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Old 05-16-13, 05:53 PM
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Smile Anybody here with ADHD & Migraines,Parkinson's, Essential tremor,etc

I'm wondering if a lot of other people here have ADHD & other neurological diseases/or disorders(.e.g. Migraine,Epilepsy, Multiple Sclerosis, Parkinson's disease,Essential Tremor, Autism, Tourette's syndrome.etc)



As I have been recently diagnosed with both Migraine & Essential tremor by my neurologist. The Migraines actually go back as far as childhood(I'd get them daily as a little boy. I'd associated them with the drug Ritalin & came to despise the medication for it. I realize now(in hindsight) it was most likely not the medication alone, but the stress of class, being bullied, punished,etc that triggered them. They started up again not long after the early symptoms of Polyneuropathy began for me in April of 2011 well before I restarted any ADHD medication or any prescription drug( I only take medication as prescribed & don't do rec drugs of any kind) for that matter.That same month I got a tremor in my left hand & arm but didn't realize it was important until my GP noticed it in February 2012.Eventually I was dx with idiopathic polyneuropathy & Essential tremor.


Essential tremor(I was diagnosed last month) is a degenerative neurological disease of the central nervous system(similar to Parkinson's disease,right down to the surgical treatments.) but without the majority of that illness's other motor features(such as slowness of movement, bradykinesia, & freezing). Also ET unlike PD doesn't usually respond to levodopa or dopamine agonists & is often genetic in origin.

Idiopathic Polyneuropathy is an often progressive or degenerative disease of the peripheral nervous system(similar to multiple sclerosis with no CNS involvement). It's effects are far reaching & attack things like the muscles, blood pressure, heart rate, breathing, digestive system, & so on.

Good news is my eye sights fine my eye doctor says no glaucoma.
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Old 05-16-13, 07:14 PM
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Re: Anybody here with ADHD & Migraines,Parkinson's, Essential tremor,etc

ADHD-C here, inherited Migraine disorder from my dad, may have Autism at
some level as well.

My early Migraines were in the form of visual disturbance (Alice in Wonder-
land syndrome). It was only after reading a book about migraine disorder a
couple of years ago that I realized that's one form of Migraine. I also get
Gut Migraines at times which I didn't associate with the migraine disorder
either. Mine are generally triggered by weather changes.

Rather than visual auras, I have olfactory auras, smelling things that aren't
there. My daughter inherited this as well.

My son-in-law isn't diagnosed but we believe he has ADHD, and developed
Parkinson's at age 40. He's been in some trials for Parkinson's treatment
over the last 11 years, and the meds control the tremors and such pretty well.
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Old 05-16-13, 07:19 PM
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Re: Anybody here with ADHD & Migraines,Parkinson's, Essential tremor,etc

Quote:
Originally Posted by Lunacie View Post
ADHD-C here, inherited Migraine disorder from my dad, may have Autism at
some level as well.

My early Migraines were in the form of visual disturbance (Alice in Wonder-
land syndrome). It was only after reading a book about migraine disorder a
couple of years ago that I realized that's one form of Migraine. I also get
Gut Migraines at times which I didn't associate with the migraine disorder
either. Mine are generally triggered by weather changes.

Rather than visual auras, I have olfactory auras, smelling things that aren't
there. My daughter inherited this as well.

My son-in-law isn't diagnosed but we believe he has ADHD, and developed
Parkinson's at age 40. He's been in some trials for Parkinson's treatment
over the last 11 years, and the meds control the tremors and such pretty well.

