Chronic Pain and how it distracts!!

[Spirit]

Anyone else suffer from chronic pain?

I have fibromyalgia and on really bad days I feel so scattered and distracted. I'm going to try some things the doctor told me about to help with the pain and also to help center me. Yoga and water aerobics.

I really hope these help, because days like today, I don't even like to drive.

[Energizer_Bunny]

Spirit,

I have pain in my legs. It was so bad in 1989 that it was hard to drive my car. It felt like my legs were on fire, they burned so much. To me, they even felt hot to the touch. One moment it would be my right leg, then my left, or it could be both, or my lower leg or my upper leg. It was never the same.

They did testing of my nerves on me and found nothing. The doctor (quack) thought it may have been the nerves, then he thought it could have been RLS. Then he thought that it was my birthcontrol pills and wante me to get off of them which would not do because at 26 I did not want children and was not married. Well, he said maybe you should consider having your tubes tied. Quack.............Well, I was 26 years old........so I gave up on that doctor. Muscle releaxers did not work. He even put me on medication that people with parkinsons disease use becuase of something he read in the Enquirer (Did I say quack) The only thing that worked was Darvocet. Well, I went for my yearly and decided to change my birth control pills, and it did help. But to this day, I still have problems with my legs and do not know the cause of it, but it is not as severe as it was in 1989

Could you please explain in more detail what it is like to have fibromyalgia? I have actually wondered if this is going on with my mom, but I dont know enough about it.

Thanks

[LindaMatteson34]

I will have to tell you about Fibromyalgia as I have that too and I am also on Blood pressures meds and Thyroid and Trazodone ok. Any questions please write to me at (e-mail addresses removed by admin.) ok. And I will try to explain what Fibro does to a person as I have that too. Thanks. Linda from Pa

[Tara]

Linda you may want to consider posting it at the forums. It might be helpful to others

[pidderpadder]

Ladies,

You really must go to this site. I finally found someone else too that has similar symptoms. I have fibromyalgia type symptoms, and My chiropractor says that he feel fibro & ADD & Chronic Fatigue are sister syndromes.

Since so many of these arise from a disruption in the autonomic nervous system, I don't find it surprizing. I just think some real research needs to be done about it so that more of us can get help.





http://www.add-fibromyalgia.com/index.html

[LindaMatteson34]

Spirit, this is LindaMatteson34 from ADDFORUMS, but anyways, I have Fibromyalgia and mine started on Jan. 2000 and it s from my shoulders down to my ankles, and I sure didn't know what the symptoms were till David read it in the book about Fibromyalgia, and boy, I sure was hurting, but when I went to the Dr. he told me that I had Lupus so I had to quit the allergy shots for awhile, so then I go back to him (Dr. LaRochelle)male Dr. and he said he didn't say such thing. So at the time, I had one of two choices to either cancel the appt. or reschedule it, by that time, we were about to leave when David started to complain, and then he decided to see me, but at that time, we just chose to not go to him, so we came home and I made a call to a Rhuematologist and sure enough he took me in and found out I had Fibromyalgia through Blood work and this Dr. didn't hesitate to check it out as my husband David had gone to him and then after that I was diagnosed with Fibromyalgia in that yr. of 2000 so now I have Fibrmyalgia and so does my husband David as he's had his for a long time too. Please e-mail at one of the two e-mail address it's ( email addresses removed by admin) , as I would like to hear from you. Thank you very much. Linda from Pa

[Tara]

please do not post your email adresses in the threads. You open yourself to spam and virus attacks. If you would like somebody to contact you privately it can be done through private message or the email option through the forums.

[LindaMatteson34]

Spirit, this is LindaMatteson34 and I would like to let you know that I did reply to the Fibromyalgia and also to say that I did see your daughter on my yahoo and I would have loved to talk to her, but she left and I would let her know that I have a son name Davey who has the same problems but I think she would do alot more for my son who has the ADHD and of course Davey has the learning Disability too and he's now on Wellbutrin 100mg, and Zyprexia 2.5 mg and he's on Strattera as well, and he has to take Allegra for allergies too but he has to take Wellbutrin and Allegra in the morning and one wellbutrin in the afternoon and then the Zyprexia and Strattera at night before he goes to bed. But we are still haveing alittle bit of problems but not much. But as for School starting here in Pa , it starts on August 27th and going into 5th grade this yr. Also, if I may I would like to e-mail you and let you know how things are going for me and our family please. Thank you . Take care and hope to hear from you and your daughter. Thanks again.

Linda Matteson
P.S. As I would like to send you a few pictures of my little family, Thanks again.

