CFS sufferer

[savemenow]

Hello, I am a newly diagnosed CFS sufferer although have suffered with it for nearly 3 yrs... I've been refered to the sleep specialists at hospital... can anyone tell me what this involves? also does anyone know of any support groups for CFS within the UK, preferably bristol area.
help appreciated...
savemenow xxxx

[QueensU_girl]

You go in for an overnight sleep study. They hook you up to monitors.

Many ADDers/FMSers/CFSers/RLSers, etc, have sleep disorders. And some of the disorders overlap.

For example, ADDers fall asleep during the day... due to poor quality/fragmented sleep, which causes sleep deprivation.

Chronic sleep deprivation causes fatigue/daytime sleepiness.

Good sleep is needed to consolidate memory. With a sleep disorder, Our memory/concentration/learning gets problems.

Glad to hear you are going for a sleep study. Your Doctor sounds on the ball, and up to date with research.

PS. do you have hypertension or obesity? They are both correlated with sleep disorders, too. (depending on how bad your sleep disorder is.)



Emma

[Andrew]

Originally Posted by savemenow

Hello, I am a newly diagnosed CFS sufferer although have suffered with it for nearly 3 yrs... I've been refered to the sleep specialists at hospital... can anyone tell me what this involves? also does anyone know of any support groups for CFS within the UK, preferably bristol area.
help appreciated...
savemenow xxxx

Try here:

Westcare UK
155 Whiteladies Road,
Bristol,
BS28 2RF.
Tel: 0117 923 9341
Fax:0117 923 9347

http://www.westcareuk.org.uk

This Bristol-based charity offers a range of professional services for M.E./C.F.S sufferers. These include: a clinic in Bristol; a telephone advice and counselling service; counselling consultations at the Bristol clinic; residential week-long rehabilitation courses; as well as work coordinating the National Task Force on M.E./C.F.S.

[barbyma]

Originally Posted by QueensU_girl

For example, ADDers fall asleep during the day... due to poor quality/fragmented sleep, which causes sleep deprivation.

Chronic sleep deprivation causes fatigue/daytime sleepiness.

In addition to sleep deprivation, some ADDers get drowsy due to dopamine deficiencies. I can't read for more than 2 minutes w/o falling asleep unless I'm on meds. Getting quality sleep doesn't help me with this, unfortunately.

[savemenow]

Yeah sleep doesnt help, my sleep is ok... takes me a while to get to sleep, tend to wake up during night, but i try to get my 8 hours sleep.... I find it so hard at college...my eyes are like "close me"! lol Im having to re-do my GCSE's at college too... but it doesnt seem too likely i'll pass them this time either.... it's gettin me down quite alot, does anyone have methods of coping with it?

[savemenow]

Also the westcareuk link doesn't work but thanks anyway xx

[Andrew]

Apparently not. Hopefully some of the links on this site will be helpful to you: http://www.nmec.org.uk/links.htm

[savemenow]

Thanks

[jess]

Hi there ignorant to this thread but is cfs and fybromyalgia common or linked in any way to adhd as its on the site ??(ps sorry for butting in) jess

[zoneout]

Originally Posted by jess

Hi there ignorant to this thread but is cfs and fybromyalgia common or linked in any way to adhd as its on the site ??(ps sorry for butting in) jess

My sister has all 3. I believe there is something to this theory. Will try to get her to take stims and see if they all improve.


Hoping...