I have visual auras myself with Migraines & autonomic dysfunction associated with ether Neuropathy or Essential tremor(possible Parkinson's disease) my neurologist was about to place me on a dopaminergic agent in January but he decided it was best not to.
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Old 05-16-13, 07:29 PM
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Re: Anybody here with ADHD & Migraines,Parkinson's, Essential tremor,etc

I can honestly say that if I suffered from the migraines etc - the migraines alone would be enough for me to turn into a junkie, i'd want demerol and some good add med and i'd accept prayer for healing + laughing yoga + Ho'oponopono and the knowledge that there is no 'cure' or 'end' to any 'struggle' cus it's the struggle itself you find again and again if yer lookin outside yerself for anything real and meaningfully life changing- it's only gonna really come from you ....at some time....if you want it bad enough...if u strive for honesty - like the big kahuna dialogue i post on my signature lol i really love this premise and have always been true to my sun sign Aries...i'm a soldier for the GOOD FIGHT - i've had very interesting dreams ( not too many but the few 'big' ones are doozies) that has convinced me that yep...this is all worth it...a story is shaping...having come full circle...anyway i'm still learning obviously...but i been chippin' away at my own particular quest for as long as i can remember - or when i can remember...meh.
so who's moderating the moderator
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Old 05-16-13, 07:43 PM
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Re: Anybody here with ADHD & Migraines,Parkinson's, Essential tremor,etc

Quote:
Originally Posted by Hyperman87 View Post
I have visual auras myself with Migraines & autonomic dysfunction associated with ether Neuropathy or Essential tremor(possible Parkinson's disease) my neurologist was about to place me on a dopaminergic agent in January but he decided it was best not to.
seriously: grouphug:

i'm a wimpering baby with migraine pain...could not get off a couch to walk a dog - excruciating - hope yours is not as awful as that or as often
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Old 05-16-13, 09:09 PM
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Re: Anybody here with ADHD & Migraines,Parkinson's, Essential tremor,etc

My father has Parkinson's and most likely has ADHD, as well. (That's where I got it from. ADHD and stubby legs - THANKS DAD!!) I was wondering about possible links, too.
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Old 05-16-13, 09:57 PM
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Re: Anybody here with ADHD & Migraines,Parkinson's, Essential tremor,etc

My Grandfather might have had Essential Tremor(However,he was an incredibly severe alcoholic.)I don't drink at all. My mother told me his left hand would shake like mine but everyone always thought it was the DT's from withdrawal. His(My Grandfather's) sister had Alzheimer's disease, My mom's cousin Migraines, I have ADHD, so does my father, My half-Sister(Mom Only) has symptoms of ADHD. Two of her children have been dx with it. Mom's Grandmother had Multiple Sclerosis. Numerous relatives on my dad's side have Epilepsy or Autism.
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Old 05-16-13, 10:05 PM
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Re: Anybody here with ADHD & Migraines,Parkinson's, Essential tremor,etc

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Originally Posted by pellen View Post
My father has Parkinson's and most likely has ADHD, as well. (That's where I got it from. ADHD and stubby legs - THANKS DAD!!) I was wondering about possible links, too.
In my heart I know it's mostly likely Parkinson's disease & when I mentioned it as a possible diagnosis.My Neurologist said yeah, it could be,I would start you on one of the dopamine agonist(s)(.e.g. Sinemet, levodopa, mirapex, requip.) But he told me you don't have signs of cogwheel rigidity.
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Old 05-16-13, 11:50 PM
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Re: Anybody here with ADHD & Migraines,Parkinson's, Essential tremor,etc

Well... where do I even start...

I had bad esotropia (cross-eyed squint) when I was little. It was almost fully corrected with surgery at 7, but it seems to be gradually returning since I first took an SSRI three years ago (I'm 28 now; had to start wearing glasses again). I'm pretty sure I have some form of autism (more about it in [my introduction]). I have extreme 'delayed sleep phase disorder' (clearly inherited from my father). I have episodes of dissociation and random mental confusion which my neurologist says "seem to be of a migrainous nature" (I've never had serious headaches, though). I have permanent 'visual snow' and permanent tinnitus (in other words: visual and auditory "noise", both of which I have always had). I also have autoimmune thyroiditis inherited from my mother (not directly a neurological thing, but related anyway).

I am (semi-formally) diagnosed with ADHD-C. Everything seems to indicate that the diagnosis makes sense (as opposed to clearly bogus diagnoses that I received later, including schizophrenia). I am currently in the process of seeking specific treatment for ADHD. I apparently inherited the mild autism along with inattentive ADHD from my father, and a level of mood instability (and possibly the hyperactivity) from my mother. I have an uncle (father's brother) diagnosed with unspecified schizophrenia, but I have arrived at the conclusion that this "schizophrenia" of his can only be an outdated interpretation of a form of autism (he also has mild mental retardation).