[why]

I just read up on Fibromyalgia...for the second time since I found this site I'm in tears. All those years of suffering with my pain and it turns out that it could be all conected - Add/Fibromyalgia. What I'd give to have had a decent doctor lookt at me when I was a child when all of my complaints were summarily dismissed. Then as an adult - once again if I had a decent doctor simply investigate the possibility (of Add/Fibromyalgia) - maybe I could've been treated sooner; maybe I could have finished school, did something meaningful with my life. I am so angry, that at 32 I had to have discovered all of this on my own. At least now I feel I have a chance...

[joanrdtobe]

Okay here are some general dietary guidelines for those with chronic pain stemming from inflammatory/autoimmune diseases such as rheumatoid arthritis, celiac disease, fibromyalgia, chronic fatigue.....Try these ideas for a week: See what happens:

- eliminate all wheat, rye, oats, barley (this means all white bread and cereals with wheat in them which is most of them) as best as you can

- drink tons of water

-limit foods with simple sugars

-eat at least one fish meal

-avoid (like the plague) all MSG (monosodium glutamate)....

-eliminate all dairy products

If you try this, please let me know what happens.....

[Energizer_Bunny]

Joan

Could you please explain exactly what some sample foods that consists of

MSG (monosodium glutamate)....

[joanrdtobe]

Yes, will check...but for the MOST part...I suggest stay OUT of Chinese restaurants...and you will do fine Energizer....

But let me check what other regular store-bought foods have MSG naturally in them and get back to this thread....

[Andrew]

Found this info on the web...

HIDDEN SOURCES OF MSG
June 1, 1995

Food label descriptors that contain enough MSG to serve as
common MSG-reaction triggers

These ALWAYS contain MSG:

Glutamate
Textured protein
Monosodium glutamate
Hydrolyzed protein
Monopotassium glutamate
(any protein that is hydrolyzed)
Glutamic acid
Yeast extract
Calcium caseinate
Yeast food
Sodium caseinate
Autolyzed yeast
Gelatin
Yeast nutrient

These very OFTEN contain MSG:
Malt extract
Flavors(s) & Flavoring(s)
Malt flavoring
Natural flavor(s) & flavoring(s)
Barley malt
Natural pork flavoring
Bouillon
Natural beef flavoring
Stock
Natural chicken flavoring
Broth
Seasonings (the word "seasonings")
Carrageenan
Soy sauce
Maltodextrin
Soy sauce extract
Whey protein
Soy protein
Whey protein isolate
Soy protein isolate
Whey protein concentrate
Soy protein concentrate
Pectin
anything Protein fortified
anything Enzyme modified

These can be used to CREATE MSG:
Protease enzymes
Protease
Fungal protease
Enzymes

Hidden MSG is not limited to use in food. MSG sensitive people have reported reactions to soaps, shampoos, hair conditioners, and cosmetics that contain hidden MSG. The most obvious common hiding places are in ingredients called "hydrolyzed protein" and "amino acids."

Drinks, candy, and chewing gum are also potential sources of hidden MSG. Also, aspartic acid, found in aspartame (NutraSweet) ordinarily causes MSG type reactions in MSG sensitive people. Aspartame is found in some medications. Check with your pharmacist.

Binders and fillers for medications, nutrients, and supplements, both prescription and non-prescription, including enteral feeding materials and some fluids administered intravenously in hospitals, may contain MSG.

Reactions to MSG are dose related, i.e., some people react to even very small amounts of MSG while others usually only react to relatively more. MSG-induced reactions may occur immediately after contact or after as much as 48 hours.

There are additional ingredients that appear to cause MSG reactions in ACUTELY sensitive people. A list is available for those interested.

Truth in Labeling Campaign (TLC) PO Box 2532 Darien, IL 60561

[joanrdtobe]

Thanks Andrew.....Sure saved me a lot of time Well there ya have it Energizer....

Now don't go nuts reading labels....Check the first, say, three ingredients of a label....(ingredients are listed in order of quantity of ingredients, from most to least)....If one of the above isn't one of the first three, it's okay....

Most of the ingredients above you will find in breads, cakes, cookies, and PROCESSED foods....Others you will find in fast food restaurants.....Others you will find in soy products....

So what's the best "diet" overall (I hate the word "diet"):

fresh fruits (WASH THEM WELL) and cooked veggies (raw okay just wash well)......use 100% juices

Salmon, tuna, mackeral, swordfish

Lean chicken and beef

Baked potatos, barley, corn, couscous, brown rice, popcorn, tapioca okay, chocolate okay just sugar - free

Go to Health Food stores for wheat free cereals....OR if it says "gluten free", it's fine....

Yogurt, although dairy is tolerated by some.....

Tons of water.....

[Energizer_Bunny]

Thank you all so much. I actually have wondered if I have it. I have had problems with my legs for over 12 years now. The EMG showed up negative.....but I am on my way to an ortho doc for a bulging disc in my back......I will talk to him for starters.

Thanks everyone.....