ADD Forums - Attention Deficit Hyperactivity Disorder Support and Information Resources Community  

Go Back   ADD Forums - Attention Deficit Hyperactivity Disorder Support and Information Resources Community > CO-EXISTING CONDITIONS > Other Co-Existing Conditions
Register Blogs FAQ Chat Members List Calendar Donate Gallery Arcade Mark Forums Read

Reply
 
Thread Tools Display Modes
  #1  
Old 03-09-18, 05:40 AM
sarahsweets's Avatar
sarahsweets sarahsweets is online now
Mod-A-holic
 

Join Date: Mar 2011
Location: nj, usa
Posts: 27,663
Thanks: 5,707
Thanked 31,954 Times in 14,768 Posts
sarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond repute
Does anyone see a pain management doctor?

I have to go see one. In the women's section under the thread about the article you can see the brace I have to wear. I have an autoimmune disease causing basal joint arthritis. My hand surgeon thinks I need joint replacement surgery but thinks my age (being young) means I should put it off. The brace was nearly 100$ and while he doesnt sell them, some other places do, I could only afford the one for the bad hand, the left is ok for now. I cant begin to describe the near constant pain I am in or the broken dishes cause I have no grip- the inability to have dexterity in hands, tying shoes, painting nails. Hell, I cant even use a lighter to light my cigarette with my right hand anymore(there's a lot more issues )

I am not allowed to take NSAIDS of any kind (even though I cheat an take aleve) so the swelling is bad too. I can't take trammadol cause of my other medication and I did mistakenly get it prescribed once and it didnt help- and my pharmacist frantically called me and said it should never have gone through. My PCP said I need pain management. She had written me a script to take 1 5mg oxycodone daily as needed and it really helped but I dont know if thats going to keep working and PCP's around here are so scared of getting in trouble that they refer you out. I have had cortizone shots three times in the right hand and twice in the left. I have had median nerve damage repair surgery in both hands (sept and november). What else can be done?

I am not against pain medicine and THANK GOD I have never had an issue with it in the past but is that what pain management doctors do? Its not like I have chronic pain with no real source or evidence or even solution, but Im in limbo now and do not know what to expect. I certainly do not want to medicate the pain away and have that be it. I am going to a practice that is NOT known as pill pushers- nothing shady. I am sure they do offer medicine but they dont even give you an appt until the docs review your records and determine you are a good fit for the office- so the addicts pretty much steer clear. Anyone have anything they can share?
Any tips or advice? I see this Doc on Thursday.
__________________
President of the No F's given society.

I carried a watermelon?
Reply With Quote
  #2  
Old 03-09-18, 07:46 AM
Lash107 Lash107 is offline
Member
 

Join Date: Sep 2016
Location: On a mountain near a library
Posts: 54
Thanks: 144
Thanked 35 Times in 21 Posts
Lash107 is on a distinguished road
Re: Does anyone see a pain management doctor?

I can’t take NSAIDs, either, and my GP said I needed to go on a “pain management protocol.” However, he is handling it rather than sending me to a pain management doctor. Therefore, I can only share my GP experience, but hopefully it will be of some value.

I have chronic pain in my neck and back. I’ve had surgeries and tried non-med treatments. My doctor prescribed me 10mg Percocet and Soma (a muscle relaxer). We started off at 5mg on the Percocet and he later raised it to 10mg. I can take both meds every 4-6 hours.

I signed a “pain contract” stating I would take the meds only as directed, not sell them, etc. I also have to see him every three months for a “med checkup,” where we assess my pain levels. Between appointments, I call his office when it’s getting close to time to refill my meds. (They both require a written prescription and can’t be called in or have refills.) I can swing by the office or they will mail the prescriptions to me.

I’m not pain-free, but my pain level is at an acceptable level for me. He explained the difference between dependency and addiction and said I definitely will develop a tolerance. He is conservative about raising the dosages, but balances the need to control my pain.

He said the overall goal is to manage my pain without me getting “too loopy.” He’s been my GP for twenty years and is very familiar with my back and neck problems (pre and post surgery). I think the level of trust over the years that was established between is why he didn’t refer me out for pain management.

He definitely is conservative with the prescription pad, but won’t leave me in agony, so to speak. He stays up to date on my bipolar and anxiety medications, prescribed by my psychiatrist, and notes any changes during my three month checkup. (I keep my psychiatrist apprised, too.)