So, recapping...

- [Esotropia]
- [PDD-NOS]
- [DSPD]
- [ADHD-C]
- [Episodes] of [dissociation]
- [Visual snow] + [tinnitus] = [PAWOI]
- [Mood instability]
- [Hashimoto's thyroiditis]
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Old 05-17-13, 12:52 AM
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Re: Anybody here with ADHD & Migraines,Parkinson's, Essential tremor,etc

Autism, migraine, epilepsy (think it's secondary generalised or TLE or both) and possibly bipolar disorder.
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Old 05-17-13, 05:02 AM
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Re: Anybody here with ADHD & Migraines,Parkinson's, Essential tremor,etc

Quote:
Originally Posted by anagram View Post
Well... where do I even start...

I had bad esotropia (cross-eyed squint) when I was little. It was almost fully corrected with surgery at 7, but it seems to be gradually returning since I first took an SSRI three years ago (I'm 28 now; had to start wearing glasses again). I'm pretty sure I have some form of autism (more about it in [my introduction]). I have extreme 'delayed sleep phase disorder' (clearly inherited from my father). I have episodes of dissociation and random mental confusion which my neurologist says "seem to be of a migrainous nature" (I've never had serious headaches, though). I have permanent 'visual snow' and permanent tinnitus (in other words: visual and auditory "noise", both of which I have always had). I also have autoimmune thyroiditis inherited from my mother (not directly a neurological thing, but related anyway).

I am (semi-formally) diagnosed with ADHD-C. Everything seems to indicate that the diagnosis makes sense (as opposed to clearly bogus diagnoses that I received later, including schizophrenia). I am currently in the process of seeking specific treatment for ADHD. I apparently inherited the mild autism along with inattentive ADHD from my father, and a level of mood instability (and possibly the hyperactivity) from my mother. I have an uncle (father's brother) diagnosed with unspecified schizophrenia, but I have arrived at the conclusion that this "schizophrenia" of his can only be an outdated interpretation of a form of autism (he also has mild mental retardation).

So, recapping...

- [Esotropia]
- [PDD-NOS]
- [DSPD]
- [ADHD-C]
- [Episodes] of [dissociation]
- [Visual snow] + [tinnitus] = [PAWOI]
- [Mood instability]
- [Hashimoto's thyroiditis]
Yes, but did you enjoy the play, Mrs. Lincoln?

Sorry, maybe lack of sleep is not a place from which to post. But just, wow.

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Old 05-17-13, 05:28 AM
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Re: Anybody here with ADHD & Migraines,Parkinson's, Essential tremor,etc

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Yes, but did you enjoy the play, Mrs. Lincoln?

Sorry, maybe lack of sleep is not a place from which to post. But just, wow.

May sound like an endless number of conditions, but it's more of a lack of a word to convey the sum of it. I see it all as a single syndrome, even if I am the only person in the world who has it (maybe I am, maybe I'm not).
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Old 05-17-13, 05:51 AM
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Re: Anybody here with ADHD & Migraines,Parkinson's, Essential tremor,etc

ive mentioned fragile x a few times lately, i dont have tunnel vision about it though

the presentation is usually ADHDc social anxiety, autistic behaviors

but it also is known to present with a tremor/ataxia syndrome later in life

http://www.ncbi.nlm.nih.gov/pubmed/23439567
http://www.ncbi.nlm.nih.gov/pubmed/15330685
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Old 05-17-13, 06:00 AM
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Re: Anybody here with ADHD & Migraines,Parkinson's, Essential tremor,etc

and migraines
http://www.ncbi.nlm.nih.gov/pubmed/23373759
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Old 05-17-13, 06:05 AM
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Re: Anybody here with ADHD & Migraines,Parkinson's, Essential tremor,etc

ADHD and diagnosed with chronic migraines.
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