others dumping stuff in your drinks, food), which cause ADD/ADHD, ocd, ptsd, anxiety, etc; I was unkowningly drugged, by creepy men. If you don't drink (like me) or consume powdered alcohol ([sedatives], like xanax) like me, or if no one is dumping drugs in your food (like FDA), taking Adderol will make a world of difference, 80 mg, after you get on track, 90-180 days, simply wean yourself off; you must cycle (on/off) all meds or they stop working; dependance. Trust me, not all doctors are smarter than me, most physicians are actually not very smart. Are you currently on any meds, if yes, what did the doctor say it's for? Take care, Noreen

Last edited by namazu; 08-11-18 at 07:16 AM.. Reason: fixed quote tags, edited for insulting language
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Old 08-13-18, 10:33 PM
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Re: Anyone else diagnosed but not on meds?

I am recently diagnosed and just started meds. still haven't found anything i like med wise. we are trying vyvanse now. If this fails then i will probably just go back to no meds and just try to deal with it. I had hoped meds would be a benefit but they just aren't so far. Adderall makes me super emotional and annoyed all the time. the XR adderall keeps me up all night. Literally until 2 or 3 am with no off switch. Instant release only gives me a slight boost. Like chugging an energy drink that quickly fades out. Then I'm super groggy and tired out. Like a junky coming down i guess. The brain fog off meds are horrible. I feel like i couldn't even add 1 + 1. And when people talk to me off meds it's like a peanuts cartoon. They sound distorted and like they are talking a million miles an hour. I can't keep up with a simple convo at all. Some days i regret even bothering to get diagnosed. ADHD feels like another money grab. Meds are stupid expensive. Testing is stupid expensive. I was supposed to have more testing done for learning disabilities but i'm not paying 1600 or more for an "evaluation". The whole thing just feels like a waste of time. I was non medicated for most of my life. It sucked but meds haven't been much relief to me.
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Old 08-14-18, 04:16 AM
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Re: Anyone else diagnosed but not on meds?

Quote:
Originally Posted by Funky1 View Post
My son was diagnosed shortly after I was, and he tried medication for a little bit but did not like the way it made him feel so he has since chosen to forgo medication and only work on therapy. Well there are times I think medication might help him more than he's willing to believe, I am very proud of the fact that he wants to do this clean and without drugs. Before everybody jumps on me about how I'm being a bad parent for not medicating my child, he's almost 18, this is what he wants, and contrary to what most of us think about medications, he's actually doing really well. His therapist in him work on strategies. Ways of thinking. Ways of reacting to the stresses of the world. He's inspired me, while I still take medication there is definitely a side of me that wants to try to find another way.
I can so identify with you. I will say my son was medicated at age 4 and if you read my sticky you will see that it saved his life but...he decided when he was 15 that he didnt want meds anymore. I just plain didnt want them and I will not force my kids to take medication that they are opposed to unless its there absolute well being is at stake. He pulled through and its doing amazing now. Dean's list, interning on a political campaign and working for an international company. More than I ever dreamed for him and I believe he will go places. My girls never tolerated meds and I wish they had because my middle daughter has had a rough time (you can read about that too in parenting if you want) I think meds might have really helped her. But it just was tough for them and it wasnt worth the side effects. Amongst the special ed department when they were classified mother's would ask me what meds they were on and when I said none I faced judgements and comments from these moms.
F**K them and f**k anyone who has something to say about your choice for your son. If your son was a 5 year old with his whole life ahead of him maybe we could be having a different discussion but you have done your best and your best has worked out to be a spectacular kid. F**king good for you!
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