I’ve never been asked to take a drug test or bring pills in for pill counts .... but I have heard of pain management clinics requiring that.

I hope this is a bit helpful.
Reply With Quote
  #3  
Old 03-15-18, 05:12 AM
sarahsweets's Avatar
sarahsweets sarahsweets is online now
Mod-A-holic
 

Join Date: Mar 2011
Location: nj, usa
Posts: 27,663
Thanks: 5,707
Thanked 31,954 Times in 14,768 Posts
sarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond repute
Re: Does anyone see a pain management doctor?

I got an appt for a really good neurosciences group that deals with pain and its today at noon. Im hoping there is a solution. Ultimately Id like them to call my hand surgeon and tell him Im not too young for the joint replacement surgery-that its better than pain management. Physical therapy does not help bones and joints if the surgical solution is put on hold (because Im too young??) Im all for the cortizone shots but you can only have so many. I tried accupuncture. I would deal with the pain even but its the lack of dexterity and mobility thats an issue. I break dishes and have a hard time holding a pen. How can I go back to school when thats going on.?
__________________
President of the No F's given society.

I carried a watermelon?
Reply With Quote
Sponsored Links
  #4  
Old 03-15-18, 06:24 AM
Pilgrim Pilgrim is offline
ADDvanced Forum ADDvocate
 

Join Date: May 2013
Location: Australia
Posts: 2,196
Thanks: 4,186
Thanked 1,860 Times in 1,180 Posts
Pilgrim has much to be proud ofPilgrim has much to be proud ofPilgrim has much to be proud ofPilgrim has much to be proud ofPilgrim has much to be proud ofPilgrim has much to be proud ofPilgrim has much to be proud ofPilgrim has much to be proud ofPilgrim has much to be proud of
Re: Does anyone see a pain management doctor?

I have a friend who is experiencing a lot of pain atm. And I really feel for her. Any experiences you can share.
Reply With Quote
  #5  
Old 03-24-18, 03:20 AM
sarahsweets's Avatar
sarahsweets sarahsweets is online now
Mod-A-holic
 

Join Date: Mar 2011
Location: nj, usa
Posts: 27,663
Thanks: 5,707
Thanked 31,954 Times in 14,768 Posts
sarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond repute
Re: Does anyone see a pain management doctor?

Went to the Doc and declined higher dosage opiates. The rescue med I have now is fine but the PCP had asked me to get evaluated I think to cover her butt. The Pain management doctor said he couldnt help me because I wouldnt take a higher dose of pain medicine and that he deals with patients on high doses of pain medicine. I was hoping there were some shots or something I didnt know about. Everything else he suggested I have already done and he understands my limitations with stuff like trammodol and NSAIDS. The actual solution lies with the hand surgeon. I keep hearing that I am so young for the joint replacement surgery but what am I supposed to do? Suffer with immobility, poor dexterity and pain until he decides its time? I have plans to go to school and I cant even hold a pen without taking breaks. I see the hand surgeon in two weeks. My mom is a recovery room nurse and works with him. She told me to tell him that I went to pain management and that they recommended higher dosage narcotics and to tell him that I dont want to do this, so would he recommend the surgery. I cant imagine a doctor saying "no, get on the heavy pain meds Id rather that then do surgery on you". If he says no I guess I need a second opinion. I go back to my primary at the end of April so as long as she is willing to prescribe the low dose "rescue med" I think I can deal with things for now. The upside is the pain management doctor said that he commended me because he has people come into his office all the time demanding pain medicine and hear I was turning down higher pain medicine. Whatever that's worth.
__________________
President of the No F's given society.

I carried a watermelon?
Reply With Quote
  #6  
Old 03-24-18, 09:43 PM
Kunga Dorji's Avatar
Kunga Dorji Kunga Dorji is offline
ADDvanced Forum ADDvocate
 

Join Date: Nov 2008
Location: Australia
Posts: 4,620
Blog Entries: 2
Thanks: 1,592
Thanked 6,121 Times in 2,884 Posts
Kunga Dorji has a reputation beyond reputeKunga Dorji has a reputation beyond reputeKunga Dorji has a reputation beyond reputeKunga Dorji has a reputation beyond reputeKunga Dorji has a reputation beyond reputeKunga Dorji has a reputation beyond reputeKunga Dorji has a reputation beyond reputeKunga Dorji has a reputation beyond reputeKunga Dorji has a reputation beyond reputeKunga Dorji has a reputation beyond reputeKunga Dorji has a reputation beyond repute
Re: Does anyone see a pain management doctor?

I've had chronic back and neck pain for 12 years now, and have finally broken the core of the problem. I expect to have really only minor pain and limitation in the future. That's great, as I did think I would be permanently disabled for work because of he pain and inability to sit still.
It has been very difficult to do though, and taken much trial and error, and expense.

However the real breakthrough came last September when I was invited to a lecture on the management of chronic pain by a specialist functional neurology chiropractor from Pittsburgh (He skyped the lecture to Astralia).

The bottom lines were (and several of the papers had only ben publshed through the 6 months prior to the talk.
1) Chronic pain is handled by a different pathway ( The medial pain matrix) to acute pain (the lateral pain matrix).

Virtually all the receptors for opioids are in the lateral pathway-- so opioids do not have much effect on chronic pain. At last we know why.

2) In chronic pain the overactivity of the c fibres taking slow pain signals from the skin suppresses the activity of cold sensing fibres disrupting the usual inhibitory effect of cold sensation on pain sensation.

3) The chronic pain also has an effect in the anterior cingulate gyrus where attention becomes fixated on pain at the expense of vibration.

4) The above can be remedied by 2 approaches-
One is an attention focussing exercise designed to shift attention between vibration, cold sensation and a neutral surface, by using a complex 3 way metronome like app called a Tone Pacer (if you look it up you can track down someone who can teat you with it).

I was astonished at the effect this exercise had on me. It was not the be all and end all, but it did reduce my pain to the point where I could work with it more effectively- and that opened the way to get much better control.

The second approach was the topical application of rosemary oil to painful areas.
That had me a little skeptical at first- but then we were presented papers that demonstrate that the active ingredients in rosemary and mugwort essential oil: borneol and 1.8-cineole deactivate TRPA1 receptors- (sensors of noxious cold stimuli) and disrupt sensation of chronic pain. Again this has worked very well for me, and I am now at the point where even given the improvement I have had I can see no use at all for analgesics in my chronic pain. They just don't work as well as the above.
__________________

Whenever you see a crowd all rushing in the same direction on any one issue, run in the opposite direction.

There is neither fun nor profit to be had in polishing the brass knobs on a bandwagon.
Nicholas Nasseem Taleb.


Reply With Quote
The Following User Says Thank You to Kunga Dorji For This Useful Post:
aeon (03-25-18)
  #7  
Old 03-25-18, 12:06 AM
finallyfound10's Avatar
finallyfound10 finallyfound10 is offline
ADDvanced Forum ADDvocate
 

Join Date: May 2010
Location: USA
Posts: 1,668
Thanks: 1,517
Thanked 1,555 Times in 856 Posts
finallyfound10 has a reputation beyond reputefinallyfound10 has a reputation beyond reputefinallyfound10 has a reputation beyond reputefinallyfound10 has a reputation beyond reputefinallyfound10 has a reputation beyond reputefinallyfound10 has a reputation beyond reputefinallyfound10 has a reputation beyond reputefinallyfound10 has a reputation beyond reputefinallyfound10 has a reputation beyond reputefinallyfound10 has a reputation beyond reputefinallyfound10 has a reputation beyond repute
Re: Does anyone see a pain management doctor?

I think you should get a second opinion. Yes, you might be "too young" for this surgery but it seems that it is best option. The doc sounds very, very conservative in his approach- which is not bad- but in your case you might have to have the surgery. Maybe try other holistic things as well.
__________________
ADHD-Inattentive, Adjustment Disorder w/Mixed Features of Anxiety and Depression, Dyscalculia (Math disability), Rejection Sensitivity Dysphoria, Adult Child of an Alcoholic.
Strattera 100 mg, Wellbutrin 450 mg XL, Klonopin 0.5 mg as needed.
Brene Brown
Shame derives it's power from being unspeakable.
Shame corrodes the very part of us that believes we are capable of change.
Shame cannot survive being spoken. It can't survive empathy.

Reply With Quote
  #8  
Old 03-25-18, 07:35 AM
TygerSan's Avatar
TygerSan TygerSan is offline
Secret Squirrel!! Moderator
 

Join Date: Sep 2005
Location: Mid Atlantic
Posts: 7,306
Thanks: 7,394
Thanked 13,221 Times in 5,355 Posts
TygerSan has a reputation beyond reputeTygerSan has a reputation beyond reputeTygerSan has a reputation beyond reputeTygerSan has a reputation beyond reputeTygerSan has a reputation beyond reputeTygerSan has a reputation beyond reputeTygerSan has a reputation beyond reputeTygerSan has a reputation beyond reputeTygerSan has a reputation beyond reputeTygerSan has a reputation beyond reputeTygerSan has a reputation beyond repute
Re: Does anyone see a pain management doctor?

((((Hugs))))
I'm sorry the "pain management" doctor couldn't help to manage your pain. Have you asked the surgeon why they are reluctant to operate?


I know a couple of folks who've gone through joint replacement surgery. I'm not a doctor but my understanding about the procedure is that the artificial parts have limited shelf lives. That may be why you're getting the "you're too young" line. They may be concerned that they might be setting you up for a second, more involved surgery 15 years down the line.
__________________
"You don't pass or fail at being a person, dear"
Neil Gaiman

"being lost,/ being crazy maybe/ is not so bad/ if you can be/ that way/ undisturbed."
Charles Bukowski
Reply With Quote
  #9  
Old 03-25-18, 08:34 AM
sarahsweets's Avatar
sarahsweets sarahsweets is online now
Mod-A-holic
 

Join Date: Mar 2011
Location: nj, usa
Posts: 27,663
Thanks: 5,707
Thanked 31,954 Times in 14,768 Posts
sarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond reputesarahsweets has a reputation beyond repute
Re: Does anyone see a pain management doctor?

Quote:
Originally Posted by TygerSan View Post
((((Hugs))))
I'm sorry the "pain management" doctor couldn't help to manage your pain. Have you asked the surgeon why they are reluctant to operate?


I know a couple of folks who've gone through joint replacement surgery. I'm not a doctor but my understanding about the procedure is that the artificial parts have limited shelf lives. That may be why you're getting the "you're too young" line. They may be concerned that they might be setting you up for a second, more involved surgery 15 years down the line.
Thats what Ive heard. The thing is, I want to go back to school and can hardly write without taking breaks. Typing is only good in the morning before I start using my hand alot, Later on there is no way to do it without pain. I see the hand surgeon april 11 I think and I bought the fancy pants brace he wanted me to have and have been wearing it. My mom suggested that I tell him that I went to see a pain management doctor and that they recommend a lifetime of opiates and see what he says. I would be surprised if he would say "sure, opiates forever are the way to go, you are still too young for the surgery."I get it that there is a shelf life on the parts but if I can get 15-20 good years out of it and end up needing it again then so what> I'll get it again. At least I will be able to have a life pain free for many years. Like I said, I have "rescue"pain medicine for dire straits but its the lowest possible dose and I dont see it as a long term solution. Tolerance is almost inevititable and that means more pain medicine. What then? I am not ready to be a lifetime pain management patient. Im only 43 (look older but who gives an f) I am not ready to resign myself as one of the patients that has to go to the doctor once a month and take a pee test to get my opiates. I am more than that. There are plenty of people that have all other things fail and need pain meds no judgement here- i get that. but I dont feel I belong in that category yet. I was hoping there were different shots or something but I have tried literally everything. Even accupuncture.
__________________
President of the No F's given society.

I carried a watermelon?
Reply With Quote
Reply

Bookmarks


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Risperdal NightStar Anti-Psychotics 15 10-01-14 04:13 PM
Issues with stimulants mokeone11 ADDiction & Substance Abuse 2 09-29-12 03:26 PM
Adult AD and I am in pain & old enough to be your mother theloner General Medication Discussion 4 07-19-12 11:08 PM
Physical Pain tolerances adhdwptsd Open Science & Philosophical Discussion 27 07-28-11 01:49 PM
Is my doctor doing what is best for me or what is best for him? FullTimeDE50 General ADD Talk 1 01-23-09 01:09 PM


All times are GMT -4. The time now is 10:49 AM.


Powered by vBulletin® Version 3.7.4
Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
(c) 2003 - 2015 ADD Forums